Jim Jones posted a note for Rebecca that says:
Rebecca
Wonderful, wonderful post! I am so pleased you are feeling better. You have had quite a journey. Rebecca, continue to heal. I am sure you will be able to transition back to work and over time have noticeably more energy than before surgery. Continue healing, my friend. Best.
Rebecca Schneider Jim, you are always so quick to respond and to be encouraging. Thank you for all you say. You are a a ... Read more
Rebecca Schneider Jim, you are always so quick to respond and to be encouraging. Thank you for all you say. You are a awesome. It's been nice making friends on this site. Friends from all over the world, literally. It does take a lot of time keeping up with everyone, though. I pray all goes well with you.
Rebecca
On October 16, 2013...
debbie j posted a note for Rebecca that says:
Hi Rebecca
glad you are doing well. I must have made my Dr. sound like a monster, He really was great. I got the impression he does not start any of his patients on rehab that early. Not sure why, but I will ask again next week. I did read Adams book and am going to again today. I went to a whole class on depression that his nurse gave and everything I have is normal but like she said I am the only one that can make me walk, breathe, etc. I am sure I will get thru this. I really appreciate your concern. This surgeon who I only met 2 times before surgery knew how important a small incision meant to me and his nurse said he has not done one that size since she can remember for my problem. That is why surgery took so long. I asked why me and she said he saw on my face how important and scared I was. Thanks again stay healthy
Rebecca Schneider Debbie, my mama role kicked in. Sorry if it was a bit too much. I just wanted you to know and to feel ... Read more
Rebecca Schneider Debbie, my mama role kicked in. Sorry if it was a bit too much. I just wanted you to know and to feel better. You are dealing with a lot post op.
On October 14, 2013...
Jim Jones posted a note for Rebecca that says:
Rebecca
You are certainly getting it done. Congratulations! I also see you folks do rain big in Texas! So glad you are feeling better. Keep 'er up. Best
On October 14, 2013...
DebbieJ posted a note for Rebecca that says:
thanks Rebecca. I remember when you first when in and now sounds like you are doing great. I feel like I am on a emotional roller-coaster. I just moved here a few months ago so my new job is on hold (if they are really even holding it). I ant spend any time with the babies (reason I moved here) and my husband has to get back to work in another state until he retires in Dec. I am a emotional wreck. Didn't think this would happen. Thanks for all your support
On October 13, 2013...
jeff o posted a note for Rebecca that says:
At 9-10 weeks I can just barely sleep on my side...I still get so achy. Sorry to hear about your breathing problems, I had a collapsed lung after surgery and know how terrible it is not to be able to catch your breath. Go sure and steady on the rehab, take good care of yourself.
Rebecca Schneider Yeah, Jeff, I don't know what it is. I can't sleep leaning to the left cause my heart pounds so hard, ... Read more
Rebecca Schneider Yeah, Jeff, I don't know what it is. I can't sleep leaning to the left cause my heart pounds so hard, it's annoying. I have been able to be almost on my right side though. Just not completely because my shoulder will get sore. Stuff! I am so much better though. I almost forgot yesterday and today that I am post op open heart surgery.
On October 9, 2013...
Deb Ziegler posted a note for Rebecca that says:
You can sleep on your side whenever it is comfortable for you to do so. That varies a lot with each individual. It took me a good three months to get where I could sleep on my side comfortably, but others on here have done it at three weeks out.
Good luck with work and rehab!
On October 9, 2013...
debbie j posted a note for Rebecca that says:
Hi Rebecca
Are we not suppose to be sleeping on our side? I have been, hope I didn't screw anything up. I also have been stretching a lot and it feels so good after the first initial stretch. You are at the point that I cant wait to get too. Keep getting stronger
Rebecca Schneider Debbie, I was told to sleep on my back but not how long. At rehab they consider 6 weeks the end of st ... Read more
Rebecca Schneider Debbie, I was told to sleep on my back but not how long. At rehab they consider 6 weeks the end of sternal precautions. They are giving me all sorts of exercises for upper body strength. So maybe now it's ok.
Before you know it you will be here, too!
On October 7, 2013...
jeff o posted a note for Rebecca that says:
My job is not physical. I'm an engineer, so lots of walking, looking and desk work. I'm afraid I'm discouraging you, sorry. But I do want to be honest. Hopefully you are in a supportive environment and others will be able to help you for a while. But of course you were probably in much better physical shape than me going into surgery since I'm an office geek.
Rebecca Schneider I'm a nurse but was pretty run down by surgery time. So not in great shape at 62. I just have to see ... Read more
Rebecca Schneider I'm a nurse but was pretty run down by surgery time. So not in great shape at 62. I just have to see what happens. I appreciate info from everyone. No apologies necessary.
On October 7, 2013...
jeff o posted a note for Rebecca that says:
Rebecca, I understand your concerns with returning to work, this has been one of the hardest parts of my whole experience. I was on 4 hour days at 6 weeks after surgery. I was surprised how tired I got and how tough it was. I've been on 6 hours days since week 8 and will go to 8 hours tomorrow. Work is still wearing me out, I can't believe it. So it's been work and rest.
