Ernie A.S. posted a note for Dan that says:
Life is full of BS, whether it pertains to surgery or not. It's all in how you deal with it. :)
On October 13, 2013...
Lynn Ennis posted a note for Dan that says:
Hi Dan, I am 3 weeks away from an AVR. Yes, there is a tick tock sound in my head but you know what, I have found my calm and balance. Continue to live healthy and and enjoy the great outdoors! It will be hard for me not to run...not to be outside...but I will get back to it all in time.good luck in these weeks to come!
Dan Sinclair Thanks Lynn and the same to you. There sure is a steady flow of AVR's around here, hmm maybe it is th ... Read more
Dan Sinclair Thanks Lynn and the same to you. There sure is a steady flow of AVR's around here, hmm maybe it is the site. I am with you on getting back to the healthy outdoors. You rock being able to get to a place of calm, carry it with you throughout this journey we are taking and we know we will be back at it before long.
On October 13, 2013...
Jim Jones posted a note for Dan that says:
Yeah, Dan. Once we cross that 1 month to go mark the anxiety seems to go up, doesn't it! It looks like pre-surgery is Worry and post-surgery is Work. I still think the long term outcome is worth it although I am not looking forward to the recovery period. I would prefer a 1 week period to full recovery but I know that is fantasyland. Keep up your walking - that certainly will pay dividends A.S. Best.
Dan Sinclair Hey Jim,
That does sound like a great fantasy, one week recovery, yea that would be awesome. If we ar ... Read more
Dan Sinclair Hey Jim,
That does sound like a great fantasy, one week recovery, yea that would be awesome. If we are going to fantasize lets add in, no intubation or catheters required. Make sure you keep us all posted as you make your way, the best of outcomes to you.
On October 13, 2013...
Cydne B. posted a note for Dan that says:
Thank you for your response. You are the first to write, and your sharing is helpful.
Cydne
On October 12, 2013...
Cydne posted a note for Dan that says:
Dan,
I wish you well on your upcoming surgery. I will be in line at some point in the future.
I'm happy to find a few folks who are having valve replacement surgery when they seem to be asymptomatic. This has been my quandry for over a year now.
My doctor sees me regularly, but I'm not symptomatic yet. However, I'm feeling maybe I should get the surgery done and over with. I know I'm spending a lot of time stressing about it. What made you decide to go ahead with your surgery?
Please respond if you can.
Mainly my cardiologist, I did have at least one symptom where I passed out trying to jog. Not a pleasant experience but I was pushing very hard. My wife is also behind me in the decision, I guess better "safe" then sorry. I am certainly not looking forward to it and as it gets closer, I am getting a little anxious. I hope I can tell you twenty years from now that it was a good decision.
On October 11, 2013...
Linda H and Elsie AVR 9/19/12 posted a note for Dan that says:
Hi Dan, You mentioned all the fluid after surgery. While I was in the hospital, the day after I got out of ICU they drained about 2 litres from my lungs. The doctor said it was not unusual for this to happen. I was having trouble with breathing and the treatments weren't helping. It only took about 15 minutes and I was fine afterwards. Could breath really good. Hope that helped a little. Take care.
On October 10, 2013...
jeff o posted a note for Dan that says:
Dan, we planned to leave Cleveland and return home about 3-5 days after my surgery. My collapsed lung kept me in the hospital for 8 days. Then we decided to stay in the area for an additional 5 days until my first post surgery check up at Cleveland. We had a place to stay already lined up just in case.
On October 10, 2013...
Deb Ziegler posted a note for Dan that says:
Hi Dan,
One problem I had going to CCF was with my follow up treatment back home in Wisconsin. I had asked my cardiologist several months before my surgery if he would be willing to do my follow up treatment if I had the surgery done at CCF. He said yes, no problem. However, when I got home and had some problems, he gave me the same answer to every question I asked. He said, "That's a surgical question. You'll have to ask your surgeon.". Fortunately, Dr. Gillinov makes himself very available (he even gives you his cell phone number), and he responded to every question and problem I had after I got home within an hour or two of asking. I don't think most cardiologists are as uncooperative as mine, but you might want to check on that before your surgery. CCF is very good about giving you 24 hour access when you go home, but I would recommend staying in Cleveland until you feel ready to go home. You can expect some sort of complication at some point.....80% of all patients have them, but they are things that can be dealt with, so don't sweat it. Recovery is a roller coaster, not a linear progression. And everyone is different and has a different recovery experience, so just let it happen and do the best you can. Waiting truly is the worst part.
