Denise, I had trouble sleeping before my surgery too. Thankfully, now that it is over I am sleeping better! Hang in there, before you know it you will be on the other side of this mountain! I know it's hard, the waiting... try to use the time to get everything done that you want to. Praying for you!
I think I found you...you are the Denise who gave me the advice about resizing pics? Your surgery is getting close, I will follow your blog and keep you in my thoughts and prayers. I am hoping my surgery will be sooner even though I am scared. I am more scared of not having it soon enough. Keep your chin up. I can relate all to well about the insomnia...Karen
I do the same thing....fall asleep right away and then wake up constantly and toss and turn. I keep thinking of every possible scenario and wondering how long I have to put up with the breathing tube(vent) before they take it out and the catheter and the stay in ICU and the list goes on. So I guess it's just part of this whole deal??? At least I live alone so I don't keep anyone else awake.
My surgery date is June 12th and I hope I can at least go out on my deck overlooking the lake and watch the fireworks on July 4th. I'll bet you can go to Hilton Head at 4 weeks out.Best of luck to you.
No worry Denise...all completely normal. My upcoming surgery was all I could think about for months! It was almost an obsession. It is strange, but it does get better once you get closer. Hang in there!
I had trouble sleeping too, I don't think there is a cure! Once surgery is over hopefully it will be better for you, although don't expect it to be the first week after surgery! Soon you won't feel so exhausted and it will all be worth it! Hang in there
Hang in there Denise before you know it surgery will be just a few days away!!! I'll be checking in on you and your progress as you get closer and once you have climbed that mountain to the other side. Take care and have a great weekend!!! Cindy Pastrano
Like the others have said, the heart cath is nothing to worry about. I made a deal with the anesthesiologist going in that I didnt care to watch the show. I woke up and my wonderful wife fed me some pizza and some cookies, then I took a nap. All in all, not a bad afternoon.
Denise, I totally agree about the grandchildren! I have a 3 and 1 year old and they melt my heart. I'm one week post op and the hardest thing has been not being able to pick them up and give them full body hugs! I'm looking forward to running and playing with them again soon. I'll be following you and thinking of you as you prepare for this surgery, it's hard to think about all of the possible outcomes, HVJ has definitely helped me through this time!
Denise, the heart cath is absolutely NOTHING to worry about. Piece of cake! I have had 3 all together. They will give you something to relax you, such as valium and versed. I've heard some say they weren't aware of anything, but I was completely awake during all of mine. The worse part was the needle stick to start the IV and the stick to numb the groin. Some are going through the wrist instead of the groin now, but mine have all been through the groin. Once they numb the groin you shouldn't feel anything. It is actually very cool and interesting to watch on the screen. I said the worse part was the needle stick, but having to lay flat on your back afterwards is REALLY the worse part, at least it is for me. But even that is not as bad as it was years ago, they use much smaller catheters now and you only have to stay that way 2 to 3 hours instead of 4 to 6 as it was "back in the day". You will do fine, honestly.
Hi Denise, I know you will not believe this, because I didn't, lol, but...this really is so much harder than the surgery itself...the waiting. I had AVR at Cleveland Clinic March 13th, and it really was practically a non-event. It is an awesome facility, I flew there from South Carolina and it was the best decision I could have made. I finally reached a place of "calmness" the day before my surgery after meeting Dr. Gillinov and talking with him. Before that it was good one day, a basket case the next. But honestly, even waking up with the breathing tube was not bad and I just could not have asked for things to go any better. You will do great!
I agree with Jay. At 4 weeks out, I would have been able to go and have a nice time. Short walks on the beach followed by resting would have been nice.
Make sure you have time for a nap or two - you might need it with the potential of increased activity or walking in sand.
You'll understand this better once you've had your surgery and the staff gets you out of bed to walk your first few times, listen to your body. When it tells you, you can walk - do it. When it tells you to rest -- DO IT!!
Also - use your spirometer religiously. It will be a love/hate relationship. You'll hate to use it, but you'll love how quickly it will help you to bring back your full breathing capability. You'll want that capability for your trip.
Denise: Chill, This operation will all come at you in a rush, But bottom line, You will be OK. I'm 4 weeks post op and I can testify that you will not be doing back flips when you go to SC in late June (but you should be able to cope with the discomfort, As a matter of fact you will not be driving and probably be sitting in the back seat. (air bags) but you should be OK to go to SC. Don't expect to be who you were that early in your recovery, but you will make it back. Enjoy the beaches of Hilton Head. (been there) Jay
The front end of my schedule wasn't as "compressed" as yours, but after what seemed like forever, I got thru the 3 days of pre-op at CClinic. Tried to detail in my HVJ postings, but want to stress 3 points:
1) By the time you got the packet,a lot of work had been done. I was offended by the snobbishness of OFFERING me OHS with angioplasty. I will never forget that nurse's phrasing.What it really means is that they have examined records, and perhaps asked for more, and now feel they can help. The decision--which surgeon-- has been made..
2) The meeting with the Surgeon is to explore your questions (please ask), to review the final plans for your event, a brief discussion of survival rates, and your joint signatures. At the start it seemed so backward. Now it seems so sensible and considerate.
3) Use the time between now and Pre-Op to do whatever you can, as hinted at in the package. My undoing was not getting dental clearance. The Clinic does expect you to be on your toes Transparency is the key. Take good notes and save 2-3 quiet hours daily to "debrief."
My Dear Sister ~ I have been thinking about you & keeping you in our daily prayers. You will be in the best care at Cleveland Clinic. This website is such a great way to keep everyone up-to-date, as well as getting positive feedback from other heart patients.
Hi Denise - I'm so glad you have this website. The Manley side of your family will certainly be thinking of you and please don't hesitate to let us know if there is anything we can do to help. We'll be in touch before you go to Cleveland. God Bless, Jean and Jim
Denise, If not already, you will soon receive a packet from CC. In that packet will be a shedule for tests and meetings. I had an assortment of tests on Monday and Tuesday (none bad) with meetings on Wednesday. The meetings Wednesday were with Dr. Roselli and his support team. My meeting with Dr. Roselli lasted about 45 minutes but would have been longer if I wanted. By then the meeting with Dr. R was only a formality. I was scheduled for surgery at 5:15 AM on Thursday morning. I would suggest useing the internet to research the Cleveland Clinic Sydell and Arnold Miller Family Heart and Vascular Institute. They have great vidios about different heart procedures. You will be able to find Dr. Rs Bio there. The guide to heart valve surgery is also a good source of info. You will soon have others who have had the same procedure you probably will signing into your guestbook sharing their experence. I drove to CC and it is very easy to get to. My wife and I stayed at the CC Guesthouse while there. Both of us before my procedure and then she stayed there until I was discharged. Guesthouse is reasonable priced and just across the road form the Clinic. The guesthouse fills up quick.
Dear Denise, You already know your Sisters-in-Christ are praying for you and upholding you to God's Throne of Grace and Mercy for successful surgery and restored good health. Scripture tells us that "God will put his angels in charge of you to protect you wherever you go... "I will save those who love me and will protect those who acknowledge me as Lord. When they call to me, I will answer them, when they are in trouble, I will be with them. I will rescue them and honor them. I will reward them with long life; I will save them.."
May the peace of God surround you and uphold you through these coming weeks.
Welcome to HVJ! I too will be having mitral valve repair in the near future. My surgery is scheduled for june 4th at Yale University Hosp in New Haven, CT.
you're lucky to live in Ohio and have access to Cleveland clinic ..they're top notch.
Do you know what approach they'll be taking? I'm having a mini thoracotomy.