Sandy Stein -- sksteinde@yahoo.com posted a note for Adam that says:
Hi Adam -- I wrote a blog post that I would like to share, but am not sure how to go about it or where I should share it to--your blog, or on one of the other HeartValveSurgery.com threads? Also, would I just share the link, or copy and paste the content? I would also like to share it to our FB Heart Valve Surgery Support group, but again, am not sure whether I should just share the link, or do a copy and paste? Could you check it out and let me know? Thanks so much. https://bit.ly/3k43OhC
Adam Pick Hey Sandy, Great to see you got this sorted out and that we were able to fix your heart hospital in t ... Read more
See patient reviews, physician biography and contact information for Dr. Eric Sarin, heart surgeon, in Falls Church, Virginia.
On September 16, 2020...
Rob posted a note for Adam that says:
Hello Adam,
looking for a recommendation on a surgeon at the University of Michigan
aortic regurgitation need surgery after only five years of the first surgery in 2015 ( trifecta cow valve)
On August 12, 2020...
Mark Abbotoy posted a note for Adam that says:
Hi Adam. I've decided to switch my main care from Cleveland Clinic to the Mayo Clinic due to a rare genetic disorder that Mayo Clinic discovered that is related to blood clots forming on my native and replacement valves. I will be getting a cardiac workup while I am there in October. I've had trouble getting information on their valve replacement capabilities and which cardio doctors and surgeons are the best.
I assume they are among the top valve hospitals in the country. Do have any information on Mayo clinic and valve replacements? Names of best doctors, etc.. I would really appreciate any information.
Adam Pick Hi Mark, Unfortunately, I know very little about Mayo and, unfortunately, I know less about their sur ... Read more
Adam Pick Hi Mark, Unfortunately, I know very little about Mayo and, unfortunately, I know less about their surgeons. Over the years, I have tried several times to start a conversation with their team. But, those initial conversations were very quick and didn't really lead anywhere. Ya know... I met Dr. Shaff one time about 10 years ago (for about 3 minutes). I think several patients here have had good results with him but I'm not really sure what his valvular specialties are or are not. That's about all I know. Sorry I can't be of more help on this one.
GARY STANKO I had my mitral valve repaired at Mayo Rochester in 2017. My surgeon was Sammie Said who has since m ... Read more
GARY STANKO I had my mitral valve repaired at Mayo Rochester in 2017. My surgeon was Sammie Said who has since moved on to a University of Minnesota hospital. Adam interviewed him a few weeks ago. My local cardiologist recommended Dr Said so that is why I used him.
Adam Pick Thanks for sharing Gary! Mark, here's some information about Dr. Sameh Said if you're interested - h ... Read more
See patient reviews, physician biography, videos and contact information for Dr. Sameh Said, heart surgeon, in Minneapolis, Minnesota.
Mark Abbotoy Thanks for your input. I'm sure they have good surgeons. It's just seems hard to get information on t ... Read more
Mark Abbotoy Thanks for your input. I'm sure they have good surgeons. It's just seems hard to get information on them.
Rose Madura There was a young man on this site who had tremendous success with Mayo Clinic but I can't remember ... Read more
Rose Madura There was a young man on this site who had tremendous success with Mayo Clinic but I can't remember his name. Hopefully he will see your post and respond. If I think of his name, I'll let you know.
Chris Calhoun posted a note for Adam that says:
Adam,
I am wondering how you feel about testosterone use having had the valve done?
I have not been able to get many opinions on this subject at the site - just people telling me to "ask my doctor"
thanks
Adam Pick Chris, Sorry to be a broken record... But, I would encourage you to speak with your doctor about this ... Read more
Adam Pick Chris, Sorry to be a broken record... But, I would encourage you to speak with your doctor about this question. Best, Adam
On June 30, 2020...
Enrique K posted a note for Adam that says:
Hi Adam, I'm using a Lenovo 360 computer and browser is Chrome. Thanks for checking into it. I couldn't even reply to my post from George Karambinis.
On June 4, 2020...
Susan Lynn posted a note for Adam that says:
Adam - I couldn't post this in Marie's thread. Here's the technical issue I'm experiencing.
I can generally type one comment on a journal thread and it works, but all subsequent entries won't post. It happens when using my phone and laptop. It seems to have started after the last upgrade to the site. Thanks for looking into it.
Adam Pick Hi Susan, Thanks for letting me know. I am working on this now. Sorry about this! Thanks for your p ... Read more
Adam Pick Hi Susan, Thanks for letting me know. I am working on this now. Sorry about this! Thanks for your patience!