Take care,
On October 7, 2013...
jeff o posted a note for Dan that says:
When I returned from Cleveland my cardiologist reviewed all my testing and other records. The big decision factors were my complete lack of pre surgery symptoms and no coronary disease other than my bad anatomy. His recommendation was since I was in much better physical condition than most people in rehab so walking and other physical activities would be better.
For me the biggest physical challenge has been upper body strength and endurance. I ache if I do a lot of lifting. I wonder if having a collapsed lung and a chest tube in for 8 days may be the cause of this extra upper body pain and weakness.
On October 6, 2013...
jeff o posted a note for Dan that says:
Hi Dan, at the 8 week point I'm getting very close to where I was before surgery. I still cannot do as much with my arms as bs, though I am regaining upper body strength every day. As far as endurance I'd say I'm about 75%. I walk alot and I still need to take extra pauses of 15 to 20 seconds every once in a while. I think this is due to still having some chest pain and breathing as deeply because of it. Overall if they told me I would be doing this well at 8 weeks I would never have believed them. BTW I am not in cardiac rehab.
Dan Sinclair Jeff
Sounds like you are doing great. Curious why are not doing cardiac rehab? It sounds like it real ... Read more
Dan Sinclair Jeff
Sounds like you are doing great. Curious why are not doing cardiac rehab? It sounds like it really helps but then again does not sound like you need it. I would have never thought the arms would take a while to get back ?? What is up with that?
On October 6, 2013...
Deb Ziegler posted a note for Dan that says:
Hi Dan,
It won't take you very long to get back to your before surgery fitness level, especially if you do cardiac rehab. Your arms may get flabby though. I had a hard time with that. I just couldn't lift much of anything for almost a year because they partially tore my rotator cuff muscles during surgery. It has taken a long time to get my arm strength back. Cardiac wise, I felt back to normal between 8 and twelve weeks. You will do great, since you are already in good shape. Even though you think you aren't halving any symptoms, I think you will realize you actually were after you have the surgery.
You will definitely have more energy.
Stay strong,
Dan Sinclair Thanks Deb,
That would be amazing to have more energy. Thank you for the encouragement.
Take care!
On October 6, 2013...
Jim Jones posted a note for Dan that says:
Dan
I admire how you are staying fit. I think it is really important to do what we can pre-surgery to be in the best shape we can be in on operating day. I have stopped road racing since July but I am still maintaining a medium exercise program. Good for my body and mind. I will likely register for some races in March - June 2014, just a few, to have something to aim at. The nice thing about road races is you can go at your own pace from a walk to a run.
The very best to you as you head toward your surgery. You will do fine and I bet, like others, in the months ahead be happy you got this done now. Best.
Dan Sinclair I am not so sure that I deserve any admiration especially when compared to you and many others but I ... Read more
Dan Sinclair I am not so sure that I deserve any admiration especially when compared to you and many others but I give it my best shot. You are getting close to your day and We are pulling for you and we are all sure that you will be running those road races again very soon!
On October 5, 2013...
Ernie A.S. posted a note for Dan that says:
Also, I think Aubrey might be a cyborg because he's doing so well.
On October 5, 2013...
Ernie A.S. posted a note for Dan that says:
I think the better shape you are in, the quicker you can recover. Check out Kenny's journal. He started running again six weeks after surgery and did a 5k 15 weeks post op.
I was an athlete in high school and I was injured plenty of times, so I could deal with pain. I never had surgery before, so it's definitely a different type of recovery. Athletic injury is so much more linear. You hurt yourself and start treating the injury and it gets better unless you do something to re-injure it, or not treat it right. Recovery from surgery is more of a roller coaster of some good days and some bad, but it does keep moving forward. So, it can be frustrating and you have to be patient, but in the end it saved my life and I look forward to getting back into running and being more athletic again.
I'm 3 weeks and a few days post op, and despite a little setback, I'm walking really well right now and feeling pretty darned good right now. My friend Mary saw me today and said if she hadn't known I had open heart surgery, just looking at me today and how well I was moving around and getting along, she never would have been able to tell that I was only three weeks post op.
I have a friend who runs a heart lung machine and has been part of many heart surgeries. I asked him for advice, and he said skip the Ross procedure unless you have a heart surgeon who's really skilled and very experienced at the procedure. He said skip the robotic surgery, and go with a full sternotomy so that the surgeon has plenty of room to get to what he needs. You just have a bigger scar. He also suggested getting a biological valve rather than a mechanical because you don't want to have to deal with blood thinners making you less active since there's more of a chance of bleeding out if you are injured. And, I followed his advice and I'm glad I did.
