2 night of almost sleeping through YEAH! what a difference.
He's stopped complaining about all the pills he had to take just in time to start the Vitamin D today.
Last night he had a giggle that just killed him, we have two male cats that were great with my daughters 3 cats and we have a little female that stays in my part of the house. I let the boy cats drift into my room thinking they would behave, alas as soon as I sat down in the bathroom they were on the attack poor little girl. Atom said it was like they had it planned and laughed, but couldnt get them away from her. His heart was racing he really sounds like the crock in Peter Pan : ) Everyday is a little better.
He is still using the walker and has moments of extreme crankiness. But all in all it is better.
He is eating better but watches a lot of tv which is sort of annoying for me but I can live with it. I just have to get him walking, the heat is coming so he must start soon.
Thats all for today..holding you all close..recovery forward!
Hi Everyone...Its the Mom, Janet just thought I'd pop in Atom had a terrible, terrible night last night but he's great today..Im walking into walls but he's good..Im having trouble with the up and down-ness of his moods & phy. recovery..he even sat outside for a bit.
Ive read some journal and there is such a wide range of recoveries, I wish his would have gone more smoothly but it hasnt. I'll be glad to see the PC on Thursday this breathing thing is making me nuts and really hindering him. I think if I can get some reassurence from the PC I might be able to start giving him a little push, right now I just cant.
I am ever so thankful for all of you, holding you all close in your recoveries and your care givers as well.
I guess Atom just over did yesterday, he was ever so excited for his Big Sister to arrive, bringing gifts of special homemade cookies, and a custom made penguin. He hit the hay early but was up at least 3 times. He's on the oxygen concentrator this am and is resting still, 11 am.
His sides hurt, is that from the breathing exercises? He ate better yesterday but Im having trouble/worry about any fat, chicken strips are his favorite, blotting the oil or is it just juice. I feel like I question everything I do.
He's has only been outside to go to the Doctor and today is windy and it appears a storm may be headed this way.
I was short with him yesterday he doesnt like to take the iron pill but he did take his blood thinner on time by himself. His sister suggested we start that and its a good idea in case Im ever not around. He has a cool new phone, timing was perfect for an upgrade and he sets the alarm. He weights himself daily and tells me when he's had a bm.
Although he's 22 he is still very young with slight learning disabilities. His heath now is a huge responsibility. I found out the reason his surgery was bumped up was because a lady who had open heart surgery 5 weeks before was back at the hospital with a heart attack, a blood clot, perhaps she wasnt watching her blood thinner meds? Scared me and him so I think he'll keep on track with it.
I wish I could feel he's being a baby abput some of this but in my heart of hearts I know he is not this is huge, so much bigger than we thought it would be.
With his older sister here maybe I can get a break. Her boy friend is a gem and the hugs from him yesterday were a comfort.
Well this is starting to sound whiney so I'll sign off for now. Thank you ever so much for all the words of support it means so much to both of us.
Much Love to all of you, The Momma
So sorry it been so long with an update, so Atom had the surgery on the 25th of March and came home the 1st today is the 10th. We were to the PCP on the 7th, chest tube incisions look yucky and his breathing is bad. He tires very easily, no nap today and he was wiped out by 9pm. PCP put him back on breathing treatments here at home to help expand his lungs. He has excepted that he must take his pain meds to sleep and do his breathing excercises.
He still hasnt slept through the night yet, perhaps tonight?
This is a really slow go. He has bruises, bad ones everywhere.
He is however so thankful for every little thing. When I get really tired I just look at him and know how close I came to losing him and Im thankful too.
He's still using the walker but we're still adjusting meds. His coumadin was just raised on Friday so Thursday we have another blood draw. We can hear the valve clicking its kind of cool but strange too.
So Atom is home and on the mend however slow it may be.
Keep him in your thoughts and prayers.
G'night The Mom
how can time seem to have flown by but the days seemed to be the longest in my entire life? as of tonight Atom is still in cvcu. I spoke with the nurse this am and they were to move him. His Father is in town so its kind of my day off, but he'll be gone tomorrow afternoon so I'll go back then.
Things have become more clear as Atom & I get a chance to talk in private, Thursday & Fridays Temp had him in a very bad place.
He's becoming more alert but is in so much pain and tires easily.
I was in yesterday morning for his first walk I took him his cherished arm band from his dear friend who is now an angel. He did really well.
His lungs are quiet clogged up so he's on a breathing treatment and of course the coughing is ever so painful. I have hope they didnt move him today because there was no room not because the fever came back.
His respiration was really good last night I wish I could help him understand how important that is. He is taking an oral med to help his heart his heart was also stable. His input/output is good, but boy does his want that cath out : (
the chest tubes came out yesterday.
He had cardiac rehab this morning, his Dad said he was really tired. He finally ate yesterday but his throat is still sore.
So things are looking better for him, yesterday his colour was good. He's just not perky or smiling just in pain. He hasnt asked for his phone or a computer just his glasses because he thought walking made him dizzy without them.
I just feel helpless, he reaches for my hand, a tear runs down his face, it really hurts Mum. I cant hug him with all the wires it was good to be closer to him when he was walking the kid is a champion. he gets short but always says thank you.
I did promise him if he took his meds on time, stuck to his diet and did his exercises he wont have to ever go through this again. Oh dear God I hope Im right.
I'll try to keep you al better updated.
as for his name all our kids names start with a. Amanda, Andrea, Anthony, Augustus and we thought Atom would be a girl and be named Allisa, my eldest brother said the baby was a aboy and we should name him Atom, so for 9 months he was Atom when he did come out a boy we couldnt change the name.
thanks for the support and love, hopefully he'll be on here soon.
Hi everyone this is Mom..Yesterday was hard as Im sure you all know, we got to the hospital at 6 am only to be told the surgery was moved from 10 am to 1 pm and that we could not leave : (
But at 1 pm off Atom went, he is so brave and trusting.The surgery went longer than expected and His sister & I only got to see him at 8 pm or so. They were having trouble stablizing his heart beat so a pace maker was being used the heart rate was also high so they were keeping him under until this morning. He is running a high fever his am but they told me to come over bout 1pm and hopefully he'll be off the ventilator. the heart beat is just ok this morning. more later this afternoon after I see him. Thank you for all the support this means so much to Atom & all his family. Love the Momma
in a few hours will be my surgery and i am lil scare but really happy its time to get on with the surgery. thanxs again for praying for me and i love everyone who been here for me and i will keep you up dated on how i am feeling even if i have to make my mom get on here and tell you
its keep chest pains and been thinking of my surgery and seem like more and more its going to happen sooner then i think. it makes it hard to sleep at night. just with i could go for long walks and chill with my friends. miss it alot. i know soon it will be all over and i can go have fun.
thanxs again all of you. i give all u my love. thanxs
its been a long day. sat outside for a few hour looking up at the clouds and watching the dogs play in the yard. it was very nice makes me smile and knowing i have people who care and people who will help me threw this. had only a few chest pains today but not many. it was a pretty good day.
it means so much that so many people care. but right now some days are harder than other and like today my breathing is making it hard to do stuff. i just wish i didn't have this problem so i could play with our dogs and do stuff. thanxs again all