After meeting with my cardiologist last month, I had a TEE test completed. That sure wasn't fun! I did not fall asleep after the initial meds were given through my IV, so they doubled it... and I was still awake for the entire procedure. I was definitely more relaxed, but vividly remember everything... and the gagging! That was possibly the most uncomfortable procedure I have ever been through.. definitely was worse than the two amniocentesis procedures I had with my pregnancies! My initial echo had shown me to have moderate regurgitation, but the TEE showed it to be at the mild level. I have mitral valve prolapse as well and my aortic, mitral and tricuspid valves were all listed as "myxomatous". I asked the doctor what this meant and he just said that there was a weakness in the tissues but that the tricuspid and mitral were both functioning fine. Has anyone else head of this word to describe their valve(s)? I refuse to google anymore... because google has caused entirely too many panic attacks. Speaking of which, I feel like since my diagnosis in early December, I have been consumed by anxiety and depression. I started taking anti-depressants and am waiting for them to kick in. I feel a constant worry about all of this and obsess over reading and researching as much as possible. I feel like it is more the aneurysm part that has me so turned upside down. I am trying so hard to figure out how to deal with my "new normal" and accept this as part of me and move on... but I am still very much in the "why me" phase and worrying that every single palpitation, twinge or pain means something significant. My cardiologist does not have the best bedside manner and the very first thing he said to me when he walked in the room... before even introducing himself was "you're not panicking over THIS, are you??" and looked at me incredulously. I told him that yes, I was, and he plainly told me not to and that my husband, who works on an offshore oil rig, was at much more risk than me and that if I wanted to worry about something, worry about that. I have a second opinion coming up with another doctor in the area who is a specialist in CHD in hopes that she will understand the make up of bicuspid aortic valve/ aneurysm a little bit more... and hopefully be a little bit more compassionate. I do want to thank everyone on this site for already being so supportive and informative. I am so glad I found this group!!!
For those of you with Aortic Aneurysms... have you received any advice on whether or not you should avoid air travel? I have seen a few blurbs mentioning the pressure may not be good for the dilated aorta. My doctor said "no restrictions", but I want to make sure I am doing what is best for my body.
I am a newbie here... I was diagnosed at the beginning of the month after my doctor heard a murmur and requested an echo to check things out. After an echo, CT and TEE test, I have been diagnosed with Bicuspid Aortic Valve, Mild Aortic Insufficiency, Mitral Valve Prolapse, and an Ascending Aortic Aneurysm currently at 4.2cm. I am asymptomatic, so being told that I now have heart disease has come at quite a shock to me. I am having the hardest time dealing with the thought of having an aneurysm and the terror and anxiety has been overwhelming. Everyone's response to my diagnosis is "you're too young!" at 32 years old... although I realize I have had my BAV since birth. I am a stay at home mom of two little boys, ages 4 and 7 and am married to Blake, who has been an amazing rock for me through the last month. I live near Dallas, Texas and my current doctors are at Baylor Hospital in Dallas, though I have a second opinion at UT Southwestern Medical Center with a Congenital Heart Disease specialist in February. I am enjoying reading other people's stories on here and they are giving me hope for being able to accept my diagnosis and continue on with my life. As of now, it feels like my world has completely stopped and the depression and anxiety have taken over.