Fantastic news Tom! I'm glad you are done with the wound vac and on the last leg of your healing! Are you doing the dressings yourself now? How much is left to heal and how long did they think it would take? I'm so glad you don't have to carry that pump around anymore! Have fun scaring all those innocent children, and Happy Birthday to your daughter, isn't it great to be able to celebrate with her and feel so good?
Interesting about the rehab and the Airdyne...I had the same thing happen to me, there must be something about using both the arms and legs! Sounds like you're not the only one that had that experience.
Not so good news for me, on Wednesday, I started having increased drainage and color change from my incision again, ran a low grade temp, and had right sided pain. I knew immediately that there was something wrong. It seems another area has tunneled to the surface. Back on antibiotics for 10 days, changing the way I dress it, and am going with wet-to-dry again for the 2nd time. My poor Dr. is almost as frustrated as I am. He called my surgeon at Mayo Clinic Friday, and they still think it's a suture reaction, and "it just takes time". Easy for them to say. He said they would be glad to see me again, although it didn't sound like there was anything different they would do. They do want me to send pictures, so I'm glad I was taking them on a weekly basis! Haven't decided yet whether to go back to Mayo.... it's such a long drive and takes more time out of my vacation pay!!
I'm so happy for you! Enjoy the weekend!
Holly
Sorry for the slow response. Behind at work with all the time devoted to doc appts, nurse stopping by and cardiac rehab and has been tough responding. Still reading all the posts and guestbook comments though.
I am doing the dressings myself, although the first day I screwed it up when I sealed it with wound vac tape. The result was some green liquid at the incision. Nurse corrected my mistake and the wound has been doing much better each day. He is still stopping by twice per week to check on it, but almost there.
It was a blast at the party. I made at least half a dozen kids cry, but they all loved me in the end because of the candy I threw to them.
That really sucks that the wound has become infected and tunneled to the surface again. Have you heard back regarding your photos? Have you decided to go back to Mayo Clinic? I am so happy I followed your advice on the photos. I will post an updated one shortly. You can see in the wound there is some bubbly-looking flesh. The nurse says thats fine, but maybe you have another opinion?
Really hope this wound issue takes a turn for the better for you. Avoid the vac at all costs, but if you ever have to get it, I can send you my spare supplies.
Take care and as always, good luck Holly!
On August 4, 2012...
Hey Thomas,
So glad to hear you are done with the wound vac......that has to feel so good! Won't be long before you are back in the pool. Kind of a hot summer to be missing out on that though.
I had the same experience on the Airdyne at rehab......they kept telling me to back off because my heart would always jump around skipping beats and throwing extra ones and it would get too high. It never bothered me though.....it actually felt good.
Happy Birthday to your daughter.......enjoy her special day!
Deb Z
Thomas Hunt Interesting. With 4 weeks to go, may try the airdyne again to see how it goes. Had my first day of r ... Read more
Thomas Hunt Interesting. With 4 weeks to go, may try the airdyne again to see how it goes. Had my first day of running today with no issues, so hopefully they'll let me push it a little more.
Sounds like you are doing well. Great to hear from you! Thanks Deb.
On July 29, 2012...
:) Holly
On July 29, 2012...
Hi Tom, that's great that you are down to 0.5 cm on the depth, that is barely enough to get foam in anymore, hopefully they will switch you off the wound vac very soon! Is there still any drainage in the cannister? that might be the key.... Actually, if you think back to when they started the wound vac, around the 5th of July? the depth was 2.5 cm, and July isn't over yet, so you are healing at a pretty fast clip!! I know not as fast as you wanted, but it averages to over 0.5 cm a week, doesn't it? So the end is in sight for you!!! Have a great week. BTW, good pictures!! Praying for healing, patience, and Denise!
Thomas Hunt Thanks Holly. And yes, you are right on with the dates. 3.5 weeks out so I am happy to see the progre ... Read more
Thomas Hunt Thanks Holly. And yes, you are right on with the dates. 3.5 weeks out so I am happy to see the progress. The drainage is very low now. Even though the pump is making more noise, the canister looks almost empty except for a few drops (changed yesterday).
Posted one more pic of the incision site. From here on out it will probably take a few months before it looks different.
Just read the news about Denise. Not at all what I was expecting to hear. That is rough. I know from other here on HVJ, like Chris H and Barb, that reoperation is typically a 1 in 30 possibility, but really sucks when you hear about it happening to someone. Will say a prayer and send her a note shortly.
Thanks as always for all your advice Holly!
On July 28, 2012...
sorry, forgot to sign, although I'm sure you know it's Holly!!
On July 28, 2012...
Hi Tom, glad to hear you are enjoying cardiac rehab, wow! look at you go! It's good that the wound vac isn't interfering with your exercise. You should post a picture of the wound vac, if you can do it discreetly.... at least the pump itself, so others can see what kind of back-pack you are carrying around!! Have they said what the plan is for dressings after they take off the wound vac for good? Are you still getting the dressings changed three times a week? It's easy to get frustrated with this monotonous procedure and SLOW healing wound.....I have had my days of frustration! Interesting what Denise said about the fellows doing the closing. It makes me think I should call my surgeon's office and let him know how long my incision has taken to heal. I did call them initially so they know about it, but told me to go to my local PCP and surgeon, which is what I've been doing. They don't know how long it's taken to heal though, and that many of my sutures "surfaced" weeks later! I'm still packing the incision with 1/4" iodoform gauze......time seems to stand still as far as progress! okay, enough whining, glad to hear things are getting better for you! Keep on healing!!
Thomas Hunt Hey Holly! Great idea with the pics. Have gone ahead and uploaded a few with the vac. Still gettin ... Read more
Thomas Hunt Hey Holly! Great idea with the pics. Have gone ahead and uploaded a few with the vac. Still getting the dressings changed 3 times a week, Tu, Th and Sat. Asked the nurse today what he thought about switching to surface dressings in a week and he said maybe, but don't get too excited yet. Depth is down to 0.5 cm, but not sure when its shallow enough to switch over.