Rebecca Schneider Jeff, it will be between 9 and 10 weeks post-op when I return to work. Maybe I'll be ready. My job is ... Read more
Rebecca Schneider Jeff, it will be between 9 and 10 weeks post-op when I return to work. Maybe I'll be ready. My job is very physical......pushing stretchers, transferring patients, transport monitors. But maybe I will have help for a little while. I have to do the best I can right now. I just wonder what happens to people who are on FMLA and have cancer and chemo and all that. 12 weeks is nothing!
Thanks for your concern.
On October 7, 2013...
Gabi posted a note for Rebecca that says:
Really Rebecca? 4 weeks! That seems too harsh after what you have been through! Anyway, you and your dr's know what you can and cant do workwise. Your health is so much more important than your job! I am very concerned for you and wish I could take this worry from your shoulders.
Love G x
Rebecca Schneider Gabi, it will 9-10 weeks post op when I return to work. Maybe I will be ready.....or almost. At some ... Read more
Rebecca Schneider Gabi, it will 9-10 weeks post op when I return to work. Maybe I will be ready.....or almost. At some point I have to speak with my manager and see what he says or have HR and Occupational health speak with him. I hate the changes to FMLA. Has to be a killer for someone with cancer. No, we shouldn't have to worry. Though, my husband says if it happens and I am out of a job, we will do the best we can. Bless him.
On October 7, 2013...
Jean cook posted a note for Rebecca that says:
Rebecca
I forgot if you had a valve replaced or what. I had a mitral valve replaced 6 mo ago,with a cow valve. I was sleeping on my side while I was still in the hospital. My nurses told me if I could get on my side, I could sleep on my side. Hope that helps you. I had 12 weeks of rehab. I was able to retire. I feel bad for you that they are making you go back to work so soon.
Rebecca Schneider Jean, thanks for the info. Yeah, it stinks. The words I heard were "if an employee does not return to ... Read more
Rebecca Schneider Jean, thanks for the info. Yeah, it stinks. The words I heard were "if an employee does not return to work after completion of FMLA, that employee is considered resigned from their position and may be terminated." I do not think this is negotiable. Will they be accommodating, I don't know.
On October 6, 2013...
Debbie Cross posted a note for Rebecca that says:
Rebecca, you sound so good.I am happy to hear you're doing well.Glad it's behind you.Try not to overdo !
On October 5, 2013...
jeff o posted a note for Rebecca that says:
Rebecca, it is hard to slow down. Just don't hurt you sternum or incision. Good to read you're on the go.
On October 5, 2013...
Jim Jones posted a note for Rebecca that says:
Ah! Rebecca, it is all about pace I guess! I am! However, quite impressed how much you did in one day though! Tell me, was it the world's best???
Glad you are making real progress. I hope you have a good weekend. Best.
Rebecca Schneider Ron says the lasagna was good. World's greatest lasagna, I don't know. Pace is important, I am learni ... Read more
Rebecca Schneider Ron says the lasagna was good. World's greatest lasagna, I don't know. Pace is important, I am learning, the hard way.
I am fixing to take my second nap!
Wondering just how I am supposed to be back at work full time in less than 4 weeks. Must be some great improvement that takes place these next weeks. Rebecca
On October 5, 2013...
jeff o posted a note for Rebecca that says:
Hi Rebecca, I did the same at about 4 weeks post surgery, I decided I was feeling pretty good. So I promptly over did things for 1/2 a day. By the end of that day I was again sore, achy and tired like I was a couple of weeks before. Spent 2-1/2 days back on my vicodin and resting until I felt better. My doctor's nurse told me most everyone does the same thing.
Rebecca Schneider Jeff, WHY didn't I remember your warning? That's me though. I just push and push and push till I can' ... Read more
Rebecca Schneider Jeff, WHY didn't I remember your warning? That's me though. I just push and push and push till I can't go anymore. I am on my second nap today.
On September 30, 2013...
Jim Jones posted a note for Rebecca that says:
Rebecca
This is all good news. Congratulations! I hope this week is your best week yet. Best.
On September 27, 2013...
Aubrey posted a note for Rebecca that says:
I too can tell the difference in the third to fourth week of recovery. For me, the world seems brighter and I feel younger, if that makes sense. Hope your getting the same benefit. Keep doing well and walking and doing all the right things. Very glad to hear that it continues to get better.
Rebecca Schneider Yes, I do see a difference. Hard to accept that there are still restrictions. Walking is the key. Gla ... Read more
Rebecca Schneider Yes, I do see a difference. Hard to accept that there are still restrictions. Walking is the key. Glad u are doing so well, too. Can u believe its already 4 weeks?
On September 27, 2013...
Gabi posted a note for Rebecca that says:
Dear Rebecca,
I can tell you are struggling but you keep on GOING and I admire you for that! Just remember to be gentle on yourself and balance the rehab with the resting. I feel guilty when I rest sometimes I think it is our conditioning that we have to be 'doing' something ALL the time. Well we are DOING we are HEALING and that is major!! Sending love to you.
Rebecca Schneider Oh, Gabi, thanks for that. I struggle but I have no choice but to keep going forward. You, too. Keep ... Read more
Rebecca Schneider Oh, Gabi, thanks for that. I struggle but I have no choice but to keep going forward. You, too. Keep up the good work.
On September 24, 2013...
Ernie A.S. posted a note for Rebecca that says:
Exercise---the more you do it the better you get.
