{"id":40135,"date":"2025-02-21T22:27:28","date_gmt":"2025-02-22T03:27:28","guid":{"rendered":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/?p=40135"},"modified":"2025-11-07T16:43:30","modified_gmt":"2025-11-07T21:43:30","slug":"daphine-gift-of-life","status":"publish","type":"post","link":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2025\/02\/21\/daphine-gift-of-life\/","title":{"rendered":"It&#8217;s Heart Valve Disease Awareness Day!!!"},"content":{"rendered":"<p>Today, on Heart Valve Disease Awareness Day, let&#8217;s raise awareness to this under-diagnosed disease and celebrate the life-saving heart valve surgery of Daphine, a courageous 12-year old girl from Uganda!<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40151\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/daphine-gift-of-life-child-adam-pick-eric-roselli2.jpg\" alt=\"Gift of Life - Daphine, Adam Pick, Eric Roselli\" width=\"600\" height=\"314\" \/>Dr. Eric Roselli, Daphine and Me<\/p>\n<p><!--more--><\/p>\n<p>&nbsp;<\/p>\n<h2>Daphine&#8217;s Symptoms and Struggles<\/h2>\n<p class=\"p1\">A sweet girl whose smile lights up the room, Daphine was diagnosed with severe rheumatic mitral valve disease.<\/p>\n<p class=\"p1\">As a result, Daphine experienced an overwhelming inability to breathe.\u00a0 She also struggled with fatigue.\u00a0 Her symptoms were so bad that Daphine couldn&#8217;t do the simplest things including eating. Similar to other children with heart valve disease, Daphine was undersized for her age.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-40136\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/Dr.-Mwambu-Tom.jpg\" alt=\"Dr. Tom Mwambu\" width=\"224\" height=\"299\" \/>Dr. Tom Mwambu (Daphine&#8217;s Heart Surgeon)<\/p>\n<p>&nbsp;<\/p>\n<p>Thanks to <a href=\"https:\/\/www.linkedin.com\/in\/tom-mwambu-b1517831\/?originalSubdomain=ug\">Dr. Tom Mwambu<\/a> at the Uganda Heart Institute, Daphine had a successful mitral valve repair that included a ring annuloplasty along with a tricuspid valve repair.\u00a0 <a href=\"https:\/\/med.umn.edu\/bio\/pranava-sinha\">Dr. Pranava Sinha<\/a>, of the University of Minnesota, assisted Dr. Mwambu during Daphine&#8217;s procedure.<\/p>\n<p>&nbsp;<\/p>\n<h2 class=\"p1\">Daphine&#8217;s Post-Op Update<\/h2>\n<p class=\"p1\">After surgery, Daphine is doing great.\u00a0 By her third day post-op, Daphine was eating and cheering that she was not exhausted. As part of her recovery, a nurse handed her a pinwheel and showed Daphine how to use it. Daphine blew with all her might, but the wheel did not turn.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40152\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/daphine-hospital-kitty.jpg\" alt=\"Daphine In Hospital\" width=\"400\" height=\"476\" \/>Daphine With Pinwheel In Hospital<\/p>\n<p>&nbsp;<\/p>\n<p>The nurse then handed her bubbles and within seconds Daphine was sending bubbles across the ICU as she exercised her lungs. Once she was moved to the step-down unit, Daphine blew a strong breath and the pinwheel spun wildly. Her pride and excitement were evident in her huge smile.<\/p>\n<p>&nbsp;<\/p>\n<h2>How Did We Learn About Daphine?<\/h2>\n<p>As you may know, I am passionate about helping children with heart disease.\u00a0 Since launching HeartValveSurgery.com, our community has helped children in El Salvador, Philippines, Nigeria and Uganda get the life-saving, cardiac care they deserve.<\/p>\n<p>Our partner in this work is <a href=\"https:\/\/giftoflifeinternational.org\/\">Gift of Life International<\/a>. Gift of Life is a wonderful, non-profit organization that has helped more than 52,000 children in over 80 countries across 5 continents get treatment for heart disease. In 2024, Gift of Life organized the treatment of more than 5,000 children in just one year. To learn how you can support Gift of Life, <a href=\"https:\/\/giftoflifeinternational.org\/\">click here<\/a>.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" src=\"https:\/\/www.youtube.com\/embed\/WOQQ5hvPN_s?rel=0\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\" data-thumbnail=\"https:\/\/i.ytimg.com\/vi\/gKvZAKA3mYg\/0.jpg\" data-mce-fragment=\"1\"><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<h2>Celebrating Heart Valve Disease Awareness Day!<\/h2>\n<p>It is serendipitous that we could share Daphine&#8217;s success story on Heart Valve Disease Awareness Day.\u00a0 The lack of awareness to valvular disorders including aortic stenosis and mitral regurgitation is downright scary. Consider these statistics:<\/p>\n<ul>\n<li>25,000 people die each year from valvular disorders;<\/li>\n<li>10% of people ages 75 and older have moderate-to-severe heart valve disease; and<\/li>\n<li>30% of Americans over the age of 65 do not know what heart valve disease is.<\/li>\n<\/ul>\n<p>To help raise awareness for Valve Day, we hosted a live educational webinar for our patient community titled, <a href=\"https:\/\/www.heart-valve-surgery.com\/learning\/6-expert-tips-ebook\/\">&#8220;6 Expert Tips for Heart Valve Patients&#8221;<\/a>, with Dr. Doug Johnston, Dr. Melissa Medina and Dr. Kevin Hodges from Northwestern Medicine. Below is a video replay of the webinar that already has over 4,000 views. You can also download a <a href=\"https:\/\/bit.ly\/431LUFx\">free copy of the eBook at this link<\/a>.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/3aryTW5PkJY?si=2M4y5W7dSQV77qaM\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>As you can see below, heart valve experts are showing their support for this special awareness initiative. This is <a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Eric-Roselli-Cleveland-Ohio.php\">Dr. Eric Roselli<\/a>, Chief of Adult Cardiac Surgery at the Cleveland Clinic in Cleveland, Ohio.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40160\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/roselli-valve-day.jpg\" alt=\"Dr. Eric Roselli\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>Here we have <a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Marc-Gerdisch-Indianapolis-Indiana.php\">Dr. Marc Gerdisch<\/a>, Chief of Cardiac Surgery at Franciscan Health in Indianapolis, Indiana.