Hello from Spain!
Last year, the Dr. del Nido managed repair the mitral valve to our son. Should avoid mitral valve replacement; the Dr. del Nido is the best ...Read more
Hello from Spain!
Last year, the Dr. del Nido managed repair the mitral valve to our son. Should avoid mitral valve replacement; the Dr. del Nido is the best surgeon in the world to achieve mitral valve repair
Hello from Greece!!your story really touched us since my little girl who is 1 year old needs a mitral valve surgery.We dont know if it is going to be a repair ...Read more
Hello from Greece!!your story really touched us since my little girl who is 1 year old needs a mitral valve surgery.We dont know if it is going to be a repair or replacement.we will have to travel to visit Del Nido to see what is ging to happen .I am so scared,I feel I can move forward in my life and reading stories with heart surgeries either give me courage or disappoint me.I really want to know how your little one is feeling now and if possible I would love to contant you through e mail..
Thank you for sharing this with us ,it really helps..
Sarah Weir I understand how scared you feel. I will help you move forward - I will encourage you. Sarah is perfe ... Read more
Sarah Weir I understand how scared you feel. I will help you move forward - I will encourage you. Sarah is perfect! Dr. Del NIdo saved her life. Boston Children's is the best Hospital on earth. Sarah is back to all her activities. Her beautiful light pink scar - a distant and fading reminder...I know well what you are going through. Please contact me - I will get you through it. thurpam@aol.com
hello sarah,how u feeling know?i am dr Akhtar from pakistan,although i dont know where do u live,but just want to say goodluck and get well son.God Bless u. ...Read more
hello sarah,how u feeling know?i am dr Akhtar from pakistan,although i dont know where do u live,but just want to say goodluck and get well son.God Bless u.
hi, thanks so much for responding so quickly to my post and question. is there a way to email you privately? i dont want to make sarah\'s guestbook all my ...Read more
hi, thanks so much for responding so quickly to my post and question. is there a way to email you privately? i dont want to make sarah\'s guestbook all my questions! i want this to be all about her! can you see the email address that i put in the box below? you could write me there.. I would LOVE to ask you questions about your experience. as you know, this is so rare in little ones, and it is hard to get any information.
Sarah Weir Yes. Of course. I don't see an email address. Can you resend it to me.
hi, i have a question for your mommy and daddy. i am glad your surgery went well sarah! my little girl is also five and was diagnosed with mitral regurgitation ...Read more
hi, i have a question for your mommy and daddy. i am glad your surgery went well sarah! my little girl is also five and was diagnosed with mitral regurgitation 6 months ago. can you tell me how you knew yours was severe? did you just go to a cardiologist appointment because of a heart murmur? i have been so so worried about my little girl. she is also completely asymptomatic. i would love if you could email me back a little more of your story. as you know, this whole experience has been all consuming for me because it was such a complete shock.
Sarah Weir I completely understand what it's like to worry on that level. It was a shock to us too. The pediatri ... Read more
Sarah Weir I completely understand what it's like to worry on that level. It was a shock to us too. The pediatrician heard a heart murmur at Sarah's 4 year check up. We took Sarah to the cardiologist at that time but she would not allow them to complete the exam. Six months later Sarah complained her heart was beating too fast. We took her back to the cardiologist and they did an echo. The echo showed severe mitral regurgitation and an enlarged heart. We took Sarah for a second opinion and the diagnosis was confirmed. At both appointments it was concluded Sarah would need surgery based on the amount of regurgitation. Did the cardiologist who examined your daughter give you any indication about her needing surgery? Is her heart enlarged? How was she diagnosed? When we first found out I was also consumed. As we got closer to surgery I was able to console myself slightly by the statistical success rates for repairs. Everything suggests your daughter will be OK. I wish there was more I could say to reassure you. I used to ask the Doctors over and over again. "How do you know Sarah will be ok?" and they always said with complete certainty - "We just know it. She will be ok." Please write me with any more questions you have. Please do not hesitate. I would love to help you in any way I can. Best Regards, Pam
Oh no, a blip in the recovery, but guess it is not really a complication post op, but an old fashioned bug. Glad you all got through it. Big sister is a sweetie ...Read more
Oh no, a blip in the recovery, but guess it is not really a complication post op, but an old fashioned bug. Glad you all got through it. Big sister is a sweetie and I know she\'ll have her special date again. What a wonderful family you are. God bless you all.
