Gabrielle Stinson posted a note for Paul that says:
Hi Paul lovely to reconnect with you! You were the very first HVS member to post in my journal what is it 5 years ago? Wow Yeah well my heart is good and strong nothing wrong there. It is just the Mitral Valve is very calcified and hard and does not close properly. The Cardio dude likened it to a garden hose left out in the sun how it becomes hard and not pliable. I feel vindicated Paul because I KNEW something was not right feeling so depressed and breathless. Now I can just get on with it - do what I can and stop and rest when I want (and try not to feel guilty) as I have always been very active. As my deputy thank you for stepping in and taking over the Zipper/Zapper club while I have been licking my wounds. I wish to renew my membership as of now!
Christmas blessing Paul to you and family,
From your Aussie friend
Gabi x
Paul Rose Hi Gabi,
Great to hear from you, and happy to relinquish the zipper/zapper lead back. Now I'm not sure you needed to go quite as far as another set of surgery ... Read more
Paul Rose Hi Gabi,
Great to hear from you, and happy to relinquish the zipper/zapper lead back. Now I'm not sure you needed to go quite as far as another set of surgery to get it. But since you have, I'll continue to support you all the way. Cant believe just how long it has been since we first met on the then HVJ.
Glad to hear that your heart is strong and your suspicions were vindicated. Sounds like you have a "intelligent" surgeon who can communicate - more than half the battle. You will be back from your re-repair in no time. In the meantime perfectly acceptable to take those rests along the way, make the best of it and indeed you know the plan is nice and easy until you're back up and ready to restart your Zumba.
Merry Christmas to you and your family.
Your Pom friend Paul
On January 13, 2015...
Penny McIntosh posted a note for Paul that says:
Hi Paul,
So great to hear from you, and you are a fabulous example of recovery plus! I'm coming up to 48 months on February 26th and you have reminded me to show my gratitude on my anniversary to any HVJ friends still signed up. Lots of hugs from Penny in Scotland x
Paul Rose Hi Penny,
Great to hear from you too, I often think about my Mountain Biking inspiration! 😀😀 Hasn't time flown. Hope all is still going well and Looking ... Read more
Paul Rose Hi Penny,
Great to hear from you too, I often think about my Mountain Biking inspiration! 😀😀 Hasn't time flown. Hope all is still going well and Looking forward to hearing all about the last 4 years on your anniversary 😀. Back at you with the hugs xo
On November 13, 2013...
Gabi x posted a note for Paul that says:
I feel shattered with the update re Rachel as well. However, I believe if we dwell on the negative we become part of the problem. The solution as I see it is to see her healed, happy and healthy. It has worked for me in the past - I believe we create our own reality, and the law of attraction. What we think about and give energy to we attract.
I am taking 4mg of the rat poison and not having too much of the Vitamin K green leafy vegetables which work against the Warfrin. I also take mega doses of fish oil for my osteoarthritis and this has a thinning effect on the blood. Because I cancelled all appts for this week thinking I would be in the hospital, my husband Kevin (he is a fox) took me for a lovely drive and I splurged a lota dosh on him and myself. A really lovely day after months of my life being in Dr's waiting rooms. It must be getting cooler in Hartley Wintney. We sometimes watch a TV show called Dr Martin I think it is filmed around there or Port Wein.
Gabi x posted a note for Paul that says:
Yes, yes yes I agree we will focus on Rachel's healing. You know dear little Rach founded the 'Sargent Peppers Leaky Heart Valve Club'! Hope that creative spark will ignite a trigger to heal her and she is soon on the road to recovery.
Now no zap for me yesterday! INR 1.8 and the decision was made it too dangerous to proceed. I was disappointed at first but so ova it now! Thanks for the AFIB website I will check it out.
Paul Rose I have been corresponding with Rach right from the start, am absolutely gutted that she is having such a tough time. Did not have these emotions before the ... Read more
Paul Rose I have been corresponding with Rach right from the start, am absolutely gutted that she is having such a tough time. Did not have these emotions before the surgery, just really hope that everything starts to turn around for her - she is no longer a member of the leaky hearts club band, just an achy breaky broken heart looking to mend - real soon
On the INR, what dose are you on? Mine was 4.7 towards the end, which was alternating 4.5mg & 5mg days. If I needed to get it up a little I did the 4x5 and 3x4.5, similarly to lower I did it the other way around - that worked for me.
Take care and let me know how your zap goes.
Paul
On November 12, 2013...
Gabi x posted a note for Paul that says:
Oh Paul you crack me up big time!!!! I could tell from your post to Jim that it was you promoting the ex-Regurgitator's Club! I nominate you for President, Treasurer and Secretary in this most prestigious group! You made me laugh out loud with the Zipper and Zapper thanks for putting your name to the Zapper. Now, I am not ready to post in my journal but I am due to be zapped today at Figtree Private. The only thing that will put a halt to this is that my INR was too low at yesterdays reading. I increased my warfarin dose and had another blood test this a.m. If INR is at a therapeutic level I will get my zap this afternoon, otherwise it will be in two weeks time. I was pretty disappointed yesterday but OK now with whatever happens it must be for some reason. Thanks for your wonderful humour,- I feel much lighter after a good laugh and feel I can cope with anything! So we already have a theme song, so can you work out any more fun activities for our club?