That's just me. You do your research, talk to doctors and friends and people who have had the surgery, and discuss it loved ones, and you make the decision that is best for you. Find a heart surgeon you are comfortable and confident in if/when you decide to go with valve surgery.
Good luck with whatever you decide.
Dan Sinclair Ernie,
Thank you so much for you honesty and again thank you for sharing your experience with us...ho ... Read more
Dan Sinclair Ernie,
Thank you so much for you honesty and again thank you for sharing your experience with us...honestly! The ups and the downs, I will try to do the same to help anyone I can as you have. I probably will not have as much humor in my posts but we (my wife and I) will try. Thank You.
On October 5, 2013...
jeff o posted a note for Dan that says:
Dan, you could send your test data and medical records to one of two top hospitals and get second opinions. The cost is something around $1000. We got an opinion from Cleveland Clinic this way.
In my case my surgery revealed the size and danger of my aneurysm was significantly worse than anticipated. So it turned out I did not have the 12 months to get it repaired that they thought. I feel lucky that I only waited 4 months.
Dan Sinclair And we are glad you only waited 4 months, I applaud your bravery for proceeding with surgery when ob ... Read more
Dan Sinclair And we are glad you only waited 4 months, I applaud your bravery for proceeding with surgery when obviously you were told that you had more time.
On October 5, 2013...
debbiej posted a note for Dan that says:
go with what needs to be done. As we said we are both in great shape and after them taking mine out they said I probably would not have made it to the end of the year and I said but how no symptoms? He said I was having them just not realizing and hid it well. But my echo changed a lot in the last year. for the worse as was my tee.
Dan Sinclair Hey Debbie,
I had a surgeon tell me basically the same thing, that people tend to change their life t ... Read more
Dan Sinclair Hey Debbie,
I had a surgeon tell me basically the same thing, that people tend to change their life to avoid the issues they might have if they didn't change. I am not so sure that I am doing that...but maybe. It is hard to tell when you get up around my age and not really know what my age feels like. In my mind I am still say 30 or so.....depending on the day, lately I have been working 12 to 13 hours a day and feel great but maybe after surgery I will be able to work 16 hours a day...do not mention that to my wife !
On September 29, 2013...
Jean Cook posted a note for Dan that says:
Dan
I was reading some of the response son your guestbook . I thought I learned that mitral valve replacement is usually a cow valve and aortic is a pig valve. Don't know if I am correct or not.i have a cow valve and I named her Elsie!
Dan Sinclair First I heard that but I will look into it
Take care
On September 28, 2013...
Mary posted a note for Dan that says:
Hi Honey, Thanks for singing my praises. Everyone who knows us is very aware that you take care of all your girls - mother, sister, wife and three daughters to the utmost degree and always have. Many times I have felt that you were last in line even though I wish it wasn't that way. So now it's your turn and it will be my honor and privilege to help get you through this. All part of those vows I took 37 years ago! Honestly though, if you wanted a little attention all you had to do was ask, not go have surgery! Love you forever!!!
If everyone hasn't guessed by now I'm the wife. Thanks everyone for all your kind words and support. It means more than you know. Reading all your stories really helps us both with the many questions that we are having right now.
You are all amazing people!
On September 27, 2013...
Aubrey posted a note for Dan that says:
I can relate a direct and personal story to you. I was told 37 years ago I had a heart murmur, nothing else. 5 years ago, I found out while dealing with a steroid reaction that I had a bicuspid aortic valve that would close up and eventually need replacement. Therefore we watched for 5 years and I am like the energizer bunny, never stopped, global travel, outwork anyone around me. In June the cardiologist said even though I did not show many symptoms, the numbers were getting to the critical stage. I had been exercising every week or two and could feel the valve expanding over a 40 minute time on the elliptical. This was keeping me going and I told him if he was asking if I felt bad enough to let them open me up yet, the answer was we were not even close. His reply was that he was not comfortable and really recommended for me to get it done now and not 6 months from the like I wanted. Fast forward about 6 weeks to select a surgeon and procedure, the surgeon came out to my family as soon as he was finished and said everything went fine but the valve was much worse than anyone had anticipated. I believe his direct quote also was, " it was the worst valve he had ever removed from a living patient."
I do not know your numbers but even though I still was extremely functional, I am convinced I was living on borrowed time.
