I am back from the cardiologist and he says my valve is worse and that we must go forward before it is too late to do so. He scheduling a cath test right an left and then another TEE. I knew this coming but reality is setting in. Take care everyone.
Well I have survived the last 2 weeks and now I see the Cardiologist this morning at 10 a.m. I had the echo on Monday. I will probably have to wait since his office is always packed with patients. Last week I was dealing with a very very painful right arm. After seeing the Orthopedic dr. I now add to my list of Dx , a bad rotator cuff. He gave me a very very painful shot of cortisone in the right shoulder and referred me to PT. This week my car went on the fritz and I have had to rent a car and today I could use some good news - like my heart value is healed and I have no heart issues - Sorry I was just dreaming, but who knows. I will post after I have heard the doctors wise words and let you know the results.
Just got word that she is out of surgery and in the ICU for heart surgery. The doctor said that he was able to replace the Aortic Valve and only one artery. Thank you all for praying. Please continue to keep her and her family in prayer. God's blessings to all.
My next Echocardiogram has been schedule for March 3rd and then on March 7th I see the Cardiologist. So that is why I call next week my heart week. I attempted to do some walking and found that I am getting out of breath very easily and so it is difficult to make it count as helpful.
The prior entry in my Journal I shared about a good friend that was classified as a "high risk" surgical patient and was having to wait to see if a particular heart surgeon would take her case. Well he did take after a review of her medical situation and an interview. Fran is her name and as of this date and time she is in open heart surgery so I am requesting all the prayer warriors to keep her and the surgeon in prayer. The surgery is taking place at Holy Cross Hospital in Ft. Lauderdale, FL and Dr. Imad Tabry is her surgeon. She is having the Aortic value replaced and repair and replace 1 or 2 blood vessels into the heart. She had a 4 by-pass surgery 10 years ago. Only one artery has stayed clear and open, the others had collapsed. I will keep you posted on her situation.
Enough for now I am not only praying for my friend but all the heart valve patients in this community as well as the ones that are just following along. Thanks
Well, I have not posted in quite a while. Really didn't feel I had anything to write about, but after posting a few notes to other journals realized I probably do have some things to share. First off I am in the 6 month cycle with the cardiologist. Do you folks realize we all have doctors that are from around the world. My Primary Care Dr. is from Argentina and my Cardiologist is from India. Dr. Colman and Dr. Chalasoni, respectively. I see Dr. Chalasoni March 7th and my PC doctor March 12th. Of course the Echocardiogram will be done at the end of February. So I wait patiently to find out what will take place next. I do have a dear friend that is very seriously in need of a AVR and bypass surgery repairs and is now hoping a surgeon in Ft. Lauderdale will be able to take her as a patient and perform the surgery. She is a "High RIsk" patient. Please pray for her. She came to me because she knew I was dealing with Aortic Stenosis. So right now my concern is for her. I have given her this website to check out, but don't know if she will do that or not.
I have been following everyone and I am so very happy for our dear Rachel. She about to go home after heart transplant surgery. She is so special and so strong. Her battle to get well has been an inspiration for all of us and I am grateful to God for Him watching out for her.
Well I have lost 42 pounds and need to get 8 more pounds off before March 7th. It is a struggle, but I am determined to do it.
Best to everyone in this Community and even to those that are following, but not journaling at this time. I am praying for everyone. A special shout out to my sister Gabi in Australia.
Well the old year is about to leave and the new year is opening up. I always look at this time of year with great expectations and so it is again, but even more so since I believe that 2014 will be the year of surgery for me.
I am grateful for the opportunity to share my feelings about all of this and to be able to learn about heart valve disease. Adam Pick is certain a God send and so I wish him and his family a most blessed of New Years. Secondly may each and every person and their families which are a part of the Community a Blessed New Year as well.
I am still struggling with the digestive issues, but not quite as severe and so I will see where this all leads, hoping it will correct itself without to much of a to do.
The heart issue is of course still there and reminding often enough so as to not forget. I am mostly tired all the time and like my cat, Frances, can cat nap at the drop of a hat.
My prayer is that all of the Community will have a healthy happy 2014. Love to all, especially Rachel.