Hi Adam, is your sis here. Just wanted to tell you that it’s now six months post op, Praise God! Also, just got our Peloton today and wanted to let you know, hoping to enjoy it as much as you and your family do. Stay safe and blessings
🤗🙏❤️
Herb Greenberg posted a note for Adam that says:
Question for Adam to ask the heart experts: You had a really good interviews, including one with Dr. Gillinov of the Cleveland Clinic, regarding covid and valve patients. Even with all of the info, there still seems to be confusion and a lack of clarity. My own primary care doc says that even though I've had everything repaired (valve, root, AA, CABGx1) that I have heart disease, which in theory puts me at greater risk of complications if I contract the disease. In this podcast from April 1 – https://my.clevelandclinic.org/podcasts/love-your-heart/covid-19-and-your-heart – he says that if your valve has been "repaired" and you have no other issues, such as afib, you are not at greater risk.
But that sparks another question: Repair vs. replacement. Does replacement put you at greater risk of complication than repair? Or was he just being general. You seem to have a direct line into him and others.
Catie B posted a note for Adam that says:
Hi Adam! Another comment on the notifications. The system does notify again. But it notifies under the wrong names. For example, one of my recent notifications says, "Adam Pick and 5 others just commented on Adam Pick's photo which you also posted on." But the thread is Jennifer Winslow's. In other words, I have a string of notifications, but they all cite the wrong name, not the original poster's. Thanks so much for all you do with the site!
Adam Pick Thanks Catie for catching that! I'll do my best to fix it today. So you know, we've been working r ... Read more
Adam Pick Thanks Catie for catching that! I'll do my best to fix it today. So you know, we've been working round the clock to fix the system. It is much harder than most might think. That said, it is such a wonderful tool. Stay tuned.
Catie B Oh, goodness--there's no hurry at all. I thought you might want to know, though. I truly appreciate ... Read more
Catie B Oh, goodness--there's no hurry at all. I thought you might want to know, though. I truly appreciate all your oversight and work and that you make this supportive and informative space available! Thanks, Adam!
Adam Pick Wonderful! Thanks for your patience Catie!!!
On January 21, 2020...
Kimberly Eisenhut posted a note for Adam that says:
Hello,
I am so glad I found this site :)
I feel as if I have been in this all alone, even though my children and mother and sister know what is going on with my valves and aortic aneurysm, they do not talk about it with me or ask how I am. I think maybe it scares them and is easier not to ever mention it, which makes it even harder for me because I do not want to bring it up and worry them.
In the summer of 2016 I had an Echo that showed mild regurgitation in my tricuspid and trivial regurgitation in my mitral valve. I wore a monitor for a couple day because of an irregular EKG and it showed frequent irregular beats, but nothing to worry about. In 2016 and 2017 I had a right heart Cath. because of what they thought was a little high pressure in my chest arteries and slight enlargement of my heart, and thought I may have Pulmonary Hypertension, which was told after that test, I do not. Then had stress test where they put air into the IV to better see things. That test was O.K.
Then in 2017 in summer had my 2nd Echo which showed my tricuspid was now leaking moderate to severely and Mitral was leaking slightly as well as the aortic aneurysm. This is when I was referred to a heart valve specialist at Northwestern In Chicago. My Dr. is Dr. Rigolin, and she sees me once a year now. My last visit was last summer and everything has stayed the same. My aortic aneurysm is still at 4.0-4.1 and Tricuspid is the same as well as the slight enlargement of right side of my heart, which initially led 1st cardiologist to think it was pulmonary hypertension.
I take Pravastatin 20mg once a day (Cholesterol)
Amlodipine Besylate 5mg once a day (blood pressure)
Lisinopril 10mg once a day (blood pressure)
Fluoxetine (Prozac) 20mg, once a day (depression last 27 years)
Clonazepam .25mg 2x a day (anxiety disorder for last 27 years)
Centrum Silver for women (multivitamin) 1 a day
They had me on a low dose aspirin for 3 years, and recently I asked about it again, and now they said maybe I should not take it because of new studies and my aneurysm. (find it interesting they didnt think that earlier, and I even asked several times about it) Ive stopped taking it now.
I saw your interview with Dr. McCarthy at Northwestern in Chicago, and am hopeful to be able to speak with him about my case some day soon. It seems almost impossible to see some of these specialists. They considered me for a study in 2017 but said I did not qualify.
I have medicaid, and hope that is not the reason they are not telling me I need surgery and are taking the "wait and watch" approach.
Thank you for any advice or help you can give, as I feel very much alone. I do not find too many people with the tricuspid problem I have as well as aneuritic aorta and mitral valve leakage also, and if you can help me connect with any one with something similar, I will be forever grateful.
I have recently been having a lot of pain in muscles in my left arm, and hard time lifting anything with my left arm. Dr. says its arthritis or tendons, but I think it may be medications causing issues.
Again, thank you for all you do!
I am a single mother with a 14 year old son, and try so hard to make sure he and my mother are healthy and happy, just need a little help for me sometimes.
Adam Pick Hi Kimberly, Great to meet you and thanks so much for sharing your story with me. I'm glad to hear th ... Read more
Adam Pick Hi Kimberly, Great to meet you and thanks so much for sharing your story with me. I'm glad to hear the website is providing you comfort.