If you still have doubts, get a 2nd opinion but be careful, there are thresholds that they go by and they were in my case, still not able to tell us how bad the valve was. I am an engineer and when the numbers came back and said the opening is .69 when a healthy opening is 2.6. That is about 1/4th the opening. For me, it was past time to fix it. I got lucky and it has turned out great so far after 4 weeks of post op recovery and I feel brighter and younger. Good luck, it is a decision only you can make. If you want to call me to talk about it or ask questions, send me a note at aubreyjone@aol.com.
Dan Sinclair Thanks Aubrey, I really appreciate your perspective from an engineer. I have a small cad drafting bus ... Read more
Dan Sinclair Thanks Aubrey, I really appreciate your perspective from an engineer. I have a small cad drafting business that I love. We specialize in mechanical systems in large commercial projects. All 3D "BIM" I love all the new technology and cannot wait to see where the industry goes next.
On September 26, 2013...
Jean cook posted a note for Dan that says:
Dan, I am 62 and had my mitral valve replaced with a cow valve this past April. I have been thru cardiac rehab and have a lot more energy than before. I don't think I knew what a treadmill was before I had my stress test. I now go to the gym for about an hour 3-4 x a week. Never went before. Don't put it off . I was home in 6 days after surgery
Dan Sinclair Thanks Jean, sounds like you are doing great, keep up with the gym it is a great stress reliever not ... Read more
Dan Sinclair Thanks Jean, sounds like you are doing great, keep up with the gym it is a great stress reliever not to mention the other benefits.
On September 25, 2013...
Ernie A.S. posted a note for Dan that says:
I'm not sure you will get an answer about who here has their valve the longest. As people heal they post and check the journals less and less often.
I got a bovine valve in the hopes that by the time I need a new one, the TAVR procedure will be the more common form of valve replacement in the future. Plus, hopefully I'll be much older by the time I need it and will be more of a candidate for the TAVR.
Dan Sinclair Yea I kind of suspected that I may not get to many answers on that one but hey, thought I would throw ... Read more
Dan Sinclair Yea I kind of suspected that I may not get to many answers on that one but hey, thought I would throw it out there. You are definitely right in line with my thinking but how come cow instead of pig, not finding really any reason for one over the other.....yet.
On September 25, 2013...
Linda H and Elsie AVR 9/19/12 posted a note for Dan that says:
Hi Dan, I had AVR a year ago this month. I want you to know I am doing great compared to what I was ike before surgery. It is true that the hardest and worse part is the waiting. Yes the recovery is long but doable. Every day you see a difference and it is all good. Now for your wife I have been in that boat as well. It is hard on her also. I have been in that boat as well with my Dad having an adomonal annuersym and my daughter had critical aortic stenosis. Her surgery at 29 was successful and is doing great with three very active kids. Things have come such a long way since my Dad had surgery and they continue to get better all the time. I had a cow valve that I named Elsie. They use to be good for about 10 years. Now its 15-20 years, so that is a big plus. You will do fine and be so glad it is all over. I will keep you and your wife in my prayers also. Please feel free to read my journal if you like. Good luck.
Dan Sinclair Linda I am so happy that you and Elsie are getting along so well. I have not made a decision on if it ... Read more
Dan Sinclair Linda I am so happy that you and Elsie are getting along so well. I have not made a decision on if it will be Elsie or Porky but more than likely one of the two. I will be checking your journal. Thanks for sharing.
On September 25, 2013...
Lynn E posted a note for Dan that says:
Hi Dan,
I am 59 and first learned I had AS this past May in an annual physical. It's been hard to reckon for me as well, as I have never felt better or been so active. I will have AVR next month.
I appreciate having had time to digest it all and am now reconciled...if I have to have this done then lets do it. The waiting has started to really get me down- I can think of nothing else...I will survive and recover, as will you. This experience is part of our life story and unavoidable.
I wish you well in acceptance and hope you won't have to wait too long to get it behind you!
Dan Sinclair Thanks Lynn, I wish you the absolute best in outcome, I am not far behind you, mid November.
Keep us ... Read more
Dan Sinclair Thanks Lynn, I wish you the absolute best in outcome, I am not far behind you, mid November.
Keep us posted with your progress.
On September 24, 2013...
Jim Jones posted a note for Dan that says:
Hey Dan
I hope the echo today helped you with your decision. I know it's a big deal and it really takes time to become certain a course of action is the right one. All the best.
Dan Sinclair Thanks Jim!
Decision has been made just still wrestling with it.
Scheduled for mid Nov for OHS. Will ... Read more
Dan Sinclair Thanks Jim!