Keep on healing.
Rebecca Schneider Thanks, Ernie. I am learning that. Trying harder. Rehab 3 x week. Hope you are doing well, still.
On September 22, 2013...
Laura West posted a note for Rebecca that says:
Hey, I emailed you my email address, but something didn't seem right, so here it is just in case, ll.west@hotmail.com. I'm here if you need me. No, I was not a part of this journal, I didn't come across it until I connected with you. Wish I had found it, I think it would have helped. Look forward to hearing from you. I wil keep checking back, I do have small group at church tonight but will check as soon as possible.
On September 22, 2013...
jeff o posted a note for Rebecca that says:
I could never get hooked on the oxy pain pills since I would never go to the bathroom again and die in a couple of weeks. Yeah the pain versus constipation issue was a problem for me too. At 3-4 weeks my family was walking the dog and walking me every day. I am somewhat better behaved than the dog and they didn't take a plastic bag with them on my walks. Walked in Home Depot, Walmart, Fleetfarm, Sam's Club, etc on hot days in the neighborhood on cooler days.
Rebecca Schneider You're so funny. But that's how I feel, too. Pain, no pain, pooping, not pooping. Big decisions.
Hus ... Read more
Rebecca Schneider You're so funny. But that's how I feel, too. Pain, no pain, pooping, not pooping. Big decisions.
Husband going to take me to the mall to walk in a little while. Distractions are good. Walking good, too.
Thanks for the humor! We don't laugh enough.
On September 21, 2013...
Laura West posted a note for Rebecca that says:
Good morning! Glad you are doing better. No, I did not have tightness in my abdomen. I did have some so called difficulty breathing, not that it was difficult but I was very aware of my breathing if that makes sense. It was strange, it wouldnt be all of the time, just random. Couldnt tie it to anything i was doing either, just very aware of every breath and then it would go away.I had atelectasis in my R lung base for a while, it eventually cleared thanks to the ole incentive spirometer and exercise. They also did follow up X-rays. About work, when it was time to go back, she wrote an order that I could return but I had to be allowed to do my rehab. My employer was fine with that. It was more difficult for me due to I had a 45 min drive to where I could have my rehab and the hours of rehab. You might work that angle with your employer. I too got pressure about returning from my boss, and to think they should understand being the profession we are in! Gotta laugh! Don't let them pressure you! It will come fast enough, you have to do what's best for you! I need to run pick up my son, get back at ya later! Have a great day!
Rebecca Schneider Laura, tried a patient search but could not find you. Email me beccamgo1919@yahoo.com when you have t ... Read more
Rebecca Schneider Laura, tried a patient search but could not find you. Email me beccamgo1919@yahoo.com when you have time. I want to talk about something. If that's ok?
On September 20, 2013...
Laura West posted a note for Rebecca that says:
Hello! That's just how rehab is! It really wipes you out at first, but you have to hang with it and keep going. It will come! In a week or two you will begin to see some improvement! It really is slow and steady. Also, I went through the entire program. I really think that is important for a number of reasons. Several people in my group went for a while then stopped. Stick with it, it will seem like its same old same old but you're gaining strength and youre establishing a habit of exercise which as heart patients we must change our lifestyle to include regular exercise. I'm being real honest here, still go even if you're really wiped out. Let the rehab staff know youre wiped and just back off, don't go at it as hard but keep going! I'm really not trying to be hard hearted, I just know how it worked for me and I observed some people in my group that didn't hang with it regularly. Especially here in the beginning, you will be tuckered out at first. For a couple 2-3 weeks all I did was go to rehab and rest. You can do it girl! Don't get discouraged, some days you will feel like you can't put one foota in front of the other and the next day bam you're doing well. what you're going through is very normal! Hugs friend!
Rebecca Schneider Hi Laura, glad to still hear from you! I didn't go today, but I did go yesterday. So I felt it was ok ... Read more
Rebecca Schneider Hi Laura, glad to still hear from you! I didn't go today, but I did go yesterday. So I felt it was ok to have a day of rest in between.
When I met my husband, I had been working with a trainer, had lost fat and gained muscles and was 25 pounds thinner. Of course I had tremendous burning in my chest each time I worked out, but the cardiologist I had then ne'er found a reason for the burning. It got so my work days were harder and harder and I had no energy to go to the gym. Little did I know what was going on.
All this to say, it feels good to get back into working out. Of course I always hated Cardio and loved strength training. I want to stick with this for the 12 weeks and hopefully my job will work with me on that. They are already calling wondering if I have a return to work date!!!
I just wondered if it was something that kicked my butt and it was normal. Seems like I just nap and rest all afternoon. What I am learning from the rehab folks is that I have been doing things already that I shouldn't .......stretching up and putting things o shelves or retrieving things. I know about the 10 lb restrictions.
So hopefully I haven't done some damage.
The swelling is almost under control. The appetite is back. Can't eat a whole meal because I still feel bloated.
Tell me did you have a tightness in your abdomen, like muscles contracting ? Often it just feels so tight and difficult to breathe.
Keep talking to me. I need your input.
Thanks, girlfriend.
On September 20, 2013...
