Hey Charlie, Here is wishing you the journey of your life. You will come out great and soaring down this mountain. My thoughts and prayers will be with you and your family. God will be there with you holding your hand. Good luck.
Hello Charlie.. Rest assured,tomorrow you will be in everybody s thought and prayers just for you! Starting right now SILENT UNITY in MO.. Will be praying for you and your quick recovery 24/7.
This is the prayer of the Day:
The Healing Light and Life of God flow through me (Charlie) now.
"Then your Light shall break forth like the dawn,and your healing shall Spring up quickly... Isaiah 58.8
God will be by your side to guide the Doctor hand. Just hurry up and get back on your feet. Hugs, joce and Gerry
Charlie, we are thinking about you today and we know that you can't wait to begin feeling better. Our thoughts and prayers are with you as you make this journey to wellness. Sending lot's of love and positive energy your way. Darryl and Eileen
Julia, no flip-flop action please. Eileen
Hey you! Be good...listen to Julia and the doctors..no "dumb man tricks" (my term for not listening) , and keep posting all this good news on your blog..Good luck and get well..I'm not done with you yet!!!
You're in the best of hands. First your faith then family followed by your friends. Can't beat that my friend. Note to Julia: You're Charlie's rock. God is using you at this time. It's time like these that we know that He is there for us.
It's almost game time. You are a player so you know, when the goin' gets tuff, the tuff get goin'. You and Julia are a great team. You will come through all of this as winners. Keep up the great attitude, it will shorten the healing process. Our prayers will be with you both on Thursday and throughout your recovery.
You are probbly waiting to see Dr. R...one of the best. It is Wed. and it looks like beautiful weather there. After you appt. think about going up to the rooftop pavilion. Show Charlie what one of his goals will be....to get well enought to have a 30 min visit up there...he will truly be on the mend when they let him off the floor. Also, on Wed. They have a VERY NICE farmer's market on the grassy area outside the east entrance. They have sandwiches, great cookies and all kinds of unique items that are NOT fruits and veggies. It is just a nice stroll. Ask any of the red coats.
More later....just to know you are in my thoughts.
Hi Charlie and Julia,
Hope that your chins are up high--just think of how good you'll feel when this ordeal is all over! You can go back over all these messages and journal entries and smile, smile, smile! This Journal thing is really interesting--and Julia, you're the perfect wife to keep it going. :-) We will be thinking of you both tomorrow and saying prayers today. Modern medicine is magic! Keep us posted.
Paul and Charlene
Tony and I are thinking about you constantly and wishing you all the very best over the coming days. You are two of the strongest and most committed people I know - and I also know that you will come thru all of this with the brightest of futures awaiting. No two people deserve it more after all that you have been through this year!
Much love and as many good vibes as we can shake up - enlisting all the furry ones to help out (many wagging tails can't hurt) - direct to Cleveland, stat.
Good luck Charlie. You will do great.
It has been almost a year and Half since my Arotic Vave replacement.
I will keep you in my thoughts and prayers.
Also I had my surgery done At the E.C.U. Heart Center in Greenvill N.C.
Take care buddy and saty in touch.
A fellow North Carolina Heart patient.
Charlie & Julia
Both Frank & I are thinking of you and keep you in our prayers. It has been a long time since we visited in NC .......time for another trip and hoping that we can see that Man Cave soon.
You are such a fighter, I know that with your determination, Julia's love and support with Doug and the rest of the family - your journey will be much easier.
Hey CB and Julia !!
Great to see you have everything under control...in 50 years you'll be able to look back on this and laugh
(Remember the old days of medicine when they had to operate..now in 2060 you just take a pill and it fixes itself!)
You are in the best place in the country for this proceedure and I wish you well, buddy. After this we need to get back on a tennis court and see if we still can play...slowly.
You will be fine and you have a great partner in Julia for support. See ya !
Hey Charlie and Julia,
Continue going w God, you two. We are missing you and look forward to seeing you back in Lockwood. Our prayers and thoughts are with you.
Laney is traveling until Aug 17th so kinda lonesome here. Can't wait to get everyone back. Some kind of party soon.
Lots of love, Lois
Charlie & Julia,
hope your trip was uneventful, and that your preparations are going well.
I am sure you are in good hands with your surgical group, and you know that we are pulling and praying for your complete recovery.
Linda & Joe
Good luck with the surgery. I guess you will be fully recovered by the time i see you in April.