Decision has been made just still wrestling with it.
Scheduled for mid Nov for OHS. Will not know entire procedure until after cath, but for sure AVR I am told. Take care.
On September 24, 2013...
Ernie A.S. posted a note for Dan that says:
Never had a surgery in my life or broken bones either. Be confident in your doctors, they know what they are doing. Recovery has been a roller coaster of good days and bad days, but bad days (for me) are more about being tired, feeling bloated and having back cramps than they are about chest pain. You'll do fine. This surgery is going to save your life.
Deb Ziegler posted a note for Dan that says:
Hi Dan,
I ,too, was 57 when I was told I had 3 leaky heart valves and would need open heart surgery. I had no idea there was anything wrong with my heart, and I think I went into some sort of shock or depression upon hearing it. I waited a whole year to have the surgery, and if I had to do it over, I would have done it sooner. Waiting is truly the worst part of the whole ordeal........and I'm not kidding! It is so scary to think about what they have to do to you, but I was amazed at how manageable the pain was, and how quickly I recovered. I had my share of complications or setbacks, but I am back to my normal life and couldn't be more grateful for each and every day. I truly believe it was a gift. I am a kinder and gentler and more grateful person because of it, and I have no doubt you will be too.
Godspeed and stay strong! You will be in my thoughts and prayers in the days ahead.
Dan Sinclair Thank You Deb, I will keep everyone posted as I make this journey!
On September 24, 2013...
Renee Radocaj posted a note for Dan that says:
Hi Dan – how are you holding up?? I must say I appreciate your honesty about not wanting to have this surgery. I’m not sure what I can say to calm your fears other then you have nothing to worry about. We all have those dark thoughts that keep us awake at night. We would be crazy if we didn’t! (Wink) I am 6 weeks post-up after a MVP. I will tell you that you will be amazed at how quickly you recover from this. Seriously - within a day you will be sitting up, walking in a day, and by weeks end you will be home sleeping comfortably (relatively speaking) in your own bed. Plus you will have a badge of honor right down the middle of your chest – welcome to the zipper club!
PS after surgery – follow Dr.’s orders – no matter how good you feel, do not overdo it. Also, ask you Dr. about the Shingles vaccine!!
Almost forgot – keep up with your pain meds, especially in the hospital. Have an advocate there for you for the first day or so, after that, do not be afraid to ask/demand additional pain meds if needed. The pain was very tolerable except for the one time when the nurse refused to give me meds. (Long story – you can read about it in my journal if you like).
Best of luck and I’ll keep up with your posts!!
Dan Sinclair Thanks Renee. Everyone on this site is so helpful. And I feel like I will benefit from the experience ... Read more
Dan Sinclair Thanks Renee. Everyone on this site is so helpful. And I feel like I will benefit from the experience. It is unbelievable most people like you say are in and out so quick but there are a few that make you shiver.
On September 23, 2013...
DVB posted a note for Dan that says:
You may want to check out my journal entry "What happens if my severe aortic stenosis is not treated?" from July 21, 2012. I have other entries dealing with ways to think about medical risk and all sorts of other related topics, including recovery planning.
My best wishes!
The bottom line is that once symptoms set in, your risk accumulates quite rapidly. Having surgery before significant damage occurs is both less risky and leads to a better, faster recovery.
And reading my entries you will find that I was skeptical of the need for surgery too (for severe mitral regurgitation).
I'm glad I did the research to learn what I needed to convince myself differently.
Dan Sinclair I will definitely check out your journal, thanks for sharing!
On September 23, 2013...
Heidi posted a note for Dan that says:
I didn't know I had MVP until a tear rapidly developed and I was sent to the ER from my Drs office with heart failure. Next thing i knew i was having open heart surgery within the week. I was 50 and very fit before the symptoms became acute. Recovery was very difficult since I went into surgery in a weakened state. I was told that if I was released without surgery and came back through the ER again, emergency surgery would be performed and that's not a good idea. Long story short, bad things can happen if you wait. Most people who post here and have quick event free recoveries have surgery planned before severe symptoms develop. Get a couple of opinions, plan ahead and you will be glad you did.
Dan Sinclair I have had a few opinions from a few surgeons and they all have said I am ready that it would be a go ... Read more
Dan Sinclair I have had a few opinions from a few surgeons and they all have said I am ready that it would be a good time to do it while I am fairly young and strong.
Makes sense but just a difficult decision to make.
On September 23, 2013...