Aubrey posted a note for Rebecca that says:
Keep up the progress. It is all about slow and steady. Yes, some days are better than others and I hope you keep getting better. I delayed my rehab due to the 2nd chest opening only being 2 1/2 weeks ago so I am being a little conservative. Maybe too protective of the chest but better safe than sorry. Don't feel bad, take it one day at a time and it should continue to improve over time.
Rebecca Schneider Aubrey, thanks for the encouragement. I need it. So glad you are progressing so well. Can you belie ... Read more
Rebecca Schneider Aubrey, thanks for the encouragement. I need it. So glad you are progressing so well. Can you believe we have come so far?
On September 20, 2013...
Cindy posted a note for Rebecca that says:
Hi Rebecca. I feel great one day and hammered the next. Maybe we need to moderate our activities but its had not to do stuff when you feel good. Love hearing about your rehab. Very inspiring.
So tired today. Hope you're having a great day.
Rebecca Schneider Was so wiped out yesterday, didn't go to rehab today. Did a risk walk around the block, the went with ... Read more
Rebecca Schneider Was so wiped out yesterday, didn't go to rehab today. Did a risk walk around the block, the went with my husband to his volunteer job. After that we went for catfish. I was so hungry for catfish, coleslaw, and hush puppies . Ended up quitting half way through. I get full so easily these days.
Get some rest. Thanks for letting me know I'm not unusual with my ups and downs In energy levels.
On September 19, 2013...
Ernie A.S. posted a note for Rebecca that says:
If you haven't worked out physically in awhile, the first week is usually hard and it feels like it's doing more harm than good. But after that you get more energy and it feels really good to work out. Give it time. You're an impatient patient. :)
On September 18, 2013...
Cheryl Walter posted a note for Rebecca that says:
I have been monitoring my bicuspid aortic valve for over 10 years, knowing the surgery would eventually come. I thought it was going to be scheduled last month, but the last echo showed little or no change, so it has been postponed another 6 months. I have plenty to do to keep me busy. I decided to go ahead and open my own store 3 months ago and brought in an old friend to help me run it, especially when I am recuperating. I was tired of putting my life on hold. I know everyone's medical situations are not exactly the same, but watching your process after the surgery is helping me to prepare for my own. I don't mind hearing all of the details of your recovery, as long as you are willing to share them. You inspire me, and I'm so happy to see you constantly improving!
On September 18, 2013...
jeff o posted a note for Rebecca that says:
Rebecca as you start to feel better be careful not to do nothing stupid...like I did.
At week 4 since I was feeling pretty good I decided to see what would happen if I tried to lift something really heavy. Definitely hurt myself.... Gees then I had to call my doctor and tell them how dumb I was.....
Rebecca Schneider Jeff, I know. I have to keep telling myself to be careful. The pain in chest, shoulders and back keep ... Read more
Rebecca Schneider Jeff, I know. I have to keep telling myself to be careful. The pain in chest, shoulders and back keep reminding me. New pain in shoulder blades and neck. They told me to do gentle stretches, but that's not real easy.
Just keep reminding me! Thanks
On September 18, 2013...
Cheryl Walter posted a note for Rebecca that says:
I have been reading all of your journal posts and have been cheering for you. You are so brave. This has really been helping me get prepared for my own surgery, probably in February. I will continue to keep you in my prayers!
Rebecca Schneider Cheryl, thank you for the kind words. I sometimes think I am saying too much.......maybe making other ... Read more
Rebecca Schneider Cheryl, thank you for the kind words. I sometimes think I am saying too much.......maybe making others feel bad because they aren't doing as well. But I am excited about the progress......have to keep reminding self to take it easy.
When in February is your surgery? That's a long wait. Try and stay busy and doing fun things.
Take care. Keep me posted.
On September 18, 2013...
Jim Jones posted a note for Rebecca that says:
Hey Rebecca:
Great job with cardiac rehab! So glad you are seeing some progress and feeling a bit better. Keep up the recovery! Best.
Rebecca Schneider Thanks, Jim. I so appreciate the good words. It's awesome how much better I feel this week as oppos ... Read more
Rebecca Schneider Thanks, Jim. I so appreciate the good words. It's awesome how much better I feel this week as opposed to last week. Oh, I still need my naps.....tire easily.....but feeling more normal.
On September 17, 2013...
Cindy posted a note for Rebecca that says:
Wow. Cardiac rehab. Way to go!! Are you exhausted? I'll start in 2weeks. I'm excited to do it. Sorry that you have to think/worry about work. Just getting better takes enough of your mental energy. Ill keep you in my prayers that you have the time you need! Are you still on pain meds? If I just do Tylenol I feel like a truck ran over me and I don't have the energy to walk. How are you doing?
Kudos to your husband for spoiling you!!!
Rebecca Schneider I still take the pain meds, half the dose, but I take them as I need. Sometimes during the night I ne ... Read more
Rebecca Schneider I still take the pain meds, half the dose, but I take them as I need. Sometimes during the night I need it. Ibuprofen just doesn't work for this. I take am advanced probiotic twice a day to help with the constipation that comes from the pain meds.
Slept the last three nights in our bed. Wake up sore because I don't move around much, but its better than the couch. Today has been a good day. Probably resting tomorrow......if things follow the usual course.
I am not going to worry much about the job and the time off. My cardiologist is calling the shots and he will give me the release when he thinks I am ready.