Paul Rose
Hi. Gabi, thanks for the nomination, definitely flattered but it is a democratic process and will need to contact all the founder members :-)
Paul Rose
Hi. Gabi, thanks for the nomination, definitely flattered but it is a democratic process and will need to contact all the founder members :-)
My INR was right on the bottom limits when they did the cardioversion. But the cardiologist and I agreed on the risk and it's been humming along nicely ever since. I had to stay on warfarin for 6 months after - did I ever say I hate the stuff! Anyway, it's the most amazing sensation when you feel your heart kick back into rhythm. I hope that you are there too.
You can definitely cope with anything, Heart surgery, a DC shock that's enough to start a small truck or lorry depending on where you live and that was the easy stuff ;-)
Good luck with the shock, may it be on time And have all the right results. If you have to wait to get your INR back in range, then just make sure you get tested every seven days and adjust as needed.
Now as for club activities, keeping P-waves, rhythm guitar, and sense of humour for starters are all in. But most of all right now, hoping that Rach pulls through her tough time.
Good luck with the zap
Paul
On November 6, 2013...
Gabi x posted a note for Paul that says:
Oh Paul, that is wonderful news! Thank you for your prompt reply and you are an inspiration to me. Keep on grooving in dat rhythm Man!
Here's to you regaining your P-wave, the marker that you are indeed out of Afib and back in Normal Sinus Rhythm. May your retune stick and ... Read more
Here's to you regaining your P-wave, the marker that you are indeed out of Afib and back in Normal Sinus Rhythm. May your retune stick and the music play on.
I have found a great Afib information community @:
http://health.groups.yahoo.com/group/AFIBsupport/
Its a yahoo group and you may need to subscribe
Good luck
Paul
On November 5, 2013...
Gabi posted a note for Paul that says:
Hi Paul, This is just to give you a poke and check how you are! Are you still in Sinus Node? I am gearing up to have a cardioversion. My surgeon and my cardiologist say the same thing but in different ways. Cardio dude goes "It only works in 50% cases" Surgeon goes " You have a 50% chance of it working long term"!!!! Like the glass being half full or half empty. Anyway my hope is that you 'still have rhythm and cant ask for anything more' Love it!
Paul Rose Hi Gabi! Thanks, and I am happy to report I feel great. Yes, still got rhythm and have been loving every minute of it for approx 13 months 5 days and 2 hours... ... Read more
Paul Rose Hi Gabi! Thanks, and I am happy to report I feel great. Yes, still got rhythm and have been loving every minute of it for approx 13 months 5 days and 2 hours... Not that I'm counting :-)).
I had been in Afib for 15 months after diagnosis. My surgeon was an optimist and it proved to be a correct diagnosis. No ablation, wait until heart remodelled to shrink to normal size, this is where having a large heart was not a good thing and as they say the rest is history. The sword of Damocles is still there,, but most of the time right at the very back of the cupboard, stored well out of the way. I have a BP cuff that detects Afib, and every time that I have worried that it just might be back, I pop it on the cuff, take a quick measurement and so far have had an all clear .
I hit the gym for a hard 1 hour workout 2-4 times a week depending on my work load. BP 107/75 and resting heart rate now down to 62 ish. In workouts I can push my heart rate close to 170 - that's right at the upper limits for my age and high aerobic training:-)
Good luck with the cardioversion and please do let me know how you get on. I will be pulling for you.
Cheers
Paul
On July 17, 2013...
Ken Curry posted a note for Paul that says:
Thanks for your very well written update.
My aortic valve replacement was mid-August 2012. I had A-Fib and a very bad toxic reaction to Amiodarone, which affected my lungs. Thankfully, just as I despaired the most, in late September, my A Fib stopped and I was able to stop taking Amiodarone and the blood thinner. I had an ectopic beat irregularity for several months, but was told it was not of concern. It eventually disappeared. Been OK since, but the emotions, like you say, can be difficult to deal with. Happy to know you are smiling big time.
In no time at all you will be looking back at the other side of the mountain with absolute wonder. Often it may feel like a roller coaster, ... Read more
In no time at all you will be looking back at the other side of the mountain with absolute wonder. Often it may feel like a roller coaster, but the end of the ride is worth every minute.
Take care and all the very best with your journey
On July 13, 2013...
jeff o posted a note for Paul that says:
Hello Paul, thanks for taking the time to post about your 1 year anniversary. congratulations on your recovery. Thanks for all your tips and advice. I'm waiting and worrying, sure hope you're right about the waiting being the worse part. Take care.
The waiting really is the worst part. I did lots of research which made me really comfortable with what needed to be done and put the risks ... Read more
The waiting really is the worst part. I did lots of research which made me really comfortable with what needed to be done and put the risks into perspective. Once I had gained trust and confidence in my surgeon the rest became much easier. I can empathise with the worry though - I second guessed myself a few times. The difference even a day after surgery is amazing, euphoria ! And the success rates are getting better all the time.
Good luck and take care
On January 15, 2013...
Hi Paul..
