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BICUSPID AORTA STENOSIS
The Patient's Guide
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been awhileHi everyone, It's been awhile since I've been on here. I have been ..as most are busy with work , joined Curves for exercise and have been dating a little bit.
CeliaGood Morning Celia,
Moral of this storyWould be to take meds exactly as prescribed...I know...
I went to Dr. to be on safe sideI am curious about why I have had some dizziness the last few days and then numbness in left side of cheek area glad I was sitting down. Seen dr. today he reported no signs of any thing serious. The incident lasted last night for about 15 seconds. Could have been high on sodium levels, I had forgotten and taken metroprolol a couple times later than usual and warfarin off the clock also a couple of times.. BB
Hello PatriciaHi, I got your message and am glad you share with me your thoughts and suggestions. Happy to have eight months out since surgery. I have been using a walking CD have not lost any weight but working on it.
yes, be consistantYes, by all means I will be consistent. I don't think I made myself clear before but I will be on gaurd and want to be somewhere around 2.8 or so. This is where I will find a medium in between these two numbers that is 2.5 and 3.5. I know 3.5 is way high and higest I've been is 3.2. I think.. I know its dangerous. I would be satisfied at 2.8 and have veggies...gonna do like i said and give it a try two or three days before i go in for labs. Take care...BB
Gonna begin green veggies again three dys before pt/inrThe nurse from Henrico Doctors ( they are fantastic by the way )..told me I could eat green vegtables three or four days before i get PT/INR done so it would be a more accurate reading..when.I'm ready to make the transition because I havent been since I had 1.7 labs and nearly passed out in April...since been off green vegs I have been holding levels anywhere from 3.1 to 3.3. But you know and I know it can jump up or jump down...like walking a tight rope here....!!LOL
eat fruit---watch vitamin K level ...all in moderation ..I like canned peaches, i catch them on sale sometimes...
balancing actYes, sodium is an area i wish i did not have to watch but i do. Yes, I take cumadin also..i dont even know how to spell it...but thank God for it.
Drink water...Hi, its me..BB.. I am blessed and need to exercise everyday also... they say to drink 64 oz liquids this will include DECAF coffee, no caffiene tea or soda as well not to exceed 64 oz. total in liquids daily. Fish twice a week in a seven day span... I have grown to love honey nut cherrios/ whole grain is good. Not multi grain, (pittuiee). Use smart balance it has no trans fat in it it is more costly but worth it...I use 40 calorie bread it is fewer calories and sodium...i have to follow what is low in vitamin K because green veggies and lettuce (K )will lower your blood levels readings and they need to stay in a safe range ...for instance mine are between 2.5 and 3.5 since I have a mechanical heart valve...per PT/INR readings and make you don't want to go the dizzy route like I did. I don't know it all but I know what I have been through!!! God Bless you all and love to you who have gone through the surgery and just know every day you get stronger and hold on...:))
Sodium count not to exceed 2000mg per dayWell, as you know I had mechanical heart valve replacement and aortic root repair surgery back in Jan. I recouped fairly well getting my strength day by day, did cardiac rehab for three weeks then went back to work. All in two months I have watched what i eat and counted calories and SODIUM count not to exceed 2000mg sodium daily. Recently I had three weeks ago three pains in my chest, it didnt come back though/...I was glad not to have to call ambulance..I am having to watch my diet and keep sodium down ..that is the key because sodium can cause a blood clot....So mind your P's and Q's !!! Love BB smile God loves us!!!!
