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kansas city, Kansas,
Dilated Acsending Aorta
The Patient's Guide
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Cleveland Follow-UpsThis wilI probably be my last post for awhile. I had my follow-up appoitments in Cleveland on Monday with the Rhuematologist and the surgeon. I am happy to report that my Echo and MRI both looked great! Both doctors where happy.
13 weeks post opIt's offically been 13 weeks since surgery. When I had my surgery Dr. Rosselli said it would probably take 12 weeks to get totally back to normal and I remember thinking it is going to be a long 12 weeks. I am happy to report the time has gone by quickly; however, I wouldn't say that I am 100% back to normal. I still have some pain in my sternum on the days that I do a lot... like work out, carry groceries, carry kids around etc.
ProgressI will be at eight weeks on Monday. I started cardiac rehab on Wednesday. My first day was kind of hard.. anything that used my arms made me really sore in my sternum but today's session was much better. I even did weights today. It kind of made me laugh because I am using three pound weights.... eight weeks ago I was carrying around almost 60 pounds of kids and now I'm using three pound weights. I guess you gotta start somewhere. They told me I would have a big bump up on excersizes monday because they start off slow to see how it goes and I have done well with it.
Six WeeksToday is offically six weeks and there are lots of changes happening this week. For starters I can drive now... and ride in the front seat. After six weeks of not driving it will be nice to be able to run errands by myself. The original plan was that at six weeks I wouldn't need help with the kids anymore because I would be cleared for "normal" activities; however, I'm not quite there yet. I have to guess that most people having a surgery like this their normal activities don't include chasing and carrying around two almost thirty pound three year olds. Luckily for me my mom has agreed to come and help for a little while longer. Although I am doing today by myself becaue they will be at school most of the day.
Almost Five WeeksOn Monday I will officially be five weeks out. Sometimes it seems hard to believe that it has already been five weeks.
Three weeks out...feeling so much better!It has officially been three weeks today. I am happy to report that I turned a corner this weekend. I am feeling much much better. My mom took the kids home for the weekend and I was able to get a little more rest. I slept in and even ventured out to lunch and to run a few errands with Jason on Sunday. I haven't had any headaches for several days, my back is almost back to normal and the incision pain really isn't too bad. My incision looks awesome... I went to get lab work done this morning and the lab tech couldn't believe my surgery was only three weeks ago.
18 daysIt's been 18 days since surgery. Before surgery I thought I would be feeling different at this point. My mom and husband are quick to point out what a big surgery I had and that the doctor told them I shouldn't expect to following the guidelines set forth for heart valve replacement because this was a bigger deal. I'm just impatient to get back to normal.
HomeI made it home.. the trip home actually went pretty well. They delayed our flight by an hour so we had extra time to sit in the airport. The flight wasn't very full so I got to spread out in two seats. Jason, the kids and his parents met us at the airport. It was great to see everyone and finally be home. Instead of going to our house we headed to my parents so Jason would have help with the kids and I.
Headed Home Tomorrow... and my babies third birthday.Yesterday was a good day. I was able to get out and walk a couple of times.. I'm getting stronger everyday. Mom and I also went to dinner downstairs at the hotel and I actually made it through the whole dinner before getting tired. We also got to skype with Jason and the kids, which always makes my day better. Leah told me she sent me an email that says She loves me. Jack was very wound up and was basically only making monkey faces.
Hotel Life and Pathology ReportsIt’s Natalie again. I had good intentions of doing the post myself yesterday but as Mom said I was having some issues with medicine (Tylenol of all things) and the short trip to the hotel was much more tiring than I expected.
Good morning from ClevelandSept 18, 2012
OUT OF HOSPITALMonday September 17, 2012
It's NatalieIt's Natalie. After having my chest tube removed yesterday and getting a shower I feel like a whole new person. Mom is back at the hotel showering and such and I have opened the shades by myself, went on a walk to get water and managed to carry the lap top to the bed. These may not sound like big things to you but they are huge accomplishments. I will probably be very tired and sore later because all of this but beginning to feel a sense of indenpendce is good.
Chest tube is goneNatalie finally got her chest tube out this afternoon and is much more comfortable now. She was very nervous about having the tube removed but it did not appear to be bad at all. We went to the roof top area, walked around the halls several times and she gets to take a shower in a little while. Still gets tired very quickly but everyday we see improvement. Now that Natalie is feeling better she is getting a little bored. I hope we can move to the hotel soon. A change of scene would be nice.
Good Morning from ClevelandNatalie and I slept very well last night. She was able to sleep for 3 hours at a time (nurse came in every 3 hours). Pain control is still going well, we are waiting for an xray this morning and then with any luck will get the chest tube out. Will check in around lunch time.
Jason has gone home!Friday, September 14, 2012
Making her way
More narcotics please!
Picture of Natalie
ICU - Done!Natalie is now out of the ICU!!!! Everything is looking good, two of the three chest tubes and her central line have been removed.
Progress - ICU
Sunday - Check InThis is Jason, I've taken over blogging duties, so I apologize in advance for my run on sentances.
Pre Op Day 2 and a Free DayMy second day of preop was much easier than the first. We went to the hospital at 9 am for my TCI (To come In) Appointment. We were taken back around 10:30 watched a movie, met with a nurse practicioner, a fellow from anesthesia and then were free to go on our way.
Pre Op Day 1I want to start off by saying that you to everyone who has left us messages on this site or on my facebook. I can't tell you all enough how great it is to know so many people are thinking about us during this time.
One Week Away...Exactly one week from today is my surgery. My husband and I leave for Cleveland on Wednesday morning. We have spent the day today trying to get our house in order, catching up on laundry, packing and spending some time with both sides of the family.
Getting Things In Order50 Days away... not that I'm counting. My husband and I went a couple weeks ago and picked out a recliner. We decided to get theater seating instead of a plain recliner so we can put them in the basement "man room" after recovery. We got the electric kind that people had suggested. The chairs were delivered last week and while they are not what I would normally pick out for my living room they are soo comfy and I can definetly see myself sleeping here after surgery.
Two Months AwayI have two months until my surgery but I am thinking about it constantly.. no matter what I am doing it is in the back of my mind I can't seem to concentrate on anything. I feel kind of bad for my family at this point because I'm just kind of a mess, one minute I am fine and the next I'm crying and then worrying. I'm hoping that it will start to get better.
Surgery ScheduledThe cleveland Clinic called yesterday and I offically have a surgery date. The surgery will be September 10th... but my husband Jason and I will have to be up in Cleveland on September 6th.
First PostI just returned from my visit at Cleveland Clinic. My husband and I got to meet my surgeon and visit with my rhuematologist. The surgery will most likely be scheduled in September but I will know for sure next week.
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