It was great to see your 6mos update. My 6 mos anniversary is the 17th, which is hard to believe!
I like you, lost sight in one eye, on 3 different occassions and received the same diagnosis. Mine started 2 weeks after surgery, but got better once cardiologist put me on Plavix. I am sorry to say the double vision & dizziness continues.... I have requested an appointment with the cardiologist to see about perhaps changing some of the meds. Even with all the side effects, I still feel very lucky to be given a 2nd chance...they are much better than the alternative! :)
It was great to hear you are doing well, Paul,...Happy Anniversary to Us!!!!
Connie T
Paul Rose Hi Connie! Thanks and happy anniversary too.
I can echo the feeling lucky and never cease to be amazed at the skills of the medical teams. Interested in ... Read more
Paul Rose Hi Connie! Thanks and happy anniversary too.
I can echo the feeling lucky and never cease to be amazed at the skills of the medical teams. Interested in which eye you had the "shutters" on and is your BP low too. I came off the Bisoprolol (ACE inhibitor) and have been free from dizziness since then - as my BP is just a little higher :-)
Happy Anniversary for the 17th and many, many more of them. Looking forward to our year anniversary!
Paul Rose Hi Adam! many thanks and great work on an amazing site. I have become an ambassador for it in the UK ;-)
On December 4, 2012...
Hi Paul, great news, well done! Yes, I am off all meds after mitral and tricuspid valve repairs. I also had 2 rounds of electro and they seemed not to have worked at the time, I only stayed in NSR for a few hours. BUT 6 weeks after ECV I went back into NSR and that was 2 years ago. Had one short burst of AF after taking cold remedy with ephedrine in Feb 2011 but since then all good. I came off all meds over a period of weeks and by June 2011 I was and still am chemical free! My BP is steady at 124/70 with resting HR 70 (this is still 10 more than I would like but hey, I'm happy!)
Paul Rose "Thanks! Good to see you are happy and fantastic that you have stayed in NSR, long may you stay that way. Needless to say I will be staying away from Ephedrine. ... Read more
Paul Rose "Thanks! Good to see you are happy and fantastic that you have stayed in NSR, long may you stay that way. Needless to say I will be staying away from Ephedrine.
All I need to do now is emulate your second Cardioversion. My BP averages 101/70 and heart rate 71 bpm, OK for now. I would like to get off the meds to get away from any long term side effects and my systolic BP up a little . if I stand too quickly I can get a little dizzy. That said I am really happy to have a p-wave and to wait for a while if it gets me to the goal."
On October 10, 2012...
Paul, I was interested to read your experience with cardioversion.
I developed A-Fib following my AVR Aug 14, 2012 and was taking amiodarone, but developed debilitating lung problems after 3 weeks on the drug. Stiff lungs, shortness of breath. Stopped taking the drug Sep 25th and my lungs got immediately better. Two days later A-Fib started reducing in frequency. The trend continues, but I am very interested to continue learning about electric shock to do the cardioversion.
Hope things remain on track for you and will check in on your Journal for updates if you post them.
Apologies for not replying earlier.
That encounter with Amio sounds awful and good to get off it, I hated the stuff quickly enough. Did they put you ... Read more
Apologies for not replying earlier.
That encounter with Amio sounds awful and good to get off it, I hated the stuff quickly enough. Did they put you on Rhythm and rate control meds (ACE (and BETA Blockers) after surgery?
I was in Afib for nearly a year before the operation. I was offered a Electrical Cardioversion at the time but declined as the stats then were not on my side. I discussed having a maze to eliminate my Afib with my surgeon, with his stats he is one of the best in the world, and he was not convinced it was the right way to go - so we agreed no "maze". The theory was that post surgery your left ventricle remodels and gets smaller and my Afib should resolve - hence the not pushing the heart too hard in rehab. Well I was a little skeptical, but it worked! Waited 2 months post rehab... still in Afib (No P-Wave). Had the shock and as they say to now, the rest is history.
My understandin as a layman on Electrical (DC) cardioversion - an electric shock is used to help your heart beat at normal rhythm. It's usually given if your arrhythmia has lasted longer than 48 hours. DC cardioversion is apparently less likely to work if the arrhythmia has been present for over a year. It's also not suitable if the irregular rhythm is coming and going, since it's most likely that the arrhythmia will return after DC cardioversion.
The results of DC cardioversion in patients with chronic atrial fibrillation indicate a high initial effectiveness but poor long-term effectiveness:
70-90% patients with chronic atrial fibrillation will be converted to sinus rhythm by DC cardioversion
60-75% of successfully cardioverted patients will revert to atrial fibrillation within one year
Co-ordinated atrial activity may not resume for 2 weeks following cardioversion even if sinus rhythm is apparent on the ECG
The DC Cardioversion itself was painless, I was under a general anesthetic. I believe the procedure is only conducted if you have a missing P-Wave, I was sedated, the strangest part was being in NSR after and feeling a normal heart beat. I am still on Rythm and Rate control and Warfrin just in case I go back to Afib. Although I am hoping to get off them all :-)
I have found a great Afib information community is:
http://health.groups.yahoo.com/group/AFIBsupport/
Its a yahoo group and you may need to subscribe
I have quite a few bookmarks that go through the nitty gritty of DC Cardioversion, happy to email them to you if it helps
Hope you have spontaneously reverted.