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40157\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/Gerdischday2.jpg\" alt=\"Dr. Marc Gerdisch\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>Here is\u00a0<a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Patrick-McCarthy-Chicago-Illinois.php\">Dr. Patrick McCarthy<\/a>, Executive Director of the Bluhm Cardiovascular Institute at Northwestern Medicine in Chicago, Illinois.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40180\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/mccarthy-valve-day.jpg\" alt=\"Dr. Patrick McCarthy\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>That is\u00a0<a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Vaughn-Starnes-Los+Angeles-California.php\">Dr. Vaughn Starnes<\/a>, my surgeon and the Surgeon-in-Chief of Keck Medicine of USC, and\u00a0<a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Craig-Baker-Los+Angeles-California.php\">Dr. Craig Baker<\/a>, Chief of Cardiac Surgery at Keck Medicine of USC in Los Angeles, California.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40184\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/starnes-baker-valve-day.jpg\" alt=\"Dr. Vaughn Starnes and Dr. Craig Baker Adam Pick\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>And that is <a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Douglas-Johnston-Chicago-Illinois.php\">Dr. Doug Johnston<\/a>, Chief of Cardiac Surgery at Northwestern Medicine in Chicago, Illinois.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40159\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/johnston-valve-day.jpg\" alt=\"Dr. Doug Johnston\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>Here is <a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-William-Brinkman-Plano-Texas.php\">Dr. Bill Brinkman<\/a>, a leading cardiac surgeon from Baylor Scott &amp; White The Heart Hospital &#8211; Plano in Plano, Texas.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40156\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/william-brinkman-valve-day2.jpg\" alt=\"\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>That is <a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Edward-Soltesz-Cleveland-Ohio.php\">Dr. Edward Soltesz<\/a>, the Donna and Ken Lewis Endowed Chair in Cardiothoracic Surgery and the Surgical Director of the Kaufman Center for Heart Failure and Recovery at the Cleveland Clinic.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40161\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/soltesz-ed-valve-day.jpg\" alt=\"Dr. Edward Soltesz\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>That is\u00a0<a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Tom-Nguyen-Miami-Florida.php\">Dr. Tom Nguyen<\/a>, Director of Minimally Invasive Valve Surgery and Chief Medical Executive of Baptist Health Miami Cardiac &amp; Vascular Institute.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40177\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/nguyen-tom-valve-day.jpg\" alt=\"Dr. Tom Nguyen\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>Here we have\u00a0<a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Christopher-Burke-Seattle-Washington.php\">Dr. Chris Burke<\/a>, a leading heart valve specialist from the UW Medicine Heart Institute in Seattle, Washington.<\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-40178\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/burke-valve-day.jpg\" alt=\"Dr. Christopher Burke and Adam Pick\" width=\"500\" height=\"667\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<h2>Thank You! Thank You! Thank You!<\/h2>\n<p>On behalf of Daphine and her family, many thanks to all the wonderful members of the HeartValveSurgery.com community as we celebrate Heart Valve Disease Awareness Day!<\/p>\n<p>Related Links:<\/p>\n<ul>\n<li><a href=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2023\/02\/21\/day\/\">Today Is Heart Valve Disease Awareness Day<\/a><\/li>\n<li><a href=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2024\/10\/21\/nsimire\/\">In Uganda, Nsimire Gets Life-Saving Surgery<\/a><\/li>\n<li><a href=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2022\/12\/07\/johan\/\">We Help Johan Get A Healthy Heart<\/a><\/li>\n<li><a href=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2024\/07\/05\/gift-of-life-patient-patrick\/\">Patrick Readies for Heart Surgery in Uganda<\/a><\/li>\n<li><a href=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2023\/11\/20\/mohammed-patient-success-story\/\">Mohammad Gets Life-Saving Heart Surgery<\/a><\/li>\n<li><a href=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2021\/11\/24\/alfred-gift-of-life-nigeria\/\">On Thanksgiving, We Help Give Life to Lil&#8217; Alfred<\/a><\/li>\n<li><a href=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2021\/04\/07\/gift-of-life-patient-uganda\/\">After COVID-19 Delay, Traver Prepares for Heart Surgery<\/a><\/li>\n<\/ul>\n<p>Keep on tickin&#8217; Daphine!<br \/>\nAdam<\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":40143,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[63],"tags":[],"class_list":["post-40135","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-adams-updates"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/40135","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/comments?post=40135"}],"version-history":[{"count":3,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/40135\/revisions"}],"predecessor-version":[{"id":42889,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/40135\/revisions\/42889"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media\/40143"}],"wp:attachment":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media?parent=40135"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/categories?post=40135"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/tags?post=40135"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}