Hi David - Just wanted to see how it was going? Did you see Adam used our photos and quotes on the video with Dr. Cohn? :) Hope life is back to normal for you! All is good here, It seems so strange to be on the other side of this - like it was a lifetime ago. Take Care, Randa
Hi David - I just wanted to check in to see how you are doing now that you have been back home for a while. I am doing a little better each day, although today I was really tired - more so than in the last week. I may be over-doing it a bit - so I sat on the couch all day and watched tv. :)
I had my local cardio follow up Monday and I am back to Boston on May 2nd for a follow up with Dr. Cohn.
wow - I had no idea. I honestly thought you had left the hospital before I did. I am so sorry. Glad you are home now and hopefully feeling better. I am doing well. I was tired on Saturday but today I feel great. I expect some days will be better than others. They set me up with a visiting nurse 3 times a week and I am expecting her today. Did they do the same with you. Your family must be happy to finally have you home. Take care of yourself and let let me know how you are when you are up to it. Randa
Hi David - Randa here.... So glad we got to meet you and Michelle at the hospital. I was "sprung" on Monday and have been home since. Everyday it gets a little easier. They do have a visiting nurse come by every other day to check bp, temp, heart rate etc... but overall okay. My voice is still not 100% better from the breathing tube - but that will go away too. I bet your family is thrilled to have you home.
Are you feeling Ok? How is your energy? Let me know how you are doing.
Thinking of you Dave. I will tell my husband to look for Michelle as well. My husband's name is Cornel. I agree - I am glad I found your journal. It has been comforting to know that someone else has faith in the same surgeon and hospital and I have chosen. Try and have as good a night as possible, and we will look for each other at the end of the week and can compare battle scars and stories. Randa
Hi Dave - Thought I would let you know that I don't think I will be in Boston Tues nite - but rather will come up Wednesday AM before my cardiac cath. I will keep your restaurant i mind for when I have my 6 week follow up with Dr. Cohn. Coming to Boston is actually like coming home for me. I was born at Brighams (when it was the Lyon Inn) and treated for my Hodgkins there (and Dana Farber) about 22 years ago. That is one of the reasons it felt like the right place to be for this surgery too. Have a good and as relaxing as possible weekend. I will look for you when I get to the hospital on Wednesday. Hopefully you will be in step down quickly. My personal email is email@example.com but I will check for updates on your journal too. Randa G
Prior to my surgury (dec 15) I had taken propranolol as needed for palpitations; very safe and very effective. Most likely you will be on this medication or a variation for several months after the surgery. It's a beta-block which also lowers the BP in the heart. Beleive it or not I used to take it for anxiety attacks. Discuss with your cardiologist.
David we are goign to have to look for each other in recovery and have a big laugh that we have made it thru. I will make sure my husband has your name so we can find each other. I agree - we made the right decsion. It was actually Adam Pick who put me in touch with Dr. Cohn when I was searching. I am incredibley stressed today - but some days are better than others. I just try and focus on my boys. We will stay in touch. Randa
David - What hospital and surgeon did you decide on. I am asking because I am in Connecticut and I am having my surgery at Brigham and Womens with Dr. Cohn on April 7th. I looked at Cleveland Clinic, as well as hospitals in Long Island and New York. The cardiologist at CC actually told him that Boston would be just as good for me as, like you, I was young and in good health otherwise. I too am asymtomatic, only having one episode with heart palpitations one November morning. And I too have 2 young kids. It is scary - but as you read more in these HVJ's - you really do see that the odds are way in our favor. Would love to hear from you. Randa Gaalswijk
Hi David. I had a mitral valve replacement, exactly 7 months ago today! I now have a bovine valve and couldn't be happier and healthier. I just turned 41 years old in Sept. and I made my valve decision in part because I did not want to be on coumadin the rest of my life - not while I'm still so young anyway. I have not looked back and I do not regret my decision!! I do recall someone on here a few months back stating that they also wanted their valve repaired and went with a surgeon from a hospital in NY. It took pretty much a 6-8 hour day, but the lady's valve was repaired rather than replaced. I just wish I could remember the surgeon and hospital's names. Well best of luck to you. If you'd like to talk off line, feel free to email me at firstname.lastname@example.org. Take care.
I feel like a broken record as I've been saying this to everyone. Go to the Cleveland Clinic if you want the best of the best!!! No if, ands or buts about it. Google U.S. News and World Reports Best Heart Hospitals and you will see why.
I have a very complex anterior leaflet mitral valve problem and am scheduled for surgery on April 21 with Dr. Marc Gillanov at the Cleveland Clinic. I've already been out there for a consult and couldn't have been happier. I will simply not take chances when it comes to my health and my heart that's why I'm going there.
I am in the same boat as you, have been told that repair of anterior leaflet is hard and in my case I will need bi-leaflet repair, chances of which are lower than a posterior leaflet repair. Have you read this web site?
Dr. Adams is supposed to be an expert in complex mitral repairs.
I had my surgery done at NYP Cornell. My cardiologist recommended my surgeon- Girardi, who I loved. It is not just the surgeon, but make sure to pick a hospital that has a really large and dedicated heart program. These are the ones that do this surgery all the time. At NYP- their heart program is the star of both Columbia and Cornell, so you are then in a good hospital in their most advanced department. It is not just the surgeon, but the whole team- from anaesthesiologist, to ICU staff who really take care of you and help the progression after surgery.
I am certain you can find what you need in Boston and am glad you are checking out New York area hospitals and CC.
Don't feel badly- but you CAN over research. A lot is gut. Interview the doctors and go with the office/hospital/surgeon you feel comfortable with. Your mental confidence is so important in this journey. I was so confident and happy in my team espcially once I was there, I never was too freaked out.
Good Luck to you
I understand your frustration as I too searched in the Denver area for some type of statistics and information on what type of procedures various surgeons do. It was a total act of futility.
Naturally, I am one of the CC fanatics since I had my surgery done there and it was amazing. I didn't have time to hang around waiting to recover slowly. I had places to go and things to do! I was totally ready to get back in to life in record time.
There are other fantastic surgeons at CC in addition to Gillinov. I used Tomislav Mihaljevic and Eric Roselli is also frequently mentioned. I think Ricki Shine had Dr. Sabik(?) - really there isn't a lemon in the bunch.
Go to their website and check out the credentials.
Here is an idea. Perhaps you could send your records to CC ATTN: Dr. Mihaljevic for a second opinion. Once he has reviewed them, perhaps he could make a recommendation in the Boston area because he was at Brigham and Womens before being recruited by CC. I am sure any of the CC surgeons could make a recommendation. They must have trained some of the doctors currently practicing in the Boston area. I only say this because the surgery they perform is state of the art.
P.S. This is NOT an expensive place to go. I was expecting to pay more than 10 times what my bill amounted to...