Allison,
I am sorry to hear about Sassy's heart condition. I was born w/ bicuspid aortic valve, but didn't know for over 30 years. Last fall I was absolutely ...Read more
Allison,
I am sorry to hear about Sassy's heart condition. I was born w/ bicuspid aortic valve, but didn't know for over 30 years. Last fall I was absolutely shocked that I need replacement in a year. I just had a Ross procedure done a week ago & am home now.
I strongly urge you to research Ross procedure, Adam had it done & had some info on the website. You are not far from Dallas. I strongly recommend Dr. William Ryan at the Heart Hospital Baylor Plano. You should get Sassy evaluated to see whether she is a candidate. Ross was invented for children, but she ascending aorta might be a problem. Dr. Ryan did my Ross & is a specialist on this technique.
If you want all the info I have gather on Ross, leave me your email address & I will send them to you.
Allison Sanders Julia, thanks for reaching out and I hope your recovery is going well! Allison's cardiologist mention ... Read more
Allison Sanders Julia, thanks for reaching out and I hope your recovery is going well! Allison's cardiologist mentioned the Ross procedure to is. However, we have not taken the step to discuss options. He advised that would be the next step once we determine that it time for surgery. He did say that the Pulmonary valve would grow with her and would not require her to take a blood thinner. This sounds encouraging. Please do send information to me at rebecca@conwaycorp.net.
We are lucky to have an excellent pediatric cardiology clinic and surgery team about 45 miles from where we live.
Best of luck to you! I hope all goes excellent for you!!