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Honea Path, South Carolina,
Aortic Stenosis and aneursym
The Patient's Guide
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PrayersI just wanted to take this moment to thank everyone for all their prayers for my Uncle. Last night he went to be with God his brothers and sisters and parents. He was the last of my Dads family.
Happy Fall to everyoneI haven't been on here very much as everything is pretty much back to normal now. I am still having a little of the nerve pain, but I have changed my way of sleeping from the right side to the left. I think it is helping a little. My doctor said it take a long time to get all of those nerves and muscles back in shape. And considering I had two scars well I guess that's why.
Happy Birthday ElsieWell here it is, my 1st birthday with Elsie tomorrow. Just can't believe this year has gone by so fast and so healthy. Thank you God.
Having fun on new computer and catching upHi All, Well I can't believe my first year is coming up very soon. Just the other day I was thinking just what and how I was feeling a year ago and how my life has changed for the better.
I'm still aroundHi y'all, It seems I wasn't the only one with a bad heart. My computer died of coronary artery disease It had a very slow death. I only thing I can do on it is play solitare( which is ok, keeps the brain going) and print things on it. May it rest in peace. Now I'm trying to figure out the new one.
Ready to start anew.Hi All, Time is getting away from me. I still read some of the posts here and haven't forgotten anyone. I still have everyone in my prayers for a good recovery and the best life ever. But:
Hi AllJust read Sherry blog thought I better add to it. I am 6 months out as you all know. Well I can say life is real good and don't really wish for the old life back. I am enjoying walking and not getting out of breath or wondering if I might pass out Nope dont want any of that back. But I still do have some of the pain. I never thought it would last this long. Its not really bad, I just put up with it and occasionally take a pain pill. Its just the healing process all those little nerves trying to find their counter parts. I think they are really lost. lol. Anyway I wasn't able to go to the YMCA for a week and that is when I was hurting a little more than usual. Yesterday I went for the swimming class and really enjoyed it. It seems like everything changed. I really think I have a cow valve that likes water. The gentle water over me felt good and no hard pounding of Elsie.
Its now 6 months.I can't believe it is now 6 months post opt. How time has flown. Like all of the others I really don't post on here very much but I do try and keep in touch with you.
Boo whooYesterday I just finished up my cardio rehab. I had so much fun there. I had all the challenges right to the end. Two days before the end the treadmill was pushed up to incline of 4 and I made it. Then the last day Tomzara said lets try theellipical. He said just for a minute.ok I couldnt get it started and one step was enough for me. That scared me. I felt like I was riding a horse galloping and I don't go above a trot, plue its been years since I've been on a horse. Well I guess he thought it was for a good laugh at my expense. I was given a nice notebook with a lot of info in it on how to take care of my new heart and a shirt for me and my husband to wear. I will surely miss them but I can go back for maintenance if I want to. Right now I am going to check out the YMCA or curves, as they want me to keep up with this. I plan to as it will help keep my weight down along with walking. Nest month I plan on walking with the docs up in Greenville. Its a start then go shopping at Haywood Mall. Never been there.
A little excerpt from Stress Management ClassInstructions for Life
A Little ScareNot me but my husband. I went to rehab on Fri and all was good. I was setting up for my stress class on Thursday while our friend Rodney is in surgery. The nurse Betty thought I was talking about my husband so I told her this story about him. About1 week ago my husband had a very heay radial arm saw that he decided to move then had chest pains after that. He told me he thought is was a pulled muscle, so I bought it. Well on Friday as we were going out to breakfast with friends, he told me he had another chest pain. So I got a little worried. I told Betty about it and she thought I should have him checked out espically when I told her he had high triglycerides. I told her I would stop by the doctors office to make appointment. He told me to take him right to the ER. Well he got very mad at me but everyone said I did the right thing. He was afraid of having to sit and wait. I know in a hospital just say chest pain, that works then the wait started waiting for all the tests to come back. His EKG came back pretty good but not 100% good. So now he has to have a stress test. Im not telling him its a nucular stress test,, surprise. So all that happens while we are waiting for our friend to come out of surgery. I guess it beats sitting and wondering. I just told him better safe than sorry. He took care of me and now its my turn.
Life at rehabHey to all, Either the world is going to fast or Im slowing down. I prefer the world is going to fast. I was told the other day at rehab that before I leave there I am going to be walking the treadmill while crocheting. Right! I sure will miss it there when it is all over :(
Life is still goodLife is getting more back to normal. Been busy getting all of my New Years resolutions done. Slowly but getting there. Just finished over the half way point of rehab. It keeps getting a little more challenging But I do see the results. I have been doing a level 4 on the new step and when good ole Tomzra pushed me up to a level 5 well that was to much. So I decided to go back to a level 4 and level 5 alternating. That seemed to work. What happened was it got my right knee that I have some arthritus in. So just the other day I broke my step record doing mostly level 5 and it was easy yeah.
Rehab is starting to get challegingHope everyone had a blessed New Year. This year will be much better than last year wondering when I was going to be fixed and feel a lot better. I am amazed at how much I do and don't run out of breath. I am doing really good in rehab. My BP is always different but not bad. I think it is the stress that I live with. I am now up to level 5 on the new step and oh boy. Its now getting a little harder. I just started with the level 5 and I always start out slow but before long I am going faster. Have to watch my right arm with all the problems I have there. They just have me do it without using my arms. What a difference. I didn't realize how much my arms work on it also. I am half way thru it. Just seems like I started. Still have a some pain once in a while. I think it is just everything trying to heal. Dont take pain pills very much. Had my dietary class the other day. It was interesting but the plastic food kinda turned me off lol. Now Im looking forward to the stress management class. Can't wait for that one.
Happy Belated ChristmasSorry I am so late. Life seems to be going faster than I am. I hope every one had a wonderful Christmas. I was enjoying the celebrating with Church ativities, decorating that slowed me down with a little reality check. Another thing that I have been celebrating is that I reached my goal at Weight Watchers. Keep it a secret but I have been enjoying with some goodies of the season. But now I will behave myself, our little secret Connie H. lol.
My heart is hurtingMy heart has been really sad in all the 26 lives that were lost this week. I feel so sorry for all the people in Newtown Ct. God bless them all my thoughts and prayers go out to each one of them. I didnt know I had that many tears.
