Adam, I had surgery in April and still have a great deal of pain - especially if I use my arms a lot or get too tired. Unfortunately, I cannot take pain meds. I use a heating pad for a while at night which helps a little. My best to you for a complete recovery. Ruth Howell
I just read your last post and while I am not sure what type of valve you went with I have the same vision issue. I didn't have it before the surgery. Basically the eye doctors and my cardio told me they were occular migranes. Annoying but harmless unless they come with pain. As for tingling I had that also not far out from the surgery.
I am 9 months out from an AVR which replaced my bicuspid valve which was damaged by endocarditis. Anyways just a heads up that some weird stuff happens and it shouldn't worry you.
I don't know if there is an easier way to chat besides this guestbook thing. My recovery has been slow. I am also wanting to strat jogging again, but can only go for a min or two at 6mph then have to slow and walk at 4 mph for a min or two. Pretty brutal, since 6mph used to be my warmup or steady pace for a long time. I also needed a pacemaker post-op so I am still dealing with those challenges or getting the settings right. Like you, I can't complain about much, happy to be here!
Hey Adam, I had valve sparing aortic root replacement in July 2010. I am 30 yrs old also with a small child. My ascending aorta aneurysm was 6.7cm when it was found. I am lucky. Glad you are progressing well. It is a slow go, and I am still nowhere near post-op fitness levels. Give me a shout if you want.
My thoughts exactly on Tractor Traylor. News like that has a tendency to gnaw at you. On a much lighter note (I hope), how is your recovery coming. I really hope all is well with you and your family. I am headed to Cleveland on May 25th and will update when I know more. Keeping you in my prayers.
I would love to know how things are going. When you get a chance, give me an update. Keep praying for you and your family! I still don't know much. Cleveland is supposed to call on Monday to schedule my battery of testing and visit with the cardiologist and surgeon.
I guess the ball is officially rolling. Cleveland called today. I need to have pulmonary function tests, an ECHO, CT Scan, Holter monitor, and a cardiology evaluation, then meet with the surgeon to discuss timing. I feel a sense of relief now. Just have to be patient and wait for the story to unfold. I hope Ll is well with you and your recovery.
Glad to hear you're home. Glad to hear things seem to be going well. Hope your recovery is a quick one. Haven't heard from Cleveland yet. Like Tom Petty said, the waiting is the hardest part.
No updates as of yet. I called yesterday and the doctor has not reviewed by case as yet. Hope to hear something early next week. BTW, were they able to repair your valve or did they have to replace it? Keep gettin' better.
I think that we need to avoid isometric type exercise like weight lifting, heavy lifting, etc. I have to stay active. Running is how I found out about my problem, remember, I said I flipped into a fib. That was after a run. If I hadn't flipped into a fib I would never have known. I would have one of those "idiots" who dropped dead during a marathon.
I have been dealing with this since 9/2009 when I flipped into a fib. My "routine" ECHO turned into a transespophageal ECHO and the a CT coronary angiogram showing my dilated root. Then it was on to the beta blockers and the time bomb in my chest. Finally, I just told my cardiologist that I wanted a referral to a CT surgeon skilled in valve preservation. My thinking is that elective repair has about a 1.5% mortality. That goes up 10 fold for repair of a dissection. Also if you dissect, you are more likely to dissect after your repair. I know that you are doing the right thing. Neither one of us wants to, but I think that we have to. I have two little girls, ages 12 and (almost) 8. They still don't know much about this although my 12 year old is beginning to figure it out. I should hear something back from Cleveland (hopefully) next week. My work schedule is pretty hectic so I need a little time to allow my office to juggle my schedule. Nothing like an unexpected 6 weeks off to lift morale around the office or around home! I will praying for you on Tuesday. I am finally beginning to come to grips with this as I am sure that you are as well.
"I can do all things through Christ, who strengthens me..." Phillipians 4:13
"Let not your heart be troubled, have faith in God, have faith also in me..." John 14:1
"Don't give the prick the satisfaction..."
Clint Eastwood as Gunnery Sgt. Thomas Highway in Heartbreak Ridge.
God Bless you and your family. Keep us posted please.
I live just down I-71 from you in Cincinnati. You and I have the exact same problem, with it looks like the exact same aortic dimensions. I am still waiting on hearing back from the Cleveland Clinic about my referral. I hope and pray that all goes well for you. Keep me posted.