Ging (what my sisters call me) posted a note for Terrie that says:
Terrie,
Saw your heading "Making Lists" and immediately pictured you in a Santa Suit with a long scroll of parchment and an ink pen - making a list - checking it twice - then wondered if you will start scoring our posts. " That's a six; you get a 2 for effort, etc.!"
Love the idea of your sketching at the front kitchen window.
A thought you might try. I have yet to have my heart valve replaced, but have been through a number of heavy duty surgeries. Our recliners also rock. See if you have something not too large that you can have at the side of the chair and then push it under the front rim of the chair before getting up. If you get it right, the chair will only rock just so far forward and stop when it meets whatever you are using for a stop. Worked for me! And you are creative, you'll find something that will work! No, not Hunter your dog!!
Hoping you will relax this weekend. Remind me, I have an idea about dropping your anxiety at the dentist's without impairing your breathing - just came to me. Sometimes it is handy to have a Pharmacist in the family, especially one who has worked in all of the different environments and work settings I have!
Love and hugs, relaxation, great sleep, peace, and prayers
Terrie Syvertsen Hello Sis.
Funny, Funny, Funny!
Headed for bed as it is 10:13p.m.
Intend to have a great nights sleep ... Read more
Terrie Syvertsen Hello Sis.
Funny, Funny, Funny!
Headed for bed as it is 10:13p.m.
Intend to have a great nights sleep and dream of Hunter under the rocker! Terrie
On June 24, 2014...
Ginger posted a note for Terrie that says:
Terrie, I failed to mention, although I'm back, so it was on my mind, how much I love just picturing your planting and the vines going up the fencing, turning an area into both usefulness and beauty. There are some things on the Internet about "Growing Tall" and the like, if you are interested. But I suspect you have already mastered what they have to say.
Wow, thunder very loud tonight! Love it!
Love you, dear sister - surprise tomorrow! Hugs and more,
Terrie Syvertsen Yes indeed Ginger I am interested in growing tall due to the gophers in our yard that play havoc acro ... Read more
Terrie Syvertsen Yes indeed Ginger I am interested in growing tall due to the gophers in our yard that play havoc across the street at the park as well but keep me from planting on the ground anything they will eat up! I will be in touch. Terrie
On June 24, 2014...
Ginger posted a note for Terrie that says:
Terrie,
Great Post - we even hit some of the same topics! Ha ha!
I want you to know how very proud I am of all that you did yesterday. I know that being assertive with physicians is not something that comes to most people naturally. Yet you were able to remember that if You don't take care of Yourself, no one else is going to search for you in the bushes.
THE PATIENT COMES FIRST. And you did exactly right when you knew the Dr you were seeing had no expertise in what you needed. And you tactfully, diplomatically reminded him, and, lo and behold, you wrote and e-mail and spoke to one and GOT WHAT YOU NEEDED! You saved yourself and your wonderful Gary many trips by trying to stay calm and clearly stating your case.
I am totally aware that sometimes requests are ignored. Sometimes a second request is necessary. But you stuck to the facts, which DR #1 could not deny -- he HAD to give you a referral! AND once that was firmly planted in his brain, he came through for you.
My Mom used to tell my sisters and I that if in the midst of a conversation someone starts to raise their voice, lower your voice. I have never experienced that and not had the loud mouth lower their voice. This drops the huge bursts of adrenaline from shooting through them and they can think much more clearly. Act like and adult and expect others to treat you in the same way. Be diplomatic, use tact, give positive strokes if there is anything positive (but no faking!). Conversations between adults are much more likely to come to a consensus.
I just wish I had been there, but I sure was in spirit. You have many people who care deeply for you, and you are listening and letting us help.
In return your help and wisdom, the insights you have, all have been invaluable to me and I cannot thank you enough.
So glad our Tony is home and doing well, because he is THE MAN and an inspiration.
Love to you my dear sister. I am afraid you are Stuck with Me! :o) PS It's pouring - the farmers are cheering, the campers are not!
Terrie Syvertsen Thanks once more for all the positive remarks and I am listening to you and people in general who are ... Read more
Terrie Syvertsen Thanks once more for all the positive remarks and I am listening to you and people in general who are making such a difference in how I see things and handle them. Yesterday was a positive one. I will be looking forward to the days ahead(as should we all) when we can continue to be among good influences as we "mend".
Look out world If it weren't for my throat biopsy yesterday I would be belting out the song that goes "How do you mend a broken heart, how do you keep the rain from falling down/etc.
And the surprise you referred to I think just came to my front door. I don't quite know what to say as we will have to address this tomorrow when my throat is not so raw(please)But thank you from the heart. Love, Terrie
On June 24, 2014...
Ginger posted a note for Terrie that says:
Terrie, OK -- just lost 5 paragraphs with an errant move not intended. Here today gone tomorrow was more like disappear before my very eyes.
I was letting you know how important what you are saying in this post today is.
Yes, ask questions - to our Heart Family here, to your medical team including in the office, in the hospital, and once home. Just within this Heart Family of ours there is a tremendous body of knowledge and experience.
Tony C-P is a perfect example. He gave some very important lessons as he was on his "Endurathon" as he called it. And his last two posts regarding what he learned, and an answer to one of us about being prepared for what it takes to go home are pearls of wisdom. Check them out!
But Tony was also not afraid to get his problems out to share, and as a result we were able to empower him -- he realized he could and should ask questions and it would not only help to know the answer, it also decreased his anxiety. A simple "What are you doing?" and "Why is that necessary?" are very appropriate.
Even if you need 5 more pillows to be comfortable, it should not be chocked back. The staff is there to help and care for you. Sometimes they are working so hard and are tired enough that you may not get a pleasant response. That doesn't mean there is something wrong with you or with your request. Ask the next person. If you already have 5 more pillows when another comes in with 5 more - Laugh -- it is good for the soul, it is good for your healing body, and it is good for the staff!