You can tell me your stories of everything that happened in your man cave.
I CAN'T BELIEVED YOU ACTUALLY WORKED ON THAT ADDITION AND FINISHED IT FEELING SHITTY.
PS Dr. Chitwood looks like you hired him from an ad agency to make your web page look good
Thought of you BOTH all day today. Hope all went well.
Tuesday will be your fun day. You probably will meet with the surgeon and then probably have the rest of the day free.
In Little Italy I suggest Mama Santas for a REAL Italian experience. Fabulous food. Any of the bakeries will definately ruin your diet.
Also, Grab a taxi, or ask at the front desk if there is a shuttle that can take you to the Warehouse District in downtown Cleveland. There are LOTS of unique restaurants and outside dining options. Only problem might be if it is hot and the humidity. Little Italy is much closer and compact and not as much walking.
GREAT, unique shopping and fabulous dinning at Legacy Village which requires a longer cab ride. Brios etc.
I also suggest you make certain Charlie is familiar with all the possibilities in the hospital for food. Although he will be on a restricted diet, there are great things available for him. I thought I was cheating by purchasing Vitamin Water for Norb and also making him his favorite, Crystal Light and found out it is ALL on his restricted diet. Problem was, Norb was the perfect patient and wouldn't do anything off the record. Finally after 10 days the doc told him to cheat!!! hahah The food they provide is not bad, but Charlie's taste will change because of the anesetic(spelling?) He won't have much of an appetite.
On the floor where his room will be is a great area you have total access to with a frig, coffee, tea, ice, water. The frig is for things he doesn't eat from his tray, but might want later. So order anything you think he might want later. It is also always stocked with frozen fruit pops, ice cream, sherbert and flavored ices.
So glad your supposrt system comes tomorrow.
Also, just outside the Guesthouse on the northeast corner is a drug store where you can purchase drinks, etc so it doesn't cost you a fortune in the hospital.
Also, at Au Bon Pain when you purchase a sandwich, ask for the card where if you purchase 6 you get one free. Every little bit helps.
Tomorrow night I will write somethings to help you make Charlie's and your stay a bit more comfortable, but I don't want to flood you with them now. Will you have access to read posts while Charlie is in surgery?
One think right now. When Charlie gets into his room after intensive care. IMMEDIATELY ask for a recliner. There are only a few on the floors. If one nurse or aid doesn't get it for you ask another. I actually walked the halls looking in empty rooms for one. A great nurse finally got one for Norb from another area of the floor, and it made all the difference giving him somewhere else to rest besides the bed and the straight, hard-backed chairs. Be persistant since Charlie is having back issues.
I'll tell you how to get a great room tomorrow.
Chin up, I PROMISE you, God will walk with you ALL the way. Norb and I had a very prayful momment today when we found out he is NOT back in Afib, and one of our prayers was for you and Charlie. Also, know you have not only made the right decision because it is the best cardiac hospital in the nation, but being away from home we actually found a positive, because if you were near home EVERYONE would want to come see him. There wll be time for that. While in Cleveland Charlie needs to rest. People don't realize how much effort it takes to talk after what they go through. I assure you God will be there. You will feel the presence lift and lifting you when you need it. He will give you the strength FOR BOTH you and Charlie. You'll feel great strength and comfort from all the emails, calls, and texts. You'll know you are loved and supported.
We found ALL, every one, of the nurses to be THE BEST...and Norb was there 14 days because of afib. We saw most of them several times.
Plan on going to your room and sleeping the night after his surgery while he is in intensive care. I was certain I would spend the night, but when you see that his nurse STAYS AT HIS BED ALL THE TIME you will feel very secure. The ICU nurses only have two patients to attend to and they are side-by-side. Norb was NEVER our of their sight. You will need YOUR sleep for the comming days. Besides, you'll be stunned how well Charlie will look and how fast he recovers. Once again, refer to Adam's book.
I'm rambling, but the HVJ folks helped me so much I want to pass it on.
God be With You,
PS. Tomorrow find a wipe off marker or two or three. They seem to be at a premium in the hospital and you'll find them VERY helpful to write on Charlie's board when he walks and does his breathing exercises. Have someone bring them to you if possible. You can't find them in the hospital. I paid $7 for 4 at the drug store.
I'm going to call you that now, OK? You've known me since I'm 15 and its time! We all know you are going to impress the surgeon and staff with your speedy recovery! After all you are a "Messineo" and will have to out-do the rest! The kids and I look forward to a visit this fall!! We love you and want you to know we are sending a ton of positive energy your way!