Regarding your situation... I'm so sorry to hear all that you are going through. This can be a very, very, very isolating experience. It can be even more isolating as tricuspid valve disease is not as prevalent as aortic or mitral valve disease.
I'm curious to know... Has your cardiologist given you a timeline on when you might be referred to a surgeon or, perhaps, an interventional cardiologist?
The fact that you have severe TR and an enlarged heart might warrant a second opinion. (Fyi, I got a second opinion for everything.)
Are you familiar with Dr. Charles Davidson in Chicago. He works with Dr. McCarthy at Northwestern and he is a tricuspid valve specialist working on several new technologies. However, considering your aneurysm that might require a surgical intervention to address both cardiac conditions in a single operation.
If you would like to be connected to Dr. Davidson, please let me know. I'll do my best to get you an appointment with him. Here's a video I just filmed with him about the new transcatheter valve therapies he is working on.
https://www.Heart-Valve-Surgery.com - Why is the tricuspid valve considered the "forgotten" valve? What are the symptoms, causes and risks of tricuspid valve...
On January 9, 2020...
Jo Orsini posted a note for Adam that says:
Hello Adam,
Thank you for your ‘Welcome’. Thank you too for this amazing Website and sharing platform! Brilliant!-as the first thing one wants to do when getting a referral to a heart surgeon is speak to others who have travelled that journey. I am sooo grateful to be in the Toronto area and to have been able to get a referral to Dr. Tirone David. I have know about his reputation for over 35 years. I never really wanted to have to meet him in this capacity as Surgeon-Patient....but being at this point with my heart health, I am so grateful that he is the Dr. I get to have. My first consultation with Dr. David is coming up in a couple weeks.
Thank you again,
Jo Orsini
https://www.Heart-Valve-Surgery.com - Get inside access to the 2015 AATS Mitral Conclave as 15 leading heart surgeons and cardiologists discuss the unique be...
On January 8, 2020...
Frank Giovanniello posted a note for Adam that says:
What a Hero ! Thank you for this blog. To find and talk to others that had OHS really helps a great deal. I'm 5 months post Quad Bypass. I've been going to cardio rehab, and it also helped, but right now I only have about 3 more visits. But now i'm the entire class. So no one else to compare the experience. I'm having emotional issues, so I asked the nurses, for the second time about Local Support Groups in the area. I have been trying to google them also with no success. I live in Northeast PA. 18372
Would you have any ideas?
Frank
Hello Frank, yes Adam is a hero and we are all grateful for this blog. I can’t help you with any su ... Read more
Hello Frank, yes Adam is a hero and we are all grateful for this blog. I can’t help you with any support groups in your area but you can always talk to us here. There is always someone with a similar experience that will respond to you. Keep tuning in and asking questions here, someone will answer back. Stay strong and faithful. God bless you
Adam Pick Thanks Frank and Ana! Very, very kind words. But, it is I who should THANK YOU! It is a special op ... Read more
Adam Pick Thanks Frank and Ana! Very, very kind words. But, it is I who should THANK YOU! It is a special opportunity to be able to help others. As for Frank's question, have you heard of Mended Hearts? Perhaps that could help you? They have local chapters all over the country. https://mendedhearts.org/
Susan Lynn Frank - I live in Northeast PA, too. I'm not sure if you are eligible to join Geisinger's Extended c ... Read more
Susan Lynn Frank - I live in Northeast PA, too. I'm not sure if you are eligible to join Geisinger's Extended cardiac rehab class, or if you have any desire to drive to Wilkes Barre twice a week, but those classes are excellent. There are heart patients who have been attending for thirty years since their cardiac procedures. The staff is awesome! It's worth checking into it.
On January 4, 2020...
Hello Adam, can’t thank you enough for this blog. It has helped so much and because of you I got the best surgeon there is to do my surgery “Dr. Starnes”. Your book has been very helpful also. I have a question for you about one of our heart warriors “Brian Tinsley”. I have sent a message since his surgery and he has not posted since 12/18/19.
I’m just worried. Have you heard from him? Hope he is ok. Thanks again,
Ana Brusso
Adam Pick Hi Ana! I didn't know you went to Dr. Starnes! That officially makes you my Surgical Sister! Ha! ... Read more
See patient reviews, physician biography, videos and contact information for Dr. Vaughn Starnes, heart surgeon, in Los Angeles, California.
Yes Adam, we are surgical siblings and so grateful. I have another question, do the left area feels l ... Read more
Yes Adam, we are surgical siblings and so grateful. I have another question, do the left area feels like a pinch sometimes. Why does it do that? I freak out right right away and softly massage the area. I’m almost 6 weeks post op. Has anybody felt that?
On December 7, 2019...
Rose Madura posted a note for Adam that says:
Hi Adam. The notifications have been stuck for several weeks. We've not been getting updates. Hopefully your team is working on a solution but in case you were unaware, I thought I'd let you know. MERRY CHRISTMAS!
