I'm so happy Selma is doing well. She must not bea happy camper being awake with the breathing tube in. Hopefully she won't remember any of it.
Please give her my best and let her know we're all here rooting for her.
Hey girl couldn't let you head to surgery without sending you a virtual hug and lots of prayers, you can do this!!!! Go show them what your made of and I look forward to seeing you on the other side!!!! Cindy Pastrano
Selma, once you're packed and out the door, the reality sets in, and yet the calmness is also there. You will do great tomorrow and I'll be thinking of you and praying for you! Keep us posted, and keep those ice chips close by!!! Chose the chair if they give you a choice, and walk as soon as you can!
By now you are in the city and tomorrow will dawn before you know it. Hope you read this before you go in. Sure hope you get it over with tomorrow, you are so ready. My thoughts and prayers are with you on this.
Good luck tomorrow and I hope you don't get bumped as it sounds like you are really all set for surgery; both physically and mentally. I'll be watching for updates on you.
I just found out that my surgery which was scheduled for June 12 has been cancelled. The doctor's office manager said she was sorry but that she scheduled me for a tuesday and he never has the OR on Tuesdays. What kind of nonsense is this???? She has been his mgr. for many years too and she's just now finding out that he doesn't do surgery on Tuesdays....yikes.Where are you going and who is your doctor? Maybe I need to try another doctor.
be well my friend.
Wow, it is finally here!!!! You are going to do great Selma, for sure! I am so glad the calm has settled in. You will be in great hands, literally!!!! Can't wait to hear from you on the other side of surgery.
Just thinking of you with all good thoughts for tomorrow. I had my pre-op yesterday;need to update my journal today. Bdst wishes for tomorrow- you are in my prayers. I wish you a speedy recover, and look forward to "meeting" you next week! Kind Regards, Kate R
I just answered an entry you put in my guestbook and then went back and checked out your journal. I LOVED your relating the not-so-heart-healthy dinner, and here I thought I was the only one doing this! Today on the way home we stopped in a little town west of Augusta, GA for their Sunday noon extravaganza, with lots of fried chicken, corn bread, the sweetest yams you have ever put in your mouth, the saltiest green beans with ham hock, lots of sweet tea to wash it down - you get the picture. Have been really limiting this kind of stuff, so this was my big binge before next week. So yummy! Vel
You are going to do fine! You have a great outlook and motivation, great sense of humor! Don't take very much with you to the hospital, you won't need it. The first day will be the worst, but after that it will get so much better. I don't remember anything about the tube being removed. Dry mouth was my biggest complaint.
Thoughts and prayers!
MV Repair 4-25-12
Selma, you're surprised that this still seems "unreal"? Wait until the morning of surgery! I think that may have been one reason I was so calm...I felt like I was watching someone else make a movie or something. But...the good news is...when you wake up and realize IT'S OVER....nothing (and I mean nothing) feels better! You will be fine! You are in my thoughts and prayers.
Linda Dixon AVR 3/13/12
So pre-op is done and off our check list, and wow yeah it's really hitting home, this is really going to happen.....Other than getting stuck twice for the blood draw everything was pretty routine for them at least. Did they give you some special stuff to wash with the night before surgery?? They did for me I have to use it the night before and then again that morning, it smells like the hospital. I learned at least one good thing and that is they will pre-numb before starting the IV which is a major relief.
So today has been relaxing, went and bought some new slippers and pj's then got a pedicure with my daughter that was good quality time with her. Tomorrow my mom, 2 aunts and an uncle will be coming into town, this is just all too real now, no turning back....
I really hope I'm back on to send you off be good wishes but just in case you go Rock your surgery and we'll be back on soon enough to share our battle stories. I definitely will say a prayer for you!!!
Hey there Selma, looks like we're up to bat.....our waiting is finally about to be over and we can join the other success stories and cheer everyone else on, I know I'm taking comfort from that!! Glad to hear you told your mom what a relief off of you and she took it good....
I hope I'll be posting myself again before your surgery next Friday but regardless I pray your recovery is speedy and uneventful....I'm there with you my surgery friend and WE ARE GONNA ROCK!!!!