Kudos to Gary for showing his love to Terrie through his actions. Words are not very helpful if the promised action, even to respond to an online request, do not follow.
Love you all so much!
Looking for e-mails lost in cyberspace,
Peace, comfort and healing I pray for each and every one of you. May you take care of yourself by slowing your brain down and giving your anxiety no excuse to stay!
Love and hugs,
Terrie Syvertsen Ginger-Sis-
Good to hear from you again and once again, thank you for your insights and help as well ... Read more
Terrie Syvertsen Ginger-Sis-
Good to hear from you again and once again, thank you for your insights and help as well as the Kudos to Gary.
Also for the love and hugs you are sending out to us all.
As to your Lost in space e-mails I will leave you with a laugh in that matter.
Just this morning I sent out an e-mail as a joke to my husband letting him know that my recent "mail in" poop test came back negative! Good thing you say? Yes, except I hit the wrong contact in my mailbox and sent the information to Gary's ex-boss who let him go with no notice 6 years ago setting in motion the forced short sale of our home and move back to the Bay Area. I envision him shaking his head in his big office chair wondering how to reply!!!!
Good day everyone and may my decision to include this last paragraph not offend anyone!!! I JUST HAD TO!
Terrie
On June 24, 2014...
Susan Smith posted a note for Terrie that says:
Terrie, I found you and your journal. You have been posting to my guestbook and I wanted to reciprocate. Sounds like you are on the right track. Getting ready for the test and the surgery is very important and you are doing it all right. I know when "the big day" arrives you will do just fine. Looking forward to reading more as you go forward. Have a great day.
Terrie Syvertsen Good morning Susan and thanks for the good thoughts. I have been keeping up on you as well and expect ... Read more
Terrie Syvertsen Good morning Susan and thanks for the good thoughts. I have been keeping up on you as well and expect to hear of many adventures you are on in the future so I can say "Hey! This is what I am going to do to be at my best!" as it seems to be working for you!
Here's to all of our successes little and big! Terrie
On June 23, 2014...
Ginger posted a note for Terrie that says:
Terrie,
Could not find the e-mail you were referring to and will look one more time. 5 minutes until curfew!!!
But while I am sorry I interrupted you, it was a relief to know you were home and had gotten into the ENT. A little assertive e-mail writing is sometimes the answer when the other end is either waivering over a decision or has already (EEK!) made one you know is not right. Great job of taking care of you when the powers that be in the medical system were not clicking on all cylinders!
Be good to yourself and take it easy. You are doing so much so fast that it cannot be good for your stress level and heart,
Lots of love always, Your sis,
Terrie Syvertsen Thank you Sis for the email and watching out for me. You were right, yesterday was a wild day but mad ... Read more
Terrie Syvertsen Thank you Sis for the email and watching out for me. You were right, yesterday was a wild day but made out well. I am working on the stress(aren't we all!
Have a great day. Taking your advice and now that I have my new glasses will have a much needed "kick back" kind of day! Thanks for the support my friend-Terrie
Ginger, your sister of the Heart! posted a note for Terrie that says:
Terrie, Terror of the Dentist's Office!
My blessed sister, I do not know where you are in terms of time of your appointment. but I am thinking that it is about now! So I took a few minutes after reading to close my eyes, relax my head, and take slow deep breaths to calm you and reassure you.
There was a time when the thought of going to the dentist terrified me, too! I think it came from two things. One is that when we were very young we sometimes moved halfway across the country every 18 to 24 months. So I never had time to get comfortable with a dentist.
The other is that, wonderful as the vast majority of them are - and to put up with such anxious patients - we went to a dentist who hurt us (my sisters and I.) The good part came when our big ocean lifeguard Dad went. At dinner that night he told our Mom not to take us back. But, she said, we've just been and they all need fillings. "I don't care," said Dad in his deep voice. That guy hurt me -- and if he can hurt me, imagine how it must feel to the girls." So Mom asked around and we went in for our first visit to yet another dentist. Guess what? NO cavities, not a single one for any of us! So yes, terrified!
But we were able to go to the new dentist a number of years in a row thanks to Dad's "family man" decision, unbeknownst to us, to turn down some promotions in order that we might get through some school with a bit more stability.
And like Dad, the new dentist was big and had a smile on his face and twinkling eyes and WAS PAINLESS! Never felt a shot, never a nerve brushed, he cared, took his time, and I learned not to fear him.
We have never had dental insurance. Some years it adds up and some years we are ahead. We figure it all comes out in the wash!
So I am smiling as I type this, send good relaxing thoughts and prayers and hoping that the findings are much better than you are imagining!
One of my doctor friends once said that there is a correlation from the plaque build up on your teeth and what builds up in your arteries.
I pray that is so because my checkup was pretty good, especially considering that sometimes I floss in bed when too dizzy to stand!
Love you dear artist sister, carver of birds and other great things,
Terrie Syvertsen Dear Tooth Fairy Heart-Sister-
Aggh! I am glad I didn't ready this little delightful post prior to my ... Read more
Terrie Syvertsen Dear Tooth Fairy Heart-Sister-
Aggh! I am glad I didn't ready this little delightful post prior to my dental visit! HA, ha, ha!
I have a better(bitter)memory of the dentist. Mine was Dr.--------- and when He went out to lunch and came back I was his "next patient". He'd had a few at lunch and proceeded to take one of my two front teeth out with a pair of pliers. Took awhile. Took the experience with me! For all you Dentists out there, I have since had many excellent ones to make up for the one!
Anyway, Dental visit was not too bad but will have to have a few things done including root-canals(two)replacement of Caps as well as new caps put on.
