I hope you get some answers about your impending colonosomy that will be to your satisfaction. I am getting one of those soon myself. I did get disappointing news at my last echo that may valve opening is now 1 but surgery has not been recommended at this time for the rest of my heart is functioning fairly well though I have constant vertigo. I am going to investigate this with an inner ear specialist. Take care.
Hi Fran! Hey I had the root-rooter thing in February and I was just off for three days. My gastronomic who Was an AVR survivor himself said the risk is fairly low to go off the Coumadin for a short time because the jet in the AV is so strong. Even if you did have to do heparin it is a self injection and from what I hear not that bad. By the way my anniversary is tomorrow. One year and the time has FLOWN by. I am doing great and feel awesome. Thanks for all the advice and kind words last year.
I wish there was a reply button for guestbook messages.
You asked if I would have robotic surgery again. I have asked myself several times, and I still can't say for certain.. At the time I made the best decision I could based on my reading. What I went through afterwards was such a rare occurrence that I would have had no way of anticipating it. And i can't know the sternal opening would have been any easier.
Life is random. We can only do what we think best at the time.
I see your one year anniversary came a while ago and that you are doing well. We are both grateful for where we are now and that counts the most.
I am glad you are still offering encouragement to people along their journey.
Congratulations on your successful year anniversary from your heart surgery. So glad the journey has been successful though there were problems along the way.
I am approaching Medicare age and want to go to the Cleveland Clinic for my heart surgery. I was going to go with the Traditional Medicare A and B but am not sure which Medicap and Medicare D plan to do with. I live in Florida as well. Would you mind sharing with me what plans you had and how well they covered you at the Cleveland Clinic. If you would rather respond to my personal email that would be fine. I am not sure if you still have it. Let me know. Keep smiling. Linda
Hi Fran, I think you left a message in my guestbook today. I'm new with this journal so am not sure I am responding in the correct way. I had my surgery at Vanderbilt. I understand they can never prepare you for everything...wish I had read ADam's book before the surgery. But I am looking forward each day. I lived with a mitral valve prolapse my whole life and was in great health before the surgery so it was harder for me to deal with the setback. My cardiologist said he really couldn't improve my overall health by the surgery, but it would prevent my heart from deteriorating over time. So for that I am most thankful. Thanks for your note and I will keep thanking God every day for each day and it's blessings.
Congratulations on reaching this milestone with such grace. I have always enjoyed reading the comments you take the time to write in other journals and for one, really appreciate your honesty and candor when writing. Even though you were suffering through some of your own set-backs, you always took the time to try and help make others understand or feel better about their own plight. I`m so glad to call you friend.
Congratulations on your one year anniversary! Mine was March 2 and I like you spent the day reflecting on the day of my surgery. When I think back to that time, I remember all the support I received from you and others on this site. You are a valuable support system with words of wisdom for all who listen. Thank you for all you do, and continued good health is sent your way.
God Bless You,
Fran - Congratulations on reaching this milestone! I am so glad to hear you're doing so well and, at 41 yrs. old, your walking routine puts me to shame. I have always truly appreciated the comments and advice you're given me while I was going through my own ordeal and I know many many others appreciate it just as much. Continue to take excellent care of yourself. You're an amazing woman.
How wonderful to surpass and to celebrate your 1-year mark! Congratulations!! And praise to God! You are dearly loved by all your family and by all of us blessed enough to be your friends. Thanks for all you have meant to us and to my journey! Here's to our journeys ahead, knowing we know who holds the journeys in His hands! We love you!
How are you my dear friend? Seeing Duane's post tonight has shocked me into reconnecting with my HJV special angels - I really don't want to lose touch with you all. Thank you for your recent signing, I don't know where you find the energy to still give everyone your love and support! I am 100% right now and feeling so fit and strong - long may it last! I hope that you are also 'in the pink' and looking forward to your weekend. We have snow yet again!!!
