Lori's Guestbook

Here's one for you. I finally slept through the night and awoke to find we had been robbed. We live in a safe neighborhood where most don't lock their doors. However I usually remind my husband to lock the door but was tired and couldn't stay up for overtime hockey. Awoke rested at 6am to find all electronics and cash gone. Police have been here all day doing fingerprints etc. fortunately no one hurt and stuff can be replaced tho information can not. I shall remember my first 8 hours of sleep!!

Hi Lori I had mitral valve repair at CC on Feb 20. Who was your surgeon? Like you I can't say I feel better than pre surgery. I mentioned this to my cardiologist who bluntly explained 1) this is very major surgery 2) like others I was over sensitive to every ache pain etc I.e., numbness in right chest 3) it takes 6 months to one year to feel normal and 4) unlike those who can now breathe those of us who had few symptoms are less impressed. It was just what I needed to hear. As an aside yesterday for the first time since surgery I felt like my old self only better. I cried and didn't want the day to end. Today was not quite as good but I reminded myself it can and will happen. Hang in there.

Hi Lori, My husband Steve had Mitral Valve Replacement on 01/31/2013 in Los Angeles, CA. It was quite a year to be honest. He is doing well but still struggles with fatigue. As his caregiver, I learned a lot and wish I could have done things differently or been more informed. This is why I launched a new blog at www.heartcarematters.com. Here you will see our story, etc. I hope your recovery is going well and if you ever have any questions please do not hesitate to contact us.

Lori, I am 38 and just had my Mitral Valve Repaired Dec 16, 2013 at Greenville Heart Institute after following my MVP for years. I was asymptomatic but my regurgitation had become severe! I was told by #3 different valve surgeons the same thing get it repaired soon instead of waiting and risk having to get it replaced. Mine was repaired robotically and everything went well for me as I am about 9 weeks post-op. I would recommend to everyone that has severe MVR to try and get it repaired sooner rather than later. Don't wait for symptoms to get worse. Repair's are typically better than a replacement. If your brother has MVP keep an eye on it and if it starts showing signs of increased regurgitation then he needs to see a surgeon right away. The sooner you catch it the better your odds for a minimally invasive procedure like I had. Feel free to pick my brain and definitely use this community to help answer the questions you might have. Hope this helps?

Hi Lori, about the nightly interruptions while in the hospital. I was in for 15 days because my warfarin levels were slow to reach therapeutic levels. The only time the nurses WEREN'T in my room was 12-4am. FOUR ours was all I could ever sleep which I thought was terrible. I had problems trying to sleep anyway because my mechanical was ticking like a time bomb. It probably took me 3 years before I stopped hearing it, so suffice it to say I am quite the insomniac. I sleep in spurts and usually awake between 1-3am. Anyway, I just wanted you to know that I only had 4 hours each day at the hospital where no one was in my room.

Hi Lori, I'm a Lori as well and had my mitral valve replaced in January 2010 because I have MVP severe mitral regurgitation. I was 51 at the time and I chose to have a mechanical valve because I didn't want to have to go through another OHS in 10-15 years. I'm doing very well. I have become a Womenheart champion and Support Network Coordinator and so I would suggest you go to Womenheart.org and see if there is someone in your area that might be having meetings. It's a great way to meet people who have had a similar procedure. You can also sign up for their online support community as well. MVP is very common. I hope you continue to do well. Take good care!

Lori Thomas is doing extraordinarily well. He doesn't start cardiac rehab for several weeks yet, but he is making great strides on his own. Yesterday he completely weened himself off the nightly pain meds, so he is dealing with a little more pain than usual, but he says it is manageable. We owe a lot of the credit to the U of M CVC They were absolutely fantastic. We are now adoring fans, with tee shirts and a hoodie to prove it! :-) I just posted on Thomas' Journal an entry entitled "It Takes a Village" which briefly addresses the care we received at U of M. And I hope to post more details as the weeks progress.

Lori My husband, Thomas just had MVR on January 24 at University of Michigan. I have been Journaling for quite some time and am happy to share with you. (search for Tom Musgrove Unfortunately, we will probably not meet in the flesh as you say because we live in California. Glad to hear you are doing well.

Lori, are you doing well? I lost my father(65) in 2006 after Mitral valve surgery,and my grandfather a few years prior.Not sure when I will have mine repaired but I like to hear of success stories!