A funny momentI have slowed down pretty much and have been doing all my crocheted throws finished for my 2 grand daughters for Christmas. When I told them at rehab on Monday that I was sore, he goes and up me on the treadmill from 2 to 2.2 and 18 min and on the new step to level 2. Then on Wed I find out that on the treadmill I am starting a little incline. Told them Im not a mountain climber. Well on Friday I did the new step first and did 1200 plus steps in 20 minutes. Thats a little over 1/2 mile. Well on the treadmill, I get on it, strattle the treadmill to turn on and start speeding it up before I get on the belt. I didnt make it that far thank heaven but I was turning the speed up higher to 2.2 and forgot to take my finger off. Pretty soon I was running whoa. Glad the nurse was there to slow me down, I was just trying to keep up. It was good for a good laugh from all. Then when I took off the little magnet the whole thing came off oops. Wonder what next week has in store. Tune in later for more. Better go get dinner started now.
A Little Bump in the RoadOops I think I really did have surgery in Sept. But everyone kept telling me that I didn't look like it. Well cause my doctor had told me before the surgery that I would be fine for Christmas, thats what I remembered.
One week down for rehabHi All, Well I just completed my first week of cardiac rehab. I really do enjoy it and find it fun, BUT, I am sore. Now the pain and stiffness kick in. Oh boy. They have me walking my 2 laps on the tracks which I really do like. I could just keep going lol. Then I get on the treadmill and then the new step. Of course when i announced I was sore and under a pain med they uped it on me. I started out on 2 on the treadmill and now it is up to 2.2 and 2 minutes longer. When I get off that I feel like I just had one to many. Really dont want to walk very fast if at all. Then off to the new step. Of course that went from level 1 to level 2 up to 20 minutes. Im doing pretty good on it. I did 841 steps in 20 minutes. My heart rate has been around 62 resting and gets up to around 82. The nice thing is it goes right down. It is so nice doing all of this without getting out of breath. I just cant get over it. The good part of all this is I cant really feel Elsie beating hard and loud while doing all of this. I will be so glad when she gets to be normal. I like hearing my heart beat its always a good sign but it could be more normal and not vibrate through my body and keep me awake at night. They say it will come.
Rehab StartsI finally got started with rehab today. Had a little trouble with insurance not being covered HMO. But finally got that all settled for somplace that is a little closer to me.I will be going thru Feb 9th. I really did enjoy it as I have never been on any of this equipment.. Had to start off with an EKG.Of course that came out perfect. Then it was off to the track and walking. I did 4 laps in 6 minutes. I think it was due to all the walking I did before surgery. It was so nice walking and not running out of breath. I could have just kept walking. Then it was off the the new step machine for 14 minutes. Well I was on level 1 and it can just stay right there. It was interesting showing the calories you were using. So no wonder you get hungry after this is all over with. Then it was to a tread mill. That was weird as I have never been on that either. Cause I walked on the track a little faster the treadmill got pushed a little faster after I got use to it. Then he started to slow it down as time was about up and I was trying to make it go faster. Well needless to say after getting off that I felt a little wierd, like I had one to many. Then it was back to the track to walk slowly for a cool down. I did just that. So this time I had fun. Now when it gets harder I will let you know just how much fun it still is lol. I will be going on Mon Wed and Thurs. They wanted me to start on Mon Tues and Wed this week but I thought of Sherry and said no thank you. So I am done for the week. Hopfully this is going to help Elsie from pounding so hard. I love hearing my heart working but the volume could be turned down some.
Well its 2 months and all is still goodHey Ya'all, Been busy getting XChristmas projects done and getting back to normal. I keep doing little things around the house.
I'm still aroundI guess things are starting to feel more normal now. Im driving around on short trips and shopping better without the electric cart. Even made myself empty the grocery cart. Felt good after I made it.
Getting ready for the next stepI happily pass the torch of fame onto you Sherry. And thanks Adam for the fame. I hope Sherry is ok.
Im slipping, life is coming backHey'yall. A few days have slipped by and I havent even been on the computer at all. Shame on me. Well here is the latest.Well guess I have been busy following doctors orders. I tried driving on Friday to town and found it to be very uncomfortable. Its cause I had my pillow in front and the seat belt kept wanting to slip around. Not fun. Think I might just put that off for a while longer as long as Nurse Frank will hold out on me. This weekend we went to the festival in town. My husband is on 7th heaven as he meant the young Elvis from Honea Path. It was all over the thank you thing. So now we have to go to his show next month and sit in front with his parents to make sure Elvis says "Thank you thank very much". He had a real good time and thats all hes talking about now. Then the next morning the older Elvis was there and of course we were there. This time we walked all over and I did pretty good, but by the time we were ending that I was getting a little shaky. He caught me wobbling around and wondered if I was ok. Just tired. The longest walk I have done, but I had to do it. Of course that night we had to go back. I think that was a mistake to many people and I got very nervous. Today didnt do much of anything after all of that. What was even better I did all of that with no pain pill yeah. But last night I did take one and got all the way to afternoon today.
My one month anniversary. How time flies :)Well here it is. Tomorrow makes one month since I got my heart all fixed up by the most wonderful doctor, Dr Mazaraz (alias Dr Yum Yum) and Dr Dennis. I also have to say that my cardio doctor, Dr Bittrick for putting me into this whirlwind. and I should also say Dr Casey for noticing the swishing sounds going on and paying attention to my family history. Thanks to all. I also have to thank St Francis Hospital in Greenville SC. They all were so wonderful there. For having OHS I was having a good time in a weird sort of way. I enjoyed all of the nurses. It is a wonderful hospital and I would recomment it to any one.