Adam Pick Hi Rose, Thanks for letting me know! We are looking into this. Quick question. When you say the no ... Read more
Adam Pick Hi Rose, Thanks for letting me know! We are looking into this. Quick question. When you say the notifications are stuck, does that mean you do not receive the notifications at all? Or, are they delayed in getting to you? Thanks so much for letting me know. Happy Holidays!
Rose Madura Thank you for looking into this. It has been well over a month since I've received any notification. ... Read more
Rose Madura Thank you for looking into this. It has been well over a month since I've received any notification.
Marie Myers I have not gotten any notifications at all for several weeks, either.
On July 26, 2019...
Kathy Blank posted a note for Adam that says:
Adam- I am now 2 1/2 years post op
and still rely on this amazing resource. Did you ever consider creating an app that will make it easier to communicate to the community? That would be something that would enhance the ease of posting and communicating!
On April 4, 2019...
Fay Kozas posted a note for Adam that says:
Happy Birthday, Ethan! Have fun and enjoy! Great photo!
On March 12, 2019...
Claire Kreger-Boaz posted a note for Adam that says:
Hi Adam, thank you for making this amazing website! I have a question about the journal/subscribers. A bunch of family and friends subscribed to mine but aren't getting updates. How does this work? Thank you!
On November 21, 2018...
Fay Kozas posted a note for Adam that says:
Hi Adam, great photo! Thank you for this website. I wish you and yours a blessed Thanksgiving.
On November 18, 2018...
Rob Sparling posted a note for Adam that says:
Adam, Thanks again for this site. What a Godsend! I have been a member of the community only since early September but it seems like the volume of posts has picked up significantly of late. I wonder if site traffic data you see supports that.....
Are there more Heart Warriors joining/posting? Or are folks just more vocal (I.e., more posts per member) because of number of procedures, questions or other milestones being achieved? Or some combo of those or other things?
Sara Moyce posted a note for Adam that says:
Thank you Adam from the bottom of my heart - including my ailing mitral valve. Your book and this site keep me going. I thank God for ALL you have done, and continue to do for so many. Thank you and God bless you!
Louanna Miller I agree. Adam your book is so easy to read and get an understanding about the heart valves, related ... Read more
Louanna Miller I agree. Adam your book is so easy to read and get an understanding about the heart valves, related issues, preparation for surgery, what happens in surgery and recovery. Thank you for this supportive community. It has helped me through the waiting, surgery and now recovery. God bless you.
LINDA ROBERTS This site has meant so much to me. Thank you Adam for creating it for it has been and continues to ... Read more
LINDA ROBERTS This site has meant so much to me. Thank you Adam for creating it for it has been and continues to be a wonderful support.
MARIE PICUN I agree, Adam your book was like a Bible to me. Thank you
On November 16, 2018...
Rachel posted a note for Adam that says:
Adam, Thanks so much for creating this website. It has been beyond helpful as I and my family prepare for surgery early next year. Again, many, many, many thanks!
Adrianne Lane posted a note for Adam that says:
I just wanted to say I love your picture with your son . It’s a wonderful an great picture! Also I’m going to be having heart surgery . I had a heart murmur since birth and now I’m going to be getting a mechanical valve replacement! I’m really scared about surgery.
Leslie Coleman posted a note for Adam that says:
Just ordered your book
Prior to heart valve replacement surgery, how did you handle the anxiety and constant mind games?
James A. Corbett Adam, thank you for starting this site. Last weekend, after having tests done at C-S, I went on YouTu ... Read more
James A. Corbett Adam, thank you for starting this site. Last weekend, after having tests done at C-S, I went on YouTube to find out what Mitral Valve surgery was. I came across your video, “Advances in Mitral Valve Surgery with Dr. David Adams.” GREAT VIDEO. So thanks for starting HVS.com
On August 12, 2018...
Gregory Brummett posted a note for Adam that says:
Hi Adam! Could you recommend a brand of fish oil supplement capsule for me to take (hopefully with minimal or no fishy burps or aftertaste? ) Do you take fish oil capsules? Which one? Thanks & keep on tickin' ! Greg Brummett, DFW TX
Marlise Conrad posted a note for Adam that says:
Hi Adam,
I just really wanted to say thank you so much for making your journey so inclusive and open. We have a great support group physically but not everyone can be so fortunate so this really means more than you can imagine, especially to some! From the book to your personal help with the incision shield- I just can't thank you enough. It was therapeutic for me to give updates and hear everyone's stories and thoughts on Mom's (Marlise) recovery. Just... thank you- words won't ever be enough.
Forever grateful,
Kristina McLamb
Adam Pick Thanks so much Kristina!!! Give my best to your mom!!!
On June 30, 2018...
Marlise Conrad posted a note for Adam that says:
Thanks again for your help re: the shield Adam!!! You are a great person!
On June 30, 2018...