Paul
On October 8, 2012...
Hi Paul, Elsie says she forgives you. Elsie seems to be a loud cow. She keeps me awake at night with all the thumping going on. Just have
to get use to it.
Mooing all over
Linda H and Elsie AVR 9/19/12
Tell Elsie she is doing a fine job and that you will get used to her thumping around. Sounds like you have a real winner there. Time to relax and ... Read more
Tell Elsie she is doing a fine job and that you will get used to her thumping around. Sounds like you have a real winner there. Time to relax and let elsie get moooving on with her job :-)
Hope all is well
Paul
On October 4, 2012...
Hi Paul,
I'm glad your shocking experience went well!!! I hope you stay in NSR a long time.
I'm not sure if you saw this post from Adam on SCUBA diving:
Paul Rose Hey Leo, thanks, it is a great shock to have!
I saw the SCUBA link and it looks promising. Just hope that the Afib goes away completely and I get off the ... Read more
Paul Rose Hey Leo, thanks, it is a great shock to have!
I saw the SCUBA link and it looks promising. Just hope that the Afib goes away completely and I get off the Warfrin and rest of meds at some stage. Althought Warfrin is better than a stroke any day.
On October 4, 2012...
Hey Paul, That was a shoking story. Hope all of shockig news helped. Dont think I would like that at all. Hope all works out for you.
Mooing all over
Linda H and Elsie AVR 9/19/12
Paul Rose Hi Patricia! thanks and it still is shocking! I keep checking my pulse just to make sure and getting used to an NSR heartbeat. Two days and counting..... Just hoping it sticks
On October 2, 2012...
Hi Paul - that is fantastic news! Best wishes from Penny in Scotland
Paul Rose Thanks for the wishes, and it has been successful so far. Just hope it sticks
As for the pram race, Rehab anchors says not this year, unless you want to push ... Read more
Paul Rose Thanks for the wishes, and it has been successful so far. Just hope it sticks
As for the pram race, Rehab anchors says not this year, unless you want to push and I will sit in the pram for ballast
Cheers
On September 24, 2012...
Hi Paul,
I emailled you the other week but since I have had no reply I thought I would try your blog! (don't worry I didn't take it personally not getting a reply, you have much more interesting things to concentrate on right now)
I hear Heather dropped by over the weekend, she said you looked well. Thats good to hear, now that your updates on here are less frequent we know less about how you are getting on with your recovery. Anyway keep up the good work and keep listening to those doctors!
Appologies for not keeping the Journal up to date. Started reading a book and got too engrosed!
Yes Heather dropped by and it was good to catch up with her... No office talk though.
I am trying to keep within the thresholds set by the Rehab team and know it is the right thing to do as too quick leads to a quick relapse. Also I'm listening to the consultants not the Drs :-)
See you soon!
On September 19, 2012...
Hello, Paul (and Joan)!!
Good luck with the appointment on Oct 1st.
We just came back from Quebec City because Helen was attending a conference. We'll try to give you a call on the weekend to catch up.
Thanks for the wishes, and yes it was successful. Hopefully it will stick.
Hope you had a great time in Quebec, lets try and skype soon
On September 18, 2012...
The Olypmics and Paralympics are now finished; a fantastic performance by everyone involved, absolutely brilliant.
As our very own “Seb Coe†we now need you to put the TV remote down and get you backside back to the 3rd floor at TEAM TARGET.
We are going to send you an FOP form tomorrow for you to set some realistic objectives as your “rehability†plan. Please send them to me and Nicole for review. Once agreed, we will expect a weekly update on your progress. We will expect lots of humour and performance data (none of that gory stuff though!).
It was lovely to hear from you this week – even if there were a few cognitive pauses – you won't get any sympathy here for that Paul – now you know what it feels like for all of us menopausal ladies xx
Thanks for reposting, it was male menapause that caused me to delete it!
Really enjoyed both Olympics and Paralympics. Missed the final day of the Ryder cup though... Travelling up to Papworth.
On the FOP, first objective is get in and out of Rehab.. Yeah, Yeah , Yeah (queue song!) then out of Afib and finally back into work at Team Target. Clearly all dates negotiable and already accomplished two of them :-)
Have the gold medal up on the wall in a place of honour
See you soon
On September 16, 2012...
why didn't they do a Maze on you when they did the repair? I had the Maze procedure done and it made my AFIB go away permanently.
Great to hear that your Maze op was so successful. Long may it remain that way.
My surgeon is not an advocate of Maze as he is not convinced there is strong clinical evidence to support the success claimed by Maze practitioners. It appears to be something of a black art. After discussions with him and some personal research I ended up opting out of a clinical trial, a 50:50 chance that I get the procedure.
Before I decided I researched the web and have been following the Yahoo Afib Support group
http://health.groups.yahoo.com/group/AFIBsupport/
Most patients on the site appear to end up having multiple Ablations or Operations and even then do not always resolve the problem – I was concerned about the scars on the heart and their long term effects given thin clinical evidence and did not want to be a pathfinder here.
