Boy is it getting hard to keep everyone straight. Seems like a busy month. In this horse race we are all in, I think I forgot to leave the gate. Everybody will be all fixed than I will be leaving the gate. Hope everything goes good for you
I was just noticing that you live in Cumming, GA. My husband and I were married in the White County Court House what will be 25 years ago in July! We lived in Norcross, GA for a shorttimeand spent a lot of time at Lake Lanier camping with our dogs. I still remember the red clay squishing between my toes.
On a heart related subject.....hope your waiting passes quickly. I'm waiting for a follow up echo to see if it's time for a surgical referral. Knowing you'll have to have surgery but not knowing when is difficult but cant Beas excruciating as waiting for the actual day.
Hey Chuck...who is Chris?? Have I missed someone?? The journal friends increase every day it seems, and I don't want to leave anyone out. Robert Weibe is on for March 14th also. Wow...my head is spinning, I feel so stupid right now...my biggest concern is...my clothes...what to take??? Is that not the dumbest thing? I'm not even worried (well not too much) about flying. I've only flown twice in my life and that was pre-2001, so this is going to be an experience for me. Luckily, my daughter flys frequently for her business, so I will just let her pull me along.
Hope you have a relatively stress free week.
WOW! I been away from the club for a while and just heard about this.
Let me know if there is anything I can do for you.
Having some personal experience with heart trouble that you are well aware of I understand where you are at. Need to talk I'm there for you.
When you get back to 100% and the doc give the nod to start getting the ticker in shape let me get you into cycling. Been a BIG improvement in my mental well being and my heart heath. Get you up to speed you can do some rides with Jay, Paul and I.
Chuck, Glad to hear the good news about cancer. That is such a horrible thing to have. So its always good to hear that someone beat it. You will be on top soon too. Hope you didn't experience any of that bad weather we all had last night. It was horrible. We dodged the bullet thank heaven. I was thinking of you when I heard Gainesville come up on weather channel.
For the long haul
Happy for your friend's great news. Just the mention of the "C" word brings fear and dread and every once in a while an unshakeable bravery and faith. God bless your friend and this just reaffirms how blessed we are to be living in a time when "we can be fixed".
Glad to here that the heart cath went well. I know it's one of those hurdles that we all have to jump. Twenty-three days post-op and feeling better each day.Continued prayers to you and all of our HVJ friends!!
Great news on the heart cath. I was relieved when my turned out the same. For me, the biggest surprise was my doc going through my wrist rather than the groin. I wish I could remember seeing the images; no recall at all due to the sedative. I see we're having our surgeries one week apart -- mine will be Tues. 13 March.
- Jim Smith, Athens, Georgia
Hey Chuck! I'm so happy things are working out well. I have been praying for you, and sending you and your family love and light. I'm signing up for the email updates, so I won't miss a thing. Talk to you soon! (((HUGS)))
At my hospital they made you lie still for 4 hours! You got off easy!!!! Each step closer is a milestone. Glad you got through this one, easily and with great results. Love the wedding pic and the renewal of the vows.
Getting closer Chuck, good for you. Stay strong and don't think too much about it. It is true, the waiting is the harderst part.
I have had two caths; the second one included both the left side and right side. No problem with either. It was interesting because I could see the monitor and watch the probes as the cardiologist was doing the procedure. The part in which the nurse put pressure on the incisions afterwards to get them to seal up was a little bit uncomfortable.
Being still afterwards was a bit tiring, it was more than two hours with me.
The cath is what I feared most - I promise you unless you have your local butcher doing it its nothing ! You're nearing the post now & the bell will ring ! - then you're off !! Best to you. . You'll. Nail this I know. Thinking of you & wil be looking for the notes
Take your iPad w you - after cath you'll play !
Best. Nancy Friedman. St Louis.
Good for you Chuck and Ramona! Lovely wedding picture too, btw.
There is really nothing to the cath Chuck, I predict you will get a kick out of watching. It really is amazing. I was given a little something (I think a little valium), but I have had 3 caths, so by the time of this last one, I was a pro! Afterwards you just can't move the leg or raise your head, but you can move the other leg, your arms, etc. You can turn your head, just not raise it. The time will pass very quickly and in fact I was able to eat very quickly. I did have to lay flat for 4 hours the last time, because my valve area was so narrowed, they were never able to cross the valve and even used some of the older catheters which are larger and easier to maneuver. But even with the longer time, it was okay. I had my own personal, what I called "head nazi" sitting at the foot of my bed telling me "don't raise your head" any time I even looked like I was going to. It was the day before Thanksgiving and I was their only patient, so I did get special attention. So it's not like you are packed in cement unable to move it all.