Arlene Merluzzi posted a note for Adam that says:
Dear Adam, your website and book have been very helpful to me over the past 3 years. On October 2, 2015, I had open heart surgery for severe aortic stenosis because of a bicuspid valve. I had it replaced with a bovine bioprosthetic valve at Mount Sinai hospital in New York (my hometown). My daughter found your book before my surgery and it really helped me prepare and know what to expect. Since my surgery, depression has hit me hard as my son walked out on my family shortly after returning home and is now excluding us from his upcoming wedding. Although I’ve had my heart physically fixed, I am still so broken. Lately the stress and depression have caused more chest pain and I am also very disappointed in my aftercare by my cardiologist in Orlando. I haven’t had an echo since May 2016. How often should we be having them? All my best to you!
Diane Maher I hope Adam sees your post, Arlene, but in the meantime I thought I would make a comment that hopeful ... Read more
Diane Maher I hope Adam sees your post, Arlene, but in the meantime I thought I would make a comment that hopefully you find helpful to your situation. It sounds like you have been experiencing depression for a longer than 'normal' period of time and that the depression is correlated to more things than your post-op recovery. Perhaps it is time to consider seeking a referral to another recommended cardiologist in your area to address your post-op care concerning annual tests, depression as well as for general and regular ongoing post-op cardiac care. With regard to your situation with your son, I would really recommend therapy for yourself so you can gain the perspective and understanding that will enable you to live with the consequences of your son's decision without the worry, stress, anger, guilt or other distressing feelings that family upheaval causes on one's emotional and physical well-being. Best wishes for brighter days ahead.
On June 27, 2018...
GERI FRANK posted a note for Adam that says:
Dear Adam
God Bless you and your lovely family! Thank you so much for guiding so many of us thru this perilous journey of open heart surgery. My 4th year anniversary for AORTIC VALVE replacement will be soon July 21st, 2014 at INOVA FAIRFAX DR. ALAN SPEER WAS THE SURGEON, all the information and knowledge I learned from your book HEART VALVE SURGERY helped me to be prepared for the surgery.
I was very fortunate to have a miraculous recovery and I thank you for this warm and wonderful site to share our experience with others.
Geri Frank
Adam Pick Whoa! You just made my day, my month, my year! Thanks so much Geri!! (P.S. I've seen Alan operate ... Read more
Adam Pick Whoa! You just made my day, my month, my year! Thanks so much Geri!! (P.S. I've seen Alan operate before. A great surgeon and very nice man.)
On June 1, 2018...
Susan Lynn posted a note for Adam that says:
Adam - I'm sure someone has recommended this before, but have you thought about holding an annual event so we could meet our fellow heart brothers and sisters? I know Edwards Life Sciences has an invitation-only event for recipients of their products, but I would love to meet the great people on this site!
It's my six-month anniversary, today, and I just wanted to say thanks for your book and creating this resource. I couldn't have done it without you.
John Lant Amen to your post, this web site HeartValveSurgery. Com has been a blessing for me also.
Gina Fiorentino Ditto... and then some! My outlook on life became much more hopeful when I read your Patients Guide, ... Read more
Gina Fiorentino Ditto... and then some! My outlook on life became much more hopeful when I read your Patients Guide, watched the video interviews and found direction. I can't say enough good things about this site and my gratitude to the folks that post here. It has been such a godsend to learn so many new things about my heart and to have the support of this community. Thank you Adam for all that you do!
On May 24, 2018...
Charles Hamel posted a note for Adam that says:
Hi Adam, thanks for this terrific website. I have severe pulmonary regurgitation due to a previous operation for pulmonary stenosis as a child. I was hoping you could connect me with someone who's undergone this same situation and has had a new valve replacement operation? Thanks much.
Charles Hamel Perhaps someone from Maine...
Maine Medical Center. Thanks so much....
Barbara Wood Hi Charles, I didn't have pulmonary regurgitation, but I did have mitral valve regurgitation & had a ... Read more
Barbara Wood Hi Charles, I didn't have pulmonary regurgitation, but I did have mitral valve regurgitation & had a repair last year at Maine Med. Care was excellent, 100 o/o satisfied. Reed Quinn was my surgeon.
Happy to answer any questions you might have :)
Charles Hamel Thanks for replying. Dr Quinn no longer performs surgery and Maine Medical doesn't have a pediatric s ... Read more
Charles Hamel Thanks for replying. Dr Quinn no longer performs surgery and Maine Medical doesn't have a pediatric surgeon right now. I will be going to Boston Children's Hospital. Dr. Ram Emani will be my surgeon.
On May 14, 2018...
Domingo Padilla posted a note for Adam that says:
Hey Adam I see that you had a Pulmonary valve replacement done before along with the other valve. Did you have any complications from the Pulmonary valve replacement? I am scheduled to have mine replaced June 26. I was told they do not go anywhere near the hearts electrical functions doing this valve. Just curious if you had any AFib episodes after surgery.
