Geri posted a note for Adam that says:
Thank you Adam for the info on login, I will try it, also if one logs in the edit feature is available
I read that you live in Redondo Beach, I was there about five years ago with the son living in L.A. , as I recall many huge birds flew onto the deck to be fed by the tourist, you southern California folks are so close to wonderful beaches, it is amazing
thank you for this wonderful site, helping folks to handle the trauma of open heart surgery
Ernie Keen posted a note for Adam that says:
Thanks for updating the website and adding new features Adam. I'm not sure I'm too happy with the new patient community layout. New journal entries get pushed down so quickly as people post that if you don't check here often enough, new entries might not get noticed because they're gone to the bottom so fast. Is there a way to be able to see a bunch of the new entries without having to scroll down the page through all the guest posts, photos, and etc?
Also, a lot of new patients ask all the same questions everybody else has asked previously. I read a lot of past patient journals, so a lot of the questions I had were answered in previous patient journals. I'm not sure the new patients can find the past patient's journals. It might help to have a page that has links to past journals in order of their surgeries newest to oldest. I thought maybe that's what Success Stories was, but when I clicked on it, they weren't journals.
Thank you so much for the ability to edit posts. I just wrote a lengthy one to Jerry Kenney and it was so nice to be able to read through it and edit some grammar errors that would have bothered me if I had to leave them. So glad to see the site features coming together. I create websites so I know it's not easy. So thank you!!!!
Joaquim Cimoes posted a note for Adam that says:
I would like to know about the possibility to change my identification to Joaquim by Renata Cimões. If is possible please let me know. This resource is really great, thank you very much. Let me know about your plans to visit Brazil.
Barry posted a note for Adam that says:
Adam - Great job with website! I liked it before and like it more now. The patient updates section is really neat. Learning lots from all the wonderful valve'rs at the community. Way to go and thanks!
Can you bring back the email notice for commenting on guestbook like it used to be? I mean, when I leave someone a guestbook message before, I would get an email when that person replies to my message. That doesn't see to work any more. For example, I wouldn't know if you reply to this message.
Celia posted a note for Adam that says:
Adam, I want to thank you for this website. It has been a blessing for me, mom and my family. The videos are so helpful. We just watched your webinar with Dr. Stewart about aortic valves and aorta surgery. Again, thank you!
Olga Landry posted a note for Adam that says:
Hello Adam. I want to Thank you for taking your time to make this fantastic website and book. They both has helped me so much in the last few month. I have told everyone I know about this site. I thanks to the patiance journal I have met new friends and a wonderful support group for me. It so nice we can learn from other people experiance.
This has ment so much to me. I felt so alone and scared before I found this site. It so nice to see I am not alone.
There is a question I like to ask. I have a few people I know that when I tell them I am having heart surgery there reaction is oh that nothing, you'll be fine. It like they brush it away like I am getting my tonsil out.
It so frustrating they can't understand what I'm going through.
Thank you again for everything you have done.
Jerry H posted a note for Adam that says:
HI Adam thank you for the kind note on my update. As I said, things are going well. So i'll send you a message on LinkedIn but bottom line I am managing healthcare business in North America for a very familiar company and we are working on some really amazing technology to improve the whole patient experience after the operation. My point in reaching out is to give you an update on some of the tech that is in development. From a purely educational stand-point and as a clearing house of information you might find it interesting.
I just wanted to take a moment to send you a BIG thank you for this AWESOME site and all that it is doing for people here. I just got off the phone with one of the people I met here less than 2 months ago and it became very clear to me what this site is all about. To feel totally alone and scared to death because the doctors send your head spinning with the words "Heart Surgery" is very difficult. And when you truly are alone and all you have when you return home from that doctor's visit are the walls to talk to, it can be devastating. You don't know which way to turn. But here we connect, we love one another quickly, we care, we pray and we look out for one another. To be able to bring joy to someone recovering from surgery, someone who at one time not so long ago felt totally alone, is what this is all about. Thank you so much Adam. This site is informational, educational and for many it is a true lifeline. This is God's work. And you made it happen.
Hi Adam, I still see that if you type in my name on the internet my site on here comes up and anyone can enter and read my posts and info . Is this open just like Facebook ? I can find no way to keep anything private on here . Am I missing something ? Thank you and sorry to bug you about this. I know you're all still sorting things out Lynn Quast
Olga Landry posted a note for Adam that says:
Hello Adam, Sorry to keep bothering you. But I can't find the list of my family and friends that join this group to help and support me,
I am not getting email notice about up dates from the friends on the site.
I have to agree with Karen I like how there are comment box underneath there posting. I also like how the day of the surgery are posted as well.
Thank you again for this web site it has helped be so much these couple of months.
OK Adam, this new site format is going to be great. I like that we will now be able to have a string of comments for each conversation without having to go back and forth between the Guestbook and Journals and posting separate entries to comment on a previous post. I think the original format with the guest book may have been meant for people to leave comments for others but we took it to a whole different level and turned it into a social network. This format will accommodate that much better. Thank you!!! For the new format AND for creating this community.
