It's true...the wait is tough. I scheduled 3 weeks ago and I'm having my surgery next Tuesday the 17th so a 4 week wait for me. I just keep checking in on the HVJ and reading the post-op stories as well to see how others experiences have been and it keeps me positive knowing I'll soon be on the other side. Best of luck to you. You will be in great hands!
Patience grasshopper! I'm showing my age and I'm hoping you get my reference. It will be here before you know it and I hope you get that view of Central Park! :o) I'm not sure how I ranked, but I DID get a view of the Park and I think my room mate was a little envious because she told my sister, "I was supposed have gotten the window". Yikes! Oh well. We turned out to be fast friends once she figured out I was a pretty ideal roommate. I didn't whine and my friends/family were very friendly and I usually changed my TV station to whatever station she was on, for the sake of harmony. Most of the time, she was watching things I would have watched anyway. Ha ha.
Before you know it, it'll be May and you'll be on your way! Stay strong! He he he. Lily
Hey lady. - good to see you posting fun stuff. In talking with a friend of mine ( who else do we talk with) he reminded me that such a large percent of folks who go thu this make it thru great. It's such a routine procedure. ( yes serious- but routine). We prob could. DIY. Not !
Doing great on this end & u will too. Go have a great weekend.
If you need a pillow etc under your knees to be comfortable I am sure the nurses in the OR prep, where you could be waiting for an hour or more, can oblige. They may have to remove it in the OR but then you will be under and nothing will hurt. When you wake up in ICU you will still have enough anaesthetic in you to be fine until you get a chance to remind them about the pillow. Once in a regular hospital bed, the knees can be raised to whatever angle is most comfortable. You are going to do fine!
Vicki Pierson, mitral valve repair, June 2011
I think worrying just get old after a while. Once all the decisions and preparation is done all you can do is wait.
Information is good, but too much can be overwhelming. I always end up reading the same stuff over and over again.
It old myself I was going to take on the project of painting and redecorating my bedroom while I waited. It's something I've been putting off for a long time and I thought it would be nice to come home to a new room (especially if I'm going to be spending a lot of time there).
selma if you'll send me your mail. address on my personal email.. i'll send you a book I think you'll enjoy i wish I had read it sooner; but it was worth it. everyone else has their new valve.. you're it. it. if you'd like it
send add. to firstname.lastname@example.org
for safety.. don't want all those men at your door... thanks, N
Hi Selma. I'm so glad to hear that your plan is completed. I'm going to NY tomorrow, where Dr Adams and his team will operate on me next Tues. (March 13). I'm totally convinced that I've picked the right place and the right people. My BCBS approval was the same of yours -- 4 days and see what happens then. The Mt Sinai pre-admission planner told me that's standard, and it will get extended. Take care
- Jim Smith
I'm sorry I mentioned backaches and ocular migraines, but it's important not to get hung up on what turn out to be minor or temporary problems. Yes, many people get ocular migraines, but ocular migraines don't hurt. They just make your vision a little sparkly for an hour or so. And as far as the backaches go, yes, backaches are no fun, but they don't occur every day, and they don't persist. They are a temporary phase that on the way to good energy and good health.
The question I asked myself was, "Is it worth it to be alive?" Because the answer is a definite YES. Were the backaches worth it? YUP! Are the ocular migraines a big problem. NO. And as I said, that was the first one I had in a year, so it was an inconvenience.
Focus on your life, your eventual health, and your good future. Good luck and good health.
Thanks for commenting on my post.
Regarding your back. You will be so out cold you won't have a clue whether your back hurts or not, and then for awhile you'll be on so many drugs it won't matter then either.
However, a few weeks after surgery virtually ALL of us got killer backaches as aftereffects of the surgery, so when it happens, take your painkillers, lie down, and be assured that it has nothing to do with your disc. It's an aftermath of the surgery.
The very best of luck to you.
Just read your story, and it is quite similar to mine. I just had a mitral and tricuspid repair by Dr. Gillinov at the Cleveland Clinic last October. I seriously considered Dr. Adams, but Cleveland was closer to home (Wisconsin). I, too, thought I was asymptomatic (except for palpitations) but I had an overwhelming urge to lie down every afternoon and could not wait to go to bed. I just felt fatigued every afternoon and evening, but not so much in the morning. I was and still am amazed at how much more energy I have now. I still like to go to bed early, but I can't blame that on my ticker anymore:)
The one thing you will get from these journals is empathy......we have all been in your shoes and know EXACTLY what you're feeling and going through. I have learned that people who haven't experienced open heart surgery just don't get it. The comment of "You'll be fine." used to make me so angry! No one has any way of knowing you'll be fine! Yes, we all pray hope and expect to be fine (otherwise we wouldn't do it), but there are no guarantees. That's what makes it so scary.
I also scheduled my surgery a long way out.....four months out. I really wished I could have just gotten it over with, but that wasn't going to work with my husband's job. I stressed out the entire four months, and I can now tell you that waiting is definitely the most difficult part of the whole process. I was terrified of the pain, but it really wasn't all that painful. I was truly amazed at how little pain there was.
I would certainly ask about putting something under your legs for your back. All they can do is say no! The operating table is tiny.....very narrow. They strap you down so you don't fall off. Guess it has to be narrow so they have good access.
Even though you have a long wait ahead of you, you will gradually accept the fact that you have to have this done, and you will look forward to just getting it behind you. You've done your homework and have chosen an excellent doctor, so think positive thoughts and write in your journal whenever you need to. It really helps to hear from everyone who has been through it!
Godspeed and good luck!