On May 3, 2018...
Carol Navin posted a note for Adam that says:
Can you tell me an alternative fix for pain relief from the sternal wires. Its been 2 and a half years. I have literally tried everything. Reports are all excellent. (valve, heart , weight, energy.. no restrictions for excercise ect. It was a bicuspid aortic valve replacement, with aneuyrism All good except my pain and soreness in and around scar.. I reall dont want to go through healing an open wound... So i dont wnt to have wires out if at all to be avoided.
On February 24, 2018...
Wanda Blackwood posted a note for Adam that says:
Hey Adam, just wanted to say thanks for making this blog. I really enjoy reading others stories about their journeys through all of this. I do have a question for you- have you heard of aberrant right subclavian artery? I was told I have this and that it's not very common. Any information would be appreciated. Thanks
Debra Langford posted a note for Adam that says:
Thank you for this wonderful website! It has been and will be a source of information and comfort. My surgery is Feb 15 so my anxiety is gaining. It helps to read other peoples stories. Also, I purchased your book and it was a great help. Thank you Adam!
Adam Pick Hi Debra, There is no need to thank me. Actually.. It is I who should Thank You for giving me the sp ... Read more
Adam Pick Hi Debra, There is no need to thank me. Actually.. It is I who should Thank You for giving me the special opportunity to be of service to you during this very challenging time in your life. It is privilege no doubt. February 15 will be a great day. My thoughts and prayers are with you and your medical team!!!
On January 9, 2018...
Wendy Evans posted a note for Adam that says:
Adam, Help! Not sure what questions I should be asking of my doctor...
So 4/2016 my TSH was 1.75 for my thyroid, after surgery 10/2017 it is now 12.23!!!
Is this common? Can It be fixed? What might have happened? I have tried to look up info and can't find much. I got the tests and will be seeing my doctor on the 15th of January. What questions should I ask?
On November 15, 2017...
Ian Robinson posted a note for Adam that says:
Hi Adam, my husband had an aortic valve and root repair a year ago, he's ticking away nicely but has migraines and double vision episodes quite often, are these linked to the surgery? Thanks T.
Adam Pick Hi Ian, I'll post some educational and patient stories below for you! Hope you feel better! Adam
I just received a very interesting email from Mandy about heart valve surgery, vertigo, headaches and vision complications after heart surgery. As you can read
Catie B Oh wow, that's a lot of comments on that link. And the statistic someone cited of 9 in 10,000 coming ... Read more
Catie B Oh wow, that's a lot of comments on that link. And the statistic someone cited of 9 in 10,000 coming away from OHS with visual issues.
For what it's worth, I've had renewed migraine symptoms (they left entirely for 7 years) since the surgery. They're more frequent than ever with stronger auras. And there have been new-onset visual episodes where I still suddenly and temporarily lose a chunk of the field of vision in my right eye. I had neurology and ophthalmology workups before leaving Cleveland and I'm about to have a local eye dr. check me again about the eye issues.
Gerald Poulton I guess everyone is different, I seem to notice my eyesight is a bit off, but I have read that is com ... Read more
Gerald Poulton I guess everyone is different, I seem to notice my eyesight is a bit off, but I have read that is common after OHS. They say not to get an eye test for at least three months as it usually clears up. As for migranes, before I used to get them all the time and sometimes more then one a day, now they are all but gone 😀
On October 20, 2017...
Maria posted a note for Adam that says:
Thanks, Adam, for completing a video from the conference about the annuloplasty rings! Maria
Civita Fahey posted a note for Adam that says:
Hi Adam.. I've thanked you many times for making up this site and I will thank you again.. it got me through my surgery.. I refer any patient I meet that has valve issues to this site.. I sometimes don't get to check in for a day or two and I like to keep up with all my "friends" and may miss a post. I have a hard time finding members if they haven't posted for a while? Is there a search button I don't know about? thanks for all your work, Civita
Tammy Pilcher posted a note for Adam that says:
Adam, I'm so sorry to hear about the passing of your dad. Your tribute to him in the newsletter is beautiful! Keeping you and your family in my prayers. God bless you!
Adam Pick Hi Cindy, Thanks so much for your kind words. This has been an overwhelmingly difficult time for myse ... Read more
Adam Pick Hi Cindy, Thanks so much for your kind words. This has been an overwhelmingly difficult time for myself and my family. He will be missed by me, my family, our friends and his patients (he was a doctor for 35 years). Again, thanks for your note Cindy. Much, much, much appreciated.
Civita Fahey My condolences to you and your family Adam.
Roger Bideleux So sorry tohear of your loss Adam. Condolences to you and your family
Marie Myers May he rest in Peace. Your Dad did a wonderful job raising you...That is a wonderful legacy.
Catie B I'm so sorry, Adam. My heart goes out to you and your family.
