Janea Christensen posted a note for W. that says:
Hi W. Carter,
I have been reading all your posts on INR. I am having a terrible time with my INR. I am 5 months post op. I have never smoked or drank alcohol in my life. I eat very healthy and exercise regularly. I am really struggling with irradic INR. Some of it has to do with me getting an illness and it will spike my INR (Kidney stones did that earlier this month) I have had excessive bleeding events as well, as well as scary-low INR. Do you think it just took time to acclimate to it? I am 40 years old an am very active and have 4 kids and I know I metabolize the drug very quickly. Do I need to become a vit. K NAzi and know how many micrograms of Vit. K are in every bite of salad? I feel like at this rate it is only a matter of time before I experience a life threatening bleeding or clotting event, yet I am trying to do everything right. You seem so positive and optimistic about warfarin. I wish I could share your outlook. RIght now I am floating between fear, despair and definitely regret (valve choice). It has not been an easy road for me and the only friends I have that can fathom what my experience has been like are online. Thanks for reading this!
tom w posted a note for W. that says:
Thanks for the email on the Transform valve. The surgery is going to be through my pectoral muscle. It will use the same biologic valve that requires more sutures. In the future, the hope is that a transcatheter will be better developed and fit inside this valve. I have been going back and forth between this and a mechanical
Claire M Miller posted a note for W. that says:
Just a note to thank you for you positive enforcement. My aortic valve replacement surgery is scheduled for next week October 29th. Stay strong and God bless you
Jean Raber posted a note for W. that says:
You wrote: "I came from a long line of drunks so I can feel your pain. Of course I was just another drunk in that line. Been clean 7 yrs. now, feel great, and don't miss any of the craziness or insanity involved there of. :-)"
Appreciated your note. Yup, there's another "club" nobody wants to belong to, but we don't get to mix our own genetic cocktails, eh? Everybody carries some kind of cross, but this one takes grace, courage and brutal self-honesty just about every single day.