Have followed your advice on the photos of the wound site, but so far they all look similar so haven't posted any more. BTW, the nurse used to have a camera that could take 3-D photos and provide l/w/d readings without having to measure them. Cost him $750, but he had it stolen so he's back to the manual method. Not sure if you have heard of that type of equipment before.
Can imagine it must be frustrating to be so close to the finish after all this time. I agree letting the surgeon know about the timeframe. Maybe he'll have some advice that could help finish off that last bit of healing, or at least consider what might have contributed to the issue.
Great as always hearing from you and will keep in touch!
On July 28, 2012...
Hey there-
I'm behind on my updates also. Sorry to hear your wound vac is still with you, but glad you are taking care of things.
I'm at cardiac rehab, but now only 2 days/wk as that is the latest class, 4pm and Im now back to work.
Your incision looks small, is that a tv remote? My sternal incision is probably 5-6" but everyone tells me you can barely see it...
As far as the cardiac rehab I do 15 mins treadmill, start flat at maybe 3.0 then incline to 3.5 and 3.5 speed. I've started trying to jog at 3.8 for a couple of minutes. Bike I do 15, but split between level 1 and 2. 6 wow!
Glad to hear an update from you.
Karen Campo
Thomas Hunt Great to hear from you Karen. Glad to see you are doing so well with work and cardiac rehab.
Thomas Hunt Great to hear from you Karen. Glad to see you are doing so well with work and cardiac rehab.
The pic with my scar measurement is with a ruler/watch/calculator gift I got from a project I once worked on. Looks a bit goofy, but closest ruler I could find for the pic. :-)
The level 6 was on a recumbent bike, so not sure if that is much to boast about. They switched me to an eliptical now and I am going up to level 3 Monday. Cant wait to get the wound vac off and start jogging.
Hope to hear more about your progress soon. All the best!
On July 26, 2012...
Yes, it is, but the consent forms all patients sign when you are admitted tells you that it is a fellowship hospital and you are basically consenting to them doing some of the procedures. It is always that way at a fellowship hospital. The fellows are MD's learning to be surgeons is my understanding of it. I am sure Dr. Gillinov did your actual repair but the team that did the open and close were most likely fellows. I will let you know how things go tomorrow - I am so ready to start cardiac rehab and get moving again! Take care!
Denise K
Thomas Hunt So that's what a fellow is! Well that does explain a lot. Hope your surgery went well! Looking forw ... Read more
Thomas Hunt So that's what a fellow is! Well that does explain a lot. Hope your surgery went well! Looking forward to a Sunday update from you :-)
On July 25, 2012...
Hi Tom, Yes I read somewhere about the seroma becoming incapsulated. I sure hope I don't have to go the surgery route. And yes we both had fellows doing the opening and closing for our surgeries.
A fellow also did my heart cath, and I was under the impression Dr. Hobbs was supposed to do it, as the fellow came to see me before and said he would be assisting Dr. Hobbs during my procedure. Anyway, I was still awake as they were starting it and Dr. Hobbs was observing, the fellow was doing the procedure and I ended up with the pseudo-aneurysm (happpens 1 - 2% of the time) and earned 2 nights in the hospital over that whole ordeal. I never said anything, but I still wonder if Dr. Hobbs had actually done the cath that it may have been fine.
When I met with Dr. Roselli the day I was released from that ordeal I made sure to ask if his hands were going to be the ones doing my mitral valve repair and not a fellow and he said the fellows open and close and he does the actual repair.
I did read Trent's post about the placement of the incision for the heart-lung bypass and wonder about that too. I am anxious to see what the vascular surgeon has to say on Friday. I will let you know.
It is good to be back to work 4 hours a day is definitely enough until I get this seroma issue resolved.
It sounds like you are doing better each day - glad to hear that. Take care.
Denise K
Thomas Hunt Very interesting Denise. Never asked Dr. Gillinov who did the actual opening and closing, and still ... Read more
Thomas Hunt Very interesting Denise. Never asked Dr. Gillinov who did the actual opening and closing, and still not sure if it was him or one of the fellows; probably was a fellow. Now I'm even more interested to hear what your surgeon has to say on Friday. Really hope it goes well and keep up the great attitude.
On July 24, 2012...
Hi Tom,
I was getting a little concerned since you had not posted in a while. I am glad to hear you are healing and were finally able to start cardiac rehap. I will be seeing a vascular surgeon in Dayton on Friday as I am still dealing with my seroma. I am back to work but only 1/2 days for the first 3 weeks as the seroma is putting pressure on my sciatic nerve with prolonged sitting and I have a desk job. I will post something on Friday afternoon after I see the doctor and go to my first cardiac rehap session. Take care!
Denise K
Thomas Hunt Hi Denise! Thanks for the note. Sorry to hear you may actually have to get your seroma drained or i ... Read more
Thomas Hunt Hi Denise! Thanks for the note. Sorry to hear you may actually have to get your seroma drained or incised. The doc here said that after a while, it forms a capsule, which makes it harder to drain. In his opinion surgery was the best solution. Not sure if your surgeon will agree, but will be interesting to hear what you find out.
On a side note, Trent mentioned that Dr. Ryan in Dallas tends to place the groin incision slightly higher to avoid these seroma issues. Not sure if that was a reason for this side effect, but coincidentally we did have the same crew working on us!
Congrats on getting back to work part time and hope you get to cardiac rehab soon. I was surprised how little this wound vac affects my movement and really enjoy that I can finally exercise and set some physical goals on my long term recovery. Hopefully you'll be cleared soon to begin the program.
Take care and good luck!!!
On July 24, 2012...
Hi Tom,
Glad to hear you are finally starting heal up your groin wound.....yikes.....that has been a long time!
Isn't cardiac rehab great??? I just loved it. Felt so good to be moving again, and it was nice to be monitored the whole time. Like you, my blood pressure was typically 90/50 at rehab. They didn't seem to worried about it so long as I was feeling good. I take my blood pressure almost every day, and it is usually in that range. Kind of depends on what my heart rate is though. If my heart rate is a more normal 60 or 70, my blood pressure seems to be a little higher (110/60), but when my heart rate is slow.....like in the 30's or 40's....my blood pressure is always low. I will be interested to see where yours tends to hang.
