Does anyone have a preteen with a mechanical heart valve?
My grandson is 12 and needs a 5th open heart surgery. He was born with truncus arteriosis. ...Read more
Does anyone have a preteen with a mechanical heart valve?
My grandson is 12 and needs a 5th open heart surgery. He was born with truncus arteriosis. His last surgery was 5 years ago. Now, his parents are faced with the decision for either a mechanical aortic valve, which could take some fun out of his life and add trauma of frequent blood sticks, no bicycle riding to his active lifestyle, or 2) repair the aortic valve, which would mean he would need another surgery (#6) when he's a teenager to put a mechanical valve in at that point.
Any advice? He's got a great surgeon and cardiac team at Randall childrens hospital in Portland, Oregon, but we're sick with worry that we might make the wrong decision and carry lifelong regrets.
Thank you so much.
Adam Pick Hi Nancy, I don't know of a specific doctor at Randall Children's Hospital. But, here is a story abo ... Read more
Adam Pick Hi Nancy, I don't know of a specific doctor at Randall Children's Hospital. But, here is a story about a mechanical valve that might be of interest to you. https://www.youtube.com/watch?v=J1yHpkIrGfY
Sadie Rutenberg is 3-year-old who likes the color pink and loves penguins. Sheâs happy, spunky and very friendly. But Sadie isnât like most children her age ...
Learn critical new research for the safety of the On-X Aortic Mechanical Heart Valve Replacement at Lower INR from Dr. Marc Gerdisch, leading heart surgeon.
Nancy Irland Thank you. This is the one the doctor's are recommending.
Anna Ma I don’t have enough knowledge or research on this, but I thought Ross was initially developed for y ... Read more
Anna Ma I don’t have enough knowledge or research on this, but I thought Ross was initially developed for young patients?
What's the best valve replacement for a twelve-year-old child?
susan harris I’m not qualified to answer your question but…there are lots of videos and info here. And people ... Read more
susan harris I’m not qualified to answer your question but…there are lots of videos and info here. And people can tell you the leading surgeons if you want a second opinion. There are some folks like you and I who have put children (my son was 5) thru OHS and valve replacements. And some young adults here too that are so insightful and amazing. What I can tell you is that when you hit those days when you can’t breathe and don’t know where to turn, there are amazing, caring friends here to pick you up!
I am from: Battle Ground
My grandson is 12 and needs a 5th open heart surgery. He was born with truncus arteriosis. ...Read more
My grandson is 12 and needs a 5th open heart surgery. He was born with truncus arteriosis. His last surgery was 5 years ago. Now, his parents are faced with the decision for either a mechanical aortic valve, which could take some fun out of his life and add trauma of frequent blood sticks, no bicycle riding to his active lifestyle, or 2) repair the aortic valve, which would mean he would need another surgery (#6) when he's a teenager to put a mechanical valve in at that point.
Any advice? He's got a great surgeon and cardiac team at Randall childrens hospital in Portland, Oregon, but we're sick with worry that we might make the wrong decision and carry lifelong regrets.
Thank you so much.