Tony Copeland-Parker posted a note for Adam that says:
I used your book as I would will training to fly a new airplane type. The website is incredible and proved indispensable for the sharing of experiences.
Me being able to put my thoughts for all to see helped my mental health.
Thanks for all you have done for us.
Terrie posted a note for Adam that says:
Hello Adam. I want to wish you and your Family a Happy Memorial Day and give more thanks for starting me off in the right direction with my heart journey. You will not ever know what reading your book did to change my whole attitude/life. This availability to journal back and forth with other "Heart People is an exceptional accomplishment on your part. You, your work and your own Heart Journey have served to help so many! Thank you will never be enough.
Suzanne kosakowski posted a note for Adam that says:
You too Adam enjoy the long weekend. I don't know if you saw the post but I was so touched that you sent a note about my surgery to dr Roselli he spoke well of you and what you do for heart valve surgery patients. Thank you so much for this site and all that you do! What a different experience this would have been without the help of everyone on this site!
Jim Jones posted a note for Adam that says:
Happy Memorial Day to you and your family also! Enjoy the weekend. I hope you have some great family time and also have the chance for some outdoor exercise.
Thanks for the site.
All the best:
Ernie A.S.(After Surgery) posted a note for Adam that says:
Oh yeah. And when I say "Update?" I mean heart, health etc. Not just "Good luck in 2014, and keep on tickin. :)
When's the last time you went to the cardiologist, had an echo, etc. and how is your heart/valve doing and how are you feeling? Do you still exercise and if so how much and what do you do? How is your family? And whatever thoughts you may have about being post op these many years.
Adam,first and foremost, a very happy belated 7yr. anniversary to you!That's truly awesome!Secondly,I would like to thank you for sharing all the good,the bad and even the sometimes ugly, experiences that you went through too. I read the journals and often find you there with your caring comments and support.Please know that you and my new HVJ family have given me the mental strength that will carry me through this.
Hi Adam, just dropping in to say hello and thank you for creating this wonderful place for us to meet other heart valve surgery patients. I am now 7 weeks post-op and doing well. I had my 6 week post-op check-up at CC with Dr. Roselli's NP today and also was able to finally meet Connie T who just had surgery there on Tuesday. It was so neat to actually meet one of my HVJ sisters in person! My husband and I had a wonderful visit with Connie and her husband and plan to get together once Connie is recovered as we live just 50 miles from one another. Once again thanks so much for your book and for starting this on-line support group. It is truely a gift to all of us. Take care and keep on tickin' ! Denise Kirchner MV Repair 5/29/12
Hello, Adam, Robyn, and Ethan! It has been a long time since I have written. I still read the blogs and am an advocate of your awesome book. I am still passing the information. I just wanted to thank you some more. This whole journey that you decided to take has made a difference in my life and the lives of so many others. I know that you know this, but I cannot help but repeat it and thank God some more just for you and your family. Love you guys, Victoria~Baltimore
Adam. Thank-you so much for this book....it has given myself and my husband so much information. Problem is ..... my surgery for Aortic Valve replacement and possible Aortic Root replacement is two days away and I still don't know which valve I want. I'm 55 and in otherwise pretty good health. You had the Ross procedure done and I hear and read it last about the same as a biological valve. How are you feeling about another surgery? Hope you can respond to this soon.
From my heart to yours, Donna Ryan
Hi Adam: I am new to HVJ and will be having my mitral valve repair at Cleveland Clinic on May 29th. My surgeon is Dr. Eric Roselli - from the video on CCF's website, I see he is a friend of yours. I have yet to meet him - that happens on May 25th. I have heard all good thinkgs though.
This website is such a great support and resource for me already. What a wonderful way for heart valve patients to stay connected. My husband Ric and I have both read your book from cover to cover - excellent resource as well! Thanks for all you do, and keep on tickin!
New site is great! You have made an amazing thing even more amazing-er! Thanks for all you do and have done Adam. No way I could have gotten through all of this without your site, the information and this community.
Hi Adam, I like the new look! I did have a question for you regarding security. Every once in a while, I Google myself, just to see what's out there. I was somewhat surprised to find "My Story" pop up. While I don't mind other heart valve surgery folks read about my story, I don't really want just anyone to be able to view my medical info, especially my ex-husband. I periodically Google him too. :o) Is there any way to control the privacy so that only HVJers can read my journal? If not, I understand but I was just curious. I couldn't find anything on how to do this. Thanks. Warm regards, Lily (Cardlin)
Adam, Thank you for sharing your experience openly and candidly in your book. Also thank you for this site as it has done wonders with all the questions I have and making connections with people going through the exact same thing I am going through. Good to see you are still doing well. I wish the best for you and your family.
I am getting ready for my AVR on 2/20 and you book and this site has helped me prepare.
Thank you so much for this journal. I had an Aortic Valve Replacement and an Aortic Repair on December 6th, 2011. I am doing very well. I read your book. I even made a set of you tube videos documenting my journey. Thank you so much.