My whacky heart rate has been better for the last three weeks, and I have no idea why, but I am really grateful. It has been incredibly hot here, and I thought that might make it worse, but it hasn't. Guess it just beats to it's own rhythm. I'm hoping it keeps it up:)
Good luck at rehab and keep on healing'!
Deb Z
Thomas Hunt Hey Deb. Thanks for the encouragement! I agree cardiac rehab is great. Went again this morning and ... Read more
Thomas Hunt Hey Deb. Thanks for the encouragement! I agree cardiac rehab is great. Went again this morning and realize I am still ramping up to the point where I feel some significant resistance. We increased the levels for all the excercises for Friday and will see how that goes. My BP was a little higher today, around 100/60. It was up to 122/62 midway through exercising, but dropped back at the end. Heart rate helpd pretty steady between 73 at the low end and 110 at the high end.
Sounds like your heart may be calming down now that you have a few more months from surgery. In the last few weeks has it hung around the 50's or 60's? Will say a prayer that your rhythm continues to stabilize with no more surprises.
On July 21, 2012...
Tom, I'm sorry to hear that things are going so slowly for you. Just think how long it would take without the wound vac! Ouchy on the skin getting pulled into the suction tubing, that dressing change was NOT done correctly.... I hope you didn't have to wait 2 days to get that one fixed! I'm glad the drainage has slowed down, as far as the odor, it might just be from your skin and the dressing over the wound, and not getting much air to that area! The incision itself shouldn't have any odor if it's not infected. Is the inside of the incision nice and pink/red looking? Lots of blood flow to that area that you can see? You don't want it to look yellow :( I just know from experience that even though wound vacs heal so much quicker, it still takes time for the entire area to heal completely. No swimming or pool time this summer for me either! Are you going to be able to start rehab on Monday?
One thing that I am doing, is to take a picture of the incision every week, and even though I don't think it's changing or getting better, if I look back at the pictures, I can see how far it's come! Sometimes time stands still when we want something to happen sooner rather than later!!
As always, thinking of you and praying for healing. BTW, if we ever make it to Texas, I'll look you up!
Take care
Holly P
Thomas Hunt Hey Holly. Overall I can't complain. Was able to get the nurse to come out that Sunday afternoon to ... Read more
Thomas Hunt Hey Holly. Overall I can't complain. Was able to get the nurse to come out that Sunday afternoon to change it. You were right; the dressing change was not good, although I probably didn’t help it when I snagged it on a kitchen drawer :-) The incision does look relatively pink/red and no sign of yellow fluid in the area. You are probably right that it is just the lack of air and cleaning to the area that has been covered for almost a month. The depth measurement for the wound this past Saturday was 1.5 cm, but the nurse still thought I was 2 weeks away. Your prediction of a longer healing is coming true!! Should never have doubted your spot-on advice :-)
One great bit of news is I had cardiac rehab yesterday..woohoo! Felt so good to do some exercises and stretches. Hope this helps speed up the incision healing to as I got my heart rate up above 100 for an extended period of time. Today I'm getting those tiny sparks of pain where I assume the nerves are regenerating.
I am going to try and follow your advice and start taking photos of the wound starting today. I am sure that will help tremendously to see the progress. Thanks so much!
Guessing you are probably down to about 1 cm left on your wound, so the "all healed up" post must be close. Hope the good progress continues as soon as possible and will say a prayer that your last few steps down the mountain go smoothly.
Will update alter today and plan to post a couple of photos. Talk to you soon Holly!
-Tom
On July 17, 2012...
Hi Tom, how are you doing? What new issue did you have come up with the wound vac? I know it can get discouraging, but like you said, it does speed up the healing. I hope your skin is surviving, as well as your patience!! Are you still getting drainage in the cannister? Thinking of you!
Holly P
Looked like the last blockage was due to my skin getting pulled into the suction. Had the nurse stop by on Sunday and change it and everything has been smooth sailing since. He says the wound is getting smaller, but I can't really tell a difference. I asked if he thinks we can get it off in a week, and he laughed and said it will probably be about 2 more weeks. Your prediction of a longer healing is looking more likely :-).
As for drainage (again you asked the key issue on our mind), it has significantly decreased. Would estimate the first day after surgery it was at 75 ml per day. Currently it is probably down to 10-20 ml. No sign of infection (fever, redness), but it gives off an interesting odor. Not sure if you noticed something like this. The nurse promises its normal, and that one of these days he will come and we will notice a big change in the wound. If I recall correctly, the depth was 4 cm when we started, so will be interesting to see how deep it is later this week.
Great journal update Holly! Glad to see you are getting closer and closer to finally fixing yours. Take care and thanks as always.
On July 11, 2012...
Hi again! Hopefully you have those darn alarms under control. Did they give you any extra dressings so that you can patch up the leaks when they alarm? Sometimes the foam gets pulled into the tubing and causes a blockage too, and in that case you have to totally re-do the dressing! If you're not having much drainage in the canister, then I think the intermittent should be fine, but if you are filling the canister, then continuous might be better. Actually, you are right about the healing taking longer, I don't want to be a downer, but you have a right to know that it will take quite a while to heal from the inside out.... It's going on several months for me and I still haven't been able to post that "all healed up" message yet. The wet to dry dressing changes will take a while to heal... are you going to be able to do it yourself or is the nurse going to do it for you? I'm probably getting ahead of things.
Again... be careful to keep that area clean and keep infection out. My incision "re-seeded" itself and 2 weeks ago I ran a low-grade fever for 5 days, blood cultures were negative but my incision culture came back positive for the same bug... Staph Aureus, back on antibiotics and feel so much better. By now the dressing changes are old hat and part of my routine!!! I hardly know it's there! It is what it is!!!! Hang in there!!!
Holly P
Thomas Hunt Hey Holly! Wow again. Do you take Cigna? Can I send you my copay directly for the consultations? LOL ... Read more
Thomas Hunt Hey Holly! Wow again. Do you take Cigna? Can I send you my copay directly for the consultations? LOL. Seriously, if you are ever in the North Texas area, please send me a note (tom8hunt@yahoo.com) so we can take you out to dinner for all the helpful info you've provided.
