Brandy Robbins posted a note for Jon that says:
I just read all of your journals! Thanks so much for being so detailed! It really helps those of us who will soon embark on the valve surgery journey! May I ask why you didn't have surgery at the Cleveland Clinic? I am in Alabama but will be traveling there for surgery on both my aortic and mitral valves. God bless!
Thanks so much for positing again, it caused me to find your journal. I am just started this journey, have the same condition, and fairly close in age to you (I am 47). So I am really glad to have found your journal!!!! So glad you are doing well. - Mitch Friedman
Thanks for the good wishes. I am always happy to read the blogs from people who are back on track and happy on the other side of the op.
With only a few more days to go I wondered about the prospects of just watching a scary movie and having the heart go thump thump ! Its nice to know that won't be a concern post op.
I'm doing great. Still running and playing tennis. Sitting here tonight having a Summer Shandy and catching up on the tube. Missy and I had a great time in Jamaica. I was able to stop over and see Jeff Roemer in the hospital. Seems to be doing pretty well. I have no complaints. Just trying to be patient and wait for September. Living one day at a time. Hope you're doing well. Take care and God Bless
Sounds like things are going well. I have my appt with the oral surgeon tomorrow regarding my wisdom teeth. Heart cath scheduled later this month and then surgery in September. God Bless and stay in touch.
So glad that you are starting to feel better! Also thankful for the fact that this heart defect was found when it was and that there was something they could do to take care of it! Now that the surgery is behind you - and you are feeling a little better, I'm sure that it is overwhelming to think of all that you have been through over these past few weeks (months) and can start looking forward to the future! Mark and I are giving you time to get to feeling better - but are going to schedule dinner with you guys when you feel ready. Still sending prayers and thinking about you guys daily!
"Thanks for the quick response Jon. The pre-op testing went well. I just plan to spend this next week on a little trip to my hometown and up around the Erie Islands.
The reason I asked about the coumadin was because I looked into home monitoring, like Jim Davis was talking about. I am sure that for a while they will be stabalizing my levels just like they are doing for you.
I hope you are getting some energy back and feeling well my friend.
Thanks for the encouragement. How are you feeling? I hope you have very little discomfort. I was actually reading about the ATS valve you have. I am trying to decide between that one and an On-X. Isn't it amazing that heart surgery has advanced to the level where we pick out valves like we were shopping for a car? :)
My valve is kinda weird. It's bicuspid, but it is not stenotic or leak. Svensson doesn't think he will have to repair or replace it. But that still leaves with a valve that will eventually have to be replaced. While I am not looking forward to having to start on coumadin to replace a valve that might be okay for another 15-20 years. I sure don't want to stare down the barrel of having another surgery.
Jon, So happy you will be going home to finish your recovery, I am sure you are very blessed to have June as your nurse ,she will take very good care of you, I am happy you have someone you love so much in your life, Please take care of each other, I hope to see you and get to meet June during jubilee days..
Please don't try to over do , thats hard I know, but you will be back to yourself before long!! Prayers did and are still working!! Love ya lots, Jackie
You truly are a blessed man to have had a successful heart surgery and a wonderful person by your side through it all. God is good. I hope your recovery will be as smooth as possible. Keep your head up.
I'm glad Jon is progressing well. I think I can address your question about watching for signs of depression. I think once he gets home you really need to monitor his pain meds and make sure he eats well and gets plenty of sleep. I monitored my husband's pain meds closely, I even made a spreadsheet to keep track of when he was taking the pain meds and the muscle relaxer. Most of them say every 4 to 6 hours or as needed. I think as needed after the first one and a half or two weeks is key. I know it seems insensative because your husband will still have significant pain, but the sooner he can get of the narcotics the sooner he will be clear headed and be able to recover faster. My husband was off the pain meds and muscle relaxers after 2 weeks (he is 7 weeks post op today). Your husband can take an over-the-counter pain reliever to supplement for the pain meds. Once he is off the meds he will be able to walk further and regain interest in some normal activities. Your husband may want a pity party once in a while, which is fine because he has gone through a tremendous ordeal and those of us that have not gone through it personnally don't have any idea what he has have gone through, but then he needs pick himself up by his boot straps and move on to something more positive. You will have to be the strong one at this point and with your support he will recover faster. Remember at this point it really is one day at a time and everyday it will get better. Take care and positive thoughts your way. Donna
Good to see your progressing, and got the oxygen taken off, I know, it's very aggravating, Glad to see the pictures and the healing posted on FB too. Thanks for the updates, When will you get released from Hospital? Take Care, Love ya!
Jon, It seems like our recoveries are progressing right along. I know what you mean about being tired. I can take a walk down the hall come back and feel awake. The next thing I know I'm dozing off like my 90 year old grandpa used to. Enjoy it while you can, one of these days soon people will think it is rude falling asleep while they are talking to you.lol Beth Graves
Glad to hear that you are getting better after the surgery. Take it one step at a time. We are thinking of you every day. Everybody is also pulling for you. Let us know if you need anything. We enjoy reading your updates on-line.
Mike & Johnna
How are you feeling this fine Sunday morning?
The Sky is blue, the birds are singing and Jon is ticking :)
You are doing great my friend, and getting stronger by the day. You are surrounded by a loving family and supported by friends who are glad to see you doing so well. Don't try to rush your recovery, let God and nature do their thing. Trust the Doctors, nurses and medical staff :)
Here's a trick I used to get in and out out bed without pain. A lot of hospital beds have places at the foot of the bed where you can hook your foot in and then do a sit-up using your abs. No twisting, no pain (hopefully). Then when you are sitting on your butt, swing your feet over the side of the bed and stand up. If there's no place to hook your foot in, someone can put weight on your ankles. Getting back in bed is just reversing the steps. Hope this helps -- DVB
I'm glad to hear that Jon is doing well. I had my aortic valve replaced May 21, 2010, at Duke. I remember getting up the first time and finding out that they put me on the heart-lung machine through my groin. After getting over that shock--and pain--things went pretty well.
He will be tired for a couple of weeks but eventually things will get better. Let the hospital staff do their job and rest all that you can. Your work starts when Jon comes home.
(A word of advice. Talk to the doctor about putting betadine on the incision once it is closed or the steri-strips fall off. My incision got infected and the betadine helped with the healing and it also keeps the bacteria around the incision at bay. I started "painting" my pacemaker incision with betadine this week after it got infected. Wish I had started before it got infected.)
So excited to hear that you are doing well! Had to giggle about the WD40 comment. You will be back to BETTER than normal in no time! So glad that you have plenty of family and friends there to support you. Please know that you and June continue to be in our prayers everyday! Awesome news. God is good! :) Had your journal updates sent to my email and Mark has been getting your text updates. Hope to talk to you soon!
~April and Mark ~