One thing the dentist found a "thing "on my throat She wants me to have an ENT look at before getting into working on me. Already sent off emails to Dr.s at my health plan so I can get this done quickly and headed into the work that needs to be done.
Only hope it can get done and I will meet the Aug. 15th. pre-op timing with a good/healthy mouth! (I am going to alert the surgeon to this and see if He thinks I should get just part of or all the work done prior to that date as their is minimal "gum" work to fit the new cap and we don't want any infections to mess with my new "Bovine" valve when I have it replaced now do we?
Anyone out there feel free to lay down your opinion as I am sure You (Ginger!) will have one for me and I am looking forward to it!
Really relieved that the visit is over and work can begin so we can continue the countdown together!!!!
Love you, hugs and a big toothy smile from your Heart-Sister! Terrie
On June 20, 2014...
Terrie posted a note for Terrie that says:
Good morning "M"
I am feeling much better, thank you!
I will jump in on the question of "depression" after the surgery. I want to say that we will just have to see when/if it happens and guess what?! You get on this site with your heart-brothers and sisters and we will help each other pull out of it! Promise! I know how crippling depression can be at times and I like you would rather not deal with depression with medication if at all possible. Not to say that those using meds to work through it are wrong. My personal choice for far too many reasons to hit on today is also and has been to put myself somewhere outdoors or into water. Like with your walks and gym activity, My "Pill" has been to lap swim in the early hours of the morning- rain or shine outdoors!
There is something of relaxing the body, dropping down into the water, raising your arms in front of you after of course a mighty big breath, and pulling yourself through the water like a fish or dolphin! Letting your mind wander as you pull and kick and glide until your lungs cry out for air and you surface grabbing air and see the steam swirling around the water as it gently soothes every nerve in your body. No pill on earth has ever compared to that feeling.
And like you, it is harmful to our bodies and spirits not to be able to resume the activities due to this "disease" we all share or have in common "for the moment".
A friend of mine years ago (2003) who studied with Deepak Chopra and teaches meditation through the Chopra Center took me aside one day while we were in my backyard up North in Calif. and said" You know what the word DISEASE is? I know I just looked at her in a dumb way and she laughed and said it is DIS EASE! This is something brought up at the center. "Abnormal, harmful, lack of ease. When you think about it making that kind of sense it is no small wonder what Depression and Anxiety does to promote "DISEASE" and HEY! This is something we can work at in groups or individually! My point is, once my friend brought the point of disease and the mind's way of coping I started to realize how much control I really do have of deciding what to do with any/all thoughts that lead me back to being unwell as we all do know that depression isn't ever simple usually. And I like you have the same worry off and on. Also other than my dog Hunter and my husband I have largely been alone these past several years and it is easy to slip into depression when you are not a big "get out and mingle with lots of people" personality. This is ME TOO! I do not like crowds. Some of us are just like that. Give me a garden to get my hands dirty in where I can watch the dragonflies dance and butterflies swirl around overhead with an occasional hummingbird hovering over my shoulder and I have achieved "BLISS"!
Put me in a crowd for no particular reason and I am looking for the nearest exit and fresh air!(No not panicky, just have my preferences)ha. ha.
And as I ramble on with my first cup(and only)of tea this morning I am thinking of your concern about this depression possibility and saying to myself and your self (ha) we are going to not only have the Gods make us new women but new and improved Women!
And as far as Ginger, You and I heading towards our surgeries together just realize we 3 are Goddesses! I have a good feeling from deep inside where this heart of mine is, that we are all going to be better than ok. It is all the time leading up to the surgery where our beautiful minds are at a constant level of trying to input all the data we are hearing, seeing, reading about that makes it hard not to be overwhelmed and slip into depression. We(all of us out here in heartland) have to continue to believe that what is coming ahead will be a new beginning minus the baggage we have had added by this illness. And no matter what the outcome, going in with a strong sense of "UNITY" of knowing you are not alone in this fight for wellness is crucial to your mind and spirit. So let us all make sure we stay on top of being "Brain Healthy"(Ginger will love that) as well as Heart Healthy, OK?
"M" when I get off my soap-box, a. I bottom line just want you to know that as we are all learning with these journals(Bless you ADAM!) and let me drive it home! You are not alone and your Husband, Family, Friends and New Heart Friends will be here for you before and after your surgery.
I am also going to concentrate on getting back into meditation and focus on "mind-body wellness. My friend also suggested when I got back in touch with her recently a book by Deepak Chopra "Journey into Healing which I am going to pick up this weekend and if I pick up anything of interest will let you know!
I would keep on taking walks if you are up to it. Just be careful with any exercise kiddo. I picture you at a "cottage scene" and it is a pretty painting kind of scene. Peaceful and laid back. Fresh air, in and out! Good for you! I would love it if you could post a picture of the cottage area where you live! Maybe I can make a carving and print it so you can use it for a Christmas Card this year! I am making a carving of our house for the same purpose as I will be healing as will many of us and ready to celebrate the Holidays with this behind us, YES?!!!!
You have a great day and thank yourself I ran out of tea paragraphs ago!
Take care Heart Sister. Don't worry about depression after the surgery but that you are in Great Spirits heading into it.
One more thing! I was at the kitchen counter this morning at 5:00a.m when a dark figure approached my front gate and placed a baggie on one of the pickets. My little motion detector porch light captured my 71 yr. old neighbor placing a baggie of freshly picked zucchini on the fence! I walked out to meet her and saw her 76 yr. old husband by the side of my garage smiling. I just moved in a year ago in January. Tom and Mary are great neighbors and they have been walking while I bike around the small park across the street from both of our homes for this past year. Tom had a valve replaced 4 years ago and told me this morning what I am about to tell you.........You are going to be just fine, Honey!!!
