Aortic Regurgitation, Joined December 22, 2021
Aortic Regurgitation
Joined December 22, 2021
sue burns
Mitral Regurgitation
May 2, 2024
meg oconnell
Bicuspid Aortic Valve
May 6, 2024
Sandy Schemelia
Aortic Stenosis
May 6, 2024
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I’ve also been told I have no other option but surgery in the next coupe months by 2 surgeons but have been searching with the help of my wife for other options. I read your story and diagnoses and it’s extremely similar to mine. I do have some major family history from my Grandfather dying at my age, 48, of an aortic dissection from the ascending aortic aneurysm and my father just had his 3rd porcine aortic valve replacement, the first one being at age 38. I’ve been checked my whole life for this bicuspid valve and they told me I just had a murmur and I was good to go. Now after further imaging years later they tell me I have a bicuspid aortic valve , moderate to severe regurgitation and an ascending aortic aneurysm measuring 4.9 cm with an enlarged left ventricle. Only good news here is that the angiogram revealed no blockages in arteries as they’re all clear. I understand the Doctors concern given my condition, family history and the stress in my career but I’m thinking of putting off surgery until next spring 2025 if that’s the route I have to go. I’m extremely active with my job as a Firefighter and do not want to stop doing what I love. After being warned by surgeons not to lift anything heavy I am taking precautions like not doing any heavy weight lifting routine anymore and as a Captain I’m able to delegate some of the heavier tasks to my crew at a fire scene.
I was planning on having a follow up cat scan or other imaging to see how things are progressing in the next few months . I have no major symptoms other than some minor heart palpitations and feeling more tired after some major physical activity than I used to but I attribute that to age and not being as fit as my younger years. When you were diagnosed did you have any warning signs or symptoms?
I’m going to give your daily tea and supplement regiment a try immediately. I read the K2 article you provided and thank you for that information. As far as a regular fitness routine I have backed off on a lot of mine since the surgeons warnings. What does your fitness routine look like? Also curious if you have any family history with a bicuspid valve or aortic aneurysm? If possible do you mind sharing your aortic aneurysm size and has that shrunk like your LV ? Thank you for sharing your promising news with others and I would love to hear back from you.
Angus
My aneurysm size is 42mm, 4.2cm. This has remained unchanged from the beginning of my imaging back in early 2021. I'm not sure that there's a way to shrink aortic aneurysms unfortunately.
When I was first diagnosed I was having frequent palpitations and some periods of irregular heartbeat, though it's possible the latter was due to anxiety brought on by the palpitations I'm unsure. Today I have the odd palpitation very infrequently but no other symptoms. I've actually increased my physical activity levels and have no noticeable fatigue.
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My aneurysm size is 42mm, 4.2cm. This has remained unchanged from the beginning of my imaging back in early 2021. I'm not sure that there's a way to shrink aortic aneurysms unfortunately.
When I was first diagnosed I was having frequent palpitations and some periods of irregular heartbeat, though it's possible the latter was due to anxiety brought on by the palpitations I'm unsure. Today I have the odd palpitation very infrequently but no other symptoms. I've actually increased my physical activity levels and have no noticeable fatigue.
I don't have any family history of either bicuspid valves or aneurysms to my knowledge.
My fitness routine has been 2 on 1 off light/moderate weightlifting and HIIT cardio for a few years now. I was very sedentary when I was initially diagnosed due to a back injury that had happened years prior but kept flaring up whenever I lifted something incorrectly, probably a herniated disc from what I've been told. But, the heart diagnosis was enough to force me into changing those habits.
For weights I spend around an hour working with dumbells, I have a set of 10-70lb adjustable dumbbells. I usually pick from exercises like chest press, incline chest press, flys, reverse flys, bicep curls, tricep, extensions, weighted bridges, deadlifts, and pushups/pullups. The heaviest weight I do on any of these is 70lbs each hand on chest pressing, so 140 total. I am very cognizant to not hold my breath/strain excessively when lifting.
On non-weight days I do a 30min - 1 hour HIIT cardio session. Usually I just pick something off of Youtube, there's a couple of good channels that post a lot of free workouts (teambodyproject is one I enjoy). Finally, on rest days I've been incorporating Yoga at my wifes request. I'm still pretty certain it's impossible but I do my best.
Angus
I drink the Hawthorne in the evening mostly due to the large quantity (roughly 32oz), but also due to my work schedule.
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I drink the Hawthorne in the evening mostly due to the large quantity (roughly 32oz), but also due to my work schedule.
I start my morning with 1ml of the hawthorne tincture.