Debbie j posted a note for Dan that says:
Hi Dan
They have been following my valve replacement for some time now 8 years to be exact. I was told about a year ago I should of had it done and chose to wait and a year ago my aorta was NOT at the point where it may need to be fixed. It was fine then. Waiting the extra year has caused more problems. If I would of had it done then this would all be behind me. Go for it if you need too. You will be fine. You seem young and healthy and you have all of us in addition to family for support. now I think should of had it done even earlier than that before it got this bad but I was waiting until a new procedure came out where they didn't have to open the chest.
Dan Sinclair Hi Debbie, I have known for a while that I would face this one day but I was sure hoping I could put ... Read more
Dan Sinclair Hi Debbie, I have known for a while that I would face this one day but I was sure hoping I could put it off for a few more years but it is not to be, so we move on get it done and recover as fast as humanly possible. Take Care!
On September 22, 2013...
Ernie A.S. posted a note for Dan that says:
Spirometer and laxatives (or stool softener) will be your best friends. Friends and family will be invaluable.
Dan Sinclair Never thought I would be best friends with a stool softener but I bow to experianced in this group!
On September 22, 2013...
Sherry Stevens posted a note for Dan that says:
Hi Dan, This is a daunting thing to be told, that you need surgery when you don't feel bad. I am 6 weeks post surgery tomorrow and doing very well. I am 63, only symptom was fatigue and had been watched for over 8 years. When my cardiologist ( whom I have great faith in ) said it was time I thought no way. I feel fine, I'm just tired. When I had my surgery I asked my surgeon to see my valve and he took a photo for me. I was shocked at how bad it looked. He had to break it apart to get it out because it was so stenotic. That was my reassurance that trusting my doctors and what they know is a must and that it absolutely was time. No kidding; the first couple of weeks are hard work but the hospital staff and your caregivers will get you through it. My plan was this: we made our decision about valve, hospital, surgery, etc and then I told everyone, especially myself, that now my only job was to wake up from surgery in "get better" mode. So that's where I put my mind. The knowledge and technology that the medical teams have now makes us all so fortunate to live in a time when this kind of surgery is very recoverable. I know it's scary, but with this site and the people you meet here, you have the opportunity to go into the surgery with information and encouragement. When you know what to expect it becomes so much less scary. And you always have others here to ask questions of and get reassurance from. Is your surgery scheduled yet? Ask, ask, ask all the questions you have.
Best of luck and keep us updated.
Dan Sinclair Hi Sherry,
It was great to see your last post
"I think I'm Back !"
I am something like six weeks bef ... Read more
Dan Sinclair Hi Sherry,
It was great to see your last post
"I think I'm Back !"
I am something like six weeks before surgery and wishing I could just fast forward to six weeks post and have the feeling you had in rehab, you can tell that you feel great about your progress and us on the other side love seeing that kind of experiance. Thanks for Sharing!
On September 22, 2013...
Cindy Wilson posted a note for Dan that says:
Hey Dan! I could have written your post 8 weeks ago - every sentence of it! The friends on this site will get you through it. Amazing bunch. Along with your beautiful wife and family and friends it will be over before you know it. Hang in there!
Dan Sinclair Thanks Cindy, So far I have been nothing but encouraged. I am amazed that you were operated on Thursd ... Read more
Dan Sinclair Thanks Cindy, So far I have been nothing but encouraged. I am amazed that you were operated on Thursday and home on Monday. Incredible!
Love reading your posts please keep it up. I look forward to reading and understanding what I am going to experience.
On September 22, 2013...
Jim Jones posted a note for Dan that says:
Hey Dan:
Yeah, it is a lot to absorb. I am in the same boat. Never had a broken bone, never had surgery and now OHS. Come on now!
About 5 years ago I contracted endocarditis as a result of my mitral valve dysfunction. Many of my doctors wanted a mitral valve repair then. After 6 months of talking to some great experts, we opted for watchful waiting. One item I had the toughest time with was the scar. It contradicted the image I had of myself as a life long runner able to do something well most others can not do. I felt I would be viewed as damaged goods.
Now, 5 years later, I am saying bring it on. I am fine with the scar. I just want a long, healthy, very active life.
You have done the right thing with you surgery. And the right thing connecting with your fellow travelers here. The connections you are making here will be invaluable.
Barb Brooks posted a note for Dan that says:
Hi Dan... I'm right behind you... 56 with the same diagnosis. Hard to realize there's something SO wrong, when you feel SO good. This site is amazing... it definitely helps! Good luck to you!
On September 22, 2013...
