Ralph Mason posted a note for John that says:
John, I got a second opinion at Cleveland Clinic and I am scheduled for Mitral valve repair surgery in May. I heard from Randy who had the surgery in December and he ranked Cleveland a 12 on a scale of 1 to 10, and he is now playing tennis. My brother had a similar good expereince 7 yrs ago, so you might want to get a 2nd opinion at Cleveland Clinic. They take in folks all over the world, so they can handle folks fom out of town. Hope you get some discernment for the proper next step.
Rob Wigley (again) posted a note for John that says:
Re-read your story and journal entry, because I probably guestbooked you too quickly. You have a LOT more going on that most here, and it seems from the myopathy that things look more dire than they do for most. Your "what if" is pretty sad and honest. Is your feeling that the ball was dropped between the death of your old cardiologist and your finding a new one? You have some big decisions to make, I hope you have someone helping you to do this. My hope is that you'll find some information and doctors that can help you make a good decision, and then that the skill of your caregivers and the luck that you deserve will lead to a better future.....easy for me to say, I know.....
Rob Wigley posted a note for John that says:
Cleveland Clinic has a great reputation. Several folks in my rehab group here in Colorado travelled there for their valve surgery. Cleveland and Mayo are about the two best known centers. I had mine done in Dallas, but only because we moved here from there 3 years ago and all my docs are still there, and I don't want to give them up. Scary stuff, isn't it? Lots of folks on this site have really good outcomes, and some have issues after surgery. One thing we all need to remember, and you'll be there after surgery, is that (sorry for all caps here) WE JUST HAD OPEN HEART SURGERY!! It's amazing that we do so well, and that at this point most of what we've had is routine. There's an expectation that everything will just go perfectly, and a lot of times it does, but sometimes it doesn't. I had 3 issues post-surgery that set me back, but all were manageable and have been "fixed". It takes time to recover, in my case they say a year or so before my heart returns to how it was 10 years ago. I hope you get some good second opinions, and I'd tell you to remember that this is YOUR life, so take charge. I didn't notice if you are married or not, but my wife was very helpful in asking questions of docs, taking notes, and telling me later what SHE heard versus what I heard. Best wishes to you, it's scary stuff.......but I'm very happy I got mine done at the tender age of 56.