The results claimed for Ablations and Maze do not seem to stand up to clinical rigour. So I was left with the conundrum to Maze or not to Maze, or wait for medicine to catch up a little more … hard to decide what to do, but ended up deciding against.
I am really happy that it worked for you - a fantastic outcome.
On September 11, 2012...
Sorry for the double post, "nothing" happened when I pressed the button so tried again.
Looks like you deleted the amusing comment from your work colleague dated Monday 10th.
Only pulling your leg about the report being late - sounds like you are getting along just fine and have a great mental attitude.
Great article, that trip to the mountains looks like a good goal for my FOP review, maybe next year, although I normally ski down, vs bike up. The ... Read more
Great article, that trip to the mountains looks like a good goal for my FOP review, maybe next year, although I normally ski down, vs bike up. The mountain Bike is in the garage ready to go - although a nice shiny new road bike wouldn't go amiss. I already have some Lycra albeit the wrong style as it is a Giant Slalom/ Slalom race suit from my Masters SKI Racing days in the US!
I'm waiting on the report front until I start rehab on Friday as it has been a quiet week consumed by Paralympics and a late night of tennis..
My work colleagues are a great support team. Looking forward to getting back to work with them.
On September 11, 2012...
I saw this and thought of you :
"But no Mamil's life is complete without the spiritual journey to the mountains."
http://www.bbc.co.uk/news/magazine-10965608
Ok, so it's been another week and you are late with your weekly report. Glad to see your work colleagues encouraging you :-)
Right - I do not expect any excuse about skipping the cardioversion this time !!! I am amazed Frank is doing it for you, he really is taking a special interest in you - how many would have just slapped in a replacement valve after looking at yours and sent you back to your local hospital. That guy is a legend. He deserves an award.
Enjoy the lovely weather this week, looks like we are getting a few days of sun.
Remember - Slow and steady - no rushing - you are well on the way to being fixed.
Paul Rose Hi Annon! Yes frank is indeed a legend and have to agree that any other surgeon would have just thrown in the towel and gone for repair as it was pretty complex ... Read more
Paul Rose Hi Annon! Yes frank is indeed a legend and have to agree that any other surgeon would have just thrown in the towel and gone for repair as it was pretty complex (P1,P2 & P3 repair!). I will definitely go for the Cardioversion although I'm pretty sure that Frank will arrange it but not actually do the business and hand it off, but still the best place to get it done - he is probably needed for more valve repairs in theatre!
Just, received call from cardio rehab, will not start with them until Friday 14th, my two month anniversary :-)) Have been pacing things on the walk, but am at a 4mph limit without getting breathless, only way to get faster is to run! but I am holding back on that until I start rehab.
As for the sun, had to stay out of it whilst on Amiodorone - some weird side effect that gives you blue skin - have to wait a couple more weeks before it is out of my system. In meantime, will take a few chances with it.
Have a good week in the sun too!."
On September 1, 2012...
Hi Paul, Isn't Mr Wells the most huggable surgeon ever! I had electrocardioversion twice after surgery as the ablation procedure seemed not to have worked and even after the 2nd shocks I only stayed in sinus rythm for a few hours. Then 6 weeks later - bingo! Sinus rhythm returned (in the middle of a conversation!) and has been so for the last 2.5 years except for one minor transgression when I took a cold remedy that contained ephedrine (it wasn’t apparent on the front label). But in AF only for 4 days that time. So take heart (heh!heh!) it can resolve.
Paul Rose Hi, yes Mr Wells is utterly charming and very assuring on top of being one of the top surgeons in the world to boot! I am travelling up to Papworth, about ... Read more
Paul Rose Hi, yes Mr Wells is utterly charming and very assuring on top of being one of the top surgeons in the world to boot! I am travelling up to Papworth, about 2.5 hours each way, for the Cardioversion. Mr Wells is setting it up within the next few weeks. I would be more than happy to have more "shocks" if I can get into NSR and out of Afib and the drugs. Fantastic to hear that you ended up spontaneously converted, hopefully it will just stay that way for you and I can follow your lead. Will take heart as recommended.
On August 31, 2012...
Hey Paul. See it looks like you have arrived. Bet the tingling in your finger is gone too right? I told you it would lol. Glad you are doing so well. Keep it up and enjoy every day.
Mooving on up
LInda H
Paul Rose Hi Linda! Thanks, not quite arrived but hope that I am on my final approach to runway. I still have permenant Afib, and the tingling is still very much there, ... Read more
Paul Rose Hi Linda! Thanks, not quite arrived but hope that I am on my final approach to runway. I still have permenant Afib, and the tingling is still very much there, to the point can not practiice guitar - fret hand can not make a chord and two fingers can not press down a string :-(
Keep on mooving, it's not far now
On August 31, 2012...
Your sense of humor is fantastic, reading your updates is really great :)
Paul Rose Thanks Patricia, as a reformed regurgitator, did your AFib resolve with time? I am still very definitely a great example of AFib wishing to be a better example ... Read more
Paul Rose Thanks Patricia, as a reformed regurgitator, did your AFib resolve with time? I am still very definitely a great example of AFib wishing to be a better example of NSR! Just trying to discover how others made it there.
