Hi Heart Valve community! I am in an unusual situation and am hoping to connect with someone who may have been (or is) in my shoes. I was born with Bicuspid ...Read more
Hi Heart Valve community! I am in an unusual situation and am hoping to connect with someone who may have been (or is) in my shoes. I was born with Bicuspid Aortic Valve Stenosis and Coarctation of the Aorta. My valve was repaired when I was 8 years old and the coarctation was also repaired. I am currently in the moderate range for aortic stenosis and have a moderately dilated ascending aorta aneurysm measuring at 4.5cm. My unusual situation is that my husband and I want to start a family and it is highly recommended that I have surgery before I get pregnant. This means I am essentially ‘electing’ to have surgery before my heart is “ready.” My cardiologist predicts that I will need surgery in the next five years based on the trends in my scans, but this decision has still been very difficult for me to make. I am wondering if there are any other women out there who have been in this situation. I would really appreciate the opportunity to connect with someone else who has navigated a similar process. I should have mentioned that I will be having the Ross Procedure, so even better if I can connect with someone who has also had this specific procedure.