On June 20, 2014...
m in cornwall posted a note for Terrie that says:
Hi Terrie - hope you are feeling better after a down day. One of the things which does concern me is possibility of being depressed after the operation. From what i have read this can be a real issue. I dont particularly like medication of any kind and my treatment for depression wold normally be to go for a long walk or go the gym but this wont be an option. this worries me more than anything. i had bad postnatal depression many years ago and took me a while to get out of it. i have got into meditation again which i really do think helps but i am not a 'group' type person so i try and meditate by myself. looks like you, I and ginger will be new hearts all together so lets hope the gods shine down on us and make us all new women. love m
On June 19, 2014...
Julia Hsu posted a note for Terrie that says:
Terrie,
My symptoms at the end of March was short of breath at rest, persistent cough, swollen ankles, & fatigue (slept like a baby for 9-10 hrs every night). Since my scheduled surgery was 8/4, the surgeon thought it would be better to move it up so I won't go through the summer not able to breath. I am grateful for Dr. Ryan's patience & compassion. He also told me to continue exercise so I wouldn't be out of shape before surgery. Now he told me to relax & not worry& email him if anything worries me.
Terrie Syvertsen Thanks for that information. These symptoms are similar to the ones I have been experience only in th ... Read more
Terrie Syvertsen Thanks for that information. These symptoms are similar to the ones I have been experience only in that I have a dryness in my throat especially at night, only coughing a little but not persistent. I go through periods of on and off sleepiness but not for long.
My worst symptom is that I feel that heaviness in the chest(not pain) just heavier than the norm and feeling like I am not getting the usual intake of breath. This is what I described to my surgeon as we set the date at my consult. He did say if it changes or worsens to let him know and we would adjust the timing. I am at a point where I will probably contact him if the next few days see any changes that keep me at this level of concern.
So thank you for your comments as I believe that you have helped me become more aware of what my heart is really doing instead of just ignoring the symptoms.
So, I hope you start to feel some changes that make you feel like things are getting better soon.
On June 19, 2014...
Julia Hsu posted a note for Terrie that says:
Terrie,
I also took the asymptomatic for granted. In fact, I was shocked when I found out I needed surgery in less than 1 year. Then, like you, I developed symptoms in late March and it was scary. Luckily, my surgeon was able to move my surgery date from August to May.
I can't tell you yet surgery will solve everything and you would be back to your old self. I am not there yet, as you know. But surgery gives us hope that we will be better. The testimonies of many people on this website tell us that is what we can look forward to.
Terrie Syvertsen Julia-I think one of the most important things I am learning on this site is that each of us will ent ... Read more
Terrie Syvertsen Julia-I think one of the most important things I am learning on this site is that each of us will enter into and come away with our own unique experience. That each of us is hoping to be better than when we went in! That time and patience with the process is going to be a different challenge.
I thank you for your having kept up and sharing your own experience as it does help us all and without the testimonies of the people here we would all be going into this blind.
My biggest problem lately of course is the change in symptoms and how the way I feel makes me second guess whether or not I should push for an earlier date for surgery.
Today I am feeling less pressure and breathing better than the last few days which tells me that my anxiety popping up here and there is compounding the symptoms. I don't have that long of a wait as pre-op is the 15th. of Aug. and surgery is Aug. 20th. But I will listen to my body and make that call to my surgeon if it seems to get worse. We
have been having a bit of heat which is enough to effect everyone's breathing around here.
If you don't mind, what was it that got you to consult with your surgeon about moving up your date?
I hope you got some better sleep last night. Have to go let Hunter out!
Thanks for the response. Good Day!
On June 18, 2014...
Ginger ( from Land of Oz) posted a note for Terrie that says:
Terrie, I know your day has hard, and I hope I did not add to it. I so appreciate you and it worried me that the shortness of breath seems to more pronounced. Please stay in the cool and minimize the trips out if they are attributing to how you feel. It is possible to make up a grocery list and put it in your neighbor 's hand. When you have recovered from August 20 you can return the favor. You are very creative. I know you will find a way if you choose to. Thank you for being there for me and opening my eyes to things I was not allowing myself to consider. It makes me more optimistic that the surgery will make some positive changes in my life, and that is HUGE! Love my sister!
Terrie Syvertsen Hi Ginger. You in no way add to my day today. I think the weather had a lot to do with it and the pro ... Read more
Terrie Syvertsen Hi Ginger. You in no way add to my day today. I think the weather had a lot to do with it and the problem lies with me having to do a reality check. I have begun to have the symptoms that are part of this stenosis. You are right in that I will be careful to contact my surgeon if it continues as He said we may have to move up the date if that happens.
I am glad you are more optimistic that the surgery will make some positive changes as it can't help but make things better! And what if some of the things attributed to your brain injury do show to have been part of your heart symptoms as we have discussed? That would be wonderful to find you won't have to revisit some of those symptoms, maybe?!. It will be hot again tomorrow(around 95 degrees) so I will refrain from going out in the heat.
I will keep in touch tomorrow too so don't worry. One day at a time kiddo.
Don't worry about what could be but look for what "IS"!
Here is to a good nights sleep all around! Sweet dreams to this community of "Hearts". Night!
Terrie Syvertsen Ginger! As you can tell from my response it is past my bedtime! I meant to say you in no way added to ... Read more
Terrie Syvertsen Ginger! As you can tell from my response it is past my bedtime! I meant to say you in no way added to the problems I experienced. I am glad you got some news and hope you share it soon with the community! I am happy for you.
On June 15, 2014...
Ginger ( of Oz Land!) posted a note for Terrie that says:
Terrie,
Can you possibly give me a call? 316.684.2212 Central Daylight time.
This will sound very ditzy, but I have had that on my mind all night as I wrote to M and Julia.
Obviously something I do not want the whole world to know but want to talk to you about. Hopefully some sleep will bring it to mind.