In terms of the alarms, they were ongoing until Tuesday afternoon, when the new nurse arrived. I had no idea about the foam getting into the tubing, and with the lack of fluid drainage, you are probably correct regarding what happened.
The new nurse cut a much larger drape and hole for the sensing pad. Afterwards, he also placed much more tape around the area and didn't use the skin prep wipe (felt it didn't make much difference). Tomorrow will see if he's right, or my skin is on fire! So far though seal has been perfect; no leakage or blockage, and drainage is mostly yellow and steady, but relatively light. Canister is about 1/6 full (50 mL after 36 hrs).
The nurses and doc seemed to think that I should be healed in 2 to 3 weeks. One mentioned that healing is 80% quicker with a wound vac; have you heard that stat before? They are probably trying to keep me thinking positive, so it sounds like my goal of jumping in the pool on 8/4 (my daughter's b-day party) is wishful thinking.
Not sure if they will let me do the wet to dry dressings, but after watching the foam changes, starting to feel like I might be able to change them myself. The biggest problem, is the left groin location requires that I lie flat and its difficult to look into the wound without sitting up (maybe I could use a mirror?).
Doing my best to keep the area completely sealed and dry, and looking out for fevers. Hopefully I won't catch a bug. You are quite the trooper fighting off a staph virus for 5 days, while keeping such a positive attitude! Continued good luck!!!
Thanks again Holly and will post an update soon when I get a few minutes.
On July 9, 2012...
Hi Tom, sorry I didn't get back to you, we just got back from a family reunion in Denver! Well.... how did the first dressing change go? Is your skin still intact!!?? Hopefully they are using the skin barrier wipes before putting all that tape on you. Did you have any problems with leaks? Of course I would be glad to answer any questions you may have.
I did not have a wound vac, just packed my incision twice a day, it has made a lot of progress, and is very close to healing over!!! Each day gets better. Are you having any discomfort with the vac and dressing? Is it on continuous suction or intermittent? (the nurse in me coming through)!! praying that you will heal fast in the next two weeks. Keep up the great positive attitude!
Holly P
Thomas Hunt Wow Holly! You are asking all the ideal questions. Will do my best to describe where I'm at right no ... Read more
Thomas Hunt Wow Holly! You are asking all the ideal questions. Will do my best to describe where I'm at right now.
First dressing change was interesting. Two nurses (one appeared in training) showed up Sat, My wife and I were surprised how deep the incision was, a good 1-inch. Length is about 1.8 in by 0.5 in. They did use the skin barrier wipes and that seemed to help when pulling tape.
On Sat night, started getting alarms about low pressure due to blockage. Kept my poor wife up all night, with the alarm going off every 10-15 min. Sun morning called the nurse. She was really nice and had me stop by her house to change the dressing again. She believes the problem was due to the foam being too small, causing it to be pulled away from the wound wall.
For the redo, the nurse placed a larger piece of foam. Up until tonight, everything was going fine, but around 9 PM blockage alarms started again. Have been adjusting tubing and my sitting position over the past few hours to try and get it to stay at 125 mmHg. Luckily tomorrow will have it changed again.
They set me on continuous suction but the nurse seemed to think there wasn't much of a difference. She gave me a backup unit that is pre-programmed to intermittent, so if the alarms keep up, might be switching it out. Let me know if you have any advice on the difference between the two suction types.
Not sure if this wound will heal as fast as I hope. Drainage seems to have definitely slowed, and hoping this is a good sign and not that the wound vac is no longer working. As you know, will switch to wet-to-dry dressings in about 2 weeks, so any advice on that step would be greatly appreciated as well!
Glad to hear your wound has made great progress. Will be looking for that update when you announce complete healing success! Thanks again for all the info and advice.
On July 7, 2012...
Thomas,
How did you like Baylor Hsp? Was this in Dallas or another location? I am asking as I am from Dallas but have lived in California for many years. I could be facing valve surgery in the future as I have 3 valves that leak. Mine is a watch and see status for now. Just looking at all options and wondering how a person truly decides who should do their surgery. I know that Baylor is a super good hospital. Thanks, Janelle K.
Thanks for the note. I'm originally from Chicago, but lived in CA (Bay Area) from 2000 to 2008 and have been in Dallas since.
As for Baylor, I went to the newer hospital in Plano. I believe the more well known hopital is the original one in Dallas. I get the impression this hospital was built within the last 10 years. The Heart Clinic was recently finished (2011?) and is state of the art. Every patient gets their own large room, with an individual bathroom, large flat screen TV and nice view from the 4th or 5th floor. I would describe the overall building as a mini-Cleveland Clinic, about 1/6 the size. Dr. Ryan is considered one of the best in the country and probably the most experienced in Texas. I had a consultation with him and it was a coin toss between having him do the surgery and Dr. Gillinov at CCF. In the end I chose CCF just based on the fact that they do the most surgeries in the US, offered mitral valve and it seemed the Dr. G had as much mitral valve repair experience as anyone. Going to Cleveland and getting away from home also let me focus on the surgery and not be distracted with work and other commitments had I stayed so close to home.
Not sure but Dr. Ryan may be able to do the surgery at the Dallas location or another hospital. Trent V. just had his surgery there and so far it seems like his surgery went perfectly.
Regarding the two recent procedures, they went fine. I haven't spent the night at Baylor yet. I had the impression the nurses were a little more experienced at CCF, but I wasn't dealing with the unit that does valve surgeries, and my second surgery was the morning after July 4th, which meant there were several staff on vacation.
I noticed from your journal you are from Paradise, so Dr. Vincent Gaudiani in Redwood City might be another great option. BTW, can you see Mt. Shasta from your house? I climbed it with a friend back in 2002...easily the hardest thing I've done physically. Hopefully after surgery I can do it again!
Best of luck in your search and feel free to send me any other questions.
On July 6, 2012...
