Home > Community > Patient News Feed > C W

C's Guestbook

Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: November 2, 2023

Send C a Guestbook Below

My Guestbook

Write a Note for C

C W got a guestbook from Sue Maize

2 years ago (May 23, 2024)

Hey CW, we haven't heard from you in a while. I hope that means you're off travelling and living life to the full! 🥰🙌🏻

C W got a guestbook from J Alexander Lassally

2 years ago (January 30, 2024)

Thou shalt not click ! (smile).... Hope it does not continue. I am mindful to watch for this too.

❤️ C W reacted to this

C W

2 years ago (February 1, 2024)

Haha! For me it's just the shoulder rolls…pushing my shoulders back & expanding the chest is not such a good idea yet!! yikes!!!

C W got a guestbook from Max Jam

2 years ago (January 10, 2024)

Hello C, i have bav regurgitation as well. Most of bav issues here seem to be stenotic. How old are you? And how fast was your regurgitation progression. Im 28 diagnosed with mild to moderate regurgitation and very worried :(. im glad you are doing well, with your recovery. regards,... Read more.

C W

2 years ago (January 10, 2024)

Hi, Max. I'm 56. I did not have stenosis… my valve was in good enough shape to be repaired. The problem with my valve was regurgitation, which was moderate, or moderate / severe, depending on which test result I look at. That alone might not have qualified me for surgery.... Read more.

Max Jam

2 years ago (January 10, 2024)

Thank you so much! ignorance is bliss sometimes. I wish i found out later about this. Blessings and congrats!

Max Jam

2 years ago (February 23, 2024)

Hii C, Who did your repair?

C W

2 years ago (February 24, 2024)

Hi Max. My surgeon was Glenn Egrie, California Pacific Medical Foundation Van Ness in San Francisco. He is not in the surgeon index here, though I suppose I could add him. I was referred to him by my cardiologist. They are in the same health care network, work together regularly,... Read more.

Max Jam

2 years ago (February 24, 2024)

Nice, thank you !

Max Jam

2 years ago (February 25, 2024)

Hello C, do you know if tavr is possible after bicuspid repair? Or it needs to be surgery if it fails again?

C W

2 years ago (February 25, 2024)

Sorry, Max —- I do not know the answer to that. I know that my surgeon's hope for me is that I could have TAVR if / when that becomes necessary. Check back with me in 20-30 years (at minimum, I hope!) !!!!

Max Jam

2 years ago (February 25, 2024)

🙏

Garrett Payment

1 year ago (April 17, 2025)

Do any of you have a condition called marfan syndrome? It's a genetic mutation that leaves you predisposed to heart defects, valve problems and aortic dissections, it is hereditary. My grandmother had it, died from complications when my dad was 10, my dad has it is well multiple surgeries. My... Read more.

New Patient Posts