Three weeks just slipped by WowHey all, Cant believe I missed the 3 week mark on here. What can I say I guess life is good. Stephanie called and told me of what she is facing in the near future. That didnt go over to well with someone just recovering from OHS. If you dont know At age 29 she had a mechanical valve put in and now takes comadian. Now she is facing a hysterectomy very soon and that kinda sent my BP up to 150/? Well on the 11th I saw Dr Bittrick. He said I was doing great and the vacation of no blood pressure medicine was nice. haha. Now I take Bystolic 10 mg once a day. It looks like it might be working. I worry about everything anyway. Stephanie and I are pretty close and now her daughter says we are twins cause we have the same scar except mine is bigger. I also asked the doctor what the 3 inch one on my right side was and he didnt know so now I am really curious as to what went on in that OR for 51/2 hours that day. From day one everyone says I have such good color and you would never know I just had surgery. Now I wonder what I really looked like before surgery. lol.
Some good info here for all the ladies out thereNurse was here today and continues to say Im doing great. This time I had a few questions. I asked her about sleeping in bed at night and how to get up. She told me but with Frank being on the other end of house could be a problem. We will have to discuss that. The recliner is very comfortable but 2 times it has held me hostage and couldnt get the bottom to go in. I can get out of it now real easy as it is a rocking recliner. So I know I am getting stronger.
15 days and all is goodLets see I missed a couple of days. Monday my visiing nurse said it was ok to start getting out a little bit. So on Tuesday my first baby step was to Weight Watchers. Everyone was surprised to see me there. I really enjoyed it and seeing everyone. Althought that was the first time out and I think I was a ittle up tight. While sitting at the meeting I got a little dizzy and scared. I might be that I was hungry. But I know not to eat and then get on a scale lol. Right after the meeting we stopped at KFC. It was good but still not to par. Couldnt finish dinner. I was pretty worn out when I got home but made the first move and felt good about that. The next day Wed. we had to go to Greenwood to refill medicine. We stayed and waited for it as I thought it might be a little better. Good choice. Then we went to Lowes as a few things in one bathroom decided to brake. Everything brakes all at the wrong time. Go I got the good ole electric cart and was having a good time. On the way home I had to stop at Family Dollar to pick up some cards. I even walked there from the grocery store and that was about the end of the line. Got my cards and pretty much lost it in line. Had to stand around and wait for people to check out and they were taking so much time in doing it. She knew I was a little ticked. Any way manage to get back to the car. Boy waht a day, but all in all I guess it was probably good for the challenge. Today went to breakfast with friends and just doing nothing for the rest of the day.
They keep saing Im doing great.Im still dong pretty good. Pain is only maybe one out of ten. I can usally go longer than 6 hours. Yesterday I got out and walked around the yard 4 times. I still get pretty tire and out of breath easley. I felt a little surge of energy so thought I would put it to good use by getting. My weight is still going down Yeah. I asked the nurse today if I could get out tomorrow.She said yes. So my first little baby step out will be going back to Weight Watchers. So watch out Connie H. It will be a surprise.
Day NineMy where is the time going? Im sitting around and doing a whole lot and the time is just flying. But I have found that nasty ole mac truck. My right side is getting stiff on me. I just keep working on it. I kinda expected it as that is my bad arm with rotator cuff and a little arthritus.Me and my recliner are doing just fine. I sleep in and sleep the whole night thru. Last night I decided to use my little travel pillow that Linda D suggested and it seemed to work pretty well once I got use to it. Yesterday I was cold or hot or both at the same time. Guess everything is just trying to get back to normal. But the ole emotions kicked in yesterday as well. I was washing my hands and just started crying. Nurse Frank didnt know what was going on. Told him to just put with me its just part of it. My BP was a little high this morning but when the nurse came it was better and I have lost about 1/2 of the 20 pounds I gained. My appetite is still small but that ok. Church has been bringing us all this yummy food and it has been a challenge being on Weight Watchers. Guess that will do it for todays chapter. God is good and for all of you waiting he will be taking real good care of you. Was happy to see Don's post today. I knew he could do it.
Eight days and all is good.Hey all. Yesterday was a little off day. I think it was from coming home and the hour drive to get here the day before. People stopping in a lot and I loved it, but yesterday I was a little on the nauseated side. I have been walking around the house a couple times a day.Going to make it three times today. My church has been bringing dinners to us for two weeks. They are so yummy but my appetite just isnt there yet. my doctor is monitoring my progeress with a machine that goes to his office, so I have to be good lol.
Baby Elsie is 1 week old today.My little cow valve was introduced to me one week ago today. Where did the time go? Its a little slow today stomach a little upset and tired today. Got a nice nap in this morning.
First full day at home.I just read what I put in here last night. Boy the drugs get the typing going to where out the delete key and it is still bad. Its the drugs.lol I slept in my recliner last night pretty good. So far Im not having very much pain at all. Its amazing. Not ever very much neck pain, just a little stiffness in front on both sides. My back right now is doing pretty good as well. If I stretch my back might snap a little so I try and be like a robut. Nurse Frank (my husband) is taking pretty good care of me. Once ina while he gets a little hiper, but he has gone thru a lot too.
I'M HOME Y'ALLIts nice to leave for a while well almost, but its always good to get back home. First of all to thank my loving duaghter Stephanie for taking over for me. Some of her posts were funny. Then when I saw I think in ICU she wrote down some of your and starting crying I was thinking of you all the whole time I was there in the hospital. Then when I just heard last night that I was in the spotlight WOW more tears didn't expect that. I was telling everyone there about HVJ and Adams Book and how wonderful it is to have all of this I am just over whelmed..I do remember Stephanie telling me when I was waking up that it was over and I made it I am mooing.
Latest news on momMom is doing good still. She had a little fluid in her lung but they got it out and she had some little blood clots but they were able to get those out. Shes sore and her neck is bothering her of coarse, They got to remove an IV from her hand tonight since she has one in her neck still. They will take the neck one out tomorrow and put the other one back in her hand. Tomorrow she will get out of ICU and into her new room. When we were there she said she hasnt seen her surgeon at all yet today. We were all surprised. Then not long after Mr. yummy came in to see her so we all got to talk. Mom even told him how she told everyone he was good looking. lol Wow she is brave. I think he was flattered. :)
Mom is on track and doing wellJust called the hospital a little bit ago. They said moms breathing tube is out (which I figured by now). Shes got her first newborn bath and they have had her sitting up a little bit. They are talking about getting her up some more tomorrow and taking some more tubes out in the morning also. The nurse said everythings on track and going well.
News update on my mooing momHi everyone!
