{"id":24371,"date":"2018-03-21T13:05:11","date_gmt":"2018-03-21T18:05:11","guid":{"rendered":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/?p=24371"},"modified":"2025-02-28T19:41:27","modified_gmt":"2025-03-01T00:41:27","slug":"misdiagnosis-cardiologist","status":"publish","type":"post","link":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/2018\/03\/21\/misdiagnosis-cardiologist\/","title":{"rendered":"My Cardiologist Was Absolutely Wrong!!!"},"content":{"rendered":"<p>Yikes! \u00a0Ugh! \u00a0Gasp! \u00a0Ready to learn why patient education and patient advocacy is so important for patients with heart valve disease?<\/p>\n<p>I almost fell out of my chair when I read this note from <a href=\"https:\/\/www.heart-valve-surgery.com\/journals\/user\/ginafiorentino\">Gina Fiorentino<\/a>, a mitral valve patient and community member, from San Francisco.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-24334\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/gina-heart-valve-repair-patient-castro-dr-1.jpg\" alt=\"\" width=\"400\" height=\"384\" \/>Gina, Michael (husband) and Rocco<\/p>\n<p>&nbsp;<\/p>\n<h2>Gina Writes To Me&#8230;<\/h2>\n<p>Hi Adam,<\/p>\n<p>I&#8217;m five days out from mitral valve repair. I was just released from the hospital today!<\/p>\n<p>It&#8217;s very early in my recovery but I had to reach out and thank you for helping me through this process. Because of you, my prognosis and my LIFE has changed &#8211; much for the better!<\/p>\n<p>As you may recall&#8230; Before I found your website, this past summer, I had been told by a cardiologist that my mitral valve prolapse had progressed. \u00a0But, I was directed &#8211; by the cardiologist &#8211; to sit back and &#8220;wait for symptoms to become intolerable&#8221;.<br \/>\n<!--more--><\/p>\n<p>I was then told by my cardiologist that my mitral valve would eventually need to be&#8230; replaced. The cardiologist also casually informed me that since I was young, I would likely need multiple surgeries &#8212; as valve replacements only last between &#8220;5 and 15 years&#8221;.<\/p>\n<p>Fast forward a few months&#8230; After I was able to regulate myself down from an exhaustively traumatic, high-anxiety response, I started doing research online.\u00a0 Of course, that quickly led me to reading about the possibility of MITRAL VALVE REPAIR, <a href=\"https:\/\/www.heart-valve-surgery.com\/adam-pick-book-2016-35.php\">your book<\/a>, the videos, and other valuable information via your <a href=\"https:\/\/www.heart-valve-surgery.com\/journals\/patient-news-feed.php\">community<\/a>. \u00a0I also learned about\u00a0<a href=\"https:\/\/www.heart-valve-surgery.com\/surgeons\/dr-Luis-Castro-Larkspur-California.php\">Dr. Luis Castro<\/a>.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-24308\" src=\"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/..\/Images\/gina-dr-castro-harmon.jpg\" alt=\"\" width=\"600\" height=\"370\" \/>Gina After Mitral Valve Repair Surgery (with Dr. Castro and team)<\/p>\n<p>&nbsp;<\/p>\n<p>Like many others who have either been improperly diagnosed or not given the most current information, I assumed that my hospital didn&#8217;t offer me a mitral valve repair because I &#8220;missed my window of opportunity&#8221; by not insisting for a new echocardiogram until 5 years after my original diagnosis.\u00a0 I wonder how many people have erroneously believed the valve replacement was inevitable because they didn&#8217;t get a second opinion and\/or trusted the information they had been given is accurate or up to date?<\/p>\n<p>As I begin my recovery, I hope to find ways to give back and support other heart valve patients.\u00a0 I&#8217;ve already thought of sewing heart pillows, becoming an American Heart Association Ambassador.\u00a0 If you can think of more ways I can help on a larger scale, I&#8217;d love to start thinking about those as goals.<\/p>\n<p>Lastly, if you are in the San Francisco Bay area anytime in the near future, my husband and I would love to treat you to dinner.<\/p>\n<p>Thank you &#8220;literally&#8221; from the bottom of my newly mended heart. \ud83d\ude42<\/p>\n<p>Gina<\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":24330,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[40],"tags":[],"class_list":["post-24371","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/24371","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/comments?post=24371"}],"version-history":[{"count":3,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/24371\/revisions"}],"predecessor-version":[{"id":40226,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/posts\/24371\/revisions\/40226"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media\/24330"}],"wp:attachment":[{"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/media?parent=24371"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/categories?post=24371"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.heart-valve-surgery.com\/heart-surgery-blog\/wp-json\/wp\/v2\/tags?post=24371"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}