Yeah I'm still hanging in here. Went for my usual walk today. Been keeping up the 2 miles a day. One in the morning and one in the afternoon. Well today I was out and almost done when I encountered my neighbor and her little dog. So I caught up with her and did probably another quarter of a mile going up a little hill. Well coming back we had stopped and I felt a little light headed. Guess I just found out where my limits are. Otherwise I am doing ok. Finished up my throw, I call it the stress relief. Will try and post it on here soon.
Hope everyone is having a good day and is recovering amazingly. And prayers to all who are up to bat.
For the long haul
Took my husband to primary doctor today. He is 79 years old and is in better shape than me. Im jealous. Anyway I asked doctor for copy of echo from last Sept. Got it. He was glad I was getting copys and keeping them. I told him about almost passing out while driving and I should be able to stand in church to sing and not feel like I might not make it. I put myself up to a car. Told him my engine light was on. Dont you fix your car when the light comes on or do you wait for it to get worse? I told him I just wanted to feel normal again that waiting 5 months to 5 years is not an option. Asked him what anersym measured at, and it is 4.5 in the middle. He was saying that I could have complications if I had it now, like a stroke etc and if its bad enough could be in hospital for up to 2 weeks. I kinda disagreed with him. Told him about this site and no of this has happened to anyone yet. So I think he was trying to scare me. He said he could hook me up with doctor in Greenwood. I told him I was very seriously thinking of Dr Andrews in CLT. He agreed. I also told him I would wait for echo in July, study the two of them and then send them away to a surgeon. He was saying if they dont think it is bad enough I can live with that, even if he told me to wait 4-5 months.At least I would know something.
So thanks Nancy for your advice, I might just be following it. I also let him know with regurgation if it got to bad it would destroy the inner muscle of my heart then it is to late and nothing can be done, and I wont even think about a transplant. These doctors make you feel like you are begging for surgery. Told him I really didn't want it nobody does just want to get back to a normal life. Oh well guess I got my venting done until next time
For the long haul
Went to church today feeling fine. While in church started getting those same old pains in my chest where I have always had them. They would stay for a while then come back. So today thought I better just kick back and do nothing. I did tell doctor about them and he didnt know. I have had them for quite a few years, but I think its where all of the problems are. I will tell my reg doctor this week when I take hubby in and let him know. Who know maybe my long haul is going to get a little shorter. Oh well day by day. Hope everyone is having a good day.
For the long haul
Just let you all know Im still hangig around here just cheering everyone on. My husband got bored and said lets go to Anderson, so we did. I stopped in to Ross's
and got a new dress, yeah me. Im pround it was a size 14. Im almost there on that part anyway. Havent worn that size since high school a long long long time ago.
Wishing everyone good luck on there day coming up this week and sending prayers out to all. Have a good day. And Linda stay warm the OR is cold enough.
For the long haul
Yesterday I had a real good day. I actually walked for a total of 3 miles, not all at once, but I did it. Today we had to go do taxes and the office was on the second floor. Thats when I had another little realty check. My husband is 79 years old and he did pretty good walking up two flights of stair. Me? I had to take a break in the middle. Now after loosing 24 pounds since October and doing all the walking I have been doing, you think I could do that. Wrong. :( Just something else to journal so when I see my regular doctor I can tell him.
Hope everyone continues to improve and all of those getting ready Jan, Linda and everyone else prayers are out there for good reports, and a safe trip. Talk later
For the long haul
So sorry to hear about Kelly. I was so hoping she would recover and have a wonderful life. It really hit home to me. I lost it and had a big cry also. Kind of a realty check to all of us, and made me start to think. Guess I realize just how close each and everyone of you is, just like a real family. I am so thankful that I have meant each and everyone of you.
My prayers go out to her family. Rest In Peace Kelly
For the long haul
Ok went to get the mail today and there was the copy of bill that really went to insurance/ medicare. The tee test came to $3900.00 ouch. Right now there is about $7400 all tied up into this and I wait for who knows how long.I think I figured it all out. They want you to wait until its almost to late until they put you back together again. In the mean time in 5 months there will another echo done for another $3100. No wonder medicare is running broke. I would just rather get it over and done with and save medicare some money. Ok now I got that off my chest, just had to vent.
