Ernest F. posted a note for Avril Tan that says:
Hello Avril Tan,
I had mitral valve repair Jan, 2010 and am doing well. I will be 39 twice in April, [78 yrs old] Started with heart murmer 3yrs before surgery and had symtoms as you described over those years and progressed to severe valve leakage, when surgery was very necesary.
I have been using Dr. Sinatra's suplements for two yrs about and have been off all but one prescription meds.[amiodarone 1/2 dose 100 mg] No blood thinner or blood pressure or water pills etc. after five yrs of it...so glad.
I sent these two links which can give you much information.
I just trust Dr. Sinatra, he is so knowlegable when it comes to drugs versus natural treatment.
He believes heart disease can be reversed as many other doctors do. so be encouraged.
I think you are always better to have lower blood pressure than high one:) Before my mitral valve repair surgery, I used to have blood pressure 120/80 like a clock. Now it is on the lower end about 91/65. I do not feel dizzy and all the doctors are telling me it is fine even if it stays like that...I did have quite lower heart rate prior to the surgery than I have now (it was about 65-70 now it is about 95). This is also result of the procedure but I also need to get in better aerobic shape and it will go down to 60ish again:)
I do not think you have anything to worry about, but again I am not a cardiologist. I have been told that you cannot influence heart rate too much, but I am surprised you have it quite high for someone so active.
You deserve a cardiologist who will take you seriously and answer your questions. IF you can't find one locally, a remote consult is another option. That is what I did when first diagnosed with severe mitral regurgitation. I sent my electronic records to Cleveland Clinic and got a review in about 2 weeks. They see people from all over the world. Also, they now have a new satellite clinic in Abu Dhabi. Dr. Tomislav Mihaljevic is the head of cardiothoracic surgery there, and he was my surgeon last June before he left Cleveland to take that position. I recommend him very, very highly. If he says you are not ready for surgery you can believe him, and relax. If your heart is not causing your symptoms, he can help find out what is. I trusted him with my life, and you can too. Hope this helps,
Hi Avril, welcome to the HVJ site. Sorry you are not able to find someone who will explain things clearly to you. Each person is different, but there are some things that are relatively the same. I have severe aortic stenosis which is narrowing of the aortic valve due to calcifications. With that stenosis I also have moderate regurgitation, the valve cannot close properly because it is calcified. I will soon have surgery to replace the aortic valve. I also have mild mitral vavle regurgitation.
Here is what I have learned over the years in "watching" my condition. I have only recently begun having any symptoms and they are very vague, even though the stenosis is severe. A large number of people have no symptoms at all.
What you have to consider is the risks that come with open heart surgery. What I have been told by my doctors and through research is that with mild regurgitation, even though you may be having some symptoms, the risk of surgery at the mild point is greater than waiting. There is a certain point, and it may differ with one doctor than another, at which they say it is time to have the valve repaired. Yes, it may or may not progress to the point that the benefit is now greater than the risk. I have followed my condition for about 10 years and it has now just gotten to the point where surgery is indicated.
As I said, everyone is different, but that is what I have learned, in general. I can understand your husband wanting you fixed before your heart is damaged, so I would suggest you find a cardiologist that you feel gives you the attention you deserve, that you feel confident in and can explain more in detail. If someone is telling you that it is "in your head" they are not the one you need. Your symptoms might in fact be from your valve, they may be anxiety related to concern about your valve. Find a good cardiologist, stick with him and let him follow up with regular echoes and when the time comes, if it comes, he will tell you it is time.
Good luck and hope this helps a little.
I had repair surgery for severe mitral regurgitation last April. If you are experiencing symptoms then something's up. It may or may not be your heart, but you are right to be concerned and to be trying to figure it out.
Mitral regurgitation is graded as trace, mild, moderate, and severe based on the amount of blood that flows backward through the valve. Severe would be about half of each beat's worth, or even more. That would start to slow you down (although some folks are asymptomatic with severe), but you probably wouldn't notice mild regurgitation since your heart has such a large capacity. Trace and mild are very common, some say that if you look hard enough you'll find regurgitation in anyone. Makes sense since some backflow is needed to close the valve and the echo machines are so good now they can see every last drop moving. Or so it seems.
If you wanted to get a consult from a stateside heart center you could gather up your test results and make some calls. I think the Cleveland Center does remote consults, and other places probably too.
If the doctors rule out heart trouble then at least that is progress. Hopefully it will turn out to be something simple to fix.
My experience was similar to Jane's. Thirty years ago (when I was 29), I was diagnosed with mitral valve prolapse. Then 20 years ago I was told I had mild regurgitation. I had some palpitations and chest pain (power of suggestion, maybe) but they turned out to be stress-related (I was in graduate school with 2 young children). After that, I was asymptomatic for 19 years but saw my cardiologist every few years just to be sure. Then in April 2011 my cardiologist said the regurgitation had become severe and surgery was needed right away. I was so shoked that my condition had changed so suddenly, and I started to have palpitations and chest pains again, this time I'm sure it was power of suggestion. As soon as I made arrangements for surgery and had a surgeon and a date, the symptoms went away. I had surgery in June 2011 and had a fairly uneventful recovery. I have no cardiac problems at all and feel great. So, your symptoms could be stress-related but may not subside until you find a doctor you can trust. I hope it helps to know you are not alone.
I can only tell you what I experienced. Mild Mitral regurgitation is quite common. If that was all I had I would never have found this site. I was told that the key word is mild. Any one I know who has mild or moderate has not been treated aggressively. Mine went from mild to moderate over a 20 plus year course of time. I only went to severe because I had an infection that affected my mitral valve. I certainly could not diagnose your symptoms, but mild would be a great diagnosis to a lot of people. I hope you get some answers. By the way, when I had mild I had very few symptoms. Only a feeling of palpitations.