Well today was the visit to the Gastro dr. My first to this particular doctor. My other Gastro dr. retired and so I must get acquainted with a new one. He was nice and very young. I was praying and hoping for a simple solution and I may have gotten my prayer answered. He thinks I have develop Lactose Intolerance and so I am deleting dairy from my diet. With a concentrated effort to lose 50 lbs before my March visit with the Cardio dr., dropping the diary will not be a big issue for me. I had already dropped ice cream (yummy) and cheeses (all kinds). So I am now to dropping my skim milk and yogurt and I will have to find a butter substitute. I can live without dairy in order to get my digestive back on track. The only thing about the visit I didn't like hearing is that he is going to check with my cardio to see if he will say okay to a colonoscopy ( been there and done that before) Ugh!
Well today I went to my PCP for a 6 month follow-up and I asked him questions about the Cardios report. To my surprise I have been categorized as "severe" and not as moderate to severe. My dr. really laid it all out as to the three symptoms to look for: (1) syncope (sp?) - fainting/dizzy (2) short of breath and (3) angina (chest pain). He suggested 2 cardiothoracic surgeons. He was happy with my weight loss and encouraged me to keep on. I did talk to him about gastric problems I was having and so I go to a gastroenterologist on the 18th. Hope it is a simple solution. Rachel is always on mind and she is on top of my daily prayer list. She is so much stronger than anyone knew.
One down and several to go! Don't get me wrong, I appreciate Thanksgiving and I have much to be thankful for, just as we all do, but because my family is all over the place, but near where I live, the holidays are schmolidays.
Carol, I have not done much to check into Mayo/Jacksonville, but it is on the to do list and I will let you know the results. I didn't hear from my family on Thanksgiving (I did call them and left a message) and so I am concerned that my son who has some medical issues (one being Afib) might not be well. Being a Christian I try not to worry and to trust God, but I am weak in that area.
I managed to put up my 4 ft (fake) Christmas tree and to decorate it. I also put up the door wreath (fake) which has a auto timer for the lights. Everything works and that is always a relief.
I will be planning the shopping trips carefully, since I get of breath rather quickly and I get tired on top of it all. Next week is my PCP 6 months visit and he will shake my hand ask a few questions and listen to my heart and schedule me for another 6 months. I am trying to decide whether to bring up the change in my digestive habits as it may just open another can of worms and I already have a can that is open with the valve issue, Decisions...decisions, as you get older they become harder and harder.
I have managed to squeak out the loss of 2 more pounds and so I have lost 37 of them at this time. A small victory, even while eating turkey, sweet potato(no marshmallows), veggies and 2 rolls. No desert, the rolls were my desert. The new week is upon us and so I look forward to getting on with life, wearing black in honor of Gabi and praying for our Rachel as they each find successes, however, small or big they may be.
I am in a Medicare HMO Advantage Insurance plan, so I am limited as to who, what and where. My plan offers to hospital in my area that performs OHS and there are at least 4 cardio-thoracic surgeons.
One hospital is in Stuart, FL (4 miles from home) and the other is in Ft. Pierce, FL (20 miles from home). My cardiologist is on both hospitals staffs, but works mainly out of the Fort Pierce hospital. Lawnwood Memorial Hospital in Fort Pierce is where I had the TEE done and I expect the other test will be there too. I have researched the doctors records and on how many valve surgeries they each have done. None of them have a large amount of Aortic Value replacement surgeries. The most experienced one at Lawnwood has done 15 and the other surgeon has done 3. The doctor at the Martin Memorial Hospital in Stuart has done 4, but there are other doctors in the practice called the Ocala Heart Institute and one is in the patient recommended section of this website, but I can't fine his record as to how many valve replacements he has completed.
So it is a mixed bag. My cardiologist has me in a 6 month holding pattern. The last time I saw him, he said to continue loosing weight that the value was now moderate to severe and he wanted to do more test, but not at this time. This coming March I see him again after the echocardiogram. I suspect that he will want to do the test then things will move faster than they are right now.
The weight loss is my biggest job and it is getting harder and harder. I have already cut portions in half, but reduced carbohydrates and increased veggies and proteins. I eat fish, chicken breast and low fat beef (occasionally). The veggies are brocholi, cauliflower, green beans and squash. I go to my PCP in a week and half and I am hoping to have lost another 5 to 6 pounds by then.
So when I say "I am waiting" that is where I am at this time. I am concerned about the ObamaCare thing that is going on now and how it will effect my situation and others in this Community. I hope and pray that no one will be faced with an insurance policy being cancelled or a doctor not available any more. Times are very uncertain with many issues. My Christian faith is the one stable factor and so I have placed it as #1 in my life.
May everyone pre and post op have a good solid sleep tonight and a great day tomorrow. Tomorrow is Rachel's big day and she will need our prayers and best wishes.