Im going to take Nancys suggestion. I will wait for second echo to back the first one up and if he doesnt say what I want to hear, I will do it myself. Not that I am begging for the big filet or anything. Just want my life back to normal again.
Now I will go get my second walk in while it is still good out. Hope everyone has a good day.
For the long haul
We have been having a go round with the DMV to get my husbands drivers license for SC. Well it all finally got resolved and as I am driving him to Belton to get it, I kinda pulled over to the curb a little bit and slowed down. He asked what was wrong. Told him I felt like I was going to pass out. I was a little scared. So I might have to wait to get this over with but I have to put up with who knows what and when. No fun.Good news he is now a resident of SC, getting all prepared then whoa. After I got home I decided to go for walk as it is 72 out today. I told doctor my dog is mad at me cause he told me I could not take her for a walk. Well he said it was ok to do that as long as she didnt take me for a walk. We did real good until we meant the neighbors dog and she wanted to go play. Oops. That was a no no. Guess that is enough for today. Talk to you all later. Hope everybody has a really good day. Stay safe.
For the long haul Linda H
Hi All, Saw Dr Albrecht today and it was good news for right now. He told me to stop worrying that I have time and not to google so much. Told him I am Heart Valve Journaling lol.Anyway I have the results of the tests that I just had done and I will just copy them off. The Ultra sound- good all normal (thanks Dad) the tee test shows:Aortic Valve- The valve is anatomically trileaflet but functionally more bicusped due to fused and calcifc rafa of the left and non coronary cuspa. The leaflete have marded calcification and sclerosis at the tips. Moderate stenosis by planimety measuring 1.1 cm2. Mild to moderate and marked turbulent jet of regurgitation impinging on the anterior mitral leaflet is seen. The LVOT is of normal dimension and the aortic root is dilated above the ainue of Valgalva, measuring up to 4.5 cm. Measures 2.5 at the level of the sinus Valsalva and 3.7 cm at the sinotubalar junclion. Mild amount of latered and immobile plazue si seen 3.5 cm from the incisors. Everything else looks pretty good.
So now I would like to thank you all for all of your prayers, Dr Albrecht my cardio doctor (hes alright) Dr. Casey for seeing something there, my family, my church family and friends and to Weight Watchers and Dr Oz for getting me going in the right direction. I think loosing all this weight has helped out a lot but its not over.
I am still going to be here for everyone cheering you all on and saying prayers for all of you, cause there will be a day that it all changes. Mr Dr. said see you in 5 months for another echo cardigram and a tilt table test. So guys it looks like my wait is going to be longer than I thought. Is that good? Im just going to try and chill out not worry,right, I love you all and God is good. I guess I can sign out with
Having a longer wait LInda H
PS That was hard to read so hope spelling is ok
Tomorrow is the day I see Dr Albrecht. I will most likely here all the news. I was so hoping for a devine intervention but don't think that is going to happen. I can wish can't I.? lol Espically when he did tell me it was a little worse and showed some calcification. I don't even know what the ultrasound said yet. Guess I am about ready to find out. I feel good tonight not scared. Guess I have had enough time to sort this thing out and try and figure what I want to do. I guess I feel ok cause I told the doctor when he did the tee test, that he intimidated me cause he had cardiologist behind his name. At least I didn't tell him I loved him like someone here was afraid of doing.
So you all stay tuned tomorrow for the rest of the story
Hi Everyone, Just been busy reading up on all the posts from everyone. On Wednesday I see the cardio doctor.Have to be in Newberry by 830am and have never been there before. Thanks for GPS. Anything to save a buck as the doctor doesn't take my insurance in Greenwood but he does in Newberry.