I put long posts in M and Julia's tonight, but the post to was more to you than to M. It is probably the home alone solution.
Should be home most of day. Long call weekend so sleep scarce, but at least I don't have to go out in storms to remove appendices. Jim had 3 to care for last night into this morning.
Love you dear Heart Sister,
Ging
On June 13, 2014...
Ginger (in the Land of Oz) posted a note for Terrie that says:
Terrie,
Whew! Missed one of your posts and catching up is like wildfire! You do move! Did not realize full sternotomy. Reason or should I not ask? I know some people are not candidates and I may not be either! So YES SHIELD and get discount through this site! And Yes rent power chair! If I knew for certain, I would do those things!
And hooray for the yogurt and blueberries! Posted about the MRI - Short version AOK! Could have been better but IS NOT WORSE - so GREAT!
Husband Jim on call saw report at his office tonight and gave me a call!
Got great letter from my cardiologist saying, I love this! "I completely agree with your decisions." Puts me on cloud nine, That man is a Gift from God, and I know I am fortunate to have been and still be in his care. Bless him! Tried to make sure every specification he made was being met, so guess he should agree, but so nice of him to send a note to the house to let me know he COMPLETELY agrees! Can you tell I am smiling, because I am!
And the vertigo has dissipated and with it the verge of vomiting, so I am much better. Working hard to hit my sleep goals.
Actually spent much of today on hold with both the IRS and my cousin's car insurance company -- had them on two different lines and the insurance company, despite cutting me off twice and once making the mistake of trying to sell me a trip to Bermuda so I hung up, beat out the IRS by over 25 minutes!!! (The IRS site says they have worked so hard to make it simple and easy!) Well, I am my cousin's DPOA and a Co-Trustee on her Trust -- there is almost nothing I do not know about her, but there was no WAY she would have gotten through all of that. TEARS AND HANG UP! I love her to death and it makes me sick when people (whomever) give pretenses that what they are asking is simple and easy when it is like trying to leap through flaming hoops in a jungle!!! Barefooted with lots of snakes, poisoned stakes, spiders, and monkeys dropping on you to throw you off balance or catch you off guard! Had I not been her legal DPOA, I guess it would have been like hacking!!! But, Yes they received the check sent by we two co-trustees to cover the check that should not have but did bounce, and yes, I now know what additional fees and penalties are due so we can clear it with the Trust and get her free and clear before June 30! The things we do for our country. (Really, I did it for my cousin, but the country was certainly involved, but in a rather menacing way since their simple and easy methods took this woman with a Doctorate over an hour to get through.)
End of rant! Sorry! I just think of my cousin and know there are others out there who do not have cousins to help them. EEEEKKKK!
So grateful we can think and talk with people with brains (No insult to the scarecrow, because he was a smart one before he ever got to Oz!) about light and uncomplicated things like having our aortic valves replaced!
If the IRS would only model their website after this one! Man, I am in Dreamland! Have to pinch myself and make sure I am awake.
And I vote NO on bowling balls for some time to come, although the idea is creative and engaging! I just think -- HEAVY IS A NO NO!
I love you dear Heart Sister. Have to be asleep in 54 minutes and Jim is on call and not home yet. Think I'll make it?
Let you know tomorrow.
Sleep tight California Heart Girl! Blessings!
PS - Average windspeed here is 18.5 mph 24/7/365. I kid you not! There is nothing to stop it on these Great Plains! So while it may not blow at times, it also gusts to 35 to 50 mph. Makes biking, driving, and sometimes even walking a challenge. # 18 in Windy Cities in US! WOW! xoxoxox
On June 11, 2014...
Ginger (in the Land of Oz) posted a note for Terrie that says:
Terrie,
Just checking in to say hello and let you know I am thinking of you! By this time tomorrow the Brain MRI will be completed!
And, this will make you jealous, thunderstorm warnings for later tonight. Hope they come true but to not bring the twisters with them!
Hugs and all my best, Heart Sister!
Terrie Syvertsen Well Heart Sister---I hope you remember to click your Red Shoes!!!!!!
Seriously, I am jealous of you ... Read more
Terrie Syvertsen Well Heart Sister---I hope you remember to click your Red Shoes!!!!!!
Seriously, I am jealous of you possibly getting all that moisture there in Kansas!
We continue to be warm but it has backed off a bit in the high 80's. The thing I wish would let up is the wind! I have lost two major branches of the peach tree in the backyard because neither Gary or I were able to brace it well enough to fight the on and off again "Delta Breezes" that make their way through our area here in the Central Valley of Manteca.
Still love our new (Built in 1975)home!
The wind is usually going directly behind us(sideways!) and the area was and continues in large areas to be agricultural with wonderful soil(lots of gophers especially from the park across the street making there way over to our front yard mostly during the summer months!)
I am hoping to get back to landscaping the front lawn after I recoup from my surgery! Planning ahead to have some large boulders dropped into place and removing a large section of lawn to replace with Native plants, shrubs and a little crushed granite walking path with a couple of benches to sit on and be able to possibly put a small table and a couple of chairs strategically placed for Gary and I to chat with our neighbors and play cards on cool evenings. Also give a spot for the more Elder walkers around the park to have a seat when they are two tired and need a "wee "moment to catch their(now our)breath! I have it all sketched out but can't get started until all this heart "work" is behind me/us.
Isn't it amazing our bodies can be having such a time with symptoms but our brains don't slow down a lick!
Even more amazing is how we will feel after our treatments/surgeries. Keep remembering there Is another side to this just in the distance!