Hope all is going well for you
On August 31, 2012...
Hey Paul...... you sound like the bionic man now... and SO SO happy that all going to plan, and you're deffo on the mend..... Mom and Dad (She and Geoff) send all their love..... they didnt know the op had happened until after the event :( ..... xx Love and hugs to both yourself and Joan xxx
Paul Rose Hi Tracy, thanks, mostly going to plan, a little more work to do to cure the Arythmia and Afib. that said I'm so lucky to have met the surgeon and have my valve ... Read more
Paul Rose Hi Tracy, thanks, mostly going to plan, a little more work to do to cure the Arythmia and Afib. that said I'm so lucky to have met the surgeon and have my valve repaired and am definitely up for the challenge.
Please say Hi to She and Geoff for me and many thanks for the love and hugs for both of us, and same to you xxx
On August 30, 2012...
No, not Penny, but the bloke with no name !
Guess there are just the three of us on here who have been operated on by Frank.
Paul Rose Hi Anon, I think there must be four of us, what a legacy:-)
On August 29, 2012...
All the best for 30th looks like its all motorway for you. Look forward to seeing an update on your progress.
Any news on AFib, how is the heart doing ?
Watch the pain meds, you should not be needing them this long after the operation - you may have become addicted.
Frank was too busy to see me at the 6 week checkup so I saw some random doctor. I do remember a chest xray and seeing the wires used to hold the sternum closed. Cool.
Still don't see how you can walk and talk. if you are going on walks with a woman - when is it your turn to speak ???
Pretty sure I'm still in AFib, no real symptoms, but the cardio rehab nurse thought I was as she checked my pulse. I hope to find out more tomorrow. ... Read more
Pretty sure I'm still in AFib, no real symptoms, but the cardio rehab nurse thought I was as she checked my pulse. I hope to find out more tomorrow.
I am just about off the pain meds right now, a couple of parecetemol left to dump. made the mistake of catching a swinging door last week, just a reflex but absolutely nailed my chest muscles for about 4 days or would have been off quicker!
I think one of Franks Registrars did the Op anyway as he seemed to take the lead at Papworth. I only saw Frank for maybe 20min.while I there so will not be surprised if delegated. if he is there I will pass your regards on. I did get tomsee the new chordia and the ring on my echo before discharge, would love to get a picture to post
I'm really comfortable cruising at about 4mph on my walks of 2 miles and around 3.7mph on the 4 milers - I know a little retentive. I'm happy at that but need to check back with cardio clinic as they didn't want me to push it. too hard. haven't had many problems getting my words in on the walks:-))
All the best
Paul
On August 28, 2012...
Hope you are continuing to do as you are told by Joan and other experts. Glad to hear the meds are being reduced and the exercise slowly increasing, remember the tortoise... ParaOlympics starting in a day or so with lots more inspriing athletes to watch and applaud. Time seems to be passing so fast this end cannot believe you have been away for almost 2 months.
Take the very best care of yourself and best wishes to 'Saint Joan'.
Paul Rose Hi Nicole! Trying to follow instructions and Recovery is pogressing, not as fast as I would like and I know I need to be patient, but that is not always the ... Read more
Paul Rose Hi Nicole! Trying to follow instructions and Recovery is pogressing, not as fast as I would like and I know I need to be patient, but that is not always the nature of the beast.
As I come off the meds my sleep patterns are being wrecked and concentration is still not up to much, I guess is it just withdrawal symtoms, but not at all enjoyable. Walking is theraputic but tiring, can now do about an hour, with instructions to get quicker verus more distance and longer - easier said than done as it feels like some of the tortoises cruise past me along the road.
Looking forward to the Paralympics, the athletes are amazing and certainly helps keep things in perspective.
Now I have not been out for two months although it may feel like it! Operation was Friday 13th August, so I have a couple of weeks to go - not wanting to wish them away here and as pedantic as usual:-)
Joan is still amazing support, and yes I have tried her patience a couple of times, especially on the walking distances. I have passed on your wishes
All the best
Paul
On August 23, 2012...
Mr Rose I go on holiday for one week and you are still in training to beat Hussain Bolt at the 100M - and as for the memory loss. I am sorry but that is old age creeping in it catches up with all of us.
Seriously glad you are on the mend but you do have to take one step at a time. It's quicker in th long run
TTFN Angie x
Paul Rose Hi Angie, I have been following instructions to shorten imy distances and go faster, so move over Mr Bolt, should be down to.Olympic 100 & 200 in a while :-)). ... Read more
Paul Rose Hi Angie, I have been following instructions to shorten imy distances and go faster, so move over Mr Bolt, should be down to.Olympic 100 & 200 in a while :-)). That said I'm walking 1.5 miles at about 4mph so good progress.
Have decided that I am not subscribing to the get older and age creeping up scene, I will just accept that I'm not quite as fast as I used to be or that my competition is just getting quicker due to banned substances
You are right on taking it easier though, the slower approach is proving dividends and I will be following your and Cardio rehab instructions to measure my return. It is definitely quicker in the long run.