Anyway went to church last night came home to watch Desperate Housewives and Pan Am. Well don't know how Desperate Housewives turned out and missed a lot of Pan Am. Got under my little blanket and that is all she wrote, but when I woke up there was the beating of my heart in my stomach again. It wasn't as bad as it was a couple weeks ago, but never the less its scary. Just have all of these feeling and decisions, its starting to get to me. Are all of these feelings normal? Now my husband is starting to tell me I look tired all the time. So something must be starting to show, while I am trying to stay up beat. Oh well guess that is enough crying for tonight lol. Talk to ya lot later. Glad everybody is doing really good and over the mountain as Linda says. I like that. But where I come from the mountains are pretty tall (Denver Co)
Well Until Later Linda H
Just another day. It was cold here today, but the sun made it a little warmer, so got my walk in. Don't want to blow it now have to keep it going as I know it helps me for later. Nerves are still at rest. Still working on afghan to finish it and start another one. Keeps my mind off of what is to come. Can't help wondering what the next hurdle will be when I see the doctor very soon. Oh don't stress, have enough of that on its own. Looking forward to going out to dinner for Valentines and with some good friends. Should be fun. Hope everyone has a good day.
Until Later Linda H
Just another day today. At least the nerves are all calm and sleeping haha. Sure they will be awaken again. Went grocery shopping today with my husband and started feeling a little light headed so ran up and got electric cart. Was having fun with that. Told everyone I was rehearsing for when I really need it, but I was'nt going to take any chances. I even got my walk in today, before it turns cold out. That just might be a good thing and I can get rid of sinus problems.
Hope everyone has a good day. Glad you are doing better Mitch and Nancy. Sure hope we all get good news on Kelly real soon.
Hi All, Thanks to you all I DID IT. I felt all of your prayers with my and God said it was ok I'm here. So thank you to everyone for helping this big baby get through this little hurdle.
Dr Albreight did the test and I got to know him a little better. It was very uncomfortable like everyone said, the good thing was the nurse there told me I wasn't to do anything like clean do the dishes for 6 months. I bought that. My husband wasn't to happy.
When the doctor came in and told me everything thing I got it all straightened out. He said it is called aortic valve regurgation and anuersym. The good news is that it hasn
t changed a whole lot but it is starting to narrow with some calicifcation (sp). The good news is I have time on my side. He was possibly talking about Emery in ATL or he could send me some place north, like the CLE Clinic. We will be talking about all of this on the 22nd. I told him I didn't want to put this off, I wanted to get it done, so maybe I can get my brain back and feel a little young again. So now I am feeling very relaxed after not a real good night of sleeping. So I guess thats it for todayguys.
Until Later LInda H
Hi All, Had a pretty good day today. Decided to get into my walk. I didn't do my 2 miles but I did one mile, better than nothing, and I took it kinda slow just in case. My big goal for today was, I went to my weight watchers meeting tonight and I DID IT. I lost my 20 pounds/ 10%. That is just what I wanted so when I go to cardio doctor on the 22nd, he should be real happy. So onto goal number 2. Surgery and get this over with, and goal number 3 is another 10% and I will almost be there. The reward is shop, shop, and shop some more.
Ate a really good dinner tonight cause tomorrow is the tee test. I will really be glad when that is over with.
Thanks for all your support guys, espically Linda Dixon, you have been great and I so love all your support, cause our name is Linda. I also give thanks to my minister, Pastor Justin. He has blessed me in so many ways and all of my friends at church.
Until Later LInda H
I guess I should back this up to Saturday. Saturday night I was feeling a little blue and down, feeling sorry for me kind of thing. Didn't take much to turn the faucets on if you know what I mean. I had my walk like I usually do but almost to the end, I just gave out and I still had to get home. So I decided to start cutting back on the walks as I was feeling kind of weird.
Well Sunday came and all it ok. Went to church in the morning and decided to sit outside when I got home as it got up to 70. How nice. Went to church at night as Pastor Justin said something to me. He was in competition with a football game. I said a prayer for Tameika and he said one for me. Well when I got home just in time for half time and watch the rest of the game, I was crocheting also but guess that game just got a little to intense for me. During the game I was starting feels the butterflies so I thought kick in again. After the game I could feel my heart beating all over the place and it was going rather fast, so I was feeling a little scared. I called the neighbor and he brought over his blood pressure monitor. It was a little high but my pulse was at 101 and I was turning a little red in the face. So everyone sat around wondering weither to call 911. Well we took it again and it was finally coming down thank heaven. Just another one of those episodes that I get but this one was different. So today I am just kicking back and relaxing.