I'm afraid to drive, though, I haven't been given permission to do it yet. It would be easier on my husband if he didn't have to run me around to rehab 3 times a week. But just scared to drive.
How about you? Are you ready to drive?
On September 17, 2013...
Laura West posted a note for Rebecca that says:
Congratulations on the stairs! Seems crazy to view that as progression, since it's usually such a mundane task but it is huge for all of us! They wouldn't let me climb stairs for a week and then I had to have someone behind me going up and someone in front going down. Had to put one foot down, bring the other up slowly. I'll admit that first couple of times were pretty slow going! So curious how your rehab went today, sure you did well, bet you're tired though! So you work in a cath lab? Bet you didn't think you'd be on the other end of things. It's weird how things like that work. I do home health nursing, in the spring of 2012 I starting seeing a pt. who had open heart bypass in Indy and his doc was Dr. Robison. Little did I know that his surgeon would soon be
my surgeon. Freaky! Did your cardiologist say when you'd be getting the keys to the VW back? You've got something to look forward to, getting the keys to the new car. You'll be out on the town soon! Well gotta run, fixing a meal for a family in our church, they just had a new baby! It's the least I can do, our church family was amazing and helped us with so many meals-my husband doesn't cook! Have a great evening!
Rebecca Schneider I posted today about the rehab this morning. Guess its not showing up yet.
On September 16, 2013...
Laura West posted a note for Rebecca that says:
Sorry that you didn't get the news you wanted with regards to returning to work. You will understand better when you reach tht point. Still gotta take it slow but steady. The best thing is youre on the the other side of surgery and it's going to get better! Wasn't a good day for me today. While I was visiting a patient today she received a phone call and was informed by her sister that her cardiologist resigned this morning. Her cardiologist is also mine and my fathers! I was devastated, cried off and on all afternoon! I am so thankful that my valve problem cropped up when it did and that God allowed me to get it taken care of at that time. His way is always perfect, His time is always on time! We just have to be patient and wait on Him! Did your doc tell you when you can drive? Rehab will be here soon, tht will occupy some time for you too! Have a great evening! Hugs!
Rebecca Schneider Laura, Truthfully I am not In a hurry to get back to work. Just need to still have a job....at least ... Read more
Rebecca Schneider Laura, Truthfully I am not In a hurry to get back to work. Just need to still have a job....at least until I sell my house. I am also helping my daughter until she gets a good paycheck. My husband still works full time but he loves his job. I am sort of burned out in mine. Though they need me to get back and I will do my best to be back at 150%, which is par for me. I always give and give. Both nurses left there are new and inexperienced in the Cath lab. So I am sure they are struggling. BUT I cannot do anything from here. My job now is to go to rehab and get healed up. However long it takes and trust the rest to God.
Oh man, I am so thankful for my cardiologist. If he hadn't walked in when he did and suggest an echo, I would've been in trouble before they found it.
Ok, we'll first day of rehab at 8 in the morning. By the way, I walked up and down one flight of stairs this afternoon. Not bad, huh?
On September 15, 2013...
Cindy posted a note for Rebecca that says:
Hi Rebecca. It feels good to be useful, doesn't it? So hard not to feel lazy but it really is a big desl what your body went through!!! Great to hear you're up and about and water weight is becoming less of a problem. Hope your Dr apptmt goes well. Ill keep my fingers crossed for you! All the best to you!!!
Rebecca Schneider Thanks, Cindy. Still not sleeping well. Naps during the day help. I miss going to church. Maybe next ... Read more
Rebecca Schneider Thanks, Cindy. Still not sleeping well. Naps during the day help. I miss going to church. Maybe next Sunday. Sounds like you are doing well. Just over 2 weeks now. Seems so long but then I feel the pain or the lack of sleep and remember its not that long. Keep up the good work!
On September 15, 2013...
Susan Smith posted a note for Rebecca that says:
You are doing great with the loss of 11 pounds of fluid. Keep going the goal is just ahead. I am in the weight losing process myself, except mine is not water but regular pounds. I have been stuck at 29 pounds and just made a break through of 32 pounds gone. I am cheering you on Rebecca.
Rebecca Schneider Three cheers for you, Susan. Losing weight is so hard. When I met my husband I had been working with ... Read more
Rebecca Schneider Three cheers for you, Susan. Losing weight is so hard. When I met my husband I had been working with trainers for more than 3 years and had lost about 50 pounds. Then we met. He is a gourmet cook and loves to use real butter, etc in his cooking. Nothing comes in packages or is frozen. So I began putting on weight. He would ask if I was going to the gym and I would say I am too tired. Little did we know that valve was becoming severely stenotic, which explains my extreme fatigue. I gained 15 pounds. We had just purchase an elliptical so I could work out at home when we found out about the valve. So that stopped that. I want to get back to where I was......one of these days. Good luck In your efforts!
On September 15, 2013...
Laura West posted a note for Rebecca that says:
Woo Hoo! 11 pounds! That's great! Happy to hear that. Your husband is right, heart surgery is a big deal! So listen to him. You'll get there! Good luck at the doctor tomorrow, can't wait to hear the update. Can't talk long, gotta get ready for church! Hope you have a great day!
