Talk about lying between a rock and a hard place!!! I have been on Colchecinefor a couple of weeks now to fight my post op recurring pericarditis (Dresslers). This was prescribed after the steroids didn't work. Guess what?!? - I've been more poorly than ever with poisoning!! - Sickness, diahorrea ........ So, my cardio wants me to quarter the original doseage and we'll take it from there. Bloomin Nora as we say in the UK!!!
I am coming to the end of my tether now! it's been 8 months sine my valve repair. My recovery and rehab were going great until October when I began to have severe chest pains that travelled up to my shoulder! Initially I was diagnosed with Pleurisy and given antibiotics. The next flare up occured in November when Dresslers was diagnosed. I was given Prednisolone and for six weeks, I was fine. Once off the prednisolone, another flare up occured so the cardio has tried me on Colchecine. I am three weeks into this course and guess what?? Another flare up. Each flare up leaves me more poorly than the last. I had returned to work full time, but am back on sickness leave which isn't very convenient for all involved!
has anyone else sufered with this rare post operative complaint?
It's finally time!! I have gone back to work. My employers are being great and I am doing a phased return. I will eventually be full time again next month. Its hard though when people are constantly telling me to take it easy. How can you take it easy when you work with 3/4/5 year old children all day????? Anyway, it's great to get back to normality and I am hugely greatful for all the work done by the cardiology team at James Cook University Hospital in Middlesbrough (UK)
Well, coming to the end of week 1 on steroid treatment. Cant say it's a blast but at least it will (hopefully) break the cycle of flare ups. After exactly 3 months since my surgery, i finally feel as if i can concentrate on my rehab now. Fingers crossed.
Well, even though it nearly 3 months since my op, I'm back in the hospital again. I'm having more tests and scans to rule out any pulmonary embolism although they are concentrating on the possibility that I have Dresslers syndrome (hope spellings correct!) My shoulder pain, chest pain and difficulty breathing seems to be down to this so I'll wait and see what the tests reveil!
Well, the antibiotics seem to have done their job and now I feel as if I an resume my recovery.
Went for my first drive yesterday. It was great to get behind the wheel again. It's amazing how much we take for granted and I think it's a shame that it takes something as drastic as the sort of stuff we have been through, to make us realise that we should be more appreciative of what we have, what we can do etc.
Well, I was supposed to start my rehab last week but whilst doing the initial blood pressure and heart rate check, the nurse discovered i was tachicardic (spelling?). Heart rate was 124bpm.
Sooooooo, they put me on ecg, called for the cardiologist and after a lot of fuss, sent me home with beta blockers.
Theeeeeeeen, a coupla days later, i became veeeery ill. I couldn't breathe because it hurt, i couldn't lie down because it hurt etc etc......
I was admitted back on to the cardio ward and a pleuratic infection was diagnosed.
So now, i am rattling with ace inhibitors, beta blockers, aspirin (dont get me started on that one!) Pain killers, proton inhibitors and antibiotics.
Hopfully will try again for rehab next month.
Sooooooo fed up!
Was so releaved after seeing my GP yeasterday. Although my heart rarte was 114 bpm, she reassured me that it was at a regular pace. She has doubled my ramipril and told me that the feelings of indigestion are probable down to the daily aspirin, so she gave me something to counteract that. Starting to feel like a walking pharmacy now, but at least there is nothing to worry about!!!
Many thanks to Jennifer Turner who responded to my last panic about heart rates. Sounds like Jennifer is behaving in exactly the same way as me--overdoing it and then suffereing the consequences! Heart rate measured in at 118 today and so I contacted the cardio helpline. The nurse was also reassuring when she said to mention it to my GP at my appointment tomorrow morning. this also implied that there was not too nuch to worry about, otherwise she would have said something along the lines of...'get your big fat ar*se over here pronto'
Also, keep bursting into tears and geting totally upset bout nothing in particular. I keep on reminding myself that this is supposed to be normal and taking comfort in lots of chocolate!
Bit worried today. Heart rate seems to be in the late nineties and stomach feels a bit swollen and worryingly firm. Going to see my GP to review medication in two days. Trying to take things steady and keep calm!! Easier said than done. Dangerous things vicious circles, worry about heart rate----increased heart rate----more worry-----increased rate-----etc---etc!
By the way, have been sticking to showers but desperate to have a long soak in a hot bubbly bath. Been told that bathing can increase risk of endocardiosos but not been told how long I have to avoid baths for. Hmmmm????
Well, it's exactly four weeks to the day that I had my mitral valve repair. I have steadily worked up my walking distance and today I was able to walk to the shops (uphill and about 30 minutes in total) without getting puffed out or dizzy.