Doing greatHi to all, I am doing well....Hope all is going fine for everyone. BB
Hello to allApril 25th...2012
Through God's GraceThrough God's grace he got me through the ordeal on January 10th. Like I said earlier I was blessed by God and also received a great check-up from Cardiologist as he said he'd see me in a year for annual check up. I am tracking my food intake still and probably will forever for safety sake.
good check-upHi to all,
Taking it a day at a time, no rushing please!Yeah, I'm mighty glad I got through it myself. I have a different perspective on life. Actually, eating a better diet overall and have lost twenty pounds. I drink a lot of water also now more than before about four to five glasses a day to stay hydrated. Better that you drink water but not so much you dilute the medicine....I feel fortunate to have a second chance and I owe it all to God for giving the doctors the knowledge to help me make it through without any nerve damage what so ever. Thanks for reading. BB
Did I tell you ?Actually my diagnosis also included an aneurysm and I had the root of the aorta repaired at the same time as heart valve replacement. Boy do I feel fortunate to be able to function at all especially this well within a month.
For all your prayers................Thank YouThanks for everyone's sincere prayers....
yeah!!!!!!!!!!!!!Well, dear hearts I made it with the help and guidance of our dear Lord and savior. I have no doubt that God was right there guiding my doctors while I'm on the operating table. I took a very real leap of faith hoping and praying all the while I could have that "second chance" at life again. I owe it all to God my being here to even write this. I had a heart rhythmic problem on or about the time I was to be discharged from hospital. It is good now. I am one month out and am feeling better every day. I still have to sleep in my recliner due to the "pull" of my scar. I'm fine and getting better everyday. Happy times and good family really helps a lot! Thanks for reading this, BB
Jan 4thWell, I am getting prepared for the tenth. I am optimistic as well as I can be and keep praying all will work out fine. Good luck to all with your surgeries and getting back in the swing again...
Day after ChristmasHi to all of you dear hearts, I had a nice Christmas with family and friends and hope all of you did also. I have began to self talk (silently) and believe there is a reason for everything under God's guidance. He is a miracle worker and I have depended and continue to depend on him for my life as I have for the past 56 yrs. I am happy for all of you that have gone through the surgery and come out doing much better than before you went in and happy for me because I have a good location and great doctors to take care of me. They are well known and very advanced at Henrico Doctors Hospital in Richmond Virginia. Yes I will keep you posted before I go in and will go for rehab for a week after the surgery then return home. My computer is a desk top so I will not be able to keep posting once I go in on the 9th of January.. So look for me to try to post after I am back home...God Bless each and everyone of you and thanks for being there...
jhmattingly?If you are there JH please keep in touch...You make a lot of sense especially since you said you had the same DX as me.
in over drive right about now!!!!!!!!!Pretty calm most all the time but not so last couple days and am nervous,
Dec. 21st,2011Well, today is December 21st...I am getting myself prepared as I possibly can with all a person has to do before going in to hospital..on Jan. 9th then surgery on the 10th..I would be lying if I said I am not in the least bothered and anxious about it. We're not robots. I know God is in control and he knows what the outcome will be, I don't.
Getting through this experience as smoothly as possible.After a regular check up my doctor suggested getting routine echocardiagram "to be on the safe side"since I had to have one last year before foot surgery due to a heart murmur, I thought nothing of it ...Mind you, I have had anxiety episodes for last yr at least. Several days later I had a strong "anxiety episode" and made a call for consultation next day and this got the ball rolling.... I have been diagnosed with congenital bicuspid aorta with severe stenosis. Mind you, I have had three echocardiagrams in last few yrs since my sister died from a massive heart attack. I was never once told I had a congentital heart defect from birth... I had a consult with dr that suggested I have a heart catherization and I did. The surgeon advised me to have the surgery.... Next, I got a second opinion and this doctor had me to do a stress test, I had my records sent to him and the heart disc, he reported he hadn't looked at it but read the print out, overall after the stress test he told me I could wait and see and in two to three years I would need the surgery.....I'm off to get a third opinion at this point with conflicting stories and third opinion (surgeon) told me I will need surgery sooner than later and need to have an aorta valve replacement and was told the base of aorta is enlarged as well that will need to be "trimmed". It is a scary situation for me, I thank God for being in control... I have an appointment for a cat scan and will be admitted on the 9th of January and am scheduled for surgery on the 10th.
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