Ready for tomorrowMama is just about done and ready for tomorrow, I keep telling her to get to bed because its 10 pm like she did me when I was a kid. I hope she dont regret going to bed late.
I made it to the top getting ready to whiz down the mountainThis is the day before so while I have time I need to put probably this very long post on here.
Ive been tagged and ready to go gulpWhat a day. You all are right pre ops are NO fun. They dont miss a thing. It was only about 3 hours long but I was exhausted. Espically in the dark with light rain.
This is the week, its finally here WowHi All Cant believe it. It is finally here. Last week isn't a week I really want to repeat and Im sure this upcoming week really is a week I won't want to repeat ever. Today wan't to bad. Went to church and I think that is just what I needed. Got a little emotional there today. Had a hard time getting thru the first song as I love it. I don't know everything just seemed so loud and crispy today, Just made me feel so wonderful and I felt some of the stress leave again just like it was when I joined the church last year at this same time. Had so many prayers and hugs, it was awsome. I feel God brought us to SC for a reason and I think he wanted us to move to Honea Path too. He found me a wonderful doctor in Greenwood, Dr Casey, that got things started for me and I think God with the help of Ricki Shine lead me to Dr Bittrick and got the surgeon that I now have at St Francis Hospital in Greenville. I had other plans of where to go but He had his own plans, so I am trusting that all will be good.
Caved INOn Wednesday while I was at my neighbors house chatting away, my husband told me I had a phone call from the hospital with a couple of questions. Well he didn't call back and my mind just went off like why. Did surgery get post poned? Are they moving it up? Well needless to say the cute little butterflies turned into nasty nerve eating moths. I waited all day the next day and no return call. I tried to call there but didn't know his last name oh well so goes. I caved in and hit the little happy pills yesterday. Boy that knocked me for a loop for the rest of the day. Guess they were a little over do. I think I did pretty well holding off on them. Well today the phone rang and it is the hospital, ok. They just wanted to confirm Monday's appointment for pre ops. Told her how could I forget the butterflies have taken over my body. So thought that was the call I was waiting for, wrong. A little later it rang again from the hospital. This time it was Richard, from Wednesday. I told him he made a mess out of my nerves, so he was very sorry. He just wanted to go over pre registration for next Wed. So now I guess it really isn't a bad dream that I have been living with.
It's RealI woke up this morning, early, with the thoughts of oh my right now I will be doing this in one week. Then 800am came and I had those thoughts again gulp. So now the butterflies have woken up. I have been pretty good with the anxiety. Haven't hit the happy pills for a couple of weeks. In fact I have only taken 2 of them. So I guess something in a higher power is working on me. I have just been staying busy getting my house in order for the fall. Now I have been starting up the walks again. But the reality really hit home when Dr. Oz came on and showed his OR. Boy the butterflies really stirred up just seeing that. Then I went to the neighbors for a short time and the hospital called. Dont know what he wanted so now I have to sleep on it all night and wonder what the questions are. With that I found I couldn't eat dinner. So I guess I see what this week is going to be like. Oh boy!
Almost thereWow Im getting closer. Only 7 1/2 days left. Would you believe. Im still feeling not to bad emotionally although I do have minutes. Sunday night couldn't sleep again. I think I have gone thru this surgery 500 times already. Now I want to dream of something else. I guess I know that dreams really do come true, but why couldn't winning the lotto come true. The butterflies are starting to wake up a little now and then, but I keep telling them to watch it I have happy pills to stop that lol. Yes tomorrow I will be thinking that I will be getting all fixed up and getting back to normal. Cant wait.
What a year this has beenHi All, It was one year ago today, on my birthday, that the nurse from my PCP called and wondered if I had a date for a cardio doctor yet. When I said no she made the appointment right then and there. I had asked her what the echo had said. It had Aortic Stenosis on it. Now look at me waiting all this time and its finally here. So I am saying that getting my heart all fixed up is the best birthday present anyone can have. I have learned so much about myself that I didn't really know, like why I couldn't keep up with the group while walking. I always ran out of breath. Why I had a big dizzy spell years ago while doing some contruction on our house thinking it was just the stress of it all. Why I had another dizzy spell when we came to SC to look for a new house. Why I almost passed out several times during the years that I forgot about and the seizure a year ago last August. And probably the biggest thing of all was to find out I was born with this. It just took 66 years to find out all about me. What a mystery I have been. Now for the rest of my life should be woderful and I am so looking forward to being born again. I guess I can say that I will have been blessed to start over again.
A new family memberTonight as I was getting dinner, a new family member showed up. I was getting silver out of the drawer to find a lizard wanting to set the table for me. Talk about a little stress. Well it created me screaming as I was just a little startled, and no stress? Boy did that set my heart racing all over. I knew we had a little guy in the house yesterday but didn't see it, the cat was trying very hard to get the fast moving little creature. But didnt succed.
Alls still goodHad another good day today But had a little reality check. Had to call the insurance company as I had a coupld of questions. Thats when the butterflies started to emerge their nasty little heads again. Just enough to let me know that we are still here. Getting some of my carpets all shampooed was when I come home it will be nice an clean, I hope. Keeps my mind busy.
Seventeen days and counting, who knew?Yesterday was a very good day. We meant up with some old friends that we knew in Pa, another transplant to SC. They invited us to go to the Apple Festival in Hendersonville NC. That was a huge festival think it is the biggest one I have ever been too. Must have walked 2 miles, slowly to crowded. Got some good apple things. As wewere walking trying to find a nice place for lunch, we heard a group called MARK 209 out of Nashville. They just happen to be doing Mine Eyes Have Seen The Coming. I just love that song. I was fighting tears but I looked at my husband and it actually really got to him, very emotional. I think with all he has on his mind that did him in. On our way I stumpled over a curb and was on my way down. Thank heaven I ran into a lady that broke the fall. I was so scared and embaressed If she only knew. Well we had a very nice lunch at a very nice resturant.
