back in 2019 symptoms of aortic reguration started for myself (did sports while was sick), docs said nop, there is ... Read more
sup from germany,
im 24 years old.
back in 2019 symptoms of aortic reguration started for myself (did sports while was sick), docs said nop, there is "nothing" - your wrong.
Massive Head Bobbing, and bounding pulses around my body were much obvious, also quincke sign.
Okay, now, 5 Years Later, via TEE Severe AR is diagnosed yesterday, im crying all day long, cuz the surgery soon. 7 Cardiologist didnt saw the Aortic Reguration in the past years with a normal echo. Im so destroyed and mentally done.
Heres a Google Drive Doc from myself, they ignored all the years those symptoms, how can that be possible?
Robert Miller It's always hard news when you are being told you need heart surgery. So your reactions are understan ... Read more
Robert Miller It's always hard news when you are being told you need heart surgery. So your reactions are understandable.
So you went to 7 different cardiologists and none of them did find anything? Did any of them do an ultrasound? I am not sure what symptoms you had that you thought you have aortic reguration. Was it the pounding heart beat and "head bobbing"? Those can have many different sources. And what was the sickness you had when you did sport? If it's just the regular flue, etc then doing sports during that time isn't going to cause a leakage of your valve.
In any case, the past is the past, unless your goal is to file a lawsuit. Still, you have to make the best of the current situation. There is only going forward. If I were in your shoes, I probably would get another opinion of the TEE you got. Just to make sure it's not a false alarm. It probably isn't in which case you have to plan for the next stages of which there are many. Choosing the right surgeon, preparing for the surgery, if a repair is not possible, decide on a mechanical valve or biological valve (at your age it's most likely a mechanical valve), invasive or non-invasive surgery, recovery, etc. But take one step at a time.
Grace Mason A second opinion is really a good idea Steven. Also look into a Ross procedure, at a Ross center, if ... Read more
Grace Mason A second opinion is really a good idea Steven. Also look into a Ross procedure, at a Ross center, if surgery is something you need to have done.
For patients facing aortic valve replacement, the options leading up to surgery can be overwhelming. Learn more about the Ross Procedure.
Rose Madura Great advice from Robert and Grace. I'm so sorry that you have to go through this especially as t su ... Read more
Rose Madura Great advice from Robert and Grace. I'm so sorry that you have to go through this especially as t such a young age. God bless you on your journey and please keep us posted.
Marie Myers I am sorry your symptoms were ignored in 2019. I hope you can accept what has happened , and move for ... Read more
Marie Myers I am sorry your symptoms were ignored in 2019. I hope you can accept what has happened , and move forward with treatment. It is a difficult diagnosis for a young man to get, but you can get through this!
I am from: Schwerin, Germany
im 24 years old.
back in 2019 symptoms of aortic reguration started for myself (did sports while was sick), docs said nop, there is ... Read more
im 24 years old.
back in 2019 symptoms of aortic reguration started for myself (did sports while was sick), docs said nop, there is "nothing" - your wrong.
Massive Head Bobbing, and bounding pulses around my body were much obvious, also quincke sign.
Okay, now, 5 Years Later, via TEE Severe AR is diagnosed yesterday, im crying all day long, cuz the surgery soon. 7 Cardiologist didnt saw the Aortic Reguration in the past years with a normal echo. Im so destroyed and mentally done.
Heres a Google Drive Doc from myself, they ignored all the years those symptoms, how can that be possible?
https://drive.google.com/drive/folders/1BEqcLXo47Iec0oJ14s3mFKIL_Fwavz4q?usp=drive_link
So you went to 7 different cardiologists and none of them did find anything? Did any of them do an ultrasound? I am not sure what symptoms you had that you thought you have aortic reguration. Was it the pounding heart beat and "head bobbing"? Those can have many different sources. And what was the sickness you had when you did sport? If it's just the regular flue, etc then doing sports during that time isn't going to cause a leakage of your valve.
In any case, the past is the past, unless your goal is to file a lawsuit. Still, you have to make the best of the current situation. There is only going forward. If I were in your shoes, I probably would get another opinion of the TEE you got. Just to make sure it's not a false alarm. It probably isn't in which case you have to plan for the next stages of which there are many. Choosing the right surgeon, preparing for the surgery, if a repair is not possible, decide on a mechanical valve or biological valve (at your age it's most likely a mechanical valve), invasive or non-invasive surgery, recovery, etc. But take one step at a time.
https://therossprocedure.org/