Thanks for your reply to my bra question. If it's not too uncomfortable, I'd rather go without a bra altogether. But I have read that others say this is uncomfortable. Do you have an opinion about that? I'm not huge, but not small either - I guess 36 C - and I really don't like wearing bras ever. I just thought the support might help prevent pulling on the incision line.
I am surprised that the incision goes down as low at the bra band. I thought it would be higher up, but I guess that's pretty much where the hear is located. Appx. how long is the incision? Not that I care about cosmetics (not a all), just trying to figure out the bra thing.
I am uncertain right now about leaving the HVJ. Reading some of the stories causes me enormous anxiety. If I just stick to communicating with certain people I'm ok. So maybe I'll do that. But yesterday and today I have suffered migraines from the anxiety of reading one particular journal and even the Xanax isn't helping much. I tell myself not to look at "those certain journals." But it's kind of addictive and I end up reading them. Ugh!!!! I spend way too much time on the computer researching my issue, watching surgery videos, etc. And that surely is not helping either. After all, I don't thing there is anything out there that I haven't already read 3-4 times. smile.
Thanks very much for your opinions and suggestions. Much appreciated and I hope you are continuing to do very well with your recovery. Ruth
I hope you are continuing to do well and are enjoying life. You had written to me previously. I am having my surgery April 21 - Dr. Gillanov. I have a bra question. I normally don't like wearing one, but I've read that after a sternotomy a bra makes things more comfortable. So . . . I am looking for a sports bra with a front closure. Given the location of the sternotomy, do you recommend a bra with a deep plunge or one that is higher? Do you recommend front closure or back? If front, zipper or hooks? Any advice would be appreciated.
I am so sorry to read about your recent hospital stay. You and Cheryl are the original comforting team on this site, and I know everyone is concerned for your well being. I am glad to hear the hospital stay resolved the issue, but it is still scary to hear that this happened to you. I hope the blood pressure issue is under better control. I know it took some medication tweaking to get my pulse rate at a steady low rate. On a happier note, I hope you enjoyed your grandchild's visit....I am sure he had you on your toes.
Be Well and stay in touch,
I don't have the results of the kidney tests yet. They re-did the blood tests because they were so out of line with all the other blood tests done on me, and they promised to let me know as soon as they got the results, but it's possible they'll just mail them to me if all is OK. I figure no news is good news.
Thanks so much for asking.
Hi Fran, I don't know if you remember me but I am Danny James' Mom who had open heart surgery 6 months ago. Unfortunately, Danny developed endocarditis over the holiday and we have been in the hospital for over a week. It is very scary and he will likely have to have a repeat surgery to replace the now damaged valve in the very near future. Just want you to keep us in your prayers. You really helped me to get through his surgery and minor set backs in the past. Just wanted you to be aware of the newest concern. Thanks, as always, for your positive attitude and support. Mary
I've read your story and journal and am glad to hear that you are now doing so well. I will also be having Dr. Gillanov do my surgery. Has he given you any reason why you experienced the complications you did; fluid in the lungs, blood transfusion, etc? I'm also wondering who he needed to do a full sternotomy rather than a minimally invasive procedure. I'm sure there are reasons for all of this. I am sorry you experienced these issues and wish you well.
Happy New Year friend! It is a new year of promises, hopes and new beginnings. I was reminded of how fragile life is when my beloved 7year old cat ,Winston, died December 27. He had no known health issues and I found him dead the next morning. I was bracing myself for my 14 year old dog to die, but thought I had many more years with him. He was one of a kind who showed nothing but pure love to all three of us. We are all so sad, and once again think heart problems were the likely cause. I am glad I had the short time on earth to share with him...he taught me so much about unconditional love and kindness. Thanks for listening!
I want to wish you and your family a Merry Christmas and Happy New Year. This is indeed a joyous time of the year, and a time to count our blessings. Thank you for all your insight and support, and I love the exercise tape you suggested. I am sticking with it! I hope your blood pressure issues resolve themselves, and continued good health and happiness.
Happy Thanksgiving Fran!
Yous said it----we are all lucky.
I am getting ready for my procedure next Tuesday....actually ;looking forward to just doing it and getting on with the healing.
