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- Susan"
Check out the new edits to 'My Story' page by clicking here.
I wish you the grace and patience to heal at your own pace. ☮️ "


Best wishes for your upcoming surgery ........Bonnie"
I do feel better. I had mitral valve and tricuspid valve repair surgery but it was discovered after surgery I had a congenital atrial defect and had to go back into surgery. Following this and like many of us, I had to get several transfusions. My heart rate would not go past 39, I was told I was going to have to have a pace maker. Finally after 7 days of intense fear, my heart rate rose to 78! Now I have a high heart rate, high 90's and am on metroprolol like many of us but I feel even more wacky than I normally do.
Following all of this I had clusters of optical migraines with aphasia and could not see right for quite a while, had first degree block and SAM, but was told I would be fine, then my pacing wire was snipped and not taken out so we could stay in my body forever which makes me insanely nervous. I feel that when you live the hospital you do not know is okay or not.
My big issue is I'm quite the researcher and nervous wreck! I was asymptomatic, before this surgery was keeping up with a 3 year old from 6:30 am until 4pm and having the time of my life! I thought there was nothing wrong at all! Since then, I have increased my steps, can walk without any breathing issues but still have pain around the tube site and also around my incision. I know the issues I have are expected and am grateful for this.
I read about all the things which can happen and of course think it will happen.
Anyway - I do feel better - it has been exactly 6 weeks and am improving.

Check out the new edits to 'My Story' page by clicking here.
Check out the new edits to 'My Story' page by clicking here.

Women's Heart Alert: SMART Clinical Trial Reveals Medtronic Evolut TAVR Treatment Advantages
Doctor Interviewed:
Dr. Roxana Mehran
Women's Heart Alert: SMART Clinical Trial Reveals Medtronic Evolut TAVR Treatment Advantages
Check out the new edits to 'My Story' page by clicking here.

“I just went in for an annual check-up. After listening to my heart, my doctor told me I had a heart murmur. I never knew I had a heart murmur, and I didn’t know much about them. The images ... Read more.
“I just went in for an annual check-up. After listening to my heart, my doctor told me I had a heart murmur. I never knew I had a heart murmur, and I didn’t know much about them. The images showed that I had a severe mitral valve prolapse.
We made the decision, at the time, to keep an eye on it for a year because I had no symptoms. Based on my second echocardiogram, it was determined that my mitral valve prolapse had progressed, and it was time for surgery. Now, I am ecstatic to say that my wife and I just returned from a 10-day holiday in Saint Lucia which included four scuba dives.
Dr. Castillo-Sang gave me the confidence that I would be able to dive again, and he was 100% correct."
-- Gary Fabre, heart valve patient
my first aortic valve replacement was ...Read more
my first aortic valve replacement was 2011 (age 59) with a bovine valve.
my second one was 2021 (age 69) but received a mechanical valve to hopefully avoid a third surgery in 10 years.
The problem is that Warfarin is the only medication approved for a mechanical valve, and I had a Cerebral hemorrhage 6 weeks after implanting the mechanical valve due to the warfarin.
The hemorrhage did a lot of damage and I know it’s likely to happen again.
I’m very grateful to be alive, just still have issues with dizziness and pressure in my head.
I am not a candidate for TAVR due to low lying arteries.
Thank you for any insights you may have.
I have really enjoyed all the amazing information you have sent.
Ann Jackson.
Check out the new edits to 'My Story' page by clicking here.
I saw you have a tricuspid valve issue, with regurgitation, and wanted to connect. I have the same as a result of complication ...Read more
I saw you have a tricuspid valve issue, with regurgitation, and wanted to connect. I have the same as a result of complication when I was having pacemaker lead replaced. The lead tore my valve and now I’m in the process of testing ( second set) to find out surgeons recommendation. Due to pacemaker lead going through the valve it may impact my options.
have you settled on a repair? Did you all set up a tricuspid group? It feels very lonely going down this path.
Doris Wunsch
Bellingham, Washington
dwunsch1@comcast.net"


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Check out the new edits to 'My Story' page by clicking here.
%HbO2: 89.5. Normal 92 to 98.5
tHB: 13.5. Normal 14 to 18
Then on a second result:
%HbO2: 68. Normal 92 to 98.5
tHB: 12.8. Normal 14 to 18
I have no idea why there were 2 readings or what the difference means.
Check out the new edits to 'My Story' page by clicking here.