I love you Dad!
Charilie and Julia - will be thinking of you on Thursday. my husband and I will be at CCF on Friday having some testing and an appointment with Dr. Roselli at 11:30. I will be thinking of Charlie that day as he will probably be in intensive care most of the day. It would be nice to meet both of you but I am sure you wiil be by Charlie's side most of the day. You are both in my prayers.
Take care and God bless,
Denise Kirchner MV Repair 05/29/12
I was in your shoes exactly 4 weeks ago. I'll do my best the help you along. I ASSURE you CC will take EXCELLENT care of Charlie. You must take care of YOU, for Charlie.
Just a couple of quickies...Take WARM sweaters you can layer. It is FREEZING everywhere. Also, pack shoes that do NOT make noise when you walk. When Charlie is trying to rest, you will not want to disturb him. His patience will be thin and he really needs to rest when they aren't interrupting him.
If you and/or Charlie sleep with comfort objects...TAKE THEM!!! I took Norb's pillow and we both are addictied to a sound machine that plays white noise, and I took it which not only allowed him to sleep, but drownd out all the noises in the hall. Take anything that will make him and you more comfortable.
Norb wore his soft cotton running shorts everyday in the hospital.
I have discovered that some of my posts didn't post for Norb, so I'll try again. I woke up thinking of you and Charlie this morning. You have made the BEST decision to go to CCF. Your Dr. is another of the RockStar group of surgeons.
Norb had Dr. Gillinov, but there were also two more cardiac surgeons in the room, and they found another growth that hadn't shown up on ANY test. I'm convinced it is the expertise and experience of the dedicated staff at CCF that made his stay so positive.
Take some quart and gallon ziplock bags for various things.
Also, I was so happy to see you will have support for three days after the surgery.
I will tell you that this sight, all the information, and above all, Adam's book had me TOTALLY prepared for what was to happen. (by the way...TAKE ADAM'S BOOK WITH YOU. I wished a hundred times I had it to refer to.) When Norb went into Afib I was ready for it. But the one thing I was never prepared for was the amount of anxiety I felt watching the love of my life go to surgery and recover. BUT...what got me through it was three things, 1.prayer 2.the knowledge that we were at the BEST cardiac hospital in the US and 3. the support I knew I had from family, friends, and all the HVJers.
You will be AWED tomorrow at the first sight of the building itself. I fell in love with the fountain outside (is this possible?)
Please email me ANY question you have. I'll be anxiously awaiting all your posts.
There are a couple of nice restaurants for you and Charlie to enjoy Sunday and Monday evening. There is one in the Intercontental Hotel. Also, There is one at the Intercontinental Suites which has a nice bar and a very relaxing shaded outdoor area. The Suites are just a short two blocks west of the hospital on Euclid. you can ride the free shuttle to both hotels. We really enjoyed Little Italy with fantastic restaurants. You would need to take a taxi there. It is very close. The cafeteria in the hospital and there is an Au Bon Pain which I found BOTH very good.
Know that Norb and I will pray for you. You are not alone.
Hey Charlie, Yes it is hot here in SC as well. and breathing is hard to do. The humidity is horrible. I havent even been out walking cause Im afraid to. Yesterday went shopping and had to sit down and let my husband finish up, just couldn't do it any more. Soon you will be a lot better and going down the other side of this mountain. Hopfully the weather there will be better. You hang in there. Just take your time in doing any thing right now. Prayers will be with you as well as God.
Hi Julia & Charlie..
Your time is quickly approaching. I did have a great experience at CC, although, I must say, the day of my Pre-op tests was certainly a "lesson in frustration". When they send you your "list of appts." we assumed you must follow it to a tee. Well, my husband & I are both very punctual people....not good in this case. Our very first appt put us over an hour behind!...we worried all day over being late for every appt. As it turns out....this practice is the norm....but when you look at the volumne of people who are doing the same tests that day, there is no way, they can possibly stick to this schedule....it is just a template...and we were told later, you can go "out of order" on the appts. That being said.. I would have had my bloodwork first...it was noon before they could work me in...(i was scheduled at 8:00)...which meant nothing to eat or drink until after then....I was grumpy....lol...(to say the least)...but looking back...it was just my attitude that made me miserable....take your sense of humor that day....you will need it...keep your eye on the prize....take the day of pre-ops for what it is......necessary procedures for the doc to have the "total picture" before you are wheeled into that OR......all will be fine! You both have many, many people praying for you! God will be there with the surgeon...you will feel His presence that day....it is truly an awesome experience...