Take care and yeah tomorrow is post-op for us both....Cindy Pastrano
Wow Selma I am scheduled for May 11 too. Will get the chance to meet you.... Fortunate for you that you have your Mom....I lost my Mom back in 1992 Being an only daughter it has bee rough...But god has been mu source through it all. You where right Dr Adams is an creditably gracious man.
Selma, you have a great sense of humor and that is going to help you recover all the faster! I know it's kind of weird getting your living will done, but hey, it needed to be done anyway, right? I'm one week post op today, and feeling better every day. I'm hoping like you, that I'll have so much more energy once I'm fully recovered! Stay strong!
Gottcha, I got my anuersym from my Dad except mine is in a different spot. My daughter got the aortic stnosis from him and now her daughter of 8 years old has a bicupsed aortic valve. Arent fathers wonderful lol? Except my Dad had Wofe White Parkinson syndrome but I knew the heart problems ran in his family.
For the long haul
Hi Selma, Don't worry about family not being there, I'm sure they will be there in spirit, and you also have a family with HJV. You said you have been thinking a lot about your Dad. You know what I think? I think he is looking down on you and he is supporting you. Good luck to you.
For the long haul
Ya Selma. No worries on the Tube. You will be so out of it you'll probably not even remember the breathing tube. Besides, you'll have other things to keep your mind busy. Like how excruciatingly bored your gonna be just laying in bed letting people take care of you. Those nurses are incredible people. Funny about the fridge and cooler. That is what i am still doing. I have a small lunch cooler with a couple drinks in it to wet the old whistle, until I get up for a walk. LOL, and just wait for your first sneeze. Holy Moly....Ha, Ha.....You'll go Oh oh....Oh My God...and then....HOLY CRAP!, and then you'll laugh when you remember about how I told you about it. It really isn't funny but you'll still laugh....
Hi Selma, sounds like you are experiencing similar thoughts that I have, and all of us have had! One of my fears is the by-pass machine, I have heard stories about them....and getting the chest tubes removed. I'll make it through and so will you! Praying for you as you prepare for the week ahead!
I would say tell your mom she'd want to know and you are going to feel so much better once you've told her. I hope we can have coffee, holy smokes haven't even thought about that. And the fridge thing could be a problem I remember reading in Adam's book about fridge issues. And for that %$#.. breathing tube I really hope the others are right about that, but hey we have our plan.....We are getting close....
1.) Tell your mom. You will feel better.
2.) the fridge door might be a problem. I found all doors quite painful to open for awhile.
3.). Everything will work out. If it doesn't get done before your surgery, oh well. It will still be there when you feel good again.
4). The breathing tube isn't in that long, so don't sweat it. And it only takes about two seconds (literally) to get it out. It wasn't nearly as bad as I imagined it to be.
I have a friend who never told her mother she had breast cancer, but I do NOT think that's the way to go. Even at 90 I would be upset if one of my boys didn't tell me about a surgery.
My surgery was on a wed. and on Friday morning they let me have coffee. I did get a decaf, but it was still soooo good. They would have let me have regular, which seems odd to me. Then again, the girl across the hall from me (probably mid 30's) in the hospital had a valve repair also. One morning I heard them telling her that her blood sugar kept coming back high. About 15 minutes later the guy from food service came around and she ordered a sandwich on white bread, a coke, and a chocolate layer cake for lunch!!! Seriously! You have to be your own advocate nutritionally I guess.
I am extremely claustrophobic, and was worried about the breathing tube. I had told myself to stay calm and just go back to sleep if it was still in, but it really didn't bother me. Breathing felt normal, and I didn't want to move anyway. When I woke up I was so happy to see my husband and know it was over, that the various tubes weren't an issue.
You've got to tell your mother! Just do it...get it off your chest. My 87 yo mother has memory issues. I think sometimes she forgets I'm having surgery and then remembers when I bring it up.
