Hello friends. I'm so glad a community like this exists. I am posting actually on behalf of my mom. She is 77, about 5 feet tall, and 90 pounds. She's... Read more
Hello friends. I'm so glad a community like this exists. I am posting actually on behalf of my mom. She is 77, about 5 feet tall, and 90 pounds. She's extremely active, loves dancing, gardening, and zipping around town in her new electric car. Unfortunately, she's recently experienced shortness of breath and a few other symptoms and has been diagnosed with severe degenerative MR, with P2 leaflet flail has been referred to surgery.
I actually work in the heart valve space (on the TAVR side) and know what a difference valve repair or replacement can make on a patient, but it is important to me that find the right procedure (and doctor) for my mom.
That said, we just had our consult with her surgeon yesterday and it did not go as hoped. The surgeon only performs mitral repair via full sternotomy and given her age and size, I worry about her recovery. I would like to explore minimally invasive options (mini-thoracotomy) or even robotic assisted surgery and if those do not pan out, a transcatheter option such as Mitraclip. But here's the rub... my mom is part of the Kaiser network in Southern California and I worry that she will not have all options available to her, or surgeons with experience in those less invasive procedures. Will Kaiser be able to offer her a minimally invasive option? If they do not, will Kaiser refer out to another hospital that does?
We will be working all angles, but would love to hear experiences from others that may have gone through the same thing. Thank you!
(below is a picture of my mom and my youngest daughter )