Rebecca Schneider Thanks, Laura. Hope you have an awesome to eat church. One of these days I'll be back.
Rebecca Schneider I hate this auto fill thing. I meant an awesome day at church! Oh brother. I need to spell check.
On September 15, 2013...
Debbie Cross posted a note for Rebecca that says:
Hello Rebecca, it is good to hear about your progress. I can certainly understand your feelings about your daughter moving.My daughter is 28 and we pray for the same things.She has never lived more than 30 minutes away,and I know her moving would be difficult.Will keep you in my prayers,Debbie
Rebecca Schneider Oh Debbie, thank you for your prayers. It has been a hard week. My daughter has moved more than 200 m ... Read more
Rebecca Schneider Oh Debbie, thank you for your prayers. It has been a hard week. My daughter has moved more than 200 miles away. She called me last night. The apartments are older, not well lighted at night. She was really scared to be there. there are roaches. She freaks at the sight of one. And the movers forgot her bed frame. So hopefully she didn't have a roach crawl on her while she slept, if she ever went to sleep. I woke up a lot and prayed for her during the night.
On September 14, 2013...
Aubrey posted a note for Rebecca that says:
We are pretty close Rebecca, keep up the progress. It is hard for me to keep it slow, in the mornings I feel good enough to want to do more but we have to resist and stay on the slow and steady train. Keep it up. Taking a day off can be cool. Lets you get a good day in tomorrow.
Rebecca Schneider Thanks, Aubrey. I am trying so hard to heed everyone's advice. It is difficult when you wake up feeli ... Read more
Rebecca Schneider Thanks, Aubrey. I am trying so hard to heed everyone's advice. It is difficult when you wake up feeling strong and then after just a little work, you feel like you've been hit by a truck. I think my husband is frustrated with me because he sees and knows and wonders why I can't .
On September 14, 2013...
jeff o posted a note for Rebecca that says:
Taking a day off is a great idea. I'm about 3 weeks ahead of you. For me week 3 to 4 post surgery was a big improvement in how I felt. Hang in there and keep getting better.
Rebecca Schneider Jeff, it would be good if I could get it into my head that taking a whole day off is Ok. I am trying. ... Read more
Rebecca Schneider Jeff, it would be good if I could get it into my head that taking a whole day off is Ok. I am trying. I am just not very good at sitting still for long periods. I feel like I should be doing something.
On September 14, 2013...
Jim Jones posted a note for Rebecca that says:
Rebecca
You sure have earned some rest today. Your last few days have been busy. Keep up your healing!
All the best.
Laura West posted a note for Rebecca that says:
I'm glad you had a good time with your family. I bet it was exhausting! Perhaps extra rest should be the plan of attack for today! I laughed out loud when I read about you dropping your glass of ice! Even though I have never met you I could see the whole thing in my mind! Sleeping on the couch was also good for my husband because he still had to go to work, I didn't want to keep him up with my restless nights either. My couch was my good friend too! I count it a privilege to communicate with you. If I can help someone else get through then that's a blessing. I just know how much my friend from rehab helped me and I would like to return that. Well, I gotta hit the shower, busy morning with my youngest son, husbands gone today too. I think housework and a date with my treadmill are the plans for the afternoon. The cleaning fairy didn't show up again this week! Should she drop by I will send her your way! As for you, get those feet up and rest! Have a great day!
Rebecca Schneider Laura, yes I am tired today. Did go for that walk at the grocery store. Napping in the recliner. The ... Read more
Rebecca Schneider Laura, yes I am tired today. Did go for that walk at the grocery store. Napping in the recliner. The recliner gets uncomfortable after awhile though. My bony butt gets numb.
I need to find things to occupy my time when resting though. I planned to work on my Spanish, crocheting (learn it again), read books. My focus is off though. I was on Meds for focus but stopped them when my cardiologist wanted my heart rate to slow down.
I am so so tired. Almost too tired to type. Talk later. Again thank you so much for helping me.
On September 12, 2013...
Laura West posted a note for Rebecca that says:
Don't worry about rehab. I assume yours will be heart monitored, mine was. They were very good, they watched me very close. We did some stretching exercises then we were on the treadmill for 20 minutes. They would come to each of us and ask us how we were doing, any problems etc. my friend had some issues one day that they noted on the monitor and they came right away to check on her. It was definitely work at your own pace. We also had to meet with the dietician, I would really recommend that as well. She gave me some very helpful suggestions! Even gave me list of some low/no sodium brands to get at the grocery store. I will have to tell you I am still on Lasix and potassium. When I went back for my one year check with cardiologist she cut me back to every other day in hopes that in 6 months she would take me off of it. It has gone pretty good, there have been a couple of times I have had to take it every day. She told me to use my judgement. My surgery was Aug 23 but I wasn't allowed to go back to work until Jan 3. Don't be discouraged by that, this was mostly because my rehab got started so late, I wasn't allowed to drive for 6 weeks. My 2 biggest problems were turning to look behind when backing up, it pulled. The other was the seatbelt cut across my incision. That still bothers me sometimes. I don't have a stick shift so can't help you there. One other thing that bothers is going on a bumpy road, it kind of jerks and twists and it can be uncomfortable.you must know too I am a large busted girl so that contributes to it as well! As for sleeping arrangements... I slept on the couch for a couple of months. Mostly because that's where I could get comfortable and I was still waking up through the night. I left the tvon and just watched some if I woke up then tried to go back to sleep. The whole hospital routine at night really messed my sleep routine up. I think you just have to find where you are most comfortable and where you can rest the best and go with it, it's only short term and you need the rest to heal well. I don't know what your physician told you about walking, mine wanted me to walk inside 4-6 x a day, starting at 5 minutes each time
then increase the next day to 6 minutes etc. keep working up. I would set the timer on my stove and just lap the downstairs floor. I couldn't tolerate going outside at first, too hot. Well gonna hit the hay for tonight! Rest well!
