Thanks for all your advice and Prayers.I went in let Tuesday (3/6) expecting to come one on the weekend. Well It was the weekend, just one week later Dr. Ed Murphey of Meijer Heart Center did at a good job repair in the mitral valve and patch a hole between the two chambers, But, when they went to reinflate my lung, I had a flash pulmonary edema so I was kept on the vent for 8 days. God is good and my wife and kids were troopers encouraging me
Wow, like yesterday you were having your cath and now you are up tomorrow. Good luck, we will be thinking of you.
If you want some recovery inspiration, check out Ivana's HVJ, she did da Vinci and was snow boarding like 2 hours after her surgery. Ok, maybe not that quick, but I think you will find her journal motivating.
My thoughts and prayers will be with you tomorrow. Great that you're able to get this taken care of promptly. Like Linda Dixon, my date is one week later: March 13 at Mount Sinai. God bless you and your family and your surgical team.
- Jim Smith
Paul, I leave for Cleveland Clinic on Thurs. March 8th, will having testing on March 9th, meet with surgeon on March 12th and have surgery on March 13th. It has been "forever" coming, so I am ready to get it over with. Hopefully, you will feel up to posting an update before my day. Shoot, you will probably even be home by then. Hope so. Praying you have a great outcome with no complications.
Keep me posted,
Wow Paul, you just jumped right in line ahead of me too! So Tuesday is your day. Best wishes for uneventful surgery and quick and full recovery. Please keep us updated on how things go. Go get'em!!!
Hi Paul, I just got home from my surgery on Feb 2 so have not been tracking you. I am back now and see you are going through all the motioins and doing all the right things. No such thing as TMI. Doing your homework is key! Keep up the good work and I look forward to you getting a date.
If you read through journals you'll find most people (including me) were very concerned about the breathing tube before they had surgery and most people considered it a non-issue after they were done. In my case, I never felt it until they pulled it out. Then I had about 10 seconds of discomfort . . . not a big deal at all. Some people said their hands were in restraints when they woke up to prevent them from pulling at the tube. If mine were in restraints, I never realized it.
The breathing tube was a non-issue for me. I seemed to have kept my eyes closed, so I never saw it. My family kept saying breathe and I would take a deep breath. I do not remember anything else. I was so worried about it and it was absolutely fine. I do remember them saying "We are going to take it out now". Try not to obsess about it. It isn't worth it.
Jane 9 weeks post-op
I woke up very alert, most people do not. I have a history of it. I had breathing tube for 12 hours, scribbled notes to family the entire time. I would NOT worry about it. It doesn't happen to many people and if it does, nothing you can do about it anyway. I find more women wake up with it than men. Janis Kielbasa
God Knows why you happen to be in this situation, and has you in HIS hand! I will be praying for you daily and as often as the Holy Spirit reminds me! Thank you for setting up this blog so we can be updated!
Love you very much!!! And believe HE IS WITH YOU when you are alone there on that gurney and on the table and in recovery and in your room!!!!!!!!!
I will share my experience with the breathing tube. When I woke up from surgery, apparently I was very alert....way more than most people (from what my surgeon told me). I immediately felt the breathing tube, and it was very uncomfortable, but not necessarily painful. I was also aware of a lot beeps going on and off. My nurse told me to really concentrate on breathing on my own. She said the beeps I was hearing were the breathing machine breathing for me. The beeps would stop when I would breathe on my own, so I would really concentrate on taking deep breathes so the machine would be quiet. It quit beeping within an hour of me waking up, and then they pulled the tube. I was very awake for that, and while it is not pleasant, it comes out very quickly, and then you feel a ton better. And then you can talk!
Hope this helps. A lot of people don't even remember being awake when their tube was pulled, so I think it is different for everyone.
Godspeed and good luck!
Paul, my prayers are with you, indeed, for The Great Physician, Chief of all physicians to guide the surgeon and his team and to bring shalom to all involved ... especially you and your loved ones!
Paul...you have come to the right place. A ton of info here and alot of caring people with great advice. I am 3.5 months post AVR and am doing great. My experience w/ the cardiac cath....I barely remember it due to the drugs they gave me. No pain or discomfort. Laying still for a few hours afterward is the worst part and it wasn't bad. I was also concerned w/ the breathing tube. I was lucky...I do not even remember it in or being taken out. By the time I can remember anything after my surgery, the tube was already out.
The waiting is the hardest part. Getting all the details and doing your research is the key to this process. Make your decisions and then take this thing head-on w/ confidence.
This website is a great resource. Lots of great information and support from other heart valve patients.
I had surgery to repair my MItral Valve and also a Maze procedure to treat Atrial Fibrillation on September 14th last year. Fortunately, the surgeries have become fairly common and there is a lot of great experience in this area.
Hi Paul, welcome to the HVJ site. Know you would rather not be a part of this "community", but hey...it is what it is..we all have or have had bad valves...so you are in great company. I have aortic stenosis and dilated aorta, my mitral valve has mild regurgitation and thickening, but I don't think they are going to do anything to it, just replace the aortic valve and possibly repair the dilated aorta.
I would suggest lots of research, Adams's book is a wealth of knowledge, go to a surgeon and facility that "can do these procedures in their sleep". Experience is the key to good outcomes. The HVS surgeon database is also a good tool. After much research I decided to go to Cleveland Clinic for my surgery and that will be on March 13th. Any questions you have...put them out there...you will get lots of support and answers from those who have gone before you. Welcome on this journey...keep in touch.
Paul. Jane is right. Much to l earn here. Alto I am an aortic valve AVR. Not mitral. Nenvertheless. As I say Jane gave u good info. Best to you. Got my date for feb 9. Catchup later. Nancy. St Louis. 2-9
Well you have come to the right place. Everyone on this site can relate to your diagnosis. We are here to support each other through this unwanted journey. The reason I am even on at 11:00 on a saturday night is to check on a fellow HVJ member who has surgery on thursday. We all care a great deal about each other. I had surgery 9 weeks ago for mitral valve regurgitation. I did not know when I went in if it would be a repair or replacement. Mine was repaired. I was out of the hospital on the 5th day and back to work in the 4 weeks. We all heal at a different pace, because we all start out differently and have slightly different surgeries. You will hear from many people with much info. I was prepared to take the tissue valve had I needed to.