Jeanette Daysh - Heart Valve Journal

My Journal

2006 days ago

Hi there. I have an artificial Mitral Valve and take Warafin daily. I am currently working in a developing country where there is lot of Dengue fever . Obviously ...Read more

Hi there. I have an artificial Mitral Valve and take Warafin daily. I am currently working in a developing country where there is lot of Dengue fever . Obviously I do my best not to get bitten by mosquitos carrying this virus - but should I be unfortunate enough to contract it, would if be dangerous to continue taking warafin - as it is a hemorrhagic disease? Anyone had any experience with this?

Marie Myers I looked up 2 articles on Dengue fever. I think the take-away message for me is
if you are living and ... Read more

Marie Myers I looked up 2 articles on Dengue fever. I think the take-away message for me is
if you are living and working in a danger area , you should see your doc at once if you have symptoms like fever and muscle aches. The disease can cause a drop in platelets, so your Coumadin may be changed and INR will be monitored closely .It can be a dangerous disease, but if caught early and managed well, you can recover.

Jeanette Daysh Thanks for that. I have my own testing machine for my INR as there is nowhere here that can test for ... Read more

Jeanette Daysh Thanks for that. I have my own testing machine for my INR as there is nowhere here that can test for it - so I can monitor my levels easily, and yes, I would not be brave if I started to suspect that I may have contracted dengue, and would very quickly be seeking medical help...
Thanks for your research.....

Jeanette Dayshposted a journal

2762 days ago

Rose Madura, Catie B reacted to this

Thanks so much for replies people...it is very reassuring to know that it is not unusual to have these visual disturbances...what a great forum this is!! Lovely ...Read more

Thanks so much for replies people...it is very reassuring to know that it is not unusual to have these visual disturbances...what a great forum this is!! Lovely to be able to talk to people who have the same issues Like

Jeanette Dayshposted an update

2764 days ago

Hi! I am 4 weeks post-op following a Mitral valve replacement and I'm having lots of visual disturbances. Anyone else find these a problem??

Marie Myers I had dozens and dozens of retinal migraines (auras) in the weeks following my surgery for AVR in Mar ... Read more

Marie Myers I had dozens and dozens of retinal migraines (auras) in the weeks following my surgery for AVR in March. I rarely have them now.I have heard the same story from many patients on this site. I asked an ophamologist about it, but he had no explanation for this phenomenon Maybe the stress of surgery or bypass?

Gerald Poulton Hi Jeanette, I was luckier than you, after an aortic valce replacement, I went from getting constant ... Read more

Gerald Poulton Hi Jeanette, I was luckier than you, after an aortic valce replacement, I went from getting constant migranes with the aura and often multiples in a day to almost none, maybe one or two a month. They do say that a side effect of OHS is vision problems but not to get your eyes tested till at least three months as it often reverses with time. So obviously it is another one of those pesky side effects so hang in there and hope for the best, I hope that this helps 👍

Catie B I really hope yours ease. I'm more than a year past valve surgery and still have visual disturbances ... Read more

Catie B I really hope yours ease. I'm more than a year past valve surgery and still have visual disturbances. They can find neither neurological nor ophthalmological reasons. This morning for about three minutes nearly the entire field of vision in my right eye was obscured. I'm sooo grateful, it comes back in minutes.

Rita Savelis Yes. Had some of those. And my eyesight in general went way down. Coincidence? Or just age...?

Marie Myers Good point, Rita. I have never been this old before...

Lisa Hunley I'm 2 weeks post op Mitral Valve repair and I'm having the same issue.

Rose Madura My eye doctor said that my worsening eyesight was due to the amiodarone. He sees it all the time. A ... Read more

Rose Madura My eye doctor said that my worsening eyesight was due to the amiodarone. He sees it all the time. Another reason for using it short term. I from time to time have the little auras as well - but I've had them all my life.

Sophia Ridley Yes, that’s really common. Mine aura migraines are connected to low blood pressure so keep well hyd ... Read more

Sophia Ridley Yes, that’s really common. Mine aura migraines are connected to low blood pressure so keep well hydrated to keep BP normal (beta blockers push it lower). My eyesight is worse post op, but then again it’s probably age!

Pat Bluemel I suffered ocular migraines with aura all my life, and post op had some weird vision stuff and two r ... Read more

Pat Bluemel I suffered ocular migraines with aura all my life, and post op had some weird vision stuff and two really big migraines. After that - nothing. For three years now (knock on wood). I tell everyone I have a cure for their migraines now if they really want to go for it;-). "Just have open heart surgery it all goes away!"

Rita Savelis Alas, my migraines (that I had before OHS) never went away. You're lucky, Pat!