Rebecca Schneider Laura, it's been a good day. Exhausting, but good. Still fighting the swelling. I haven't gone out an ... Read more
Rebecca Schneider Laura, it's been a good day. Exhausting, but good. Still fighting the swelling. I haven't gone out and specifically walked but have been busy in the house. I am looking forward to rehab and getting direction. I hope I don't get fussed at because I am. It where they think I should be. We will see.
Thank you again for keeping up with me. Feels like I have made a new friend.
Going to sleep now...on my trusty couch. I need to let my husband sleep. I keep falling asleep with my glass of ice in my hand and spilling it all over the bed. Happened again last night.
On September 12, 2013...
Leticia posted a note for Rebecca that says:
Hi Rebacca, just wanted to reach out to you and thank you for the doctor information. I have been following your journal and praying for your quick recovery.
We have a very old dog that has alot of medical issues and we are at the point of making a tough decision as well. It is so hard.
Just want to remind you to give yourself the time to heal and rest. Enjoy your family tomorrow. Your are on the other side. What a blessing! God is Big and all will work out.
Leticia
Rebecca Schneider Leticia, ,so good to hear from you. Did you say it's wait and see right now.....no surgery planned? I ... Read more
Rebecca Schneider Leticia, ,so good to hear from you. Did you say it's wait and see right now.....no surgery planned? I know I need to go slow. I have trouble looking at the dirty house and sitting still. I had a friend here for a few days and I really really want to go upstairs and see what needs to be clean. I am, however, afraid it may be too much and if I started to fall, it would be awful!
Yes, so looking forward to the family gathering tomorrow. Will be the last time for awhile. Sad.
Keep in touch. I will be glad to answer questions if I can. I will probably go back to work in about 6 weeks. Not really wanting to. It's slow now, so it's good I am off. Otherwise I might have to go home early without pay.
Take care. Thank you so much for your prayers.
Do you have a church to attend in Austin?
Rebecca S
On September 12, 2013...
Laura West posted a note for Rebecca that says:
I hope you don't think I'm nagging! I fully understand! I had to develop the attitude, it is what it is. There were things I had to let go of and let my husband and my mom help me with. People understand that you had a very major surgery. Don't put the pressure on yourself. When you are tired you need to rest, your body is telling you to. I know, nights were bad for me too. It was a combination of several things. The hospital routine at night, you know, VS every4 hours, getting up to the bathroom in between, noise from the others on the unit etc. Then I now think subconsciously,when I came home, I had a little fear of something happening and I was now 2 hours away from the surgeon. Then it really was difficult to find a comfortable position to sleep. Just all kinds of things keeping you from good rest. You're probably thinking about missing your daughter too even though it's a happy thing. Just don't think you're a being weak if you need to rest. Rehab will help you majorly!!! I am very glad you are getting in so soon. My surgery was Aug 23 but they didn't have an opening in rehab until Nov 6. That was a real downer for me. I will tell you rehab will make you tired, pace yourself there too. I went 3x per week and it took me a couple of weeks but all of a sudden it seemed to kick in and I felt stronger. Don't fuss about your house,I know, I like a very clean house too, it will be ok. Enjoy the time with your family and the new beau tomorrow, don't feel bad if you need to rest, they love you and they understand! Let me throw this out, if you would like to talk, I would be willing to send you my phone number. That's up to you. I sure hope you know that I care, and if I can encourage you then I'm here. I met a lady in rehab that also was a nurse and had a valve surgery, she was a huge encouragement to me. She was older and her surgery was before mine so she helped me walk through it all. We actually still meet once a month for lunch. Enough for now! Hope you get some good rest tonight and that your time with family tomorrow is special!
Rebecca Schneider Laura, I will try. I am conscious of feeling like a slug but sometimes I just can't get the umph to d ... Read more
Rebecca Schneider Laura, I will try. I am conscious of feeling like a slug but sometimes I just can't get the umph to do much walking. A big day tomorrow, yes. I am going to miss my daughter. My son lives here with my granddaughter but I don't see them much.
It has been such a blessing to have you to talk to. The friends I have made on this site are amazing. I am trying to keep up but it's hard.
I still have some swelling in my feet, but its not going back to what it was yesterday. Maybe I am oer the hump. I'd like to stop the Lasix or cut back. That darn potassium is so hard to swallow. I almost needed the Heimlich yesterday.
My sweet husband has worked so hard but he's not the housekeeper. He does the cooking (gourmet) and the yard and garden and the litter boxes. I do the cleaning and laundry. He says I am a hard worker. I took care of him through 3 knee surgeries, but it didn't seem I worked as hard as he did.