Good day but unusual happeningsToday my husband and I went to breakfast. As we were walking in 2 old friends/old neighbors were coming in. So we had a nice conversation with them. Another friend was sitting at the next table. Well my husband went and announced my wife is having surgery on the 19th. ok. Well after we were done and about ready to leave the friends wife told us to sit for a while. I havent talked to her for over a year. Now tonight he came to our house and wanted to talk to me and asked me why I was mad. Told him I have never been mad at anyone and just dont know what happened. Well before I knew he invited us to go to the Apple Festival with them tomorrow. So we will be having some fun. Something happened this morning. Wonder if it is this thing I have going on with me or what. Humm strange, but good.
I HAVE ARRIVEDI saw Dr Mazaras today. He explained what he will do to fix my little achy breaky heart. The ascending aorta is only suppose to be about 2.3 cm Mine is double that. So the aortic valve will be replaced with hopfully a cow valve but hes not sure yet. He will then be replacing the ascending aorta from the base of it and about 3 inches up with a dacron material. Surgery will be taking about 6 hours as it is complicated because of where it all is located. He asked me when I wanted it done and a squeaked out very fast asap. So my big date will be September 19, 2012. Pre ops will be 17th,,at St Francis downtown Hospital in Greenville. He said I would be in ICU for about 24 hours then 3-5 days in step down.
I think I see a little lightI think I am starting to see a little light in all of these Isaac clouds today. The doctors office just called to see if I could be there tomorrow at 1230 instead of 130. Told her sooner the better. She told me I would like Dr Mazaras, he was going to go over everything and what he is going to do along with Dr Dennis and we would be setting a date if I want. Told her sooner the better just want it over with. Im so glad I took a little happy pill earlier cause right now it is getting a work out in keeping those butterflies down. I just went outside to get warm. My husband wondered what I was doing told him I went out to get warm cause it was cold out there and warm inside the house. So it starts. I swear think I will need a little brain cleaning out before this is all over. Talk to ya'll tomorrow.
Latest NewsI just had a call from Dr Dennis. He told me has been looking at my CT scan the last couple of days. He told me the aorta is large. Anuersym is 4.5 cm but appartenly where it is locacated I am now going to have another surgeon besides him to make my little achy breaky heart better. So I now will be meeting Dr Maziars as well. He said if it wasn't fixed now in 4-5 years from now I would be having trouble and doing this all again. Told him he has one shot no more. But it sounds like it is going to be very soon. Im still thinking sometime in Sept. We will be seeing very very soon. Meanwhile I got me some of those good little anxiety pills to help out. All of this finally got to me so need a little help whenever I need it. So as Paul Harvey always says stay tuned for the rest of the story.
CT Done :)Glad that is all over with. My poor little vein in my right arm has just had it. They always pick on it and this time it got blown ouch. I told her she could go to the other side as it doesnt really get picked on to much. She new I was nervous (scared). I tried to be pregnant didnt work cause of my age among other things that would prevent that. Any when she called my name my husband with a smile pointed to me and I pointed to him. Oh well I tried. Took me the the little room and I just wanted to back up turn around and leave, didnt work. She had me lay down and moved it so I could see just where it would go. Told her I was going to keep my eyes shut, although I did peak a little. She strapped me down in case I wanted to run, right with another IV. Anyway I made it had a couple of very big hot flashes and other unpleasant feelings going on. After it was over I told her I thought I was in a washing machine on the spin cycle. Glad that is over now it will probably be for the big one. Most likely find out next week then help me ya'll. As all of these tests keep coming up and I know it is the final ones it is getting a little more real.
Some crazy thoughts and not so crazyNow that I know I am getting a supper dupper cow valve (mercedes) I am wondering. I was born in Denver Colo, but moved from Erie Pa. So I am a southern transplant. Am I going to have a southern cow put in me? If so guess I'll have to start saying ya'll more I guess and hope I dont have a war of the north and south going on inside of me lol. Will have to tell the doctor I want an Angus cow as they don't have alot of fat on them.
Meet the SurgeonOk its here now. I meant the surgeon who will take care of my broken little heart, Dr Hugh Dennis. But firtst he asked me if I had a CT. Tried to get out of it as I get clostaphobia (sp). He said it only takes a few minutes, so I will try it. He wants to see just how big this anuersym is and that was the best way. He said he has been around a long time and has done lots of these and I would live to be 96 years old. He told me it would be an animal valve, then explained a cow valve. Told him good thats what I wanted that where I live we cant have pigs. lol. He said this valve will last me 25 years, wow. Its the new improved one. The rest of my heart is good strong muscle so thats good.
The day of judgment is here.
Still here and still climbingToday has been a pretty good day. But I can feel the butterflies starting to wake up a little as Tues is getting ever so close. I hope I like this surgeon, as I think God acturally picked him out. I have heard he is top and has been around for about 37 years. Thats a start. Got my list prepared for him.
Just another dayYesterday was payday and all of us retired people go shopping etc. Well I was doing real good when we left but at Walmart it hit again. I just ran out of steam. Just felt like if I kept on I might do something to embaress myself. So my husband said to go sit down and he would finish up the shopping. Havent had a spell like probably since last fall or so. I havent been walking very much at all and when I do it is very slow and not the whole way. I have noticed a little cough starting up once in a while and my voice get raspy sometimes. Maybe I talk to much lol. Have just been trying to stay out of this heat. Be glad when summer is gone and it can take all of its humidity with it.
A new day :)It has been a better day today and I feel some better. Yesterday was so tired and some today. Just not doing much of anything oh well it will be there tomorrow. Thats the happy result of being retired lol.
Breakdown number 1Day before yesterday was a bad one I just as soon to forget about, but it happened and probably will again.
UpdateDont know how to start this. Reading all of my journals and all the waiting now it is going so fast my head is spinning. On August 14th I am going to meet a surgeon. His name is Dr Dennis. Being under all the good stuff that day, Dr Bittrick told my husband I was good and all went well get me settled and talk surgeon. Well on my discharge paper it had this Dr's name on it and somehow I thought Dr Bittrick was on vacation. Then I started searching his name wrong he is a surgeon gulp. So now here come the second wave of butterflies. And just to confirm all that I got the papers in the mail today for me to fill out. So I now have started writing all of my questions down.
Heart Cath doneWell today I had the dreaded heart cath. Really I dont think it was as bad ad the nucular stress test though. But maybe its becasue I had a lot of the good stuff. And best part It was done in my wrist.
