D's Posts

Anyone with restless leg syndrome (RLS) had heart surgery with RLS complications afterward? There is a class of anesthesia drugs that can cause severe reactions of spastic uncontrollable jerking movements as the patient is brought out of anesthesia and remain an issue thereafter. I've read on a couple of cases which were very disturbing but the clinical reports did not address whether the patient knew beforehand that certain drugs were likely to adversely affect the RLS. I have experienced this event after maxiofacial surgery and found the drug family responsible. Some dentists who use those drugs solely have refused me as a patient. Luckily l have a very good mouth surgeon who knows what to use without complicating the RLS. It is a great worry with the length of time required to be under for heart surgery plus l have had a stroke, TIAs and narrowed airways from broncheacteses (sp). Sleep apnea as well. Migraines and vertigo. All possible complicating factors for heart surgery or back as my spine also needs fusing lumbar and thoracic, if possible after the heart. Experiences with such shared would be of great help. A surgeon and anesthesiologist will also look at all of it and recommend procedures. Has anyone had a mitra clip procedure due to complicating issues for open heart surgery?

This photo was made last summer, a month before l was told l needed mitral valve surgery lasting 10-12 hours. Other health issues continue delaying the procedure. I don't understand the nonchalant attitude cardiologists assume when discussing what's left of my life. It's like they're reading the back of a cereal box while eating it's contents. Fearful words when they apply to me and the spoken "we do this every day" fails to reassure all will be good after open heart surgery - that 'critical' findings on an echo report aren't alarming (maybe not to them) rather terminology given to echo readings as interpreted by a radiologist and not alarming at all if you're a doctor. "Critical" findings attached to my name on a medical report is very scary and crushing. There's no guarantee my heart will restart when those small paddles send their restart spark. At home l heard "so let them fix it". It felt cold, indifferent. So l don't talk about it. Am l too sensitive? Today the cardiologist said he wanted another echo done and he'd see me after he knew the echo results. Taken aback a bit, l failed to ask if he heard something indicating my heart was worse. August 12 was the opening for an echo? No. I told them to have my doctor say when he wanted it done instead of accepting the scheduling dept's 1st available and they came back with " he said to see him in 2 months" and someone would call with an echo date. Confused? Concerned about the level of care l get? Absolutely.