Hi Tom - glad to hear all went well with your surgery and that your spirits are good after all .of this. Hang in there, hoperully this is the end of your seroma issue. My prayers are with your for complete healing this time - take care. Denise KI
Thomas Hunt Hey Denise! Sorry to take so long to get back to you. Forgot to look at my guestbook for a couple o ... Read more
Thomas Hunt Hey Denise! Sorry to take so long to get back to you. Forgot to look at my guestbook for a couple of days. Coincidentally, I noticed you just posted an update.
So far so good on the surgery, but only time will tell with the results. The wound vac dressing will need to be changed several times, and then replaced with a wet-to-dry dressing, so we will have to wait and see if it heals up nicely without additinal fluid buildup. I'll try to post an update with some details shortly. Will also drop a note on your guestbook regarding your last post. Will be praying that your seroma is resolved quickly and painlessly, whether through surgery or other methods. Take care Denise. We will eventually make it through these final minor bumps on the road!
On July 5, 2012...
Tom, You are a real trooper and a fabulous role model!
Cly Denna
Thomas Hunt haha...thanks for the push to hurry up and post. Been a bit lazy today. All is good and hoping in a ... Read more
Thomas Hunt haha...thanks for the push to hurry up and post. Been a bit lazy today. All is good and hoping in a few weeks I am "off the pump" and running laps on the treadmill at cardiac rehab. FYI, my classes at BHH will be at 8:15 am every MWF. Scheduled to begin on 7/23, so maybe I'll see you there!
On July 5, 2012...
And?
On July 5, 2012...
Hi Tom, hope it went well today and you aren't too sore. The wound vac should do the job for you, although it can be uncomfortable at times and you have to be sure it stays sealed, or the "leak" alarm will drive you crazy. As a nurse, I have worked with them before, we call it "cutting and pasting" the dressing to fit the wound so it won't leak! I know it's frustrating, but so glad there is a way to fix it, aren't you? I use iodoform to pack my incision, and each week it get's less and less. There's a song by Point of Grace called Heal the Wound, I love listening to it and remembering there is a reason for all of this!!! Keep on healing!!!
Holly P
Thomas Hunt Hey Holly! Wow, this is great advice. So do you have a wound vac now, or are you only packing the w ... Read more
Thomas Hunt Hey Holly! Wow, this is great advice. So do you have a wound vac now, or are you only packing the wound? So far haven't had the dressing changed so that is the next interesting step. Wondering if all the skin that is taped down will survive these next two weeks!
May be sending you some questions as I go through this process, if you don't mind. Thanks for all your help and encouragement Holly and hope your incision heals up as soon as possible.
On July 5, 2012...
Tom.
I hope this is the end of this issue for you. You have a very positive attitude.
Jerry V.
Thomas Hunt Thanks Jerry!! Glad to read you are doing so well. Hoping to get back on track after this and match ... Read more
Thomas Hunt Thanks Jerry!! Glad to read you are doing so well. Hoping to get back on track after this and match you in recovery!
On July 5, 2012...
Hi, Tom -- Good luck with your procedure today. I hope this gets you all fixed up!
Selma
Tom, You and your family have and continue to be in our thoughts and prayers. You are a shinning example of how to do ir right. Thanks for all you share. Cly Denna
Thomas Hunt Thanks Cly Denna! Good luck to you in this home stretch. You will really like Dr. Gillinov. Will tr ... Read more
Thomas Hunt Thanks Cly Denna! Good luck to you in this home stretch. You will really like Dr. Gillinov. Will try to post a comment on you're guestbook shortly!
On July 4, 2012...
Tom,
Not another procedure!
It almost sounds like what Holly P had in her incision (the packing, that is).
I don't see why your clients would think it strange if you met with them with a tube sticking out throu your fly with a pump attached! C'mon, I see that practically everyday! :)
seriously, I hope this one works for you. Smart call doing a check with your surgeon. I would feel better knowing they agree.
Nancy B
Thomas Hunt Thanks Nancy! Yes, pretty much the same issue Holly is going through.
Thomas Hunt Thanks Nancy! Yes, pretty much the same issue Holly is going through.
LOL regarding the pump. I am sure the client would love listening to the gurgling sounds during our contract negotiations :-)
On July 4, 2012...
Hi Thomas..
You have such a great attitude! Not so sure I could handle these bumps as well as you....certainly qualifies you for hero material in my book!
I will keep you in my thoughts & prayers as you continue to conquer these set backs in your recovery..
Keep Smiling....you've got this!
Connie T
Thomas Hunt Hey Connie. If anyone is hero material, that has to be you...12 surgeries, oh my!
Thomas Hunt Hey Connie. If anyone is hero material, that has to be you...12 surgeries, oh my!
Really appreciate the thoughts and prayers. Will be sending the same your way now that you are in the final countdown for your mountain climb at CCF with Dr. Svensson. These last 11 days will really fly!
On July 4, 2012...
Oops, forgot to sign my entry - this is Summer!
Thomas Hunt Thanks Summer! Hoping you are right. So far so good, and keeping a positive attitude that this is t ... Read more
Thomas Hunt Thanks Summer! Hoping you are right. So far so good, and keeping a positive attitude that this is the final bump in the road to a full recovery, although those happy thoughts may just be the hydrocodone side effects. :-)
Been reading your posts and hope those palpitations settle down now that you're in the final stretch.
On July 4, 2012...
Ugh, hope you don't have to go through much more of this. I'll be thinking good thoughts for you tomorrow. At least the recovery is going well in other parts!
On July 4, 2012...
HI Tom, hope this is the final challenge you have related to your valve repair. CC did my initial repair, it never worked and had to be redone within 6 months of the first, this time I stayed local for the repair. Second repair was successful, now I'm dealing with paralysis of the diaphragm, one of many complications I was not aware. I no longer believe in the simple mitral valve repair, "get it done early and then get on with one's life". Don't think I ever ran into anyone who did have some type of complication. barb
Thomas Hunt Hi Barb. Very nice to hear from you and thanks for the good thoughts. Sorry to hear about your diaph ... Read more
Thomas Hunt Hi Barb. Very nice to hear from you and thanks for the good thoughts. Sorry to hear about your diaphragm paralysis. How are you feeling now? Will you need to go in for another procedure, or is there a possibility it will correct itself. Feel free to send me a note back through valvereplacement.org mail. Will try to read up on it. Really hope you are feeling better as time goes on. And I agree that it seems like pretty much everyone has some type of complication, although some more minor than others.