You wont be laughed out of an OR. They have all kinds of people with all kinds of problems. I'm sure they will make you comfortable and do whatever they have to do. Don't worry about that, just get better. You will probably beat me lol.
For the long haul
I believe with all the drugs we have in our bodies we don't feel discomfort from the position we are placed in. I never lay flat, it is not comfortable for me, but I believe I must have when the surgery was performed. Fire away with those questions.
On the topic of one of our HVJ family not making it after surgery, you have to understand we all come to this surgery with different medical
histories. You must believe that you will not only survive the surgery, but you will do great. You will feel more energy and mentally in a different place. Just read the posts of the people who are a few weeks and months out.
Jane ( 3+ months out)
Yes, I am in NYC. Of course, if your talking Patrami, your peeps will need to go to Katz's for it. Although 2nd Avenue Deli just opened a location on the Upper East Side (75/2 I think) so that is more convenient to Mt. Sinai. Once you are out of ICU, they can bring it in easily. However, your appetite will be limited for a little while. But, who knows, staring at the amazing sandwich might just inspire your taste buds......
Hi Selma, I missed your first post, so a belated welcome to HVJ. It really is an amazing place. As you have seen, it is easy to bond with total strangers and quickly become family. We all know what you are going through because we all have been in your shoes. You seem to really have a great outlook. Yes, the waiting is hard, and worse than the actually surgery.
I am wishing you the very best. Keep doing your research, posting often and enjoy the support this community provides. I know I did and could not have gotten throgh this without all my HVJ family.
All the best,
AVR & Root Repair 2-2-12
Hi Selma, Linda Dixon here. I am traveling (flying) to Cleveland from South Carolina. I will be ablet to fly back upon discharge (as a passenger...NOT the pilot, lol). I will be discharged to the care of my cardiologist here at home. People go there from all over the world and traveling afterwards is apparently no big deal. My flight is only 1hr 38 minutes, so I figure that won't be an issue. Have to admit though, I wish it were closer...but it would have been either Cleveland or New York for me either way, I would not stay here unless there just wasn't any other way.
So...I'm leaving in the morning...looks like time's up!!!
I was checking to see how Jeff did with his surgery today, and discovered another person going to Mt. Sinai for surgery. I had mitral repair surgery on March 2, 2010 with Dr.Adams. He is GREAT and everything went well. I am doing great, and feel so much better.if you want to check out my journal....Theresa Callanan...good luck.if I can help you let me know.I do not go on here often, but just posted for my two year anniversary.
It's funny you mention you thought you were asymptomatic , that's the way I feel. I don't have major, life stopping symptoms, but once I starting thinking about it, I think I do have some. I honestly didn't relate or remember the chest tightness and choking sensation I had. I had told a couple of people about it and thought it was high blood pressure.
I also thought it was normal to nap every day and then sleep a full8 hours and still feel tired. I truly would not have been diagnosed unless I happened to take my own pulse during a week long episode with PVCs . I could feel a skip in my heartbeat which concerned me enough to see a dr.
I guess that shows you to listen to your body.
Hi Selma, welcome to the HVJ site. I don't know how I missed your first journal entry, seems we have "newbies" every day. Yes, this is an awesome site with awesome people to send you encouragement, support and to be a shoulder to cry on or ears to listen when you need to rant. I have been waiting since October for surgery although I have known for years that is would come eventually. The first months of waiting passed at a snail's pace, now I can't seem to slow it down. I am leaving for the Cleveland Clinic tomorrow and my surgery will be on Tuesday, March 13th. Hang in there, keep us posted and you will do this!!!
I, too have MR. I'll find out next week if its time for referral to a surgeon.
I wasn't sure about starting a journal either. There's just too much information here and kind, supportive people to not participate. Plus, only people going through this can truly know what it's like. It seems like other people I've told either totally freak out (which makes me not want to talk about it) or take it casually and say "oh, you'll be fine", which is not the reaction I want either. This is a big deal! You can die or have life long complications!
Welcome to hvj, may we all share each others "stuff".....good, bad or otherwise.
I had surgery 12/5/11 for mitral valve repair. I was scheduled for either a repair or replacement. I was the same age and live in Scarsdale, but also have a cabin in the Pine Bush area. We have a few things in common. My experience could not have been better. My surgery and hospital stay were uneventful. I had surgery on a Monday and went home on Friday. My recovery progressed smoothly. I returned to work at 4 weeks. I was driving and doing all necessary work around my home. You can look ahead with the knowledge that it is a doable surgery with a great outcome.
Jane Porpora (13 weeks out)
Hi Selma, Welcome to HVJ. I'm glad you decided to start journaling with us. I too don't really do this kind of thing, but I thought what the heck and did it. I am so glad I did do it. This site is wonderful, and I have made so many friends on here.
I have aortic stenosis/regrugatation and an anuersym. Mine is only moderate but has gotten a little worse. Doctor said its not time yet, could be 5 months or 5 years. I just want it over. I never know from day to day what will happen. So right now I am waiting for another echo in July than I will decide what to do. Your right waiting is no fun.
You will find a lot of nice people on here. so I will keep watching. Good luck to you.
Fort the long haul
I'm Stephanie Cole. I am glad you started a journal. You will feel a great deal of support.
I am having a mitral valve replacement next week. Like you, I scheduled almost 3 months in advance.
If I can answer any questions or just be there for you in any way please let me know. You'll be able to follow me from beginning to end (my end goal is back to distance running and soccer) I only hope those of us who go before you may inspire you as those who've inspired us. We have brave, strong, postiive people hanging around here!