Craig Wise I'm so sorry for the loss of your father, Adam. I felt devastated when I lost my Father to cancer, q ... Read more
Craig Wise I'm so sorry for the loss of your father, Adam. I felt devastated when I lost my Father to cancer, quite suddenly in 2007. I offer you my prayers of support which I hope you feel from our entire community.
My sympathy and thoughts are with you and your entire family Adam. He will be missed but he will be w ... Read more
My sympathy and thoughts are with you and your entire family Adam. He will be missed but he will be with you in your thoughts and memories as you move forward.
Laura Jacobs That is sad news indeed Adam. My sincere condolences to you and your family.
Jennifer McInerney I lost my wonderful Dad in November. I miss him dearly but i have the best memories of him and once ... Read more
Jennifer McInerney I lost my wonderful Dad in November. I miss him dearly but i have the best memories of him and once the pain lessens that is what remains and brings comfort. My sincere condolences to you and your family
Shannon Gray My sincere condolences to you and your family. I'll be keeping you in my thoughts.
MaryAnne Jardis so sorry to hear about your Dad's passing. Your memories are now your treasures. The hardest thing i ... Read more
MaryAnne Jardis so sorry to hear about your Dad's passing. Your memories are now your treasures. The hardest thing in life is to lose a parent. We all go through it and try to cope the best way we can. God bless.
Lilly Black My deepest sympathies to you and your family, Adam! take care.....
Condolences to you and your family. You paid a great tribute to your father. I enjoyed reading the ... Read more
Condolences to you and your family. You paid a great tribute to your father. I enjoyed reading the story of his life. Thank you for sharing.
On June 23, 2017...
Valerie Archual posted a note for Adam that says:
Hey Adam! Just wanted to thank you so much for starting this site!!! It has been awesome to talk with other patients!!! Their knowledge is far more valuable than any literature you can read on the subject!!
So I am having PVCS that started 3 weeks post op of mitral valve and ASD repair- I am 5 weeks out now. My surgery was done at the Cleveland Clinic. My home hospital is recommending upping my metropolol from 12.5 x2 a day to 25x2 a day to control the pvcs. I normally run very low blood pressure. They kept me overnight 1 night in hospital but am being sent home now. My blood pressure did at one point get to 80/40 but they still think I should continue the 25mgx2 because they seem to be stopping the pvcs. Anyone else have issues with pvcs at this stage???
Thanks!
Val
No need to thank me! It is I who should be thanking YOU! It's a gift to have created something that has helped you along your journey.
Regarding you question... Unfortunately, I do not have a specific answer for you as I did not have any personal experience with low blood pressure or metropolol.
I just received several great questions from Vielka about the use of Metoprolol after heart valve surgery. In her email, Vielka was interested to learn "Why pat
Valerie Archual Thank you Adam! Trying to get all this figured out, as I know, you know, what I mean! If anyone has i ... Read more
Valerie Archual Thank you Adam! Trying to get all this figured out, as I know, you know, what I mean! If anyone has insight on pvcs after surgery that would be helpful too! At 5 weeks laying around is getting pretty old lol
I've been in a state of constant dizziness for the last couple of days- is it the medicine or the pvcs? Maybe the migraines? Who knows- taking all one day at a time!!! Thank you again Adam for this site and all you do!!
On April 28, 2017...
Enrique K posted a note for Adam that says:
Hi Adam, I have noticed comments from patients in this forum asking about website privacy. How secure is your website? I don't see any encryption or SSL script on your site. You have personal information from each of us and having the site not secured is of great concern. Please look into this with a close eye and I suggest to make changes and protect your site and your followers.
On December 22, 2016...
Steven A Husted posted a note for Adam that says:
MY DEAR ADAM PICK I CAN NOT THANK YOU ENOUGH FOR YOUR BOOK AND THIS SITE YOU WERE A BLESSING RIGHT WHEN I NEEDED ONE THANK YOU AND MAY YOU AND YOUR FAMILY HAVE A MERRY CHRISTMAS AND A HAPPY NEW YEAR GOD BLESS YOU AND YOUR FAMILY YOUR HEART BROTHER STEVEN A HUSTED (POPEYE)
Sadaf Khan posted a note for Adam that says:
Hello Adam's I just read your story and feeling much better now beuz my 4 years old son is suffering heart voulve disease he is going this 8 of December for ross procedure if u can contact wd me I'll highly appreciate many thanks
On September 18, 2016...
Peggy Whitecotton posted a note for Adam that says:
Hi Adam recently my sister had emergency ohs for aortic aneurysm. Another sister had the same surgery several years ago. My sister was told by her surgeon that this is genatic. Have you heard of that before? My sergery was an AVR I did not have an aneurysm.
On September 14, 2016...
Joanne Casserly posted a note for Adam that says:
If it were not for this board, I would never have made it. Thank you for all the hard work that you do. I'm completely free, to go live, my life. God Bless Adam, and thank you again.