I have a friend up north in Redding that just completed her second garden gazing ball by using an old bowling ball with stones and shells glued onto it and then grouted, that is wanting me to try one as well. I keep trying to tell her that walking around looking for old bowling balls at garage sales isn't part of my agenda these days let alone something I should be lifting at the moment but it Is on my Can't wait to do list" for later! I also haven't been able to add any color by way of plants in the last few months and will be happy when I can get out there to do that to! I painted the house by hand last summer and the color is a great lighter shade of brown. The house has white trim around the windows and I know adding color will make the house seem much happier than the shape it was in when we bought it. Gary and I lost our home in 2009 in a short sale and ended up in 2013 pinching pennies and able to put down last year on this foreclosed home. This economy didn't make it easy on many Hearts in this Country did it? But Like the economy our hearts too will eventually bounce back.
Well pardon me Ginger for going on and on here as my blood sugar is going down at 3:22 a.m. while I type this message to you so I am headed for yogurt, blueberries and my decaf cup of coffee(yuk/decaf).
Going to go sit with "Hunter the Spaniel" to watch the morning News on my recliner. I keep writing Hunter the Spaniel to leave you with an image of this old(14yr.)old dog with long Liver colored ears and spots & very tired but waggily tail who delights in nothing more but being by my side! You just can't help but say"Aw"now can you. He is so darn sweet. And supportive without saying a word, chuckle.
Well, now that I have written another chapter in my life, I really do need to get something to eat/drink!
I want to wish you the best day and a good MR (I wrote to you a quick note last night too.) So safe journey to get your test done and a very good day to all in our heart community!-Terrie
On June 10, 2014...
G in L of Oz posted a note for Terrie that says:
Paragraph that starts with "'I lived in the hospital with should say my Dad's last WIFE! Literally, I had my camping mat and sleeping bag and was with her everywhere except the OR. She had so many allergies, so the surgeon even told the nurses that they were to allow "Dr French", a name I seldom use, to stay any hour day or night! That way I was able to keep the tape she was allergic to and any meds and foods from getting to her. One time I even cut the sleeves off my long-sleeved T-shirt and pinned them to her hospital gown so the tubing was not touching her! Funny, but it worked, and the.small hives coming up went away with some steroid cream and having sleeves!
Another story to make you laugh -not as good as the celery, but still funny. It astonished the nurses, but they could tell the allergy issue was really problematic!
On June 10, 2014...
Ginger. (In the Land of Oz) posted a note for Terrie that says:
Terrie, Great post.! This will not all be in order. I have sprained (?) my neck while sleeping and am propped up and icing it. Ridiculous!
First search Incision Shield in the search on this site. One of the results is how to get one for 27% off! thanks to all of Adam's work with the community.
One question I have is whether the shield would be needed for a minimally invasive procedure. You already have had your coronary arteries checked and they are fine. I think that needing to work on those in addition to your valve would be the only reason to need the shield. I think the shield would be much more helpful if there were a full sternotomy, but I don't think that is in your future. But check with your surgeon to make sure that is the plan.
From everything I have read here, the conclusion seems to be: Do Not Buy a mechanical or remote control chair. If you do not have a recliner or if no one will be around to help you and you think you want one RENT one. They are expensive and you will not use it that long. And definitely Not with minimally invasive procedure. That is a 2 to 3 inch incision! You will have much less problem moving than someone with a full sternotomy.
I discussed this with my surgeon husband, who himself went through a major surgery over 20 years ago. He had a horizontal incision across his abdomen which meant it literally went half way around him. He used propped up pillows in bed until he was ready to do more. We have a regular upholstered recliner. He used that some, but might have needed some help getting up and down and pulling on the handle.
You, on the other hand, will have an incision more than one foot shorter than his, and it will not be through your abdomen. I realized as he talked to me that if I have a minimally invasive incision, my mobility will immediately be light years beyond where he was.
So try not to worry about things that are not going to happen. (A good lesson from my husband, who could barely shuffle his feet.). You will not be walking all stooped over. And your legs are strong from biking, so as long as you can wiggle yourself forward in the chair, you then bend forward at the waist so your nose is over your toes, then push up with those strong legs.
I lived in the hospital with her when my Dad's last life (after Mom died) had each of two major surgeries. One was neck and one was back. She was at least 10 years older than you, but this is what she was taught to do by the nurses and physical therapy. And again, you are going to have much smaller wounds and not along the nerves like she did. You are going to surprise yourself!
So please try not to worry about things that are not going to be part of your heart valve experience. And remember the staff will be there to make sure you move in a safe way those first few days. They will teach you what you need to know.
It is more important that you do walk and breathe and cough and use your incentive spirometer as much as possible to get any fluid out of your lungs. That Prevents you from getting problems.
I am using my iPad with this strained neck, and don't remember additional concerns.
But just try to remember that everyone's experience is different. Everything in all the journals does not apply to you. Concentrate on building your legs and filling your lungs and, per Jim, don't worry about the recliner issues. In fact there were times he preferred a harder more stable chair. But again, his incision was at least 13 inches longer than yours.
To feel like you are on top of it, why not leave a message for your surgeon to see if you are correct that he plans to use the minimally invasive procedure for you. Then stop worrying about things that are not in your path, and stay on the reality track.
Do not feel bad for overthinking it. i don't definitely know that I can have the minimally invasive procedure. So I worried about all you have until the other Dr French in the house reminded me not to get ahead of myself! Do what you can now, and do it well. It will pay off later!
Love and hugs to you, Heart a Sister,
Ging. And don't forget to smile!
Terrie Syvertsen Hi Ginger. First off I am sorry to hear you sprained your neck. Hope it is better soon.
Thanks for yo ... Read more
Terrie Syvertsen Hi Ginger. First off I am sorry to hear you sprained your neck. Hope it is better soon.
Thanks for your opinion on the mechanical versus recliner. I am not worried about things not in my path or off the reality track. I am having the full sternotomy, definitely as discussed with my surgeon which is why I posed the question of the shield. No way this can be done with minimally invasive as it was one of my first questions. I hope you are more fortunate to get the less invasive procedure for the obvious reasons.