Hope you had a great holiday
All the best
Paul x
On August 13, 2012...
Hi Paul,
Have signed up for your journal updates so keep them coming! Your note prompted me to read my own story again and I find it incredible what I have forgotten. I don't know my bible too well but 'this to shall pass' immediately comes to mind. Thanks for prompting me and I wish you a slow and steady recovery and your wife the patience of the saint that has her name! Best wishes Penny
I'm not too good on the bible either, but thanks for the quote. Joan, my wife, luckily has incredible patience and has been a rock of support, I would be lost without her.
I will try to remain patient, and look forward to being able to do any exercise I want "as soon as possible."
Did you get the maze operation as part of the clinical trial? As I thought Dr Wells was not an advocate of it?
Will keep posting, although the rate will slow down
Paul
On August 13, 2012...
Hi, Paul/Joan:
Glad to hear that you have been off pain meds. To help you sleep, would Ativan be an option? B, Lancy, Pat, & I saw "Bourne Legacy" this afternoon. The entertainment value was good (see quite a bit of motercycle/auto chase), but the concensus was that the previous one was better. Take care.
Helen & Borden
Great to here that you are feeling better., will Skype to catch up.
Sleeping sis not too difficult as I tend to wear myself out with the walking and drop off after a good walk.
Disappointed to hear the the Bourne film is not up to scratch, as have enjoyed the trilogy to date - guess they should have kept Mr Damon!
Take care and talk soon
Paul
On August 10, 2012...
Hi Paul,
I'm glad you doing better, I also had my set back but thanks God I'm feeling better. No pain medicines for almost two weeks, just tylenol but my coumadin level still high. Still sleeping in the recliner most of the time and some neck pain. But definitely getting better each day and hoping not to go back to the hospital again. I keep praying for you and a fast recovery. Take care!
Jeamary Garcia
My setbacks have been much smaller than yours and it is good to know you too are feeling better. I’m now down to only two heavy pain killers a day plus the Parecetemol (UK Tylenol), and working on reducing those further this week.
I have managed to sleep in my own bed from day 1 vs a recliner. I started sleeping with pile the pillows behind me and am now getting down to a couple – no neck pain.
Hope that you do not need to go back to the hospital again, other than a regular check-up. . Take care!
Paul
On August 10, 2012...
Hey Paul, Glad things are starting to look up for you. You can only go up from here you know. I have been enjoying the olymipics as well and seeing some of the sights. Just loved the Queen and opening night jumping out of a helicopter. Wonder what she has in store for the closing lol. Seeing some of the things that these young people do makes me hurt ouch. I never watch wrestling but saw a little today and it was actually funny. Oh well my friend you just keep up the good work.
Getting there
LInda H
Paul Rose Hey Linda, Thanks and yes things are getting a little better every day. Walking especially as 1.5 to 2 Miles is now a 40 minute stroll :-)
The Olympics have been great and much, much better than daytime TV and soaps, can’t wait for the Paralympics to be broadcast in a few weeks. I too thought the Queen sketch with Bond on opening night was brilliant. Last night’s closing was a little quirky, hopefully it translated over the pond! I have never failed to be amazed at what the athletes can do and some of the backstories are truly moving. The BBC coverage here was superb with every minute of every event being broadcast (all participants) and if you missed anything it can be streamed from the BBC web site!
Hopefully your waiting is getting easier, time will fly by and the next thing it has been done and you are in recovery
Paul
On August 6, 2012...
Hello Mr Rose
Just been reading your blog, and even plucked up the courage to look at the photos.
We really want you to take it easy and recover fully - we need the voice projection and cognitive reasoning back to tip top Paul style in a few months time - we are storing up the hard questions for you to answer.
On second thoughts - does that mean it will be quieter and that we will be able to sign things off and then tell you it must have been you - so an advantage point for us?
Nah... we would not!!! we love you just the way you are.
Take it easy, be patient and we'll have you back soon enough.
You know I will be looking for answers not just questions and will need you to provide the reasoning :-). Remember this is only a temporary ... Read more
You know I will be looking for answers not just questions and will need you to provide the reasoning :-). Remember this is only a temporary interruption and normal service will be resumed shortly! Either way I will start with the easy questions and work back in as slowly as usual.
Trying to retain my patience as opposed to being a patient and looking forward to getting back, but not sure on outlook yet.
Thanks for the support, really appreciated as were the wine gums, the book (not yet read) and the colouring book which has a few competeive entries
Paul
On August 6, 2012...
Hi Paul,
Do they sell the cereal called Cheerios in the United Kingdom. It has 45% of the recommended daily allowance of Iron for 1 cup. I'm planning to munch on this along with other foods, if I'm low on Iron after surgery. I don't like liver.....
I'm also preparing myself for "pump head". Gonna use different tactics for me to remember stuff. I'm pretty forgetful anyways, so now is a good time to use technology - like my iPhone notepad application to type in names, passwords, dates, etc.
It's only 3 weeks since surgery. Slow but steady.....2 steps forward, 1 step back (sometimes 2 steps back).
Paul Rose Hi Leo !
I think we have Cheerios and that is a healthy contribution, I will start munching on them as I too dislike liver.