Adam Pick Whoa Joanne! You just made my day, my week, my month, my year! So kind of you. But, there is no need ... Read more
Adam Pick Whoa Joanne! You just made my day, my week, my month, my year! So kind of you. But, there is no need to thank me Joanne. It is a gift to be of service for this community. That said... Thank you for the opportunity to help you and all the wonderful, caring and supportive people in this community!
Steven A Husted posted a note for Adam that says:
WOW THOSE VIDEOS ON AORTIC STENOSIS AND THE TAVR ARE OUTSTANDING THEY REALLY GIVE YOU AN UNDERSTANDING OF THE OPERATION THANKS ADAM YOU ARE A GOD SENT TO THE HEART SURGERY COMMUNITY KEEP ON TICKING
Steve Wykstra posted a note for Adam that says:
Hey Adam, can you tell me a bit about the way you set up this wonderful multi-person blog site here. I have a team of semi-retired guys who are working on on a research project, and this structure would be ideal for us. Is it a WordPress thing? Did someone set it up for you or did you do it yourself? I would just love to be able to have the same sort of structure for my team.
If you can give me some hot tips on this, you could email me at steve.wykstra@gmail.com. Thanks. ANd sorry for being a bother. Thanks so much for your work in starting and supporting this webite!
On July 11, 2016...
Tina Maroon posted a note for Adam that says:
Hi Adam, I wanted to thank you for having this website to post about Open Heart Surgery and about our experiences. It has really helped me in the last year. I often wondered if you ever speak to the public where we could go to listen to you. I would love to go listen to you speak or to meet you in person. I also wondered what books you have written and where I could find them. Thanks again Tina Maroon
Cheryle Bird posted a note for Adam that says:
Hi Adam, Like so many others on this site I want to say thank you. Thank you for providing this platform for us with heart valve issues & in my case pending surgery. When I first found out I searched the net and was well aware that this kind of research can often bring 'fear and confusion'. I am so thxful for discovering you and heartvalve surgery.com It really doesn't matter that whilst I am here in Australia the posts I am reading are from the US. What matters is connecting, sharing our story, being encouraged and being heard and that gives us all confidence in taking the steps we need to. I'm having tricuspid valve, which my surgeon has said is rare, and rom reading several posts, to date I haven't come across anyone who has entered into OHS for just that - yet!!! Thanks again to you. (And you'll be happy to hear that I have connected with a girl from Sydney, so I feel she is only several hours away). Keep up the good work, Cheryle
Nicola Laker HI. I'm having repair done on my tricuspid valve as I have the tare condition Ebsteins Anomaly. They ... Read more
Nicola Laker HI. I'm having repair done on my tricuspid valve as I have the tare condition Ebsteins Anomaly. They are also going to do an ablation on the two extra pathways I have through having Wolfe Parkinson White syndrome. I'm due in next week! X
Emily Rowley Lovely message Cheryle, you have a truly beautiful soul. I too am incredibly grateful I cam across th ... Read more
Emily Rowley Lovely message Cheryle, you have a truly beautiful soul. I too am incredibly grateful I cam across this site to meet (be even greater to meet them in person including you Adam) such a wonderful community I can relate too. I would like to see Journal page to be set up to be able to include multiple surgery dates, Surgeons & their tittle for those of us who have had multiple heart valve surgeries, and be able to add in Hospitals from Australia. Thank you once again 😊 Emily from Australia.
Petey Bello Yes Adam, thank you so much for creating this site & writing your book!! It has been 'Pricless' in de ... Read more
Petey Bello Yes Adam, thank you so much for creating this site & writing your book!! It has been 'Pricless' in dealing with this whole journey!!!
Kate Watson Well said Cheryle! Yes thank you, Adam! I couldn't have made it through this difficult time without a ... Read more
Kate Watson Well said Cheryle! Yes thank you, Adam! I couldn't have made it through this difficult time without all the support I found here. So comforting to know we aren't alone in our difficult journeys.
Adam Pick Cheryl, You just made my day, my week, my month, my year. No need to thank me. It is a gift for me to ... Read more
Adam Pick Cheryl, You just made my day, my week, my month, my year. No need to thank me. It is a gift for me to be of service to you during this challenging time. Also, many, many, many smiles to Emily, Petey and Kate as well.
Lynee Casper I agree, there is no better way to prepare yourself for OHS than to talk and learn from others. You m ... Read more
Lynee Casper I agree, there is no better way to prepare yourself for OHS than to talk and learn from others. You make that happen, in a very professional way, with a vast amount of web resources and this community and your compassionate guidance for all of us. Your book about the experience of OHS certainly helped me prepare and understand. Thank you as well!
Cheryle Bird Hey Everyone, Thanks for replying, I'm only just picking up on posts, but here I am almost 3 weeks po ... Read more
Cheryle Bird Hey Everyone, Thanks for replying, I'm only just picking up on posts, but here I am almost 3 weeks post OHS, I'm at home and every day am growing stronger. I'll update my wall shortly.