On March 7, 2016...
Meredith Bray posted a note for Barbara that says:
Hi Barbara! I just read on one of your posts that you have a five hour ride home. WOW! OK, here's a quick suggestion - make sure you have one of those u-shaped travel pillows to hold your head up. Our heads are VERY heavy, and you'll use a LOT of energy and strength holding it up. Why not get a travel pillow and let your neck and beck relax a bit?
Also, make sure you have several pillows that you can use to support your arms & shoulders. Seriously, you're going to be exhausted to begin with, and you'll doze in the car (I'm sure!) Make sure you have enough materials to support your upper extremities so you can relax and get a little rest.
Best of luck!
(It probably won't be as bad as you think it will)
-Meredith
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Billy G  Barbara, in addition to what Meredith said, you will want to stop and walk at least once an hour if y ... Read more
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Barbara Laurie  Thanks guys! Yes, I have a neck pillow already and plan on lots of pillows in the car๐Ÿ‘๐Ÿผ either ... Read more
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Jan McClain  Make sure they measure you for and give you a couple pairs of compression stockings, ask them about i ... Read more
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Bob Fessler  Thanks guys for the tip on a neck pillow and other pillows. Another great example of why I visit this ... Read more
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Barbara Laurie  Thanks Jan! As you know Ill be down at Parnassus in two weeks,mI will put that in my list of questio ... Read more
On March 6, 2016...
Cynthia posted a note for Barbara that says:
Dear Barb,
Great post!
Those of us who benefit from western medicine, even to the point of having our lives saved, still experience conflict within our intellect, our emotions, our faith, and our physical bodies.
It's so reasonable, don't you think?
How many times have I cried with gratitude over that first clean breath during an asthma attack yet have still cursed the side effects of the medicine that saved me? Every time. Fascinating. Human.
Very small example...so many running through my mind.
The bittersweet nature of life... the word human takes on meaning much bigger than I can express. It's hard and it gets harder when we start telling each other how we should be feeling. Hey everyone! Let's put up umbrellas for each other instead of denying the rain!
After your surgery, you will still have Ebstein's Anomoly but with a top-notch remodel courtesy of your surgeon. This is the right man, the right time...no coincidences.
I know you wrote that malformation is a better word to describe what's going on. I hope you don't mind if I continue to think, anomoly, since it means your heart is a rarity as are you. Tell your doc I said not to touch any of the love and generosity that you've got in there!
One more thing: I know you are, at times, worn and tired. Please try to remember how strong you are. Even marathon runners hit a wall. It's feared and it's predictable and it's beatable. You've been proving that your whole life.

Love from your sister,
Cynthia
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Barbara Laurie  ๐Ÿ’–๐Ÿ’•๐Ÿ’– Thanks Cyn๐Ÿ˜˜
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Nicola Laker  What beautiful words from your sister. โค Can I adopt her as mine too? Actually can i have both o ... Read more
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Barbara Laurie  Yes Nicola, you can have her, and my other sisters too.. If they were all close by you in London they ... Read more
On March 5, 2016...
The Sue posted a note for Barbara that says:
Just read your post in your journal. Glad things are moving forward. I posted yesterday but I think I'm having some trouble getting my post to you. I should just call you. Getting a cold or maybe just allergies. Thats why I haven't been by to see you. Love you Bard
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Barbara Laurie  Love you too my friend. Hope you're feeling better soon, take care of your health๐ŸŒน๐ŸŒน๐Ÿ˜ท๐Ÿ˜ท
On February 25, 2016...
Cynthia posted a note for Barbara that says:
Hey Barb! Maundy Thursday, Good Friday, Holy Saturday, Easter Sunday... Wow, and then you, Jennifer, and I can celebrate another year on God's green earth.
I urge you to think ahead and browse products called Aloe Vesta by Convatec [You'll recall providing the #3 product for me! :) ]
Think of #1 for cleansing, #2 for moisturizing, and #3 for protecting your skin until you can shower. I use #1 and #3. Amazingly, the cleansing products, regardless of the form [spray or a creamy product] are designed to make rinsing optional.
There are lots of no-rinse shampoo caps on the market too.
You know me well enough to know that I go right to hygiene, but I bet there are plenty of people who could offer helpful suggestions to keep you as comfortable as possible while healing.
I love you, sister!
Cynthia
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Barbara Laurie  Thanks Cyn! You know me!! ๐Ÿ˜„๐Ÿ˜„๐Ÿ’•๐Ÿ’•Trying to write a good master list for shopping in town and ... Read more
On February 22, 2016...
The Sue posted a note for Barbara that says:
I hope I have it right--you are scheduled!!?? Praise God. You are in His care. Love you
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Barbara Laurie  Yes, that's right Suzie Q so, now it's a wait and keep praying! Love you!โค๏ธ
On February 19, 2016...
Cynthia posted a note for Barbara that says:
Just when I think I've heard it all. That being said, there is always a flower among the weeds. Someone there has to have an appropriate working knowledge of their system, a strong work ethic, human decency...Someone who doesn't just think of this as a JOB. Text your doctor. Either he is unaware of the dismal state of affairs at the clerical level (and above! ) or he's not. Either way, it will give you both (surgeon and you) a valuable opportunity to reassess plenty. This is madness and I'm so sorry you aren't receiving anything close to approaching the level of quality necessary when heart surgery is necessary. I love you, Barb!
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Barbara Laurie  I love you too Cyn, thanks for being there for me all the time!โค๏ธ๐ŸŒนโค๏ธ
On February 13, 2016...
The Sue posted a note for Barbara that says:
prayers for you from the Haydens. We love you Barb but God loves you more
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Barbara Laurie  The Sue: thank you my friend!! Thanks for following me and all your prayers๐ŸŒน๐Ÿ˜˜
On February 12, 2016...
Kate Nelson posted a note for Barbara that says:
Hi Barbara,
You asked about bras in your last post - I bought one from Heart & Core that was comfortable but pretty expensive ($70.00) I also purchased several front clasp bras at WalMart that were only $5.00 each. They had about 6 clips and that was not comfortable so I just cut off about 4 of them. Still held me together and not so much pressure on my chest. I normally wear a 34DDD and the WalMart bras only come in DD so I just got a larger size 38DD and that worked fine. Plus you are going to be swollen after surgery and do not want something too tight. I hope this information is helpful. Good luck on your surgery. I am 11 1/2 weeks post-op from mitral valve repair.
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Barbara Laurie  Kate, thank you! Especially for taking the time to give me this info, I think it'll be best to have s ... Read more
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Cathy Slipski  At,the hospital I was at they provided me with a bra that snapped in the front.
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Barbara Laurie  Thank you Cathy, I may get a sports top extra large and then wait and see. Since UCSF isn't a Small ... Read more