Take care and will keep in touch.
On July 4, 2012...
Sorry you are having to deal with this part. My incision is hard, but GP said that should go away. Mine isn't really growing in size, and is just a dull pain at times.
Hope this gets it cleared up for you.
Trent V
Thomas Hunt Thanks Trent! Hope you had a nice 4th of July. As long as you don't feel a bubble forming, I am sur ... Read more
Thomas Hunt Thanks Trent! Hope you had a nice 4th of July. As long as you don't feel a bubble forming, I am sure its just the normal scar tissue and inflammation. Interstingly, it seems like most valve patients have great results at the chest incision and more issues with the groin incision.
Will keep in touch...
On July 4, 2012...
Hi Tom - so sorry to hear you have hit another bump in the road with your seroma. I was at CC on Monday and they decided not to drain mine. I am wearing compression pants which will hopefully cause the fluid to be squezed out and absorbed by my body. It seems to be working so far. I have been trying to lay down off and on during the day and avoinding stairs as much as possible until this resolves itself. CC told me if it gets bigger to have my GP refer me to a general surgeon to determine if it needs to be drained. You are in my thoughts and prayers. Take care! Denise K
Thomas Hunt Hey Denise. Really hope those compression pants work! Avoiding another procedure is the way to go. B ... Read more
Thomas Hunt Hey Denise. Really hope those compression pants work! Avoiding another procedure is the way to go. But if you do have to go in for drainage or surgery, it's really not that bad, just annoying. Good luck and thanks so much for the thoughts and prayers.
On July 3, 2012...
Hey Tom, I know how frustrating this must be for you, believe me, I do. Monday seems like a long time away, are you still having as much drainage? What color is it? Is there actually a hole or gap in the incision, or just a pin-point opening? Has it made a difference in your baseline pulse? All things to keep in mind.... I'm still struggling, but the end is getting near, I can tell!!!! Hang in there. We have so much to be thankful for.
Holly P
Thomas Hunt Hey Holly. So here is the latest (will also post an update shortly with these details): B/c leakage a ... Read more
Thomas Hunt Hey Holly. So here is the latest (will also post an update shortly with these details): B/c leakage at the incision is ongoing, the surgeon thinks this will continue unless another surgery is performed. The next step is to open up the upper two layers of skin at the incision again, cauterize some more capillaries, place more sutures and pack it with foam. A wound vac will then be attached to the foam to expedite closing and drainage of the wound. Will carry the wound vac for 2 to 3 weeks and have a home care nurse stop by every 3 days to change out the foam. Not sure how painful this process is, but have read that the use of the wound vac is usually very successful.
There are a couple of pinpoint openings along the incision where leakage is evident. Fluid is light yellow, so its clearly serous (lymph) fluid. My baseline pulse has not been affected and my meeting with the EP yesterday was great. He said my HR and Holter monitor results were as expected and no need to even consider a pacemaker.
How are you doing? Any updates on when you'll be 100% healed up? Glad to hear you're getting close. Hope you have a great 4th of July and thanks for all your encouragement.
On July 3, 2012...
Tom,
Hang in there. It will get better. The incision issue clearly will be solved, but I understand how frustrating this must be. The important news is that your valve repair is spot on.
Take care
- Jim Smith
Thomas Hunt Thanks Jim. Although the lymph fluid at the groin incision is an ongoing issue, I understand that th ... Read more
Thomas Hunt Thanks Jim. Although the lymph fluid at the groin incision is an ongoing issue, I understand that the most important thing is the successful results of the OHS. In the big picture, this is just a minor annoyance and I am very grateful that I only have trace leakage in the valve now. Hopefully one last surgery tomorrow (Thurs), a few weeks with a wound vac and that will be the end of the issue. Thanks for the encouragement and glad to read that you're doing well. Take care and Happy 4th!
On July 2, 2012...
Hi Tom - I'm glad most of your recovery is continuing. Hope the incision site starts to heal faster also. Thanks for the pictures and info on CA surgeons. Warm Regards, Lee Castro - P.S., Yes, I spent 7 years with Bechtel on a project before joining my current company.
Thomas, Glad to hear things are, ummmm......progressing.... at least. Sounds like things are getting better as far as the leaking incision. Sounds like Holly P''s incision issue. At least you seem in good spirits and staying positive. The latest pics look good. way better than those first pics. yeeeeooooow! Keep the healing going.
Paul G.
Thomas Hunt Appreciate the kind words Paul. Yes, still progressing, but definitely an issue that hasn't been res ... Read more
Thomas Hunt Appreciate the kind words Paul. Yes, still progressing, but definitely an issue that hasn't been resolved yet. Will post an update shortly on my latest upcoming surgery. Interesting how heart surgery was the easy part with no complications, but the groin incision is causing all the issues.
Have a happy 4th and hope your recovery continues smoothly!
On July 2, 2012...
Wow! It may be leaking but it sure looks good. Happy 4th.
Selma
Thomas Hunt Hey Selma. Great to hear how well you are doing. Once I read your guestbook post I clarified a few ... Read more
Thomas Hunt Hey Selma. Great to hear how well you are doing. Once I read your guestbook post I clarified a few confusing details in my update. It's my femoral incision thats causing all the trouble and the issue is yet to be resolved. Should be posting details in an update shortly. Have a great 4th of July!
On July 2, 2012...
Hi Tom-
Great to read your update. So much good news, but sorry to hear about the leaking incision. Keep us posted on that and enjoy the 4th.
Karen
Thomas Hunt Thanks Karen. No good news on the incision, will post an update shortly, but thanks for stopping by ... Read more
Thomas Hunt Thanks Karen. No good news on the incision, will post an update shortly, but thanks for stopping by to say hi. Great to hear from you and glad you are doing great. Have a Happy 4th of July and keep up the progress!
On June 29, 2012...
Hey Thomas
Just dropped by to read your blog, thanks for the invite. Lots in common, just a different surgical approach for the solution. You must be looking forward to being fully active again.
