So it seems I was mistaken on my diagnosis (how do I change it here?) The doctor had actually told it to me over the phone back then and corrected me a couple of days ago - my mitral valve is okay; it's my tricuspid valve that's leaking!
I was happy to confirm that it was mild/trace still. Also, she looked over a copy of the echo I had 5 years ago in UCI and it was the same diagnosis, so it hasn't gotten worse. She chalks up my constant shortness of breath and palpitations to anxiety, but I'm meeting a cardiologist anyway..
I've started looking on the internet but can't find nearly as much info on the tricuspid as in the mitral valve. All I've read is that they usually repair the tricuspid when they go do the repair in the mitral, but I have yet to read anything on just repairing the tricuspid. Oh! Also, it's not due to mitral valve prolapse... it's due to something called Ebstein's Anomaly. Apparently, it's very rare and I was born with it... umm... lucky me? Info on that is even more scarce..
Maybe it's wishful thinking, but I have the feeling I'm not nearly as bad off as I previously thought... I'm not too sure, cuz I can't find as much info. I'll have to bombard the cardiologist with my questions in 2 weeks. :) Let's see what he says!
My name is Maria, I'm 32 years old. I've always known I had a heart murmur, but my doctors told me it was not a big deal. During a trip to San Francisco, I had severe palpitations and fatigue and so I went to visit the doc and she said I had mitral regurgitation. She said I shouldn't worry too much about it and that I'd need repair but way down the line.
I'm a very active person who loves working out and playing sports and it frightens me that I might not be able to do these things in the near future. I have recently started having shortness of breath and mild chest pain when I exercise hard. My doctor told me I didn't have to change my routine, but I'm wondering about this. Also, I read that it's usually better to have a valve repair earlier rather than later for a more succesful outcome and longer life expectancy...
Sorry for the long-winded intro... I'm just a mess of emotions right now... annoying crying fits and I also wonder if my shortness of breath is just anxiety. Any advise would be most appreciated...