And one thing remember to take...Linda Dixon recommends the neck pillow.....what a godsend that was for me..my head felt like it weighed 100lbs after surgery and pulled on my neck & incision...I asked for it right away....and it remains my true & constant friend today...almost two weeks out...! :)
Keeping you close in prayer
Hi Charlie and Julia,
God bless you both; you are in so many peoples' hearts and prayers.
had surgery in May; one thing I couldn't live without were two CDs.. "relaxing" piano music.. listened to it on a little CD player, with headphones, over and over... it helped block out the "hospital noise." And if your player requires them, don't forget extra AA batteries!
Best wishes, Kate R
Hi Charlie and Julia, My prayers are out there for both of you. Julia stay strong he will need you a lot. Hope all of the other things clear up before your big day. Soon you will be on top of the mountain going down the other side. I will be following soon after you just dont know date yet.
As far as what to take to hospital I would think that button down shirts would be the easiest to get on and off and everyone says dont forget the chap stick as your lips can get very dry. I hope the very best for you, You will do great and try and relax lol. I know just how you feel.
I am glad you had the chance to travel some and meet your new grandchild and great niece - babies are good for the heart! I am glad to hear he is on hold with the ear problem - one thing at a time - right? Now you can both concentrate on his upcoming heart surgery. I think it is a good idea for you to stay in Cleveland for a few days after discharge. I was blessed to have a sister that lives 20 minutes from the clinic and her and her husband took me under their wings for 5 days after discharge so I could be close by the clinic just in case. All went well and when my husband came back to get me I was in much better shape for the 3 1/2 hour car ride home. You and Charlie continue to be in my prayers. You are going to love Dr. Roselli - a bit of advice - push for your follow-ups are with Dr. Roselli and not the NP - that is my only regret - my 3 follow-ups were with the NP because he was out of town and I so would have liked his personal input regarding my seroma which I am still dealing with. You are both in my thoughts and prayers as you countdown to surgery. Densie Kirchner MV Repair 5/29/12
I am just checking it to see how things are going for you Charlie. Since there haven't been any recent posts I am assuming no news is good news. I am 7 weeks post up and had my final check-up with Dr. Roselli's NP yesterday - he is on vacation so did not get to see him:-( Your surgery is coming up here in a few weeks - can't believe we are halfway through July already. Well, take care and let us know how you are doing. Denise Kirchner
Hi Julia and Charlie, Such a sad story. Sure makes you feel just how much can one handle. My thoughts and prayers will surely be coming your way. There is a purpose for all of this, that we probably dont or even cant understand, but God will take care of you both. Just keep saying the prayers, he will be there for you. Keep us all posted as we will all be worrying with you. Good Luck.
For the long haul
Julia & Charlie...
Lots of prayers and love are being sent your way from Ohio!...
I was so very sorry to read of your new diagnosis! When we are handed these new trials & tribulations it is hard to understand Gods purpose in this. My grandma always said....the devil works extra hard on the believers.....cause he already owns the souls of those that don't!!.. Keep the faith!... HE will never forsake you!... May He keep his loving arms around you as you work through yet another hurdle....and may you find comfort in His loving grace!
Thinking of you both..
Julia and Charlie, So sorry to hear more bad news regarding Charlie's health. You are both in my thoughts and prayers - God is certainly testing your faith! So happy to hear you selected Dr. Roselli for the heart surgery - he is in the top of his field. My husband and I were so impressed with him from the moment we met him. Take care and keep us posted on Charlie's progress. God bless you both. Denise Kirchner MV Repair 5/29/12.
Charlie and Julia - so glad to hear Charlie has a surgery date and he could not have picked a better surgeon. Drl Roselli did my Mitral Valve Repair surgery on May 29th - I am 3 weeks post surgery and doing great - had my follow up with my local cardiologist in Dayton, OH and he said my heart sounds great and my EKG looked great as well. He gave me the clearance to go ahead and take our annual family vacation with the kids and grandkids to Hilton Head Island - we leave on Thursday. We will take our time and split the drive into 2 days so I don't get too sore riding in the car as I am still healing. Even though I cannot get in the water, it will be nice to get away and soak up some SC sun. I will be following your posts to see how you are doing. Take care and God bless. Denise Kirchner MV Repair 05/29/12