Stay in NSR and off the Pacemaker! Take it easy and keep posting
Paul R
Thomas Hunt Thanks Paul. Just met with the EP today. He says all looks good and no need to even think about a p ... Read more
Thomas Hunt Thanks Paul. Just met with the EP today. He says all looks good and no need to even think about a pacemaker!
On June 26, 2012...
Hi Tom, I'm glad the operation went well and your drain tube is out. I'll pray that the leaking sto ps, in the meantime, keep that area clean and dry!! I'm still struggling with my incision issues, it's so darn frustrating, after 2 months! My groin incision finally healed over and stopped draining about a week ago, so I'm hoping the other one on my side is close behind it! BTW, robotic surgery for me grand total was $205,000.
Crazy, isn't it?? How did your echo go today?
Holly P
I am doing my best to keep it clean. I am actually worried about that issue since when I pulled the bandage off this morning the glue in my new incision seemed to come out. Have a call into the surgeon to see what he thinks. Will be keeping an eye on my temp tonight to make sure there's no fever developing.
$205K is impressive! I had a feeling robotic would be more, even though one of the cardios at CCF implied it was less expensive.
As for the echo, below is an update I left for Paul Rose on his guestbook. Plan to post these details on Thursday, which is my official 6-week post-op date. Hoping to be able to say the seroma is gone for good and no signs of infection.
"Heart function was normal, EF was 60 to 65%. The results were better than the previous week when I was on Metoprolol. This time I had no abnormal stops (previously I had a one instance for a few seconds where my HR dropped to 26 bpm). The latest readings showed a slightly low HR while sleeping (lowest was 47 bpm), with an average in the 60's. He also mentioned that at night there were a few instances where my heart switched back into junctional rhythm, which he explained means the heart beat comes from the center of the heart (AV node?)versus the top (sinus node). The Holter also recorded 1400 PAC's and 23 PVCs over the 24 hr period. It sounded like this is something that improves over time and does not affect the heart function. He is generally pleased with all these findings since we are still only 40 days from surgery, but as a precaution wants me to follow up with an electrophysiologist. At this point there is no indication I would need a pacemaker."
On June 25, 2012...
Hi Tom, Glad to hear all went well with the draining of your seroma.
I think I toomay have a seroma. I asked the nurse at my cardiologist on June 19th about the swelling and hardness in my groin area from where the incision was made for the heart-lung machine and she said it was normal, but it is not going away. I am on vacation at HHI with the family and am thinking I need to contact CCFwhen I return to Ohio to see if they need to see me. It has been 4 weeks since my surgery and I would think this should have cleared up by now. What do you think? Thanks for any advise you can offer. Denise Kirchner
Sorry to hear you are having a similar problem as I have had. The seroma drain line was removed today so I finally feel some freedom after 6 weeks! Mine showed up on Day 4 and grew immediately. The fact that it has been 4 weeks until it appeared with you, makes me think it could be something else, but I would definitely have it checked out.
My email address is tom8hunt@yahoo.com. Send me an email and I'll reply to you a photo of the seroma bulge. Didn't want to post it online since it's a bit of a strange looking photo.
Good luck and will be thinking of you!
On June 25, 2012...
Hi Tom-
Glad to hear the drainage went well. Nice pic of you and Trent also. Great job on the walk. I am back to day 2 of cardiac rehab this afternoon. Haven't seen the hospital bill yet, but I echo the thought 'thank god for insurance'.
Karen
Thomas Hunt Man, I am so jealous Karen. Wish I was able to get in to cardiac rehab by now. I guess I shouldn't ... Read more
Thomas Hunt Man, I am so jealous Karen. Wish I was able to get in to cardiac rehab by now. I guess I shouldn't complain though. Now that the drain line is pulled, I have some residual pain in the area and can't imagine running for the next few days anyways.
Good luck with the rehab. Hope to hear your thoughts on the usefullness of the program.
On June 24, 2012...
Tom,
Its good to hear everything is going well. That medical bill is out of this world! Seeing that in itself could send someone to the hospital. Take care.
Thomas Hunt Thanks! Yeah it is mazing ho expensive the surgery was. Wonder what it would have cost if I had rec ... Read more
Thomas Hunt Thanks! Yeah it is mazing ho expensive the surgery was. Wonder what it would have cost if I had received the robotic repair. Have heard that that might be more expensive.
If you don't mind, please send me a note to let me know who wrote this..... unfortunately I can't see it without a signature.
Thanks again!
On June 24, 2012...
Tom,
Glad to hear everything went well!
Best of luck with recovery.
Sam & Chris Hanson
Thomas Hunt Thanks Sam and Chris. Have been so excited to read about your recovery. Overall it ounds like ypur ... Read more
Thomas Hunt Thanks Sam and Chris. Have been so excited to read about your recovery. Overall it ounds like ypur post-op couldn't be going better. Will continue to watch for your posts and may be sending you an email to check on the details of your repair. Tomorrow's a big day as we have or 1-mo echo diagnosis.
Keep up the great progress and have a safe trip home.
On June 24, 2012...
Hey Tom, glad to hear you made it over your last big hurdle and are still doing well. Looks like trent is doing great as well.
- Steve D
Thomas Hunt Thanks Steve! Looks like you are doing great. Hope the excellent recovery continues for you.
On June 24, 2012...
Hi Tom,
I'm glad to hear your seroma issue is behind you. I can't say I'd be very happy if I found I had to go back into the OR. You have a great attitude.
Nancy B
Thomas Hunt Thanks Nancy. Feel like today I am finally free, with the drain line removed and no more bulge on th ... Read more
Thomas Hunt Thanks Nancy. Feel like today I am finally free, with the drain line removed and no more bulge on the inside of my left hip. Hoping it doesn't return and its on to a full non-eventful recovery from here on out.
Hope all is well with you!
Cheers,
Tom
On June 21, 2012...
Good luck Friday, Tom.
It would be cool if you and Trent had a photo op.
Go get this fixed and continue with your good progress.
Karen
Thomas Hunt Thanks Karen! Yes and maybe we can get one with both of us in our hospital gowns ;-). LOL.