Fran
EVEN THOUGH I DO NOT KNOW YOU, I AM SO HAPPY YOU ARE FEELING BETTER.
I KNOW YOUR MOM AND GRANDPARENTS AND I ALSO KNOW HOW DEAR YOU ARE TO THEM.
YOU HAVE BEEN ...Read more
EVEN THOUGH I DO NOT KNOW YOU, I AM SO HAPPY YOU ARE FEELING BETTER.
I KNOW YOUR MOM AND GRANDPARENTS AND I ALSO KNOW HOW DEAR YOU ARE TO THEM.
YOU HAVE BEEN ULTRA BRAVE AND NO DOUBT HAVE LEARNED SO MUCH ABOUT LIFE AT THIS STAGE IN YOUR LIFE. YOU HAVE OVERCOME AMAZING FACETS OF LIFE ALREADY.
LOVE,
SHEILA EBLOWITZ
MAY YOU HAVE ONLY HEALTH AND HAPPINESS FOREVER.
It\'s amazing what God can do. My father just had bypass, heart valve replacement, and an aneurysm repair on Monday (3-21-11). He is still in ICU but everything ...Read more
It\'s amazing what God can do. My father just had bypass, heart valve replacement, and an aneurysm repair on Monday (3-21-11). He is still in ICU but everything I read on your post sounds about the same for him. Your post really touched my heart. Even though I\'ve never met Sarah I feel like she is a part of my life somehow. I\'m so glad that things went well for her and for the family. I know what it is like because it is still like a whirlwind for us.
Brandy fromTennessee
How beautiful is life!
His words are wonderful, Sarah has more life!
Within days you will realize the importance of what they experienced.
When we read ...Read more
How beautiful is life!
His words are wonderful, Sarah has more life!
Within days you will realize the importance of what they experienced.
When we read his words have become to live our stay in Boston, the most difficult days of our lives.
Thank you very much for sharing your feelings,
Thank you very much to life!
From Spain
Yoli and Javier
Dear Pam,
I was so happy to read your post. Your writings reached up and tugged at my heart. It sent me back to 1988 when my daughter had her open heart surgery. ...Read more
Dear Pam,
I was so happy to read your post. Your writings reached up and tugged at my heart. It sent me back to 1988 when my daughter had her open heart surgery. The experience never truly leaves you, but you move forward and you live. You look at life through different eyes, and you celebrate the milestones with a passion that has been renewed by love, faith, and hope. Last year when I had my open heart surgery, I thought of my daughter. Not one second of what I was going through could ever, ever compare to watching my daughter go through it. You have a beautiful family and it was a privilege to travel on this journey with you! Thank you so much for sharing.
Theresa Callanan
Howell NJ
Although we have never met, I have been so touched by your story. Health is a blessing that many people sometimes take for granted. So glad to hear that your ...Read more
Although we have never met, I have been so touched by your story. Health is a blessing that many people sometimes take for granted. So glad to hear that your family got good news. Sarah must be one special little lady. Much luck and good health always
What a joy to read this last post. It has been an emotional roller coaster ride for me as I read all your entries each day. It is wonderful to realize that ...Read more
What a joy to read this last post. It has been an emotional roller coaster ride for me as I read all your entries each day. It is wonderful to realize that Sarah will go on to live a long, full, life. What a wonderful family you are--God bless. Post every now and then as she recovers, please.
Fran
Todays journal entry made me so happy I got all choked up! Thank you for allowing us to read Sarah\'s progress - Im so thrilled for your beautiful day!!