Rebecca S posted a note for Dan that says:
Dan, you sound like me. The very same things were freaking me out. As a nurse, I know too much and I was actually visualizing each step of the surgery. Not good. Had to start making a conscious effort to push it away when it came into my head. Of course I realized I couldn't go into that surgery being so terrified and stressed out. So, I started working on being resigned to it. If I didn't do it, I would get pulmonary hypertension and congestive heart failure and die. Not a pleasant way to go either. I made sure I had the best surgeon I know and the best anesthesiologist. Had talks with both of them about my fears. And I had lots of people praying me through. I still had my moments of uncontrollable tears. My husband just kept telling me I was going to be fine. Immediately post op I was thinking 'what have I done?' This is so painful, but then it got to be 2 days and 3 days and 6 days and I was going home. And now I am 3 weeks and 4 days post op and I wonder where the time has gone. I got over the hurdles, not completely in the home stretch, lots of healing to do, but on the way.
All I can say is work on distractions and prayer if you pray. Do fun things and have a surgeon and team you know you trust. You will get through it......we are proof.
Take care. We are here for any questions or support you may need and that we can supply. You are in our prayers.
Dan Sinclair Rebecca, Thank You. I am sure that no one jumps in to OHS without some reservations, I know I am not ... Read more
Dan Sinclair Rebecca, Thank You. I am sure that no one jumps in to OHS without some reservations, I know I am not alone and I do so appreciate reading about everyone's individual trials and tribulations. Take Care and Enjoy Life!
On September 22, 2013...
jeff o posted a note for Dan that says:
Dan, I had the same issues about no symptoms and waiting. Turns out my aneurysm was 5.6cm and "fragile" not the 4.8cm first measured . Had I waited longer I might have had big problems. Don't wait, do get a second and maybe a third opinion. Do question your surgeon about timing. In my case the data led my doctors to be too optimistic until more thorough testing indicted I needed surgery very soon.
On September 20, 2013...
Aubrey posted a note for Dan that says:
I can relate, told my cardiologist if they were waiting on me to feel bad enough to ask to have this surgery, it was still a few years off. He put his foot down and we found out when the surgeon did the replacement, it was way worse. The message is to not wait, they can not always tell but the numbers do tell the story. Also, it is not as bad as I thought it would be and I already after three weeks post can tell a difference, that will only get better until I expect to feel unbelievable. Look forward to getting it fixed and know these doctors do this as routinely as we go to work. Good luck
Dan Sinclair Hey Aubrey,
I have been reading your posts and you had a bit of a tough time in the beginning with a ... Read more
Dan Sinclair Hey Aubrey,
I have been reading your posts and you had a bit of a tough time in the beginning with a reopen and you are remaining extremely positive, that is good to see. Everyone is so positive on this site! Thanks for the words of encouragement, I am going to need them.
On September 20, 2013...
John O\'Neill posted a note for Dan that says:
Hi Dan
My first sign of trouble was when I fainted right after a 5k race. Luckily a young lady saw me going and wrapped her arms around me and went to the ground with me. No stitches or chipped teeth. Thanks to her. I had no idea that I had any problems other than old age was slowing me down. Three months later Mayo clinic installed a new mechanical valve, replaced my ascending aorta with a Dacron graft and did one bypass. Thirteen months later I ran my first marathon. Now four years later at age 61 I have done many more races and triathlons. Being in good shape was a major asset in going through that surgery. Staying in shape has been a plus in keeping the old ticker running good. Good luck and lots of prayers as you go through this.
John O'Neill
Dan Sinclair John,
I thought I had responded to your post already so if this is a duplicate...
Wow, 13 months afte ... Read more
Dan Sinclair John,
I thought I had responded to your post already so if this is a duplicate...
Wow, 13 months after and you run a marathon, that is impressive my friend. I have a little over a month and a half yet and will try to get in even better shape. That just scared the hell out of me, saying a little more than a month and a half, time is going to quick......
On September 20, 2013...
Jack White posted a note for Dan that says:
my initial discussion with my surgeon, I told him to "pencil me in" on the surgery date.
My wife almost hit me.
Coming up on 3 years ago soon.
Dan Sinclair Congratulations on your 3 year! If you are anything like me your wife probably should have hit you.
On September 20, 2013...
Joe posted a note for Dan that says:
Hi Dan,
Do not jog but do have the surgery. Like you I was in very good shape except for that little aortic valve. No meds, no high BP and world class cholesterol. And unlike you I felt the fainting coming on so I stopped and held onto something until it passed. Now I am 7 weeks out and doing 9 minutes on the treadmill incline of 6 at a 14 minute mile. I expect to be better than before in no time at all.
