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Mitral Valve Regurgitation
The Patient's Guide
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Finally uploaded some picsEverything is going well, and I have a graduation date of the 22nd from Cardiac rehab (I think they are ready to get rid of me). I honestly don't feel like I just went through what I went through, and it is a weird sensation to read the surgical reports and think about YOU being the guy on the table.
(almost) 6 weeksFeel great, but can't figure out why I am still finding tape residue...I have scrubbed and scrubbed, but still find some tape leftovers every once in a while.
Quarterly DFW "Valver" lunch or dinnerI would like to put together a dinner or lunch for the local DFW valvers. No idea on time, location, or schedule for this, I simply want to put that bug in everyone's ear.
Random things I have forgotten to mentionHere are some items that I had intended to include in othe posts (and very well might have), but figured I would add them for posterity anyways.
4 weeks todayRoughly 4 weeks ago today I was just getting out of surgery. I am back in the hospital today (for cardiac rehab and some simple bloodwork). Feels weird as it is really the first time that I have had a chance to look around the place (very nice as everyone had said). I stopped by to say thank you and hello to a few of my nurses and PA's. Somehow "thank you" just doesn't seem like enough, but that is really all that you can say.
Post-op surgeon visitMet with Dr. Ryan and eveything looks great and healing up well. No sign of a murmur, and no fluid in lungs. Reducing the amiodarone in 2 weeks and metoprolol in a few months.
Cardiologist checkupHad checkup with cardiologist on Friday, and everything looks good. Regular sinus rhythm and everything.
First sneezeThe first sneeze caught me off guard and I couldn't get to my heart pillow fast enough. My mind raced with "oh sh$t this going to hurt". In the end it really wasn't that bad, one of the benefits of the thoracotomy I guess (and being a few weeks post-op).
2 weeks post opI honestly don't feel like I had open heart surgery two weeks ago today, but then I do something and get reminded. My wife and I still argue about when they removed what tube, I think I am right (but I was still under the fog of surgery so she is probably right).
Time for an updateI have not been as diligent at my updates as others, and for that I apologize.
Drain tube being out is awesome!!Not much to say other than that...man that feels good.
Understanding your pain management goals (and other topics).1. One thing that I have figured out in the hospital is that each shift change has their own idea about "dosage timing" with pain management. I have had a clear and frank discussion with my surgeon about "staying ahead of the pain". Most of the shifts seems to get this, and have the relief ready BEFORE the drugs were off (which is my and my surgeon's unedstanding of staying ahead of it). However the. Ight shift is something that I am struggling to bring onto this same schedule. Their interpretation is that the pain meds can't be pulled out of the machine until AFTER the allotted dosage time has passed.
Here and tiredIt is me now, and will post more tomorrow. Thanks so much for everyone's thoughts and prayers.
The next dayHi everyone. Trent is doing great. He sat in a chair yesterday evening after only 7 hours out of surgery. He is being smart and trying to stay ahead of the pain. This morning they got him back in the chair and will have him up for a short walk later today. They have taken all fluids and oxygen off. Dr. Ryan came in this morning and said he is doing great!
Out and looks good!The tube is already out (a worry fo Trent)! And he is sleeping. Dr. Ryan said it went great with no tears or leaks. Praise God!!
Almost doneThe nurse just called to say Dr. Ryan is closing and it went well! We are just waiting for Dr. Ryan to come and personally tell us how it went. We have his room number and can't wait to see him, but the volunteers said that although the doc will tell us we can see him in 30, that the nurses won't let us back for at least an hour and a half....Just want to see him ASAP : )
UpdateJust got our 2 hour update. Everything is going well. Dr. Ryan is putting the ring on the valve. They said he should be done in an hour and a half. God is hearing our prayers and guiding Dr. Ryan. Thanks for all of your prayers and kind words!
Trent had been taken into surgeryHi everyone, this is Amanda. They just took Trent into surgery. He was in good spirits and is just ready to get it started and over. I will keep you posted with updates as we get them : )
Headed to hospitalHeaded that way and will see everyone on the other side.
Wow!!I am overwhelmed by the number of updates, and people reaching out to provide me some comfort. I appreciate each and everyone one of you and I will try and respond individually (but I am running out of time before my nice Bactro-Ban) shower and off to bed and then back up at 4AM.
Met a fellow HVJ'er todayWas able to meet up with Thomas Hunt today, and it is really awesome to talk with someone that knows EXACTLY what you are about to go through in the next few days.
T-Minus 5 days (June 18th)Finishing up some last min items on the check list, making sure I have everything packed for the hospital, buying snacks (and new TV) for my recovery at the house, and bugging the nurses at my surgeon's office to make sure all the paperwork is submitted.
Off to NYCOff to NYC for a few days, and then back to the grind for 3 days, then Pre-Ops, and then showtime on the 18th.
2 weeks to go.Things seem to be getting real now!!! I am ready and these next 2 weeks will go by very quickly. My wife and I are going to NYC this coming weekend for our 5 yr anniversary.
Things for post-opI have read several people's shopping lists for post--op, but didn't see anyone mention a blood-pressure monitor or anything of that nature. (I keep telling myself I need to learn how to do that before the day gets here).
3rd time for 2nd OpinionThis is the third time I am attempting to write my update about my 2nd opinion today, and somehow I keep hitting the "hide this form" button and everything is lost (twice). What is the definition of insanity again??
Short-Term Disability and other adventuresI have passed the 30 day mark, which means that I had better get busy on my "To-Do" list that hasn't progressed very far.
"Almost" 30 days out (6-18-12)I am very sad to hear about Cindy, and even though we never met we all knew her. It just sucks all around.
Calendar of "Go Time" for everyoneI was thinking of a suggestion for the site. It sure would be nice to have a calendar for those that "op-in" to display there surgery date, possibly only available to members and only as users choose to post this information. Most members post their dates in each of their individual journals, this would simply be a central place to correlate the data into a single view.
To get a 2nd or not, that is today's questionI know that is always recommended to seek a second opinion (even reinforced in the books several times), however I am considering NOT following this bit of wisdom, a based on the reasoning below:
June 18th is the daySeems like an eternity from now, and really find myself forgetting about the fact that I have to have this done. Life marches on, and I have to remind myself that this is on the horizon.
Heart Cath todayReally wasnt bad at all. Dr. Krock is great at what he does, although i am starting to wonder what all i say when coming out of the anesthesia.
Hello EveryoneI am just getting started at this, and have been trying to read everything that I can on the site. I am very impressed with everyone who contributes and the wealth of information Adam has compiled to help the group through the process.
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