Thomas Hunt Thanks Karen! Yes and maybe we can get one with both of us in our hospital gowns ;-). LOL.
Take care yourself and great hearing from you.
On June 21, 2012...
I will be here (probably), haven't heard anything about specific discharge time (or confirmed that it will be tomorrow. So give me a call and stop on by.
Rm 515
Trent V
Thomas Hunt Thanks Trent! Interesting how the timing may work out. Will keep you updated on my schedule through ... Read more
Thomas Hunt Thanks Trent! Interesting how the timing may work out. Will keep you updated on my schedule through your guestbook.
Great post. Sounds like you are doing very well. I had the same issue with room temp at CCF. One degree seemed to make a big difference in comfort level and the thermostat seemed out of whack. Take care and talk to you soon.
On June 20, 2012...
Hi Tom. It's nice to see you are recovering well. I hope the seroma is resolved on Friday. Just to let you know your story and journal was the first one I followed in Apr when I discovered this website. Also, it made me smile when I saw your daughter and her hardhat - I used to work for the company shown on the sticker!!! I have severe mitral regurgitation and am finalizing my decision on a surgeon and method of repair (robotic or traditional sternotomy). Warm Regards, Lee Castro
Great to hear from you. I am touched that you first followed my journal when you came across the site. As for the company, was it Bechtel that you worked for, or HNTB? I worked at Bechtel for 4 years in the Bay Area before returning to a company I had worked for in college. Had the opportunity to become an owner and couldn't pass it up! Seems like so many people I have run into over the years once worked for Bechtel.
We miss the Bay Area and look forward to our next trip back to visit. Let me know if you ever have any questions.
As for the seroma, looks like a Friday surgery will be the final step. Will post an update shortly with that info.
By the way, I did consider the Bay Area as one location based on the friends we have made over the 8 years we lived there. Of all the research I did, it seemed like Dr. Craig Miller at Stanford was one of the best in CA. FYI, if you haven't come across it yet, here is a list Adam Pick put together a few years ago:
Best of luck in your surgeon search and will look for your updates!"
On June 19, 2012...
Tuesday, June 19, 2012 04:48 AM
Hi Tom, it sounds like things are coming together for you. Hope they are back to normal soon. I think the love and spirit of your little girl will provide motivation galore to keep fighting!!! I dropped out of the picture too for a while. Had my REREPAIR (yep. I said "rerepair" ) done June 5th in St Louis. It took me several days to believe the valve did not have to be replaced...miracles do come true sometimes. I am now dealing with paralysis of my diaphragm. which causes shortness of breath or SOB as the medical community calls it - SOB is a perfect acronyms for this complication. I needed to go back into the hospital for several days, but am out now and feeling much better. Your friend, Barb
Thomas Hunt Hi Barb! Great to hear from you. Can imagine the diaphragm paralysis/SOB has been challenging. Is t ... Read more
Thomas Hunt Hi Barb! Great to hear from you. Can imagine the diaphragm paralysis/SOB has been challenging. Is that something that will get better over time as nerves regenerate? Regardless, glad you are back out and progressing with recovery.
As for me, looks like the seroma is back and I'll be going in for minor surgery this Friday. Biggest challenge will be getting my PT INR level from 3.9 this morning below 2 by the time of surgery. Just another small bump in the road (hopefully) before getting back to normal.
Take care, best of luck to you and please keep in touch Barb!
On June 19, 2012...
Tom,
Sounds like you're getting a good handle on the situation for that blasted seroma. Hopefully this latest drainage will be enough, but if not your doc knows how to fix it.
Wishing you all the best
- Jim Smith
Thomas Hunt Thanks Jim. The seroma came back today, so looks like surgery is a go on Friday. I feel like I shou ... Read more
Thomas Hunt Thanks Jim. The seroma came back today, so looks like surgery is a go on Friday. I feel like I should be posting on SJ (Seroma Journals) and not HVJ with all the discussion I've noted here. Not too worried though. Just a minor bump in the road.
Great to hear you are teaching and cleared for running. I am looking orward to my first run, hopefully in a week or two.
Take care and continued progress in your recovery.
Interesting about the rehab and the Airdyne...I had the same thing happen to me, there must be something about using both the arms and legs! Sounds like you're not the only one that had that experience.
Not so good news for me, on Wednesday, I started having increased drainage and color change from my incision again, ran a low grade temp, and had right sided pain. I knew immediately that there was something wrong. It seems another area has tunneled to the surface. Back on antibiotics for 10 days, changing the way I dress it, and am going with wet-to-dry again for the 2nd time. My poor Dr. is almost as frustrated as I am. He called my surgeon at Mayo Clinic Friday, and they still think it's a suture reaction, and "it just takes time". Easy for them to say. He said they would be glad to see me again, although it didn't sound like there was anything different they would do. They do want me to send pictures, so I'm glad I was taking them on a weekly basis! Haven't decided yet whether to go back to Mayo.... it's such a long drive and takes more time out of my vacation pay!!
I'm so happy for you! Enjoy the weekend!
Holly
Sorry for the slow response. Behind at work with all the time devoted to doc appts, nurse ... Read more
Sorry for the slow response. Behind at work with all the time devoted to doc appts, nurse stopping by and cardiac rehab and has been tough responding. Still reading all the posts and guestbook comments though.
I am doing the dressings myself, although the first day I screwed it up when I sealed it with wound vac tape. The result was some green liquid at the incision. Nurse corrected my mistake and the wound has been doing much better each day. He is still stopping by twice per week to check on it, but almost there.
It was a blast at the party. I made at least half a dozen kids cry, but they all loved me in the end because of the candy I threw to them.
That really sucks that the wound has become infected and tunneled to the surface again. Have you heard back regarding your photos? Have you decided to go back to Mayo Clinic? I am so happy I followed your advice on the photos. I will post an updated one shortly. You can see in the wound there is some bubbly-looking flesh. The nurse says thats fine, but maybe you have another opinion?
Really hope this wound issue takes a turn for the better for you. Avoid the vac at all costs, but if you ever have to get it, I can send you my spare supplies.
Take care and as always, good luck Holly!