Good ReadingI just received Adams book today so now I am starting all the good reading. Thanks Adam.
Excerise?Well happy to say I am sleeping better for now, probably not Wed. 400am comes pretty early and I am not a morning person.
Still hanging in hereIts me again.So glad to hear Connie is going so fast in moving around in the hospital.Wow. Thats great. Hope Summer does just as good. Who know maybe we will see her on NY Med.lol.
Starting the climb for real.I wasn't sure what I put in here yesterday, so I just read it and not to bad. whew. My brains feel like mush these last few hours. I was expecting the doctor to say what he did, cause I could feel it. Just not as soon as possible. But now that I think about it, he meant the cath test. Now on the good side of all this is I know God is with me as I really do feel it right now. I guess he is warning me. He knew I would not be able to do the treadmill so thats why I was lying down. Before I left yesteday for the doctors appt. Something told me to drink some water, as I'm not real good with that. I thought I would get that first blood test. I told them I was allergic to needles but it didn't work lol. For the other side of this, we had the worse lightening storm yet. As I think about it, that might be God talking to me and letting me know just how powerful he is and not to forget it. Just leave all of this in his hands. To end the day. Couldn't sleep last night. Will probably be one of many to come. Oh well. All I thought was just thoughts about family etc. and all that has happened and how numb I feel right now, cant believe this is turning the other way now after waiting for so long. Found myself sitting on the front porch at 1am and thinking more about nothing then got up at 630am and finally got dressed and went for my morning walk. But I did slow it down a lot and will keep it at a slower rate for right now. My emotions finally got to me and I let loose. Guess thats ok get rid of water that you all say I will be getting lol. Got to make room lol. Guess I better get some tissues to put in my purse for those occasions.
Its my turn now.Went to Dr Brittrick today and I am now severe. So I know now exactly what everyone has gone through. These emotions are a lot worse than when I started this journey. Glad my neighbor was with me cause she was the one that I relied on as I didn't know what to think. Espically when he said as soon as possible. So on July 26th I have to be at St Francis Hospital in Greenville for the heart cath. I knew he was going to say that but just not as soon as this. So I guess I could say this all hit me just like a ton of bricks. I almost didnt make it out of office feeling like the tears are coming. So far I have managed that but it is right there.
Heres to you ConnieFrom your cheerleader just for you.
My glowing post.:)Hey ya'all, Well I made it thru the next step. The echo went fine, in fact it was more interesting than before, as this time I could watch everything. Cindy the tech was great, in fact all of them were. She explained what I was seeing. So now I know what an anuersym looks like, a big black spot lol. It is still showing the same in size at 4.5. She pointed out the regrugitation like a little flame. That is still good about the same. All in all she thought it is still holding its own from what I told her from the last echo in Sept. So that is good.
Something new for meYesterday I managed to go to my neighbors house before all the heat kicked in, we were sitting there talking and I had her take my BP. Wow it was 99/72. I am so amazed and heart rate was 65 amazing. I decided to take one bp pill away and it worked. Some of the dizziness has gone probably about 95%. I have noticed the butterflies starting to kick in a little as I have the echo and nucular stress test on Thursday. Echo is fine just dont really want to get nuked. lol. After that we will be going to Gray Ga to see my daughter Stephanie and kids. Looking forward to that. She wants to go swimming but my suit is old. I tried it on and it just kinda hangs there. I guess that what happens when you loose 38 pounds.
Some thoughtsHi All, After watching the guy on the tight rope walk across Niagara Falls, while holding my breath and sitting on the edge of the chair, then seeing him on GMA today got me thinking. He had said to focus focus focus. He prayed all the way across. He felt very calm and at piece even though the nerves were there. What got me to thinking was prayer and then to focus on the other side and dont let go. I was thinking that is what all of you out there are always saying. So I guess I could say that could be my mantra is to focus on the other side even now while I am waiting. Although I think my wire goes across the Grand Canyon lol. So all of you out there waiting like me, that is something to focus on. There are so many good storys out there from you that are doing so good. So focus on the other side and our new lives to look forward too. Just saying
Dr. Bittrick is hired.I went to meet the new cardio doctor today. Boy was I ever impressed. My appointment was for 800am and we got there at 745am and at 750am before I even had a chance to sit down and fill out all the paper work, they called me. Never had that happen before. Had an EKG done for starters. We talked told him how I feel and want to feel better. So here is the plan, on July 5th at 830am going for echo again and followed by a nucelar stress test. Ooh cant wait for that one. My husband wanted to know what that was. I told him they will nuke me and tell me to run for it. Hope Im not radio active lol. That will be an all day thing. He better pack a lunch as he is diabetic and I will be starving. Then I will see him again on July 16th he will look at all of my tests previously done and go from there. That is pretty much what I figured. Oh andbp he said I wasnt old lol. My heart rate was at 100 but BP was super good. Never been better. Im impressed. I told him that Ricki Shine recommend him to me so thank you Ricki. I told him I would keep him. So I guess thats it for a couple of weeks. Untill then
STill hereHi Guys, Still here. Last few weeks haven't been to bad but lately have been starting to get a little nauseated. Today was more so. For a while thought I was going to get sick. Went to church and was holding onto everything and bumping into people. I just felt like I was shaking all over. Cant wait to see new doctor, just add this to the list.
Thank you RickiToday I went to my regular doctor. He asked me how it went the last time I saw the cardio doctor. So I told him and said I want a second opinion. I gave him Ricki's doctors name and they made the appointment for me on June 12th and 800am. Actually he is a little closer for me to go to. Thats a plus right there. So I am anxious to meet him. Thanks Ricki.
R.I.P.I have just learned that our friend passed away this morning around 4;30am. My thoughts and prayers go out to Ray Pounds.
Please say some prayers.I just found out that I have a dear friend of the family, that his dad had a massive heart attack last Sat. They are going to try and take him to Madison Wi for a heart transplant. It is the VA doing it which I think its very risky and not going to CC as it is so much closer. But he told me it was the VA. So please send some prayers out for Ray Pounds he sure does need them and family as well. Thanks so much. Hope everyone is having a good day. For the long haul
Hi GuysWell I had a different Easter but a good one. Went to church and it was good. That afternoon my husband and I drove to Clinton SC to have dinner with his brother and wife. Had a real nice dinner and I was real proud of myself as I only ate 1 hush puppy. I love them and usually asked for more. lol. When I got home had a phone call from my neighbor that her Mom (83 years old) was sick all day, and the nurse finally called back and told her to get to ER now. So I took her to Anderson and sat there from 8pm to 4am. She had a heart attack and had 2 stints put in the next day. She is doing good now and getting her energy back.