The tricky thing about the aortic stenosis is if you are symptomatic fainting is very likely and DEATH is not that far away.
Being in good shape is a big plus for recovery.
Dan Sinclair 7 weeks out and doing 9 min at an incline of 6. I think in no time you will be doing the iron man tri ... Read more
Dan Sinclair 7 weeks out and doing 9 min at an incline of 6. I think in no time you will be doing the iron man triathlons. Keep on!
On September 20, 2013...
Cindy Wilson posted a note for Dan that says:
Hi Dan. Welcome to the club - not one any of us want to be a part of, but this group is amazing, inspiring and empowering. Good luck on your journey! Truly, its not as bad as you will anticipate.
All the best,
Dan Sinclair Thanks Cindy, Right now I think it will be twice as bad as I anticipate, ...........if that is possib ... Read more
Dan Sinclair Thanks Cindy, Right now I think it will be twice as bad as I anticipate, ...........if that is possible.
On September 20, 2013...
Rose Sinclair posted a note for Dan that says:
I love you daddy!!! You are so strong and amazing for getting this done!!
Dan Sinclair Rose,
Thanks, I don't know if I would be doing it if it wasnt for the four women in my life. Love you ... Read more
Dan Sinclair Rose,
Thanks, I don't know if I would be doing it if it wasnt for the four women in my life. Love you guys...or should I say girls!
On September 20, 2013...
Angelo Varrone posted a note for Dan that says:
Dan,
I, too, had no symptoms prior to my AVR surgery. But, I reconciled my thinking about this based on the fact that in a relatively short time bad things would happen-- guaranteed. I understand your anxiety and shared it prior to my surgery. Now that I'm 6+ weeks into my recovery, I'm glad I had this done; probably should have had it done sooner. I'm 66 and like you, was very active prior to surgery. The good news, you'll probably have a similar recovery experience because you're in good shape. I had very little pain and was walking over 2 miles in week 3 post surgery. Last week I did a spinning class for 45 minutes, which is probably as good a workout as your typical run. Keep the faith, brother and get this done. You'll be glad you did.
Dan Sinclair Angelo, you sound like a poster child for AVR surgery, I can only hope to have the outcome that you a ... Read more
Dan Sinclair Angelo, you sound like a poster child for AVR surgery, I can only hope to have the outcome that you are having!
Keep it up, I am impressed!
On September 20, 2013...
Carol Jackson posted a note for Dan that says:
Dan,
I just joined this group too, although I have been following patients on this site for several years. It's a great site! I am having my surgery Oct. 8 so we are both going through the mind games. Good luck to you.
Dan Sinclair Mind Games, maybe we should write a book afterwards, wait someone already did that, Thanks Adam.
Caro ... Read more
Dan Sinclair Mind Games, maybe we should write a book afterwards, wait someone already did that, Thanks Adam.
Carol The best of outcome to you!
On September 19, 2013...
Ernie A.S. posted a note for Dan that says:
This surgery is going to save your life. Literally. I'm a week out of surgery and going through a few rough spots here and there, but nothing that I can't handle.
It's hard to have to rely so much on others while you're recuperating, but you will find that family and friends are the best things you have in your life.
Plus, you get REALLY GOOD DRUGS to help with the pain. :)
Dan Sinclair Thanks for the pep talk Ernie, I really have enjoyed your posts. My wife and I took a 7 hour car ride ... Read more
Dan Sinclair Thanks for the pep talk Ernie, I really have enjoyed your posts. My wife and I took a 7 hour car ride last weekend and I was reading your posts to her and we were both laughing so hard. She was driving by the way.....And
The Really Good Drugs are legal, what a concept.
On September 19, 2013...
Jim Jones posted a note for Dan that says:
Dan
Welcome aboard! When is your surgery? It sounds like the timing is good to allow you to get back to a highly active lifestyle. (and I get what you mean when you say you may not show up!). BTW, I have run my own business for 22 years.
A number of folks in the community have had valve surgery over the last months and are reporting solid improvements to their lives. I will be having my mitral valve repaired November 5th. Looking forward to it.
This site has been great for me. I hope you find the same. All the best.
Dan Sinclair Jim,
I will be right after you mid November. I have been reading all the comments and information on ... Read more
Dan Sinclair Jim,
I will be right after you mid November. I have been reading all the comments and information on this site for a while and it has both scared me and comforted me knowing I am not alone.
Take Care and wishing the best outcome for you, keep us posted.