Post-operative AFib is a BIG PROBLEM that impacts up to 30% of heart surgery... Read More.
Getting the right-sized valve is imperative for achieving successful outcomes after aortic valve replacement.... Read More.
Check out the new edits to 'My Story' page by clicking here.
They told me it is not uncommon for nerves to get pinched and nicked during surgery. Nerves growth is very slow and can take 6 to 12 months to heal and sometimes it never completely heals.
Check out the new edits to 'My Story' page by clicking here.
Rib pain was more present and lasted longer. The connective tissue gets used to not moving. When they start letting you use free weights in rehab, around Week 10, that’s when the rib pain starts getting better. That said, I used a heating pad on my ribs to help me fall asleep for many weeks after that.
Laying on my side still doesn’t feel completely normal. I can do it & sleep like that. It’s just different now.
... Read more
Rib pain was more present and lasted longer. The connective tissue gets used to not moving. When they start letting you use free weights in rehab, around Week 10, that’s when the rib pain starts getting better. That said, I used a heating pad on my ribs to help me fall asleep for many weeks after that.
Laying on my side still doesn’t feel completely normal. I can do it & sleep like that. It’s just different now.
The nerve issues I have are all numbness: thumb & first 2 fingers in both hands. Shaving my neck also feels weird. Even though it’s an electric razor, it feels extremely sharp against my skin. I’m still dealing with those at Month 4.
Read more
John, I looked at it made me shiver as well. No wonder why we have pain in our ribs
Other times I’m just crazy scared and need to talk myself into a better frame of mind.
It’s like being at the airport and waiting for a delayed flight to take off. You know it’s delayed because of bad storms across the country, and you hate to fly, but you’ve got this great vacation planned at a beautiful destination. So you’ve got to get on that plane in crap weather if you want to enjoy that vacation spot.
I’m a musician - a trained opera singer; I give lessons and I direct a couple of choirs; play the harp and piano in an Irish band for fun. Not being able to do that for a while is a real bummer. Music is my refuge.
I can see from everyone’s posts that attitude is half the battle - any advice on how to stay chipper as I recover? I have a great husband (he’s also a musician) and I’m determined not to wear him down with my fretting.
Oh. And that intubation thing. YIKES. 😬😳 I am having some serious anxiety about that. Terrified it’s going to ruin my voice, much less just having it in. My entire life has been focused on breathing! I don’t want to ‘fight’ it when I wake up.
Thanks for any advice.
I have no memory of the tube and didn't have the slightest discomfort in my throat once it was removed. I did remind the anesthesiologist in pre-op that I have a horrific gag reflex and unless he wanted a reenactment of Regan from the Exorcist, they would keep my intubation time to an absolute minimum!
Think positively, but speak up for yourself.
I understand how you feel.
PS... love hearing about your music. I'm the son of two music major parents and fell in love with music early too (drums and percussion, with a side of piano my instruments). I'm finding myself, as I go for walks, just letting Spotify or what have you send me new albums and songs (I'm all about jazz right now) and I know I'll be back playing before too long and back seeing shows before too long.
And you will too! You'll be singing and playing and striving for that will help your recovery in a big way.
@J. Alexander - I owe you that whiskey! Maybe we’ll have a toast over FaceTime some day.
@Valerie - I’m praying for the same.
@Susan - I will remember to speak up for myself - thank you for the encouragement.
... Read more
@J. Alexander - I owe you that whiskey! Maybe we’ll have a toast over FaceTime some day.
@Valerie - I’m praying for the same.
@Susan - I will remember to speak up for myself - thank you for the encouragement.
@Melinda - I will ask
@Kimberly - you are, indeed, a warrior!
@Aaron - thank you - I have a minor (very minor) in ethnic percussion. I played in an African drumming band and a steel band in college. 😆 My youngest kiddo is a hell of a percussionist. Drums are so physical - hope you get back to playing quickly!
i did a lot of meditating pre-surgery to help me stay in a good headspace.
Post-surgery, getting better was ‘my job’ so i set myself up a routine and got my walks in. I’d also spend time every day on my deck with a fire going and the sun on my face. After 9 days in the hospital, it just felt so good to be in the sunshine.
Thank you Marie, I will definitely be making talking to the anesthesiologist a priority.
I’m at 4-month post-surgery. I am back to being able to enjoy jogging. However, I’m struggling to run for 2 minutes at a pace I used to be able to run for an hour. In a lot of ways it’s been like learning to distance run all over again and starting out with the most basic of basics. You might find that you have similar issues with your breath-work post-op.
Having reasonable goals can be helpful in recovery. But if you miss those goals, don’t let it demoralize you.
... Read more
I’m at 4-month post-surgery. I am back to being able to enjoy jogging. However, I’m struggling to run for 2 minutes at a pace I used to be able to run for an hour. In a lot of ways it’s been like learning to distance run all over again and starting out with the most basic of basics. You might find that you have similar issues with your breath-work post-op.
Having reasonable goals can be helpful in recovery. But if you miss those goals, don’t let it demoralize you.
We all have a lot of shared experiences in recovery but everyone’s recovery is different. Good luck.
Upcoming Surgeries
Kenneth Field
Mitral Regurgitation
October 21, 2025
Brandie Shea
Mitral Regurgitation
October 21, 2025
Eric Hanson
Aortic Stenosis
October 24, 2025
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