Sarah, You remind me of my daughter. She had 3 open hearts before the age of 3. My family has gone through everything you have and with the same people at ...Read more
Sarah, You remind me of my daughter. She had 3 open hearts before the age of 3. My family has gone through everything you have and with the same people at children\'s. Dr. Delnido was her surgeon as well. You look so well. I actually found you doing a little research for myself at 38 going for a mitral valve repair. I see you and think about my daughter and say wow if you guy\'s can do it so can i. Thank You so much for showing such strength. On another note my wife an i with my daughter\'s cardiologist Dr. Loyd Feit just started a camp in R.I. for kids with heart disease only one of it\'s kind in the area. Starts in late August. If Your interested you can have your Mom or Dad E-Mail me. We are doing this in name of our daughter Gabrielle. It will be a place where kids with (CHD) can meet other kids and have fun supervised by Doctors and nurse\'s and camp staff. You can ask around at children\'s about my family The Dinsmore\'s they know us well. We were on 8 south.
Sincerely, Jeff Dinsmore(Enjoy your summer)
Just wiped the tears from my face after reading all of your posts. As the father of a little girl I can only imagine the relief you are feeling right now. Stay ...Read more
Just wiped the tears from my face after reading all of your posts. As the father of a little girl I can only imagine the relief you are feeling right now. Stay strong! The \"wild woman\" will prevail!
Go Sarah go!
- David Fanson
Hi Pam
Just cannot imagine what it must be like for a child to have to go through this. You can only do what you can do and someday she will be old enough ...Read more
Hi Pam
Just cannot imagine what it must be like for a child to have to go through this. You can only do what you can do and someday she will be old enough to understand. I\'m so much older and I can only add that it wasn\'t all that long being home that I was able to get back to my life. Time. It just takes a little more time. Prayers.
Cheryl, Ontario
So excited that she is doing so well!! I guess it is time for you to officially fall apart!! You guys both did an amazing job and should be proud of each other ...Read more
So excited that she is doing so well!! I guess it is time for you to officially fall apart!! You guys both did an amazing job and should be proud of each other and the team and partnership and family you represent!! I am so happy for you!!! Thank G-D!!! love Kathy!! xoxo
Wow, what great news. You will have your hands full holding her back and as she gets older she will forget some of the difficult stuff and you know she will ...Read more
Wow, what great news. You will have your hands full holding her back and as she gets older she will forget some of the difficult stuff and you know she will be so much healthier with this repaired heart. You are great parents, no one wants to see their child suffer. Prayers continue for an uneventful full recovery.
Fran
Dear little Sarah
I am so happy to hear how well you are doing and before you know it you will be back at the four seasons with rachel , Mommy and Daddy. I ...Read more
Dear little Sarah
I am so happy to hear how well you are doing and before you know it you will be back at the four seasons with rachel , Mommy and Daddy. I can\'t wait to squeeze, kiss and hug you when I see you this summer. I love you with all my heart.
Much love
Aunt Stacie
Pam,
You & Daniel are so BRAVE….so very COURAGEOUS….
The way you write Sarah\'s story is so moving......one cannot help but feel all the emotions you and ...Read more
Pam,
You & Daniel are so BRAVE….so very COURAGEOUS….
The way you write Sarah\'s story is so moving......one cannot help but feel all the emotions you and your family must be going through. Your words have touched everyone’s heart! I am so very happy that Sarah is on the road to recovery!!! I prayed for her everyday and will continue to do so. Stay strong my childhood friend…..
Love,
Mary Triquet Wrege
xoxo mary triquet wrege
Pam,
Sarah will be herself before you know it. The edge will soften and the memories will morph in a surprisingly positive way over time. I expect that you ...Read more
Pam,
Sarah will be herself before you know it. The edge will soften and the memories will morph in a surprisingly positive way over time. I expect that you and Daniel will have your hands full next week trying to hold her down! Tomorrow will be a better day.
Jeff V.
Prayers for a better day!!! But what could be better than getting through the surgery????? Sarah is young and resistant (in more ways than one!) and will ...Read more
Prayers for a better day!!! But what could be better than getting through the surgery????? Sarah is young and resistant (in more ways than one!) and will do well...... Follow her lead and hang in there!
Do something nice for YOURSELF today!!
Lori Wakat
I am from: New York, New York