Hey Adam...You posted a note on my blog after my AVR. It was wonderful to receive your kind words for my recovery, especially after reading your book. It has all been so helpful.
I am 4 weeks post-op tomorrow and my husband and I have reached a rough spot. He is concerned about my "grumpiness" and feels that I am struggling with depression. I feel frustrated that I am still so tired and working so hard to simply try and feel normal again. I know you experienced your own ups and downs during recovery. How did you go about getting help with your emotions? How do you know if you in fact need that help?
Adam...what you have set up has been so helpful for all of us who are in the zipper club with you. I am having to come to terms with this as I sometimes struggle with the surgery that I never wanted in the first place.
Adam, thank you. Without your book I would not have been as prepared as I was for the surgery. I can't believe I am five weeks post op and doing well. I was telling the nurses at OSU about your book. I wish they would provide it for every patient. Thanks again, Jon Farmer
My aortic valve replacement surgery is scheduled for next Monday (July 11th). I wanted to take this time to sincerely thank you for writing your book. I've had it for 2 months, have shared it with coworkers & family. I'm not a computer person at all, but your HVJ site saved my sanity. What a blessing to connect with others such as me! The personal bond I feel for many of the others on this site is something I'll remember forever. Wish I could have hugged each one.
Thanks again for being there for me when I needed it.
I just wanted to take a moment and thank you for your book. My husband, Kent Kersey, (who's here on HVJ), is scheduled to have AVR and a part of his aorta replaced on Thursday. All of this transpired over the course of about 3 weeks, so I was in major "bring on the information" mode. He had read your book last summer in anticipation of this, but I hadn't. I read his e-copy, and quickly ordered a hard copy of my own, so I could actually hold it and refer back to it when necessary.
We had our pre-op appointment today, and I took it with me. When our nurse gave us the hospital's cardio overview book, I pulled out my copy of your book as well. She'd never seen it before, so I told her that she should recommend it to all patients facing heart valve surgery. She copied the name, and said she'd definitely look into that. I will tell our surgeon and cardiologist about it as well.
We are anxious for the surgery, but not nearly as fearful as we would have been without the knowledge gained from your writing. We feel prepared for what will happen before, during, and after surgery, and as a caregiver that is so important to me.
Adam, I am very impressed that you found the time to encourage a Sheila facing an AVR and struggling with her journey. You represent not only the online community with a rare and wonderful heart of concern, but may I be so bold to say that you also wonderfully represent another One who is the motivating Presence within you.
Thank you so much for this site. It has been such a great source of information and support for me. I feel like I have made some good friends here. I passed this website on to my cardiac nurse at St. Vincent's Heart Center of Indianapolis, where I had my surgery. It is an excellent hospital. Thank you for all you do!!
Do you have any information about Julie Taylor of London? She has not posted for quite a while, and I am worried about her. Thank you.
Hey Adam, I would be very interested in your reponse to my response to a comment on my guestbook for Mar 16th on the topic of sweeping pre op bans on ANY supplements, Vitamins, etc., protocols. I ran into this on my pre op. It's rather long read , but I would appreciate any feedback. Thanks again for HVJ's. They are vital to holisitic health, which CANNOT be overstated in terms of surg readiness and post op recovery. You are a godsend.
i just wanted to take a minute to say thank you for this site. The support from this site has been a rock for me. I ran from this surgery once about 8 years because I had No on to talk to about what to expect. I have showed this site to my doctors and the surgeon who will be recommending it to their patients as a method of support. I have been in the hospital now for almost 2 weeks and hopefully will get to go home tomorrow. I have almost no pain now unless i cough or sneeze. I wish I could shake your hand or if you are ever in the Shreveport or Bossier City area of north Louisiana let me treat you to dinner. The south is beutiful. Hats off to you man for the strength you gave me.
just want to say that there's soemthing really special about this here HVJ.
You no doubt haven't enough time to keep up with everything that's going on out there but mere words are so inefficient to describe the help and blessing you have been to others through the sharing of your own heart journey and again the HVJ.
You are a very special person and really do have a HEART for people,
I lost consciousness at work on 1/25/11. Ambulance took me to a nearby hospital. The cardiologist there told me I have a bicuspid aortic valve, severe stenosis and regurgitation. He advised me to have aortic valve replacement surgery right away. I asked for his recommendation re. cardiac surgeons and he said Dr. Marc Moon at Barnes Hospital in St. Louis. I scheduled surgery with him for this Friday, 2/25/11. I know I need the surgery (I've known about the bicuspid aortic valve for some time and I knew that I would need surgery at some point). I'm a bit worried now that I have done no other research re. the best cardiac surgeon for me, other than asking the above mentioned cardiologist (whom I had not met before that incident). I looked for Dr. Marc Moon on your heart valve surgeon data base but did not find him there. Do you know anything about him? Is it too late for me to switch surgeons at this point? Please reply on my HV Journal at your earliest convenience.