I am a bit anxious about rehab. Don't know how much I can do or how much they will push. I need to be able to go back to work. I want to go part time if I can et my house sold. It will be a couple months before I can start working on it though.
How was it the first time you drove the car? Ours are both stick shift and I am afraid I will pull or tear something with all that shifting.
I can't wear a lead apron or move stretchers, etc before 8 weeks. Maybe I will wait a bit longer before driving. They told me 3 weeks. How was it for you? And if it takes so long for the sternum to heal, isn't there a concern of doing damage?
Going to try the bed again. Slept on couch last night.
Talk to you later . Thank you again!
On September 12, 2013...
Laura West posted a note for Rebecca that says:
I think you still need to take it easy. Don't rush it, it will come. I remember several times when I was out I felt really lightheaded and weak. You just can't rush it. It's only been 2weeks and it was a major surgery. I really had to pace myself. I think if you try to do too much you're going to get discouraged when you have problems like that. Slow and steady with plenty of rest in between. This is especially difficult with your fluid retention. Hang in there! Chin up!
Rebecca Schneider Thanks, Laura. Finding a balance is hard. I rest up, feel pretty good and start doing some things. I ... Read more
Rebecca Schneider Thanks, Laura. Finding a balance is hard. I rest up, feel pretty good and start doing some things. I start rehab next Tuesday. Maybe they will help me figure a balance. I feel guilty lying around so much but I am tired and sleepy. The nights are my enemies. Less than six hours sleep maybe and waking hourly to crunch on ice or something to hydrate my mouth.
I am alone this afternoon and evening and yes it will be hard to leave things alone. My house really needs to be cleaned. I know. I know. Tomorrow will be busy with my kids and me meeting the new beau.
Keep fussing as much I need, please. I will try to listen.
On September 12, 2013...
Jim Jones posted a note for Rebecca that says:
Rebecca
It is amazing that it has only been 2 weeks for you. I hope you have a good day of recovery. All the best.
On September 11, 2013...
Bill Bard posted a note for Rebecca that says:
Your thoughts to my situation are appreciated and know that I am sending nothing but goodness your way! That swelling does seem to go with the territory. Have they talked about lymphedema therapy at all? I have done some of it with my PT people and it did help get rid of some edema.
On September 11, 2013...
Aubrey posted a note for Rebecca that says:
Congratulations on your progress. I can absolutely share your enthusiasm on feeling better. The pain meds are beginning to ramp down. Keep up the good work and do not do it over. Slow and steady progress.
On September 11, 2013...
Laura West posted a note for Rebecca that says:
Awe! Very sorry you and your husband had to loose your spouses like that. That had to be tough! I know I thought about and freaked out over the procedure as well, we know all to well about potential complications and outcomes.while I wish I didn't have to experience any of this it has been a tremendous time of growth for me personally, spiritually and in our marriage. We will soon celebrate 27 years, we've had a wonderful marriage but when you go through these times you really understand the vows you took! I am truly blessed and it sounds as if you are too! Talk a lot,share a lot and cry a lot together! The tears and frustration will pass. God bless your day!
On September 11, 2013...
Laura West posted a note for Rebecca that says:
Thinking about you this morning, happy to hear the fluid is coming off. I understand wanting the pleural effusion to resolve, I had that too. It really upset me that I had that, probably the nurse in me making it worse. Sleep at night will get better, it took me quite a while though. It got better once I felt better and was more active to the point that I was really tired at night. One thing I will give you heads up on, a couple of weeks out I started crying randomly. It went on maybe a couple of months. Doctor thought I was depressed but it wasn't. I was so happy to be alive, so thankful that I had made it through. I was hit with the realization that God had allowed them to restart my heart. He didn't have to allow it, He must still have plans for my life. That was really humbling! Sometimes I still tear up thinking about it, like right now! My dad and I talked about it, he beat the widow maker and survived his open heart, he said he felt the same way. You may not experience this but if you do, understand you're not alone or a freak when you're standing in the produce section at the grocery bawling your eyes out! Life is a gift and we just got a second chance! Praise God! Hope you have a great day today!
Rebecca Schneider Thanks, Laura. Have had lots of tears but more from pain or frustration. I am not sure how much I hav ... Read more
Rebecca Schneider Thanks, Laura. Have had lots of tears but more from pain or frustration. I am not sure how much I have thought about the whole thing. It's pretty amazing that He brought us through. I never thought about not making it . I only thought about the pain and actual procedure. My mind would start to visualize it and I would get so freaked out.
I know it was hard on my husband. He had to remove his first wife of 30 years from life support. I did, too, with My first husband of 30 years.. But he said it was so hard sitting watching me trying to wake up and breathe. It brought back such memories. He was in tears and so thankful I made it. I hated he had to go through that. Guess I should be overwhelmed with tears of thankfulness. But my self-centered focus on all the other things have been so distracting.
We walked again this morning to the end of the block. This being dehydrated makes it harder to move but the Lasix is working, thankfully.
Thanks for keeping in touch. Rebecca
Wonderful, wonderful post! I am so pleased you are feeling better. You have had quite a journey. Rebecca, continue to heal. I am sure you will be able to transition back to work and over time have noticeably more energy than before surgery. Continue healing, my friend. Best.
Rebecca