I am thankful to you for all your kind words of support and offers of help.
God Bless you and all those you love!
Hi Fran, Thank you for visiting my journel. The reason I when to the Dentist was to take care of any infection which might be hiding there. CC told me that if not taken care of it could be a show stopper. There was a small abscess at the base of one of my molars and it has been taken care of. I am now OK to proceed. Good luck and may God bless. Mike H
Hi Fran Sweetie!!
You are such a wonderful lady!!
Happy Anniversary to you and your hubby....
Congratulations on feeling so good and making such progress. Yosemite was a wonderful way to celebrate everything good in your life.
Thanks for the tip on the walking DVD!! I have been a huge fan of Leslie Sansone's for a while now. Just as you said, I often do the dvd when the weather does not cooperate here in NJ.
I had the first of what was to be 2 consults. I went to NY Presbyterian/Weil Cornell (whew!!)and met with Dr. Girardi. My husband and I both liked him very much and he advised me that I needed the surgery sooner rather than later. I decided against pursuing the consult at the Cleveland Clinic because it sounds like I will have my AVR within the next month and Clevleand in the winter and holiday travel issues just make it all sound so overwhelming for me. I so wish I could be a part of that special club with you and others, but it doesn't sound like it's an option for me. My husband is very concerned after the consult and wants me to get this done ASAP! I called to request a date, but am waiting to hear if I
can get on the doctor's schedule within the next few weeks. I won't be getting the Ross procedure; just a bio valve with the smaller incision.
Thanks for all your energy and true interest and concern for everyone on the site.
Be well :-)
Good to hear from you. Yes, I'm going to get the DVD you mentioned. Thank you for the info. I have a tape made my Richard Simmons that is a lot of fun, too. I got it years ago, and used it quite often when working out in the gym on the treadmill.
I hope they find out whats going on, too. Its getting very old, very fast, you know. Keep your fingers crossed.
Congratulations on your 50th. What a great celebration you had! We're only a few years behind.
I must check out that walking DVD when I'm next on Amazon. Sounds good and sometimes a change is good. Right now I either watch tv or read while walking on the treadmill. Once the weather turns cold I usually exercise indoors.
Has it been 8 months already. ARG....Its a good thing we dont feel like it was yesterday. I go in for a follow up Echo Echo Echo the end of this month month month.
I hear the fire ants are really mean this time of year! Life is Grand, God is Good!
Yosemite is one of the places Dwight and I would love to visit some day. I just watched a program on the Park and look forward to going. You have been a wonderful friend to me during my own journey and I thank you for that. I wish you much health as you continue on your journey.
Anything from you brings a smile to my face, and especially so with some a great post! Congratulations to you and Pete on your 50th! That's awesome. We celebrate 33 next month. Of all the places we've been, I love none more than Yosemite National Park. I've taken some of the greatest and roughest hikes of my life into the Yosemite backcountry--the top of Yosemite Falls, the summit of Half Dome twice, and the summit of Cloud's Rest, the higher peak to the left of Half Dome from the valley. Such an amazing display of God's creation! It's also a sacred family location. Peggy's paternal grandparents met as young adults in Curry Village when they both worked at the park. So glad you could go!
Keep kicking butt with that exercise. You go girl!
You guys are amazing people and I feel blessed to have had you as a close friend throughout our recoveries. Jesus has done amazing things for both of us. Let me know if you ever venture to central Florida. There's a welcome mat for you anytime here. And I'll let you know if and when we come to sw FL.
Congratulations on your 50th wedding anniversary! I am so glad your trip was a good experience for you. I too have found myself reflecting back on the past year...this time last year I was preparing to meet with my surgeon.....now I am preparing for the holidays. I feel so grateful and so lucky. I will not live a day of my
Life without being thankful for the gift of life I have been given. I also will not forget each and every person on
This site. Fran.... You have given each of us the gift of faith and hope....I am so thankful to have known you through this site....you are an inspiration.
this site.....Fran ....you are a gift to all of us.....you have given us all hope and faith! I feel a be