We have two recliners and I only see the one recliner as a problem because the handle is falling off! Also Ginger, I am not thinking that everything I read in the journals applies to me. I take each journal as a learning tool to find out how others are dealing with their own unique experience and have found it to be highly beneficial. In fact it is in reading all the various posts that I am not at all anxious. I just have depression from time to time and that is totally understandable in my view@
So don't worry about me overthinking as this is not the case. I am genuinely
excited to go forward since I have a date to work with and everything is not left up in the air like it had been.
I am off to make some tea and visit with Gary before bedtime. Hope you are feeling better soon.
Terrie
So, I have to go make a cup of tea as my throat is a little dry from allergies.
On June 8, 2014...
Ginger ( in the Land of Oz) posted a note for Terrie that says:
Terrie,
Just checking here to make sure I did not miss out on something! Responded to you today in my journal's Guestbook!
Hugs Heart Sister!
On June 5, 2014...
Ginger (in the Land of Oz) posted a note for Terrie that says:
Terrie,
Was hoping to hear some good news from you today! Did the meeting occur?
You are in my prayers, Heart sister! Will continue with the arrows until I hear where to go from here.
Take care, Precious Friend!
Terrie Syvertsen Hello Ginger! Just posted in my Journal that a date for surgery is set for August 20th.(after consult ... Read more
Terrie Syvertsen Hello Ginger! Just posted in my Journal that a date for surgery is set for August 20th.(after consult today) I am extremely tired as it was a 72 mile drive to Santa Clara for consult and we just made it back another 72 miles. I will write to you tomorrow when my head is clearer. A lot of information swimming thru this brain of mine! Oh yeah, it will be Bovine valve replacing my aortic valve. Like the surgeon and so did my Husband. Go for pre-op Aug. 15th. Hope you will have your news soon! Was a long day and thanks for writing me as it was the plus at the end of the day and just what I needed! Many thanks and prayers back to you... Night my special Friend!Terrie
On June 3, 2014...
Ginger (in the Land of Oz) posted a note for Terrie that says:
Terrie,
Somehow - where was my brain? - I missed your June 1 post!! (One of my good friends used to have a small sign in her car that said," Of all of the things I've lost, I miss my mind the most!" ) I kept my distance from that after the head/brain injury.
Just got a call from my retired family doc, who is busy getting records together for people, myself included! She first wanted me to know she would fax the pages over so I did not have to drive down for them. Very thoughtful! Then she reminded me that we had planned to repeat a brain MRI that was done in early August 2013 and was not encouraging. It would have been really discouraging to someone without a brain injury to blame. But about that time we talked and considered stopping a drug I had never been happy with. I had been having terrible balance issues and falling as many as two to three times a day! And, said my neurologist, that is like an adult version of Shaken Baby Syndrome. Yuck! Within four weeks of stopping the med, which I had been on since 2006, the falls stopped! Totally stopped! I still will not be going back to my days as a trapeze artist, but my bruise count dropped dramatically. We decided to give it some time to recuperate from the drug. Tonight she suggested this might be a good time for another look. Know what my brain looks like nine months later... and have a fresh picture before surgery. So they plan to set it up in the morning and shoot for a time after my eyes are open (usually 10:30 or after) on Thursday to get a repeat Brain MRI. It will give me a chance to pray for you, lying on the crazy MRI table. I take my own pillow (more comfort than feathers) and non-metallic ear plugs so the banging does not get too obnoxious. Wonder what the MRI tech will think when she sees all these arrows shooting out on the film!!!! Love it! My best to you always!
Terrie Syvertsen Hello Ginger! Just going to bed and read your post. I am happy to see that since you stopped the one ... Read more
Terrie Syvertsen Hello Ginger! Just going to bed and read your post. I am happy to see that since you stopped the one med things seem to be improving and I hope this continues. Has to be awful having the balance issues. I am glad you are having the MRI before you have the heart consult so you know what you are dealing with going in. You have a lot on your plate right now and I will be thinking of you and sending prayers and invisible hugs to match each arrow. I will also be singing "You've got a friend "as those clinging and banging noises are trying to find their way in! So until tomorrow my friend. Love, prayers and hugs. Terrie
On June 1, 2014...
Terrie posted a note for Terrie that says:
Hello Ginger! Had a better nights sleep than you it appears! Sorry you were woken up by the alarms(that can be enough of a panic to get the ticker ticking! Had a nice quiet day today. Just Gary, Hunter(spaniel)& the neighborhood cat we call KAT for visitors. Gary bought groceries and I read! I think I was so happy the angiogram was done that I let myself relax enough to sleep! But I did get woken up by a co-worker of my husband's as the light from his I-phone lit up the ceiling overhead like a small beacon! I thought "Great! I went through this procedure just to be abducted in my sleep by aliens!!! So, I have been up walking a little then sitting all day. The incision from cath procedure are a bit achy but looking good. I have had a tiny dull ache in the upper left side of chest on and off today and think this is just from procedure. Never asked what to expect after but read the literature they gave and it doesn't seem to be anything for alarm so I am just writing to you and then going to have a late small lunch. I wonder if anyone else had any comments about after their angiogram procedure?
I am so interested in the next step! I will be emailing my cardiologist first thing in the morning! I know he is thrilled to get my emails! I appreciate his patience when I write but He is the one who said "There is no question too stupid to ask". Since you posed the question of minimal or invasive surgery for my valve replacement I have been thinking about how lucky we are to live at a time where they can do such a procedure!
