Hi Austin, we here listening to you and we all care, we all have something in common, my husband was born with a bicuspid aortic valve and only found out at the age of 50, he has no symtoms at present and he is almost in denial, so I have a lot of coaching to do, coincidentially I had a mitral valve replacement done 6 years ago and still ticking, crazy that we both have similar problems but hey we have to be positive and greatful for modern technology, We have children your age so our prayers go out to you si stay strong and positive, doctors are angels in disguise, I guess we lucky things can be done and you definitely not alone. Take care regards Angela SA
Hi Austin, yes we are here, reading and listening. This site is a great resource, just ask your questions a nd many people will answer. We are here to help you in anyway that we can. Good look and you and your parents should do your homework.
Hello austin, i was diagnosed with a heart murmur at 4 but told it was nothing to worry about. Im 49 and just had my bicuspid valve replaced (6 weeks ago) we didnt have echos and scans back in the day so i lived my life in ignorance of my problem. You unfortunately know your problem but that doesnt mean that you cant live a normal life for some years to come. I was managed for 10 years on meds - do you take anything? Do your homework on surgeons there are many excellent ones out there and people travel around the country to have treatment. Good thing is it sounds as if you are not quite there yet. Dont worry, you have youth on your side and when the time comes will come through this with flying colors :)
Hi Austin- from the opposite end of the US (Maine) WELCOME!
I had open heart surgery at 5. Went through high school and college, marriage and children without needing another. I've switched cardiologists many times (due to moves)
My advise: find a cardiologist, go to every annual
Appointment, and always ask for a
Copy of your medical records. Have your
Mom start "your own" chart at home. You may go years without needing intervention so don't let it rule
But, stay on top of it. Sounds
Like you're doing just that. If you have any questions just ask. This site is amazing.
My next Open heart surgery (2nd) in 4 days!
I read your post and that was shocking. There are a lot of good doctors out there. Just research around check them out on internet and that should help. You want to find a doctor that has been around, Sounds like the replacement is still wet behind the ears. Good luck to you and welcome to HVJ. This is a great place to be and it will help you.
Hi Austin. You've located a great resource for when/if you are facing surgery. Drop a note here every now and then letting us know how it is going. There's a lot of experience here dealing with heart surgery and getting through it so don't hesitate to ask questions when the need arises. In the meantime, hope you land a new cardiologist who'll keep good tabs on you and give you the straight scoop. Take care -- DVB