You'll be surprised at how resourceful you can be when faced with a challenge and nothing but time to help figure it out. When I had wrist surgery I bought a jar of roasted red peppers and was all set to make myself a grilled cheese with peppers...until I realized I only had one hand and couldn't open the jar! I sat there and stared at it until I figured out I could hold it between my feet and open it with my good hand. You'll figure out a way around your fridge door if you stop and think instead of worry. You can do it!
Hi Selma, YES! I had coffee when they decided I could have liquids. That first day is still sort of fuzzy, so I can't remember exactly how long it was and it was probably decaff, but I want to say it was the morning after surgery. I was given some ice chips (CCF ice is crushed!!! yum, yum!!) and a popsickle sometime during the evening of surgery. Now...about the @@@####!!!###&&& breathing tube....it was my biggest fear!! Cut my chest open, split my sternum, STOP my heart...but do I really have to have a breathing tube??? Well... honestly, it was not bad. I do remember it being in, seems like a very short period of time, I think only about 2 hours after getting into ICU. It did not hurt, I could just "feel something". I was able to breathe, I had prepared myself to try to stay calm and I did. When they removed it, I just had to "cough it out" as they removed it. Even that cough did not hurt, I'm sure I was totally loaded up with drugs, lol. Anyway...just wanted to say it really isn't as bad as you are imagining. Some people aren't even aware of it at all. You almost have the hard part over with...the waiting. Take care and hang in there!
Linda THE Tiger, AVR 3/13/2012
Hi Selma, I didn't know there was another heart valve board. I loved your post. It articulated so well what I had been feeling. I've had people say to me, "You're my hero". My initial thought was, "Why? I didn't do anything special. My heart had to get fixed. I got it fixed." I guess what she was trying to say was that I had such a positive attitude by being so nonchalant. Then I'd remember, OMG, I'm having a serious surgery! Hope you're enjoying your week-end! Your time is coming so soon! Lily
Most just really don't know what to say. Truth is that it is a big deal but something modern medicine can do very efficiently and safely now. I did not know much about this stuff until I learned I would have to go thru it. Now it's over and I am essentially back to normal (6 months), it almost seems like it didn't happen...kind of hard to explain. I got asked about it a lot on the beach this week...my scar is a gentle reminder that it did happen.
Anyway...don't be too hard on them. I just say I am good for another 100,000 miles.
Surreal isn't it? I do not think a lot of people actually know what Open Heart Surgery is! They do not realize that the heart is stopped for this particular surgery! I was so ignorant about so much. Bob is scheduled close to yours. We will be sure to look you up. Maybe we can exchange emails or phone numbers.
Hi Selma. Great post. I feel the same way. Most of the time I have the thought in my head that this surgery no big deal, especially when I read about success rates at top hospitals, examples of 1-day hospital recoveries (http://www.heart-valve-surgery.com/heart-surgery-blog/2009/11/13/mitral-valve-repair-video-michael-gnatek/), and stories of patients who go on to do amazing things like climb Mt. Everest (http://www.heart-valve-surgery.com/heart-surgery-blog/2007/09/02/mountain-climbing-everest-after-heart-valve-replacement/). And then there are those moments in between when I remember how serious it is to have our hearts stopped, cut open, fixed and then restarted. Such a range of perspectives.
I'm a week behind you, and will be watching closely and cheering you on. Best of luck and thanks for putting down in writing what many of us are thinking!
Great post friend. I totally felt the same way & frankly never ever used the words. Ohs. Just having an oil & lube job is what I told folks But those I did tell the truth too went the same route asyourfriends. So same old same old.
While its not a walkin the park Ora pie e of cake it's just not that bad. There are so many worse things u can go thru
Anyway. You will be fine. Flying now to Hartford
Sure hope our path cross soon. Our mentalities are similar
Enjoy. Nancy f St Louis.
Ps. Afterwards folks just ask how r u ? Like you just got over the flu. Ha ha
I am a fellow HVJ have not written a note for awhile. You have a wonderful sense of humor. I too am 60. I so feel for you waiting. Sometimes time is good in retrospect.
Take care if I can help you in any way let me know. 3X open heart survivor and going strong!
Susan VandenBussche North Carolina