Well until Later Linda H
Hi, Just want to say thanks for all of your support. My daughter, Stephanie tells me the same thing. You see I am a big baby. When I had my hystericotmy(sp) my blood pressure went pretty high when I saw the OR and then when I had the staples out I was a basket case. Nurse said dont worry you have been through the worse. Guess I hoped nothing would ever happen again. Haha. Well here I am again. I guess what makes it so scary for me is that when my Dad had his surgery for adominal anuersym many years ago, I about fainted just seeing him all hooked up, and thinking he might not make it cause his heart kept acting up and they called the family in. I think us all being there helped him recover. Then my daughter Stephanie has aortic stenosis, and I drove to Lincoln Nebraska for her surgery. So seeing all of this first hand is something else. Like I say I am just a big baby. The doctors always ask me if I am allergic to anything and I tell them yea, needles and doctors. My daughter also told me the Tee test is a piece of cake too, but she had one little problem. She was pregnant with her first due any day and while she was been monitored her water broke. 24 hours later I had a little granddaughter. I sure dont want that problem haha. When there is nothing there and at my age that would be something.
Glad everyone is coming along and doing better. Until later Linda H
Got up early today to go to Greenwood imaging center for ultra sound. The test didnt scare me its what might come out of it. I must say it was interesting, I watched the whole thing. Didnt take all that long. Sure was glad I took a snack as I was so hungary. Now for the next test Tee test, dont really want to go for that one. Oh well I guess the journey starts. Thought about Mitch most of the day.l So glad he is doing ok. Now I sit back and wait to see the doctor on the 22nd. Have a good day everyone. Please feel free to sign my guest book also. Until later Linda H
I have been walking and trying to get a lot in. I want the doctor to be pleased when I see him. I know I am. Hope Weight Watchers has a nice surprise for me tonight. Me loss has picked up a little bit, but I think it is called being nervous already. Well as long has we are having good days, I can do a lot. Until Later Linda H
I just want to say that I have been busy reading a lot of your journals. I have gotten a lot out of them and find myself fighting the tears. I have also gotten a lot of information for questions to ask my doctor when I see him.
Yesterday had kind of an off day. Felt a little lightheaded or dizzy all day so didn't do much of anything except for my crocheting. That keeps my mind off of things. I did get both of my walks in although I forced myself on the second one. Glad my neighbor was with me. Well until later. Linda
Went to my meeting and found out I lost another 2.6 pounds. My goal is to be 10% by the time I see Cardio doctor on Feb 22nd. I only have 2 pounds to go, so maybe I will go past it. My family doctor told me not to go to fast, but was proud of me. Best of luck to everyone. I want to hear all good things, my prayers to everyone.
I guess I can say it all starts with my Dad. He was diagnosed with Wolfe White Parkinson Syndrome. He lived with it for years and lated had an adomonial artic anuersym. Went through with surgery was fine but passed away 3 months later of conjestive heart failure. Well my story starts with about 5 years ago I was told I have a heart murmur. I always worried abourt heart problems as I found out that it is hereditary in his family. After we moved South and got a new family doctor the same thing. He wanted do an echo cardiogram, but I had to wait till I was 65 years old for medicare. In Aug last year I had 2 big seizures together. Guess that was my wake up call. So on my 65th birthday found out I had Aortic Stenosis with regrugatation. Saw the heart doctor and he also said there is an anuersym going into my neck. Welcome to retirment after being healthy all of my life. Well he wanted me to eat better loose some weight and walk 2 miles a day. I wasnt allowed to join a gym or walk the dog, to stressful. So I have done all of this by joining Weight Watchers and so far have lost 17 pounds and almost to my 10% goal. I plan to be there by the time I see doctor. I have now gotten an appointment for an ultrasound on Feb 2nd and a Tee test on the 8th, and on the 22nd see the doctor and that is probably when the nerves will kick in.
Not only was I there for my Dad surgery my daughter was born with a heart murmur and 3 years ago just had a mechanical valve replacement. So seeing all of that, makes it a little scary, knowing what I am headed for.
The heart doctor said it is moderate and measured 3.2, but with the anuersym I feel like a walking time bomb. So I will be glad to get this all over with and get healthy again.
I have a lot of friends and my church around me. I was so nervous that in Sept my husband and I joined our church and I was baptized in November. That has helped a lot. Thats it for now until later.