Kathi Mancuso posted a note for travis that says:
Not sure if you still post here. I am hoping you do !
I have BAV and aortic stenosis and aortic aneurism ..... hence : needed surgery
I am thinking Loma Linda with Dr Razook or Dr Hasinaya...... How do you feel about the surgery there? It seems they are not recognized on this site so am having second thoughts but the other places are so out of reach for me.
I hope you are doing well.
By the way did you go mechanical or Bovine ?
(James) Mike Jones posted a note for travis that says:
Thanks for the great, honest posting in your journal. Even though you're a "bad patient"; you are inspirational. :) I have been apprehensive about moving forward with the walking and riding of my bike because I don't want to hurt my heart, but hearing your experience gives me great encouragement. Thanks!
I didn't have a replacement, I had a robotic repair. I can't imagine how you are dealing with the sternotomy. I know how much my "less invasive" procedure hurt. Much better now, but still twinges of pain now and again.
My brother in law suggested Loma Linda, but my wife did a lot of research and we were very happy with Cedars-Sinai.
Looking forward to getting back on my bike!
Tony Parker posted a note for travis that says:
Good luck with the insurance battle.
Not looking forward to that either.
Since I am more than a month out I will see in a few weeks. The folks at the Cleveland Clinic said they will help me work through the process so we shall see.
My surgeon did not really give me a choice on valves. With my age and activity level a mechanical valve was the only real choice unless I just wanted to do this all over again in 15-20 years. I plan on living far past that point so I am ready for the blood thinners.
Meredith Bray posted a note for travis that says:
I"m with you on the insurance struggle! I think that was the hardest thing I had to deal with pre-op, with my family doctor not wanting to refer me to the surgeon I had already chosen, even though he was in-network. What worked best for me? Calling the insurance company directly and discussing my case. Also, my employer has a Patient Advocate on site, who is an employee of the insurance company. I'm 42 and just had a mechanical valve installed on March 5. I'm not very active, but like to kayak and hike through the woods. I'm very satisfied with my choice. Let me know if you have any questions!
Anna Thomas posted a note for travis that says:
I just wanted to say good luck with everything. I think my battle with insurance companies is about to begin and I'm trying to gather the usual go get 'em attitude I have. Not so much today. Praying that things move smoothly and swiftly for you! Take care!