The pump head piece will take some avoiding. It's quite amazing how illcoordinated and illogical you actually become although the last to admit it :-)) days merge into each other. I have 4 alarms set on my phone for meds! Concentration is extremely difficult and sometimes you just plain zone out.
It is surprising just how quickly the time passes, it will be no time before I will be posting post op support messages to your journal and you too will be an ex-regurgitator
Thanks
Paul
On August 5, 2012...
Paul,
Slow but sure is the way to go. Take your time, one step at a time.
I have that one step at a time but am just taking too many steps :-)) I will slow down... a little.
All the best with your recovery
Paul
On August 4, 2012...
Hi Paul!
don't feel bad, I used to cry and get terribly emotional even talking on the phone to my car insurance agent, I think it's normal to feel good one day and not so good the next, at least that's what I was told by my surgeon before he operated on me, he told me that just when I thought I should be feeling better I would have days when I didn't feel so good. Just as long as everything checks out, you should not worry about it and rest, after all, heart surgery is a very serious thing. Say hi to the wife :)
Paul Rose Hi Patricia ! It certainly is an emotional roller coaster, and it is good to know that others have travelled this path before me and experienced similar trials ... Read more
Paul Rose Hi Patricia ! It certainly is an emotional roller coaster, and it is good to know that others have travelled this path before me and experienced similar trials and tribulations. they feel so big at the time and can be so trivial. Today was much better and some extra mileage to boot. Don't have my next appointment with Mr Wells, the consultant surgeon until the 30th and hopefully all will turn out on the right side.
Joan (my wife) says hi and to let you know that there is no chance at the scrubbing bubbles foam cleaner, I need to wipe down the glass shower enclosure once I have recovered a little further:-)
Thanks... Paul
On August 4, 2012...
Hey Paul, Just remember your body just took a beating. It will come back just take a lot of time. Enjoy those olympics on tv. Talk about not being able to think straight. I 'm not there quite yet and yesterday I tried to pay for something I was buying with my drivers license. I have been doing all kinds of crazy things since cath. I blamed the drugs but Im still doing it. Its just the thought of its here. Anyway just dont push yourself someday you will wake up and find your fingers dancing for joy when they finally wake up. They will believe me. You just hang in there
Getting there
LInda H
Paul Rose Hey Linda thanks! So good to know that i'm not the only one doing crazy things. it's just so frustrating, I am really looking forward to "that day" and hope ... Read more
Paul Rose Hey Linda thanks! So good to know that i'm not the only one doing crazy things. it's just so frustrating, I am really looking forward to "that day" and hope it arrives soon. I have had to place too much on hold over the last year waiting to get to this side of the hill :-))
Backed off on tonight's walk and turned down the opportunity of another 600 steps around my loop.
Back to watching the Olympics - perfect timing to be off
Thanks again
Paul R (ex-regurgitator)
On August 2, 2012...
Mr Rose please learn the meaning of the word patience!!!!
I know it is not a strong point of yours but it will make your recovery quicker. The marathon will have to wait till next year.
Take care
Angie xx
Paul Rose Hi Leo, thanks, glad it brought a smile. Not sure that you will be sleeping on your stomach for a while as the wound is a tadd tender to start with, even ... Read more
Paul Rose Hi Leo, thanks, glad it brought a smile. Not sure that you will be sleeping on your stomach for a while as the wound is a tadd tender to start with, even accounting for a good pain management regime.
That 10,000 steps is in the plan, a little way out right now, but up there with return to skiing, windsurfing, golf, cycling, SCUBA, squash and any other sport that takes fancy! I will take it easy but so difficult as fundamentally I prefer being the hare to the tortoise :-))
Paul (ex-regurgitator )
On July 27, 2012...
Hi Paul,
I've followed your progress - so glad you're doing better & better!
Paul Rose Hi Vicki thanks! I see from your journal that you are near the start. The HVJ is a great forum for support, I'm sure everyone will be pulling for you.
Paul
On July 27, 2012...
Hi Paul, My daughter has to take coumadian, and since she has moved to Georgia not her new doctor told her that Warfain was a generic drug for coumadian and it makes your INR go all over the place. While she lived in Virginia she was having trouble with it being to low or to high. Check this out with your doctor and what he says.
Getting there
LInda H
Uploading your photo!
Christmas blessing Paul to you and family,
From your Aussie friend
Gabi x
Great to hear from you, and happy to relinquish the zipper/zapper lead back. Now I'm not sure you needed to go quite as far as another set of surgery ... Read more
Great to hear from you, and happy to relinquish the zipper/zapper lead back. Now I'm not sure you needed to go quite as far as another set of surgery to get it. But since you have, I'll continue to support you all the way. Cant believe just how long it has been since we first met on the then HVJ.
Glad to hear that your heart is strong and your suspicions were vindicated. Sounds like you have a "intelligent" surgeon who can communicate - more than half the battle. You will be back from your re-repair in no time. In the meantime perfectly acceptable to take those rests along the way, make the best of it and indeed you know the plan is nice and easy until you're back up and ready to restart your Zumba.
Merry Christmas to you and your family.
Your Pom friend Paul