Still hanging in thereNot much to write about. Nothing has changed lately. I did find out I can't walk to long of a hill going up hill. Coming back got a little light headed. So guess I won't be doing that again for a while anyway. I was also folding some laundry and almost blacked out. Thank heaven I was by the bed and flopped into it until it all passed. Other than that just still waiting.
Hey y'all Its meYeah I'm still hanging in here. Went for my usual walk today. Been keeping up the 2 miles a day. One in the morning and one in the afternoon. Well today I was out and almost done when I encountered my neighbor and her little dog. So I caught up with her and did probably another quarter of a mile going up a little hill. Well coming back we had stopped and I felt a little light headed. Guess I just found out where my limits are. Otherwise I am doing ok. Finished up my throw, I call it the stress relief. Will try and post it on here soon.
Wasw this a little scare tactic?Took my husband to primary doctor today. He is 79 years old and is in better shape than me. Im jealous. Anyway I asked doctor for copy of echo from last Sept. Got it. He was glad I was getting copys and keeping them. I told him about almost passing out while driving and I should be able to stand in church to sing and not feel like I might not make it. I put myself up to a car. Told him my engine light was on. Dont you fix your car when the light comes on or do you wait for it to get worse? I told him I just wanted to feel normal again that waiting 5 months to 5 years is not an option. Asked him what anersym measured at, and it is 4.5 in the middle. He was saying that I could have complications if I had it now, like a stroke etc and if its bad enough could be in hospital for up to 2 weeks. I kinda disagreed with him. Told him about this site and no of this has happened to anyone yet. So I think he was trying to scare me. He said he could hook me up with doctor in Greenwood. I told him I was very seriously thinking of Dr Andrews in CLT. He agreed. I also told him I would wait for echo in July, study the two of them and then send them away to a surgeon. He was saying if they dont think it is bad enough I can live with that, even if he told me to wait 4-5 months.At least I would know something.
A little realty check today.Went to church today feeling fine. While in church started getting those same old pains in my chest where I have always had them. They would stay for a while then come back. So today thought I better just kick back and do nothing. I did tell doctor about them and he didnt know. I have had them for quite a few years, but I think its where all of the problems are. I will tell my reg doctor this week when I take hubby in and let him know. Who know maybe my long haul is going to get a little shorter. Oh well day by day. Hope everyone is having a good day.
Hi to AllJust let you all know Im still hangig around here just cheering everyone on. My husband got bored and said lets go to Anderson, so we did. I stopped in to Ross's
Another little sign of climbing this mountainYesterday I had a real good day. I actually walked for a total of 3 miles, not all at once, but I did it. Today we had to go do taxes and the office was on the second floor. Thats when I had another little realty check. My husband is 79 years old and he did pretty good walking up two flights of stair. Me? I had to take a break in the middle. Now after loosing 24 pounds since October and doing all the walking I have been doing, you think I could do that. Wrong. :( Just something else to journal so when I see my regular doctor I can tell him.
RIP KellySo sorry to hear about Kelly. I was so hoping she would recover and have a wonderful life. It really hit home to me. I lost it and had a big cry also. Kind of a realty check to all of us, and made me start to think. Guess I realize just how close each and everyone of you is, just like a real family. I am so thankful that I have meant each and everyone of you.
Staying away from mailbox.Ok went to get the mail today and there was the copy of bill that really went to insurance/ medicare. The tee test came to $3900.00 ouch. Right now there is about $7400 all tied up into this and I wait for who knows how long.I think I figured it all out. They want you to wait until its almost to late until they put you back together again. In the mean time in 5 months there will another echo done for another $3100. No wonder medicare is running broke. I would just rather get it over and done with and save medicare some money. Ok now I got that off my chest, just had to vent.
A little scare today.We have been having a go round with the DMV to get my husbands drivers license for SC. Well it all finally got resolved and as I am driving him to Belton to get it, I kinda pulled over to the curb a little bit and slowed down. He asked what was wrong. Told him I felt like I was going to pass out. I was a little scared. So I might have to wait to get this over with but I have to put up with who knows what and when. No fun.Good news he is now a resident of SC, getting all prepared then whoa. After I got home I decided to go for walk as it is 72 out today. I told doctor my dog is mad at me cause he told me I could not take her for a walk. Well he said it was ok to do that as long as she didnt take me for a walk. We did real good until we meant the neighbors dog and she wanted to go play. Oops. That was a no no. Guess that is enough for today. Talk to you all later. Hope everybody has a really good day. Stay safe.
Good news for now from 3.5 to 3.7Hi All, Saw Dr Albrecht today and it was good news for right now. He told me to stop worrying that I have time and not to google so much. Told him I am Heart Valve Journaling lol.Anyway I have the results of the tests that I just had done and I will just copy them off. The Ultra sound- good all normal (thanks Dad) the tee test shows:Aortic Valve- The valve is anatomically trileaflet but functionally more bicusped due to fused and calcifc rafa of the left and non coronary cuspa. The leaflete have marded calcification and sclerosis at the tips. Moderate stenosis by planimety measuring 1.1 cm2. Mild to moderate and marked turbulent jet of regurgitation impinging on the anterior mitral leaflet is seen. The LVOT is of normal dimension and the aortic root is dilated above the ainue of Valgalva, measuring up to 4.5 cm. Measures 2.5 at the level of the sinus Valsalva and 3.7 cm at the sinotubalar junclion. Mild amount of latered and immobile plazue si seen 3.5 cm from the incisors. Everything else looks pretty good.
