Connie's Guestbook

Hi Connie, Amazing story, thank you for sharing your experience. I am moderate to severe aortic valve stenosis and will soon be climbing my mountain as well . I will read your recovery journal and also take notes on what worked for you. Bless you and good luck . Joan

Hi Connie, Thanks for posting and Happy anniversary to us what a great line:-) After looking at your Guestbook comments, it seems that we are not the only ones with ocular events after surgery. Our sample, albeit of three suggests it might be a little more common. All the best Paul R

Please keep pushing on the vision and memory issues. Cleveland Clinic appears to be in absolute denial on these issues. My cardiologist is with University Hospitals...I got him to put my complaints in the records, at least. J Tefft

Hey Connie T. From Nov 30th. I am trying to get caught up on emails. So I will hold you to the lunch date. I would have come up to Greenville if I knew. Tell your husband gas is down to 2.97 today. Pretty cheap. Cost of living in SC is better than NC or GA.. Maybe that will help and if you are 65 years old, you can homestead your house if you buy. Thats a big plus. Talk later LInda H and Elsie AVR 9/19/12

Hi Connie! I had my first visit to the CC on Nov.20 with Dr. Griffin, All went well. I do need to have surgery soon on the mitral valve, hopefully they can repair both leaflets. The anterior leaflet is the worst, that is harder to repair. The main problem is I have a tumor/mass right beside/behind the mitral valve and it is right where they need to work to fix the mitral valve. The mass is big and they don\'t really know what they are going to do with it, possibly just leaving it alone. They don\'t think it is cancer and I will have to go through more testing so they know what they are dealing with during the surgery. I\'m having problems with the left ventricle too! Dr. Griffin was full of good news!!! Right now CC is working on getting more appts. set up and we will go from there! I\'m very glad I\'m going there and have complete confidence they can take care of the tumor/mass and the mitral valve. The dr. did say my heart was very unique and unusual!!! Just what I always wanted to hear! Please keep sending out updates on how your recovery is going. That helps me soooo very much. Thanks. Teri S.

Hey Connie, Glad to hear from you. So sorry I didnt get to meet you when you came to SC. That would have been awsome. My enjoying rehab also. Although I dont have the 78 crowd. When I go around 1100am is not busy. So I pretty much have all the nurses to myself. I do find it fun but boy Im starting to really get sore and stiff. When I told them I was sore they uped the level and times on me. The nice thing is if I get there a little early its ok. I like that.. The first time I put the heart monitor on I felt like I was wearing a bomb. Well they got the wires inside my shirt and now I feel better,except taking the little tabs off. That kinda hurts as I have so much flab. But now I snap them then stick it on. I just cant believe how I am walking etc and not getting out of breath. So nice :) I have rehab for 36 times which will take me up to Feb. Well until later friend. Mooing all over Linda H and Elsie AVR 9/19/12

Hi Connie- Glad to hear you are doing well. I loved cardiac rehab and stopped 2 wks ago. I was the youngest there as well, but met a lot of great people who had gone thru similar heart episodes as we have. I hope your trip to see your son was all you expected and then some. Our Matty is well. I owe a blog so keep an eye out. Karen Campo

Yay, 12 Weeks!!! San Diego is a great place that\'s for sure. Enjoy the warm weather and time with your son (but let him pamper you also - you deserve it). It\'s good to stay connected with the people we love and feel normal. I\'m hoping the occular events diminish soon for you. I\'ve had a couple of weird bright white lights appearing, but they went away (hope they stay away). Keep on Ticking!! Lee Castro (My Surgery 8/13/12)

Have a wonderful time! So glad you are taking time to feel normal again. I have been going to various doctors now since August 10th while they figured all this out. In the middle I got a call to come have my annual Well Woman exam. I told them I would come in after all this settles down because I just couldn\'t be poked and prodded by one more person! :-)