Good luck and keep us updated on how it turns out.
You are dang right! If we cannot laugh and enjoy life, what is the point?
I, too, outkicked my coverage in the wife area. How did I get so lucky?! 20 years this year and she gets more beautiful each year. Somehow I just get older and grayer!!!
The cath is a piece of cake and you will probably won't remember much of it. Just lay still, nap, listen to music for a few hours and you are home.
Chuck i send this to Jeff & - Linda. & Thot you'd enjoy it as well. You will notice a soulful calmness that will come over you just a few days before. Not sure what. But something does pop up and take over - you will be a peace - and all will be well.
Mark my words! let it take over - release- and engage
It's beautiful. Talk soon. Hugs. Nancy. (2-9-12 it's OVER) Got the OK to fly to keys Thursday so will spend a week or so there. Not too shabby. ! Even bought a recliner ( power) for that condo too. Ha ha) Luv. Nancy
I had a CTA. It is great test and real easy. It is very accurate too BUT it must be a 64 slice CT. You can find out if you have any blockages and also get a "calcium score". Luckily I was all clear and had a ZERO calcium score. I am not sure if this is the same test you are talking about as I think this is around $1000 or so.
Hi Chuck, children are amazing. Thank you for sharing that with all of us. My best friend died unexpectedly in childbirth a few years ago. Now with my upcoming procedure we're having similar talks in our home as to yours. Children respond so well to honest, loving communication.
When you are in testing I will be on a plane to Cleveland Clinic for the big day. You'll be in my thoughts. Stephanie Cole
Great advice Chuck, and good move with your wife. Since, I had a bicuspid aortic valve, my surgeon mentioned there is a higher than normal chance my kids have it too. His suggestion, before they go off to college, have them checked. You can be sure I will be following that advice!!!!!
Chuck...that is exactly how my aneurysm was discovered...I asked my doctor to order a CT. It cannot be seen on the echocardiogram that I was having every six months to monitor the valve. Aneurysms run in my family, my father has one that no surgeon will touch, involves the entire aorta down to his kidneys. Anyway, since there is a strong genetic link to aneurysms I asked for the CT, my doctor obliged and voila!!
Being proactive is the best thing we can do for ourselves. Yes, these things cost money..but sometimes not as much as we think they will.
Wow, Chuck, what a great story. I had tears in my eyes.
Yes, children are amazing!!!! For your reference, my 6 year old is constantly reminding me to 'take it easy' and 'don't do that.'. Running and jumping on me, her all time favorite activities, are just simply not on her radar. She knows to wait until daddy is ready. Again, kids are amazing and a huge source of inspiration.
Thanks for sharing your story. Yes, we are lucky to be fixed, and somehow our children know that.
That was a sad story, but kids understand more than we think they do. When my daughter had her surgery her kids were great to her. They all wanted to take of Mommy. They thought it was fun being a nurse. She talked to them and explained what happened and showed them her badge of courage. But she also had a baby that she had a hard time with.She couldn't pick him up and that upset her. So I would change the baby, feed it and hand it to her so that they could bond.Thats what Grandmas do. Now her daughter wants to come and help me. So cute. Your son will do fine also. Let him help anyway he can and it will help him also.
Until Later Linda H
Okay, I was almost in bed, saw your journal entry and BOOM...now I have to put an ice pack on my eyes or I won't be able to open them in the morning! You made me cry Chuck! Or actually your son made me cry. Soooo sweet and so amazing. You must be so proud. You did a great job by the way!
If you do not have this book and CD, I HIGHLY recommend you get it.
By the way, I have not yet started reading "Of Monkeys and Dragons" but I will soon. I had ordered 3 books and trying to get thru them. The one above is great, along with the relaxation CD.
Great Story Chuck. Such a hard thing to talk about with the kids. And I don't know if mine (15, 11 and 7) REALLY get the magnitude of what it is I am having done. Maybe its better they don't. I pray, for their sake, more than my own, that I am in the 99% that make it through. Tough, tough, stuff!
I hope we can meet too one day. I would really love to see a Valve Journal "union" (can't say reunion since most here have never met prior). Orlando would be a great place for that. Not just because I live here but its Florida and people like to come here. Can make a family trip of it and outside of the big "union" people can go to the parks with the kiddies. Just a thought. What a great way for all of us to meet in person.