The day of reckoning is hereTomorrow is the day I see Dr Albrecht. I will most likely here all the news. I was so hoping for a devine intervention but don't think that is going to happen. I can wish can't I.? lol Espically when he did tell me it was a little worse and showed some calcification. I don't even know what the ultrasound said yet. Guess I am about ready to find out. I feel good tonight not scared. Guess I have had enough time to sort this thing out and try and figure what I want to do. I guess I feel ok cause I told the doctor when he did the tee test, that he intimidated me cause he had cardiologist behind his name. At least I didn't tell him I loved him like someone here was afraid of doing.
Im still hereHi Everyone, Just been busy reading up on all the posts from everyone. On Wednesday I see the cardio doctor.Have to be in Newberry by 830am and have never been there before. Thanks for GPS. Anything to save a buck as the doctor doesn't take my insurance in Greenwood but he does in Newberry.
Happy Valentines Day EveryoneJust another day. It was cold here today, but the sun made it a little warmer, so got my walk in. Don't want to blow it now have to keep it going as I know it helps me for later. Nerves are still at rest. Still working on afghan to finish it and start another one. Keeps my mind off of what is to come. Can't help wondering what the next hurdle will be when I see the doctor very soon. Oh don't stress, have enough of that on its own. Looking forward to going out to dinner for Valentines and with some good friends. Should be fun. Hope everyone has a good day.
Hey to allJust another day today. At least the nerves are all calm and sleeping haha. Sure they will be awaken again. Went grocery shopping today with my husband and started feeling a little light headed so ran up and got electric cart. Was having fun with that. Told everyone I was rehearsing for when I really need it, but I was'nt going to take any chances. I even got my walk in today, before it turns cold out. That just might be a good thing and I can get rid of sinus problems.
I DID IT YEAHHi All, Thanks to you all I DID IT. I felt all of your prayers with my and God said it was ok I'm here. So thank you to everyone for helping this big baby get through this little hurdle.
Good day First goal accomplishedHi All, Had a pretty good day today. Decided to get into my walk. I didn't do my 2 miles but I did one mile, better than nothing, and I took it kinda slow just in case. My big goal for today was, I went to my weight watchers meeting tonight and I DID IT. I lost my 20 pounds/ 10%. That is just what I wanted so when I go to cardio doctor on the 22nd, he should be real happy. So onto goal number 2. Surgery and get this over with, and goal number 3 is another 10% and I will almost be there. The reward is shop, shop, and shop some more.
A Few Tense Moments Last NightI guess I should back this up to Saturday. Saturday night I was feeling a little blue and down, feeling sorry for me kind of thing. Didn't take much to turn the faucets on if you know what I mean. I had my walk like I usually do but almost to the end, I just gave out and I still had to get home. So I decided to start cutting back on the walks as I was feeling kind of weird.
Hey to allHi, Just want to say thanks for all of your support. My daughter, Stephanie tells me the same thing. You see I am a big baby. When I had my hystericotmy(sp) my blood pressure went pretty high when I saw the OR and then when I had the staples out I was a basket case. Nurse said dont worry you have been through the worse. Guess I hoped nothing would ever happen again. Haha. Well here I am again. I guess what makes it so scary for me is that when my Dad had his surgery for adominal anuersym many years ago, I about fainted just seeing him all hooked up, and thinking he might not make it cause his heart kept acting up and they called the family in. I think us all being there helped him recover. Then my daughter Stephanie has aortic stenosis, and I drove to Lincoln Nebraska for her surgery. So seeing all of this first hand is something else. Like I say I am just a big baby. The doctors always ask me if I am allergic to anything and I tell them yea, needles and doctors. My daughter also told me the Tee test is a piece of cake too, but she had one little problem. She was pregnant with her first due any day and while she was been monitored her water broke. 24 hours later I had a little granddaughter. I sure dont want that problem haha. When there is nothing there and at my age that would be something.
HOORAY FOR MITCH AND OTHERS.Got up early today to go to Greenwood imaging center for ultra sound. The test didnt scare me its what might come out of it. I must say it was interesting, I watched the whole thing. Didnt take all that long. Sure was glad I took a snack as I was so hungary. Now for the next test Tee test, dont really want to go for that one. Oh well I guess the journey starts. Thought about Mitch most of the day.l So glad he is doing ok. Now I sit back and wait to see the doctor on the 22nd. Have a good day everyone. Please feel free to sign my guest book also. Until later Linda H
Is this winter? We have a new month JuneauryI have been walking and trying to get a lot in. I want the doctor to be pleased when I see him. I know I am. Hope Weight Watchers has a nice surprise for me tonight. Me loss has picked up a little bit, but I think it is called being nervous already. Well as long has we are having good days, I can do a lot. Until Later Linda H
Hey to all of my new friends.I just want to say that I have been busy reading a lot of your journals. I have gotten a lot out of them and find myself fighting the tears. I have also gotten a lot of information for questions to ask my doctor when I see him.
Good news at Weight WatchersWent to my meeting and found out I lost another 2.6 pounds. My goal is to be 10% by the time I see Cardio doctor on Feb 22nd. I only have 2 pounds to go, so maybe I will go past it. My family doctor told me not to go to fast, but was proud of me. Best of luck to everyone. I want to hear all good things, my prayers to everyone.
My lifeI guess I can say it all starts with my Dad. He was diagnosed with Wolfe White Parkinson Syndrome. He lived with it for years and lated had an adomonial artic anuersym. Went through with surgery was fine but passed away 3 months later of conjestive heart failure. Well my story starts with about 5 years ago I was told I have a heart murmur. I always worried abourt heart problems as I found out that it is hereditary in his family. After we moved South and got a new family doctor the same thing. He wanted do an echo cardiogram, but I had to wait till I was 65 years old for medicare. In Aug last year I had 2 big seizures together. Guess that was my wake up call. So on my 65th birthday found out I had Aortic Stenosis with regrugatation. Saw the heart doctor and he also said there is an anuersym going into my neck. Welcome to retirment after being healthy all of my life. Well he wanted me to eat better loose some weight and walk 2 miles a day. I wasnt allowed to join a gym or walk the dog, to stressful. So I have done all of this by joining Weight Watchers and so far have lost 17 pounds and almost to my 10% goal. I plan to be there by the time I see doctor. I have now gotten an appointment for an ultrasound on Feb 2nd and a Tee test on the 8th, and on the 22nd see the doctor and that is probably when the nerves will kick in.
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