Hello again, I had O.H Mitral Valve repair surgery for severe regurgitation in early June 2020. It was mostly successful with only a small residue of regurgitation ...Read more
Hello again, I had O.H Mitral Valve repair surgery for severe regurgitation in early June 2020. It was mostly successful with only a small residue of regurgitation reappearing 6 weeks after surgery which I have been told happens with 10 % of patients who undergo this type of Surgery. I also learned that during the surgery the Doctors discovered my Chordae tendineae had ruptured prior to the operation so two chords were replaced with Nylon Synthetic chords. This wasn't discussed prior to the surgery. I also didn't see any mention of it on the Echocardiogram reports prior to the Surgury. I have been wondering if anyone else also had their Chordae Tendineae replaced as part of the Mitral Valve Repair and was this need for additional surgery discussed prior to surgery ?
Marie Myers Usually on the surgical consent, there is a line that states “and all other indicated procedures†... Read more
Marie Myers Usually on the surgical consent, there is a line that states “and all other indicated procedures”. This allows the surgeon to fix/repair anything that they feel needs to be done while they are doing the primary procedure. Perhaps the ruptured chordae was not obvious on pre op testing? Hopefully someone Who has some knowledge On this topic will chime in on this discussion.
Susan Lynn Shirley- I was told after surgery that I also had chordae repair - no idea how many or how it was don ... Read more
Susan Lynn Shirley- I was told after surgery that I also had chordae repair - no idea how many or how it was done. I should have gotten more of an explanation, but I was just happy that it was behind me.
Thomas Brusstar Several of my chordae ruptured prior to surgery, but they were attached to a part of my mitral valve ... Read more
Thomas Brusstar Several of my chordae ruptured prior to surgery, but they were attached to a part of my mitral valve that had to be removed anyhow (the leaflet was “flail,” so it had to go) So they didn’t need to add any. But I know adding chordae was an option if necessary to support the restructure.
Jared Takeshita My chordae had ruptured, causing my flail leaflet. I had my chordae replaced by synthetic chords as ... Read more
Jared Takeshita My chordae had ruptured, causing my flail leaflet. I had my chordae replaced by synthetic chords as well. This was discussed prior to surgery as the primary approach my surgeon was going to take.
Shirley Giggacher Thanks everyone for sharing your experience with me. As I mentioned in my earlier post I had no idea ... Read more
Shirley Giggacher Thanks everyone for sharing your experience with me. As I mentioned in my earlier post I had no idea the Chordae had ruptured and would need to be replaced with synthetic chords. Perhaps it was discussed but because it was all rather rushed and I dont have the best of hearing I may have missed the finer details. We were all required to wear surgical masks during any consultations so that didn't
help either. I have had a few complications after the operation such as a small continual leak from the repaired valve as well as an episode of Pericarditis. I wonder if this would have happened had I had the valve replaced rather than repaired. I know the surgery took longer than expected because of the replacement of the two Chordae. I also wonder if it was the Rupturing of the Chordae that caused the onset of severe regurgitation rather than the valve which apparently was allowing 60% of the blood in the left ventricle to flow backwards. Hence the very lous classic murmur with the trill. It is still all a bit of a mystery to me.
Hello Everyone,
I hope you are all keeping well. I am just back from the hospital Cardiology department and thought it might be time for another 'Update'. ...Read more
Hello Everyone,
I hope you are all keeping well. I am just back from the hospital Cardiology department and thought it might be time for another 'Update'.
OK so I my OHS for MV repair was 10 weeks ago and so far things have been going well. Except for the Ocular Migraines which seemed to have come on with a vengeance after the Op. Usually 4-5 a day 3 to 4 times a week. Fortunately the pain wasn't that bad. But the visual disturbances where quite difficult to manage and lasted around 45 mins each time.
So I was sent to an Opthamologist who did every test possible, 2.5 hours of testing, before declaring my eyes were not the problem and I needed to see a Neurologist as soon as possible. I went to a Neurologist the following week and had a CAT scan which showed the Brain was working perfectly well and in very good condition, thank God. He prescribed some medication that was only meant to be taken once the pain had started not the Visual Disturbances. I followed his directions when I had the next headache and felt pain and within ten minutes I had a significant episode of Angina. Not Nice !! Lucky I was with a friend who is a Nurse and she was able to keep an eye on me. Needless to say the Cardiologist advised me Not to take the tablets again.
The following week I went back to the Cardiatric surgeon for a follow up visit and he said he could hear another murmur. I had already had an Echocardiogram before I left the hospital after the Operation and there was no sign of any Regurgitation. Now ten weeks later there is another Murmur.
The Cardiologist ordered another Echocardiogram which I had today and it revealed there is a Mild Murmur in the Valve that was operated on ( MV with severe Regurge) as well as a slight murmur in the Tricuspid Valve. Nothing to worry about according to him and the Cardiatric surgeon but needs to be checked on every two months to make sure it isn't getting any worse. I found this news to be very disappointing as I was hoping there would be no more problems with any of my Valves.
I would like to ask if anyone on this forum has had a similar problem? Apparently my Valve may have been better off being replaced rather than repaired.
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Shirley Giggacher
Marie Myers Hi Shirley, Glad you made it through the surgery and are on the road to recovery. I just wanted to c ... Read more
Marie Myers Hi Shirley, Glad you made it through the surgery and are on the road to recovery. I just wanted to comment on the ocular migraines. From my own experience and reading entries from many people on this website, the ocular migraines you describe are very common after open heart surgery. And what is also interesting, is that it does not seem to be well known to the doctors involved. I had the visual disturbances myself, and because I had a prior history of migraines, I knew what the visual disturbances were, so I was not concerned. But when I asked several different doctors (I work in the operating room) none of them seemed to be familiar with this phenomenon. Anyway, the visual disturbances will lessen with time. I think it took several months for them to disappear. I only get them rarely now at 3 years post surgery. Sorry you had to go through all the scary diagnostic testing, but things will get better!
Thomas Brusstar I used to get visual disturbances Post-surgery quite frequently, every couple days, especially after ... Read more
Thomas Brusstar I used to get visual disturbances Post-surgery quite frequently, every couple days, especially after exercise. At some point it seemed like caffeine triggered them, so I reduced that. I also drank extra water, including with electrolytes (Hi-Lyte). That seemed to help, but the disturbances persisted. I’m now about 2 years post surgery, and I think the optical migraines got better slowly, and I have hardly had any since about 18 months post-op. Luckily mine weren’t usually accompanied by any pain, just the visual disturbances. It’s frustrating that the docs don’t really understand the disturbances. My cardiologist just agreed that sure, it could be from the pump, who knows.
Shirley Giggacher Thanks for the feedback about your own experiences with this problem. They seem to have calmed down a ... Read more
Shirley Giggacher Thanks for the feedback about your own experiences with this problem. They seem to have calmed down a lot since the Cardiologist put me back on Blood Pressure tablets. Hardly any visual disturbances for a week now. However I am still very concerned about the new case of regurgitation that has been picked up on the latest Echocardiogram post Op. It is in the same valve that was repaired 10 weeks ago and is fairly recent . Has anyone else experienced this situation ?
help either. I have had a few complications after the operation such as a small continual leak from the repaired valve as well as an episode of Pericarditis. I wonder if this would have happened had I had the valve replaced rather than repaired. I know the surgery took longer than expected because of the replacement of the two Chordae. I also wonder if it was the Rupturing of the Chordae that caused the onset of severe regurgitation rather than the valve which apparently was allowing 60% of the blood in the left ventricle to flow backwards. Hence the very lous classic murmur with the trill. It is still all a bit of a mystery to me.