I am a night person, actually a late night person, but eventually it catches up to me and I am in bed at a regular hour. My family is planning a wedding (no not for me) for granddaughter Cherese. She is getting married in September 2014 and is coming from the Denver area of Colorado to Florida. She is marrying her high school sweetheart and all around good guy. We are all very pleased with this match. My son is looking to rent a house, no a mansion, near the beach. I guess he thinks we are all "rich". He emailed me a picture of one he was looking at and it was five thousand to ten thousand a night ( I choked). He said no it was only ten thousand for a week. I still CHOKED and emailed him back my response. "What do you think we are, the IRS having a convention??!!? He hasn't replied. Maybe I went too far in my comparison. I am leaving it all in his capable hands. I am just hoping that the surgery would be all over with before September, but whose knows how it will all play out.
I do notice that I am really tired all the time and sometime just "drop dead" tired. Mondays are always rough. I leave at 8:15 A.M. and come home around 5:15 P.M.. Yes I only work part time, but I also volunteer every Monday morning 8:30 to noon at a CareNet Pregnancy Office. I have been doing this for 15 years and love it. With economy the way it is, more people are without insurance and without jobs, so we fill in the gap. I now find that without some naps during the day, I am wiped out by mid-afternoon, but I can't snooze on the job, so I walk about, but cold water on my face and suffer through. When I get home, the chair is ready for me to take a 20 minuite Frances ( cat) nap. Enough of this rambling on. Glad that the pre-ops and the post-ops are doing good.
Love the post and as always keeping Rachel in my prayers along with her family.
Here I sit going through coupons and getting ready for the grocery store in the morning. I do enjoy seeing how much I can save. It has become a personal challenge to out do my last grocery trip savings. So I organize and prepare a list. I am also sitting here and wondering after reading all of the wonderful results that my fellow Patients are sharing, if I will have the same results? I have some other issues such as a bad left knee (that should have surgery) and lymphedema in both lower legs (I wear knee high compression stockings). Walking is done is short spurts. I see that walking is very important in the recovery process and so I am concerned.
I have started going to the park to walk and sit, then walk some more and then sit, but (that old pesky but) will I be able to improve my walking? I hope so, but I am concerned. I can't do the bicycle motion as my knee crunches and is very painful and so that is out. Oh! well. I will do my best to improve before any surgery. After all HOPE is something we all are bound together with, sort of like glue.
Have you noticed how people react when you tell them you have a heart issue and it is a bad valve that is misbehaving? Well the people at work new I was seeing a cardiologist and having a TEE done, they all wanted to know the results. When I told them a defective aortic valve, their response was how do you fix it. I replied replace it. They seem to think that was jumping to the last resort and not going through other methods to fix it. As we "ALL" know that is the fix and I tried to explain this, but they kept suggesting going to the gym or take a pill or anything but surgery.
It has been several months since that revelation and now they keep asking me how I feel. I say good and some days are great! So things are settling down and life goes on. I guess the assumption is that surgery seems extreme for the average person, but when it is the mechanism for a "miracle" and a means to getting back your life, it is something all valve patients look forward to with fear and trepidation knowing that on the other side of surgery is life and life more abundantly.
I came home from work and pulled out my smart phone and saw Adams News Letter and opened it up and found Lise's post on Jim's Journal that he was a text book surgery. How nice. I have added a few more pictures to my Journal and trust that everyone will have a good nights rest. Goodnight sleep tight.
I had mentioned the weight loss request of my cardiologist and want to report that as of this date and time I have lost 35. Yes it is a good start, but I think he wants me to lose 50. So the process continues. Losing weight without much exercise is tough. So I am cutting out Halloween candy and other carbs ( I do love carbs). Also reducing portion size (that is difficult) but so far so good. No marathons for me, just walking and working. Jim is in surgery now and I know he is about come out on the post-op side and into recovery. Longer this goes on for me, the more I appreciate the before and after surgery comparisons. Being under the gray cloud for 1 1/2 years is wearisome . Everyone have a good day, must go on to task around the house and then off to work.
Well I am starting the walk and joining hands with all the other wonderful patients that I have been following and sending words of encouragement, such as Carol Jackson, Lynn Ennis, Barbara Brooks, Ernie Keen "the Grog", and Jim. I have read most of stories and find much similarity connecting us all together in some sort of strange circumstances. It is late and I am still working, so will have to call it a day. Everyone please have a good nights rest and see you in the morrow.