I remember when I first watched the Valves at work as I was having an echocardiogram. I couldn't believe how wonderful my heart looked-pumping with those little "gates" opening and closing so quickly! And to think the little bugger has been doing this for 65 years! Talk about awesome. The Heart is such a beautiful part of us. I, like you like entertaining the thoughts of not having open heart versus the minimally invasive since I am old enough to question the newness of this surgery(at least to me). This will be the first thing on my mind when meeting with my Surgeon. I will let you know when that will be. I am going to begin tomorrow looking up the Center in Santa Clara where they would be preforming the surgery. It is only an hour and a half to 2 hours away from our home.
Well, I hope you had a good day and will be looking forward to hearing from you again to see how you are doing! It must be reassuring to have a great general surgeon for a Husband! You said he was retiring soon? I will go back and re-read your messages as I am still a little tired from earlier. Take care Heart Sis!
On June 1, 2014...
Ginger (in Land of Oz) posted a note for Terrie that says:
Terrie,
Happy Sunday morning! Had a good night's sleep only to be woken by the house alarm. My husband went outside and tripped it, but didn't turn it off! My brain really did not appreciate it, but life happens! Hope you were able to get a better sleep last night and enjoy this day! Hugs, Ginger
On May 26, 2014...
Vicki D. posted a note for Terrie that says:
Happy Birthday Terrie,
Thank you for your earlier response. I agree with your comments about healthy eating and weight control. My family doctor has drilled it into me that I need to maintain normal weight, that it will be much better for me when/if I need surgery if I do. I don't have a lot of trouble with it. I wish I could say the same thing about regular exercise.
My biggest symptom is fatigue, not helped by the Metoprolol I am taking. I still work full time with no retirement plans yet. I am active in my job, but it is an office job and not strenuous. I have never been a sporty type and now I just don't feel up to a lot of activity.
I hope you are having a great birthday. All of America celebrates with you today! :o)
On May 25, 2014...
Ginger posted a note for Terrie that says:
Terrie,
I already wrote you a message that for whatever reason I do not see here!
I came back to wish you an extra special Birthday on Memorial Day, May it be so great that it far exceeds your highest expectations!
Enjoy!
Terrie Syvertsen Hello again Ginger. Thank you for the good wishes for my Anniversary and Birthday. Good planning on m ... Read more
Terrie Syvertsen Hello again Ginger. Thank you for the good wishes for my Anniversary and Birthday. Good planning on my part, wasn't it?!! Married the guy who actually stole my HEART on my Birthday 37 yrs. ago so he couldn't forget, ha. I am glad to have new Heart Pals in my life to share this with so thank you Adam! I will think of everyone with special appreciation this year. Again thanks!
On May 25, 2014...
Vicki D. (Ohio) posted a note for Terrie that says:
Hi Terrie,
You and I are twins of a sort. I will be 65 in Oct. and was diagnosed with moderate aortic stenosis in 2011 (bicuspid valve). I have some symptoms, but manage ok.
At this point I'm still being monitored on an annual basis. I had my last echo earlier this month and will see the cardiologist on June 6 to discuss. The Tech. already told me there wasn't any change from last year so not really worried this time.
Take care and let us know how your test turns out this week.
Terrie Syvertsen Hello Vicki D. Nice to meet you! Twins, eh? I think 65 will be a good year for us!
I was at the moder ... Read more
Terrie Syvertsen Hello Vicki D. Nice to meet you! Twins, eh? I think 65 will be a good year for us!
I was at the moderate stage of my stenosis 2 yrs. ago and like yourself checked(echo's) and pretty much asymptomatic other than fatigue hitting off and on and shortness of breath when in extreme hot weather which just slowed me down a bit.
One thing I have learned so far is to pay attention to the advice of the cardiologist and people who have shared experiences. (wait, that was two things)! I do not know if weight is an issue for you but will share that it is important to try to work on it wisely if you know surgery is down the road for your valve. I spent the past couple of years not working as hard as I am now that I have turned towards the "severe" end. So think about the opportunity If you need to and do your best.
Also take the love prayers and support you get from people and pass it around as it is, like hope-contagious!
I hope your visit with your cardiologist is a good one and gives you more information to guide you on your way forward. I am hoping that the angiogram doesn't show any surprises but I am ready to deal with whatever is in store as it is in a higher set of hands than mine! I might get lucky and still have a few months to keep on the program I have been on at home whereby I will be an even healthier patient when the surgeon works his or her "magic".
Thanks for the well wishes and I will let you know my experience with the angiogram and results as it might help someone else out there facing similar procedure.
Take care and looking forward to sending you a Happy Birthday wish in Oct. Happy Memorial Day and Blessings to all out there who have helped to keep our Freedom!
Saw your heading "Making Lists" and immediately pictured you in a Santa Suit with a long scroll of parchment and an ink pen - making a list - checking it twice - then wondered if you will start scoring our posts. " That's a six; you get a 2 for effort, etc.!"
Love the idea of your sketching at the front kitchen window.
A thought you might try. I have yet to have my heart valve replaced, but have been through a number of heavy duty surgeries. Our recliners also rock. See if you have something not too large that you can have at the side of the chair and then push it under the front rim of the chair before getting up. If you get it right, the chair will only rock just so far forward and stop when it meets whatever you are using for a stop. Worked for me! And you are creative, you'll find something that will work! No, not Hunter your dog!!
Hoping you will relax this weekend. Remind me, I have an idea about dropping your anxiety at the dentist's without impairing your breathing - just came to me. Sometimes it is handy to have a Pharmacist in the family, especially one who has worked in all of the different environments and work settings I have!
Love and hugs, relaxation, great sleep, peace, and prayers
Funny, Funny, Funny!
Headed for bed as it is 10:13p.m.
Intend to have a great nights sleep ... Read more
Funny, Funny, Funny!
Headed for bed as it is 10:13p.m.
Intend to have a great nights sleep and dream of Hunter under the rocker! Terrie