Trevor's Guestbook

Hi Trevor, I hope you’re doing. I am also going to have a valve replacement in the next few weeks by Dr. De Oliveira at UW-Madison. I’ve thoroughly enjoyed reading your posts. Curious if you have any additional suggestions before my big day. Thank you, Jay

Trevor, I am in the process of deciding what type of Valve, mechanical or bovine. I am 51 years old. Surgery is on 28th of December. Think I am going with Bovine. Any comments? jack

Hi Trevor, I\'m glad to hear your doing so well. It\'s encouraging for me, since I go in for the replacement in 2 or 3 weeks. Can you tell me why you got a tissue valve? Most of what I hear is, if your under 60 y.o., they use artificial. I have to make that decision VERY soon. I\'m 57 y.o. Art

Hi Trevor, I hope your recovery continues to go well. This is Mary, the mother of the 19 year old, Danny, who had AVR replacement surgery on 7/1. He is doing well. I just have a few questions for you since you are closest in age to Dan. Did you experience some pain in your neck, shoulders and arms around 1 1/2 to 2 weeks post op? Additionally, what was your walking regimen like at this point. I know you started the re-hab at 3 wks. and I was wondering what your thoughts are on that. Do you continue to go? Dan seems reluctant to go but I know he LOVES to exercise and it would afford him the opportunity to built up his strength safely. Could you give me an idea of some of the exercises he could do safely at home? I know you are a busy young man so when ever you can get back to me is fine. Dan starts back to college on 9/7. I\'m glad he has several more weeks to recover before then. I\'m praying for your continue successful recovery and all your family. I know it is hard on everyone when a family member goes through such a difficult surgery. By the way, my daughter, Aimee, is a cardiac registered nurse. Good luck to you in your schooling. Mary James

Great progress, Trevor! When you get the okay, start Cardiac Rehab. It is the best for lifting our spirits. You are definitely going to be the youngest but please don\'t let the \"older\" cardia patients discourage you. I am 63 and most everyone else was married before I was born. They tease me lots so I can\'t imagine how they will rib you. Keep your smile as it is contagious. Sincerely, Ann Garcia - mechanical mitral valve survivor.

Hey Trevor! Thanks for posting on my guestbook. Great to hear from you! Yeah, it was an awesome trip! I hope your trip to AZ is great! I bought a Timex T5H891 heart rate monitor watch (55.95 at amazon.com). Yes, it does have a strap, which is a bit annoying, but I\'m getting used to it. I\'m really glad I have it. You, my friend, are having a great and inspiring recovery. Praise to God!! Your age and fitness don\'t hurt you any; I\'ve got almost 30 years on you. You are a year younger than my youngest kid. It\'s way cool that Adam featured you on his latest blog update. Great pic! Keep on trucking! Duane

Reply from Trevor to the last message (Tristan\'s mom) - Sorry I had to put a response on here but I couldn\'t find Tristan\'s journal (I\'d REALLY suggest he join its so informative and fun!). The answer to your first question is simply because I myself chose the bovine pericardial aortic valve. From my initial meeting with my surgeon, he emphasized that I would be in control of the major decisions because I was ultimately the one who had to live with the choice. With that said, he educated me extensively on every decision and weighed out pro\'s and con\'s of the choice. I should also mention that I had a whole year to decide. I ultimately made the decision because I did not want to go on Coumadin. In regard to Tristan\'s brothers - their primary physician\'s should be able to pick up on any cardiac changes. I was like Tristan in a way because my bicuspid valve was not found until I was 12. None of my brothers have the condition I have, and actually no one in my whole family tree has had it. Hope this helps!

Hi Trevor, My Son Tristan had heart valve replacement surgery & the Maze Procedure done last November, 1 mo. before he turned 19. He also had Bicuspid Aortic Valve like you, and he had gone into A-Fib twice (Maze Procedure is supposed to stop that from happening again). Tristan\'s Surgeon told him NOT to get a Bovine valve because it would have to be replaced too soon, and to get the On-X mechanical valve instead, even though that means taking blood thinner meds. So I was wondering why your Surgeon put a bovine valve in you instead of a Mechanical valve. Tristan\'s Surgeon said he was too young to have a Bovine valve, because he didn\'t want to have another surgery so soon afterwards. There is an FDA study going on concerning the On-X mechanical valve and Tristan might be able to go off of Warfarin when the study is completed and take Plavix or aspirin instead. One other question, I also have 2 older Sons, aged 22 & 29, and they are worried that they might also have Bicuspid Aortic valve since it\'s a Congenital condition. Do any of your 3 older Brothers also have it? My Sons don\'t want to pay a big insurance deductible to be tested, and they have never had any symptoms of heart problems. But we never found out about Tristan\'s heart condition until he was 17 and went into A-Fib and almost died! Up until then, no Dr. had ever noticed that Tristan had Bicuspid Aortic valve. His valve went from slightly leaking to severely leaking in 1 1/2 yrs. That is so cool that your Surgeon took pics of your valve & the new valve during your heart surgery. Tristan\'s surgeon didn\'t want to take any when Tristan requested them. He recovered so fast, as it seems you are too, and I think it\'s because youth is on your side. My prayers are with you in your continued recovery. I think you should look up Tristan Claflin on Facebook and send him a message. You 2 have so much in common. You can also look at his pics on Facebook of his chest right after surgery in November. Tristan\'s surgery was at St. Francis Hospital in Peoria, and we live in a small town just South of Decatur, Il.