amy's Guestbook

Hi Amy my name is Jennifer. I\'m not sure how many values you can have but I do know a little about repeat surgery. I first had surgery at 3mths. Coraction of the aorta with PDA and ASD. Dec 22,12 my mitrial value was replaced. Talk about scared. I was told it would be complex due to what happened when I was a baby and after literally three weeks in three different hospitals and omg the tests ans being sent to three cardiologists they all agreeded it was Mayo or Mt Sani in Miami. I chose Miami because if I was going to die I was going to see the ocean and be warm. Obviously I lived. My mitral valve stenosis had destroyed 98% of my valve and I had only one partially working leaflet. I am 45 with four children. My freind Cynthia who is now 63 and looks like she\'s mid 40S had mitralve replacement when she was 30. It didn\'t work. 11 months later they did the second surgery to put in a new valve. She is my mentor. You would be never know by looking at her that she went through that nightmare twice in eleven months over thirty years ago! I am hoping that sharing this with you will give you more inspiration in the knowledge that you aren\'t alone and others of us are here to help support each you.

Hi Amy, better healing is always a good thing! I know it means more waiting, but yay for being able to be fixed instead of a transplant. However, just so you know, I had a friend that had a heart transplant 12 years ago. He had absolutely no problems with it whatsoever, no rejection ever, great heart. He passed away a year ago, but not from heart problems, he developed dementia, probably alzheimer\'s. Anyway, in God\'s time everything will work out, our timing isn\'t always the best, lol. Maybe His plan is for you to \"hang around the journal\" and encourage those whose time has come. Your sweet spirit is just that...sweet! Hang in there, stay strong! Linda THE Tiger, AVR 3/13/12

Amy, you have had a rough couple of year, praying that your heart will grow strong and be ready for the replacement coming up. There are so many ways you can encourage others through this! Hang in there, I will be following your journal and keeping you in my prayers. Holly P

Hi Amy That is good news. I was worrying about you, but thats me lol. Try not to stress out about anything and you will do fine. Hopfully the time will fly for you, then you can start a new again and have lots of summers to enjoy. Hang in there and prayers will continue for you and your family. For the long haul Linda H

Hi Amy, You are going to be fine. Unfortunetely I dont think your third thought will be the one sorry. I know how you feel with all the thoughts and it can drive you crazy. When that happens to me I just say a prayer and let it be in his hands. God will take care of you. You are young and that is on your side, but this stuff will be a piece of cake. You and I will be finding that out in time. You might beat me so you will have to let me know. Juest keep hanging in there and you will do great. I will keep watching you. For the long haul Linda H

Hi Amy, Wow....you have been through a lot! I can\'t even imagine what you must be feeling, but you seem to be very upbeat and that\'s great! I was diagnosed with three leaky heart valves about 18 months ago. I had no idea there was anything wrong with my heart, but the first words out of the cardiologists mouth were, \" You have three leaky heart valves and they all need to be repaired or replaced.\" I went to Cleveland and had two of the three repaired....the other one wasn\'t bad enough to do anything with ( or at least that\'s what they told me!) I had Dr. Gillinov for a surgeon and it went fine. I will be interested to see which surgeon they refer you to. You will be in my thoughts and prayers.....Godspeed and good luck! Deb Ziegler